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Medical Forum / Diseases and Disorders / Epilepsy / October 2004

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ian mccabe - 19 Oct 2004 19:45 GMT
hi had a fit 3 1/2 year a go never had 1 since but i get lots of head aches
and pains mostly from the back of my head also lots of neck aches
i get pains that [may sound silly] feels like my eye want to pop out and
hard to seat and read or watch the tv etc
if i shack my head to indicate yes or no i go dizzy
if i start to rush about i can get dizzy and light headed and start to sweat
and feel a little sick
sometime i say the wrong word i know the word i want but it comes out wrong
even if i say it in my head first
has anyone experience  the same or know what could be wrong
been to doctor but he looks at me like im mad or making it you so i have
give up with him
thanks
ian
Bill X - 19 Oct 2004 22:32 GMT
Are you taking medication?  Have you had an EEG, CT, MRI, or other test
performed within the past two years and if so what did they report?  That
information would help those on this group respond to your concerns.

Regards, Bill

> hi had a fit 3 1/2 year a go never had 1 since but i get lots of head aches
> and pains mostly from the back of my head also lots of neck aches
[quoted text clipped - 10 lines]
> thanks
> ian
Notsure - 20 Oct 2004 01:50 GMT
I missed the original post.  Sorry to piggyback off this one.
I also had a grand mal, 4 years go (my only known one).  The grand mal was
accompanied by what I now know to be seizure-like symptoms, that I have
been experiencing off and on since I was a teenager (over 20 yrs ago).  
I've never been diagnosed yet.  I feel that when I explained the *other*
symptoms, (not the one gran mal) that were seizure like, I didn't get them
properly addressed they were ignored and the subject was quickly changed.
I want to go back to my dr now and get the referral to a Neruo that I think
I can trust (I have a name now) so these issues can be acknowledged and I
can know I am not crazy.

My ongoing symptoms are "simple partial" in nature, and it bugs me that it's
the only logical explanation I can reason (that they're actually seizures)
and yet I am paralyzed by fear to try to get it looked at.  After the gm
the eeg came out normal and the mri came out clean.  I was happy that I
didn't have a brain tumor or any of that, but I still felt like there was
unfinished business.

I've got a bit to go on when I go see the neurologist (and I will,
eventually theres a long waitlist for non emergency patients), because the
people here seem to understand by my explanations that it could be
something and it's worth checking out.  It's because of them that I am even
contemplating the neuro appointment.

>> hi had a fit 3 1/2 year a go never had 1 since but i get lots of head
> aches
[quoted text clipped - 13 lines]
>> thanks
>> ian
gaross - 20 Oct 2004 04:39 GMT
 You did a reply earlier to Julie's reply about non-epileptic seizures and
the website she put up.  Did you save or bookmark her Idaho Main Website?
I'll print it again here in a minute.  It's worth having set on Favourites
or Bookmarks for a no. of reasons.   The First Aid for Seizures charts give
a good explanation of what the various seizure types feel like, and what
others can do for First Aid to help. The sensations or behaviours are also
useful if you're not sure which type you might be having.   Some of the
Simple partial ones might be more difficult to diagnose since if they're
milder or more transient, it might be more difficult to cause them to occur
during a Medical Test.
   *Some people (~2 years ago) also had those and the only thing they were
able to relate them to was a Food Allergy or Chemical reaction but they
didn't show up for them on an EEG or MRI.  That's why I wondered if your's
might be difficult to detect for similar reasons.    Some of us were 'lucky'
I guess since when we first were diagnosed they were obvious when we dropped
down unconscious or behaved erratically.    But when the effect is an Aura
or 'just' the Simple Partial type, those might be more difficult to detect
by the Doctors.
  Within the Idaho site also,  I think she has a link to the U.S. Ep.
foundation of America that has a fairly extensive glossary and further
information.   I think it's http://efa.org   but the correct address (if
that's not it)  should be inside this one - http://www.epilepsyidaho.org  .
   Bookmark that site, it's worth it's weight (cyber-netically) in Gold.
:-<

   The article Julie posted earlier for you, was at
http://www.epilepsyidaho.org/nonepileptic.htm  .

   If you happen to like Swimming or Water Sports, there's Also a First Aid
in Water page you should print out.  I swim like a stone, so I just used the
first of the 2 First Aid sites.   I hope some of that helps while you wait
for your Doctors to get organized.  If any of them prescribe any
medications, the efa.org site has a Medications Glossary, although your
pharmacist should give you a printout with any new prescriptions.  Sometimes
they also have the Manufacturer's www link if you ask for it, for any
anti-seizure type pills.     G./

> I missed the original post.  Sorry to piggyback off this one.
> I also had a grand mal, 4 years go (my only known one).  The grand mal was
[quoted text clipped - 37 lines]
> >> thanks
> >> ian
ian mccabe - 20 Oct 2004 18:12 GMT
hi yes had test all ok slight show on eeg im not on medication had test 3.5
years ago
thanks

> hi had a fit 3 1/2 year a go never had 1 since but i get lots of head
> aches and pains mostly from the back of my head also lots of neck aches
[quoted text clipped - 10 lines]
> thanks
> ian
 
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