I missed the original post. Sorry to piggyback off this one.
I also had a grand mal, 4 years go (my only known one). The grand mal was
accompanied by what I now know to be seizure-like symptoms, that I have
been experiencing off and on since I was a teenager (over 20 yrs ago).
I've never been diagnosed yet. I feel that when I explained the *other*
symptoms, (not the one gran mal) that were seizure like, I didn't get them
properly addressed they were ignored and the subject was quickly changed.
I want to go back to my dr now and get the referral to a Neruo that I think
I can trust (I have a name now) so these issues can be acknowledged and I
can know I am not crazy.
My ongoing symptoms are "simple partial" in nature, and it bugs me that it's
the only logical explanation I can reason (that they're actually seizures)
and yet I am paralyzed by fear to try to get it looked at. After the gm
the eeg came out normal and the mri came out clean. I was happy that I
didn't have a brain tumor or any of that, but I still felt like there was
unfinished business.
I've got a bit to go on when I go see the neurologist (and I will,
eventually theres a long waitlist for non emergency patients), because the
people here seem to understand by my explanations that it could be
something and it's worth checking out. It's because of them that I am even
contemplating the neuro appointment.
>> hi had a fit 3 1/2 year a go never had 1 since but i get lots of head
> aches
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>> thanks
>> ian
gaross - 20 Oct 2004 04:39 GMT
You did a reply earlier to Julie's reply about non-epileptic seizures and
the website she put up. Did you save or bookmark her Idaho Main Website?
I'll print it again here in a minute. It's worth having set on Favourites
or Bookmarks for a no. of reasons. The First Aid for Seizures charts give
a good explanation of what the various seizure types feel like, and what
others can do for First Aid to help. The sensations or behaviours are also
useful if you're not sure which type you might be having. Some of the
Simple partial ones might be more difficult to diagnose since if they're
milder or more transient, it might be more difficult to cause them to occur
during a Medical Test.
*Some people (~2 years ago) also had those and the only thing they were
able to relate them to was a Food Allergy or Chemical reaction but they
didn't show up for them on an EEG or MRI. That's why I wondered if your's
might be difficult to detect for similar reasons. Some of us were 'lucky'
I guess since when we first were diagnosed they were obvious when we dropped
down unconscious or behaved erratically. But when the effect is an Aura
or 'just' the Simple Partial type, those might be more difficult to detect
by the Doctors.
Within the Idaho site also, I think she has a link to the U.S. Ep.
foundation of America that has a fairly extensive glossary and further
information. I think it's http://efa.org but the correct address (if
that's not it) should be inside this one - http://www.epilepsyidaho.org .
Bookmark that site, it's worth it's weight (cyber-netically) in Gold.
:-<
The article Julie posted earlier for you, was at
http://www.epilepsyidaho.org/nonepileptic.htm .
If you happen to like Swimming or Water Sports, there's Also a First Aid
in Water page you should print out. I swim like a stone, so I just used the
first of the 2 First Aid sites. I hope some of that helps while you wait
for your Doctors to get organized. If any of them prescribe any
medications, the efa.org site has a Medications Glossary, although your
pharmacist should give you a printout with any new prescriptions. Sometimes
they also have the Manufacturer's www link if you ask for it, for any
anti-seizure type pills. G./
> I missed the original post. Sorry to piggyback off this one.
> I also had a grand mal, 4 years go (my only known one). The grand mal was
[quoted text clipped - 37 lines]
> >> thanks
> >> ian