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Medical Forum / Diseases and Disorders / Epilepsy / November 2004electrical insert
I am not having the "grand mal" seizures (lately anyways) but still have been having the partials and simples quite regularly. I am really reluctant to even check into the Vagus nerve stimulator that I have heard about only in the distance. Does anyone in the group have/or know any one having experience with one??? TIA :) owlvee > I am not having the "grand mal" seizures (lately anyways) but still have > been having the partials and simples quite regularly. I am really [quoted text clipped - 5 lines] > > owlvee Howdy Owlvee! Check out 2 sites: The VNS From A Patient's Point Of View (my site) http://www.howdydave.com/vns.html and VNS Message Board http://s4.invisionfree.com/VNS_Message_Board/index.php?act=idx  SignatureDave ???? http://www.howdydave.com Dave ©¿©¬ wrote: >>I am not having the "grand mal" seizures (lately anyways) but still have >>been having the partials and simples quite regularly. I am really [quoted text clipped - 17 lines] > VNS Message Board > http://s4.invisionfree.com/VNS_Message_Board/index.php?act=idx Forget the first one Owlvee. It just gives garbage in the Mozilla you use. :-( The second one wants to know all about you before it will let you read the website. :-( http://www.epilepsy.com/epilepsy/vns.html will give you information with no hassle. :-) Bob > >>I am not having the "grand mal" seizures (lately anyways) but still have > >>been having the partials and simples quite regularly. I am really [quoted text clipped - 26 lines] > > Bob Howdy Bob! "epilepsy.com" WILL give you information but it isn't very specific. You can't get specific answers to specific questions or find out about patient issues. AFAIK the "VNS Message Board" is just screening out spammers and people who do not have a genuine interest in the device. BTW: Have you attempted to access my site since I changed the character code specifications last month? SignatureDave ???? http://www.howdydave.com Dave ©¿©¬ wrote: > > Howdy Bob! > > "epilepsy.com" WILL give you information but it isn't very specific. Hi Dave > You can't get specific answers to specific questions or find out about > patient issues. It also takes you to http://www.vnstherapy.com/aboutvnsfs.html which has more expansive information. > AFAIK the "VNS Message Board" is just screening out spammers and people who > do not have a genuine interest in the device. I personally don't like sites that collect information about people. The potential for abuse is even higher than the bots that harvest email addresses from newsgroups. I'd rather have the spam. :-) > BTW: Have you attempted to access my site since I changed the character code > specifications last month? I ran a test just before sending that post and it still wasn't working. Didn't want to say that it didn't work if you had fixed it. :-) It still gives a screenfull of garbage in both Mozilla and in Firefox. Bob > > >>I am not having the "grand mal" seizures (lately anyways) but still have > > >>been having the partials and simples quite regularly. I am really [quoted text clipped - 38 lines] > Dave ???? > http://www.howdydave.com Dave. I just clicked on the Mauve link (top here) at 220PM Eastern time, unless you've done any fixes since Bob complained he couldn't open it. It opened FINE on Win.XP for me. Who's that Ugggly guy in the suit ! :-> G./ >>>Dave ©¿©¬ wrote: >>> [quoted text clipped - 55 lines] > Dave. I just clicked on the Mauve link (top here) at 220PM Eastern > time, unless you've done any fixes since Bob complained he couldn't open it. I wasn't "complaining". Just pointing out to Owlvee in advance that the site wouldn't open for him in Mozilla and responding to Dave that I had indeed tested it in Mozilla & Firefox and it still didn't work since his change. > It opened FINE on Win.XP for me. Who's that Ugggly guy in the suit ! > :-> G./ Sorry. WinXP is your operating system (OS)! You are opening it in MS Internet Explorer which is one of the few that will open it. Bob > >>>>>reluctant to even check into the Vagus nerve stimulator that I have > >>>>>heard about only in the distance. Does anyone in the group have/or know > >>>>>any one having experience with one??? > >>>>>TIA :) [quoted text clipped - 26 lines] > >> > >>AFAIK the "VNS Message Board" is just screening out spammers and people who > >>do not have a genuine interest in the device. > >> > >>BTW: Have you attempted to access my site since I changed the character code > >>specifications last month? > >>-- [quoted text clipped - 8 lines] > indeed tested it in Mozilla & Firefox and it still didn't work since his > change. ( I was referring to owlvee? or another post where someone couldn't open Daves' site -- it wasn't your post? that couldn't open it -- I thought you responded when someone said They couldn't open it, and then you said you couldn't either... / ) > > It opened FINE on Win.XP for me. Who's that Ugggly guy in the suit ! > > :-> G./ > > Sorry. WinXP is your operating system (OS)! You are opening it in MS > Internet Explorer which is one of the few that will open it. > Bob So is there a way they can use one of these (**s below) to set up a different route than using Mozilla? I assume those were all the Operating systems he had enabled, in the headers of his original post? i.e. can he Dump Mozilla on one of the other routes to get what he wants, without Howdy having to hire a programmer for one user? . G. Below was cut and pasted out of his headers from earlier post NNTP-Posting-Date: Mon, 1 Nov 2004 06:21:14 +0000 (UTC) User-Agent: Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.4) Gecko/20030624 Netscape/7.1 (ax) **************************************************************************** **** X-Accept-Language: en-us, en Xref: number1.nntp.dca.giganews.com alt.support.epilepsy:66605 >>>Dave. I just clicked on the Mauve link (top here) at 220PM Eastern >>>time, unless you've done any fixes since Bob complained he couldn't open [quoted text clipped - 9 lines] > responded when someone said They couldn't open it, and then you said you > couldn't either... / ) One person who couldn't open it was Dawn Compton and that may have started thesee discussions. She was using WebTV at the time. There were others including anyone who uses Mozilla or Netscape. >>> It opened FINE on Win.XP for me. Who's that Ugggly guy in the suit >>Sorry. WinXP is your operating system (OS)! You are opening it in MS >>Internet Explorer which is one of the few that will open it. [quoted text clipped - 3 lines] > different route than using Mozilla? I assume those were all the Operating > systems he had enabled, in the headers of his original post? You're confusing operating systems with browsers. Browsers are what you use to open & view websites! Windows & Linux are 2 of the OS'es. Mozilla is a browser and will run on both Windows & Linux! Internet Explorer is a browser and only runs on Windows (98, ME, NT, 2000, XP). > i.e. can he > Dump Mozilla on one of the other routes to get what he wants, Why in the world would he do a thing like that? :-) > without Howdy > having to hire a programmer for one user? . G. It's a lot more than just one! In any case, Howdy doesn't need to hire a programmer since he's a good one himself. I was even trying to help but that went nowhere. > Below was cut and pasted out of his headers from earlier post > > User-Agent: Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US; rv:1.4) > Gecko/20030624 Netscape/7.1 (ax) He's running Netscape 7.1 (should upgrade to 7.2) which is a browser that is a flavor of Mozilla. NS modifies Mozilla and puts it's own brand on it. WinNT is the operating system and it is a predecessor of XP. Bob And I felt so "SPECIAL" thinking I was the only one! Don't want to be different........ Guess I will upgrade to 7.2 tonight... Ya know I wonder if Adam and Eve had navels? :) Thanks Bob! :) owlvee >>>> Dave. I just clicked on the Mauve link (top here) at 220PM Eastern >>>> time, unless you've done any fixes since Bob complained he couldn't [quoted text clipped - 53 lines] > > Bob OK! I just upgraded to 7.2......... Still cant get this darn page to work. Must just be my computer so I guess I'm still "special". And I got xp pro by the way. :) http://www.howdydave.com/vns.html ???????? I do know Quantum mechanics are the dreams stuff is made of by the way........ owlvee > And I felt so "SPECIAL" thinking I was the only one! > [quoted text clipped - 69 lines] >> >> Bob > OK! > I just upgraded to 7.2......... [quoted text clipped - 10 lines] > > owlvee Upgrading Netscape (Mozilla) wasn't going to make you able to read that website! :-) It was just a matter of running the latest version with bugfixes etc. But XP has this thing called MSIE (MicroSoft Internet Explorer) available. If you don't have a desktop icon for it, then bring up Windows Explorer if it isn't already running and you can click on Internet Explorer (it's somewhere near the bottom of the list near Networking & Printers etc. I'd be more explicit, but I'd rather not reboot into Win2000 to tell you better. It's 3rd from the bottom in my Win98 BTW). In any case, that will bring up HowdyDave's VNS webpage. Bob >> And I felt so "SPECIAL" thinking I was the only one! >> [quoted text clipped - 74 lines] >>> >>> Bob Yahoo! Yea, I got the explorer browser, but just hate to use it (I guess it's a grudge thing from the past- can't remember why). I didn't understand the jargon about the Mozilla thing that ya'll were speaking of in the earlier posts. I do know I wanted to be like Dave and such (I'm 57 and computers were my dream as Windows was coming out) but my mind went blank right after I had leaned DOS, forgetting about everything except how to turn the thing on. Now I am lucky to be able to read english let alone anything like programming. Anyways, I opened explorer and was able to see Dave's site (thanks Dave!). I'll now go back and read more. Again thanks for the info........ owlvee :) >> OK! >> I just upgraded to 7.2......... [quoted text clipped - 104 lines] >>>> >>>> Bob > Dave ©¿©¬ wrote: > [quoted text clipped - 23 lines] > use. :-( The second one wants to know all about you before it will let > you read the website. :-( > http://www.epilepsy.com/epilepsy/vns.html will give you information > with no hassle. :-) > > Bob Thanks Bob, Me Too as far as just jibberish in the first site (sorry Dave :) . And I usually don't fill out info to get info as such. I just ask you all on this group. I am sure someone has first hand experience to relate. And just remember, if at first you don't succeed, then skydiving isn't for you..... The live broadcast of a VNS implantation surgery was very interesting. The doctors explain things as the surgery is being done and they also answer questions from viewers that were emailed during the surgery. The broadcast has been archived and will be available for one year. http://www.or-live.com/ Select "Treating children with epileptic seizures" on the right side of the page. > I am not having the "grand mal" seizures (lately anyways) but still have > been having the partials and simples quite regularly. I am really [quoted text clipped - 5 lines] > > owlvee > I am not having the "grand mal" seizures (lately anyways) but still have > been having the partials and simples quite regularly. I am really [quoted text clipped - 3 lines] > TIA :) > owlvee I just looked back at this (olde post). If you're only having Auras (simple partials) why would you consider something as invasive as a VNS anyway? If your S.P.'s were from temporal lobe for example, Lorazepam 1 mg **sublingual will put a lid on most Minor Auras. That's a prescription for under $10.? for 30 tablets -- 60-90 days depending how often you got Really Disruptive auras, versus Cost and Invasiveness of that type of surgery? I can see the latter if seizures were Major and not controllable with medications or other means, but to seek it out when (above) you said you're no longer having Grand Mals? I don't understand. But I lie down for blood tests. But the VNS (from Dave's site) is not 'a Penicillin Shot' to have installed. And each 4? 5? years you have to go back to have the Batteries changed -- I don't know how major that is, Dave's site probably lists that ?? G./ >>I am not having the "grand mal" seizures (lately anyways) but still have >>been having the partials and simples quite regularly. I am really [quoted text clipped - 19 lines] > changed -- I don't know how major that is, Dave's site probably lists that > ?? G./ :) I guess "lately" to me means "I don't remember when", sorry.......... me again ~..~ > >>I am not having the "grand mal" seizures (lately anyways) but still have > >>been having the partials and simples quite regularly. I am really [quoted text clipped - 23 lines] > I guess "lately" to me means "I don't remember when", sorry.......... > me again ~..~ If you're taking medication, start a pill log, and write the Time of AM and PM doses if you take them then, whenever you get an Aura (simple partial) note that in the Comments column at Right of that day's 'line' of entries --> I used to use this to remember when I took pills so I didn't take 2 doses in error or Miss a dose, and I took the notepad to the Neuro's so we could see how often I was or wasn't having seizures. Last seizure I had was June 1998, but I still keep the Pill Log and use the 7-day Pill case to make sure I follow the dosing rate prescribed. "If it's not broken (for me), it doesn't need fixing then." G./ |
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