Medical Forum / Diseases and Disorders / Epilepsy / October 2004
speech problems
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Peter - 17 Oct 2004 03:13 GMT I've been experiencing some speech problems lately. For example in many conversations I use another word than what I meant, like today I mentioned something I did last Saturday but it came out last Wednesday. I also catch myself looking for something like the ketchup and when I ask for help I'll say peanut butter and I don't notice. It's the person I'm conversing with who will normally correct me.
Now it's only happened a bit as of late but I do suffer from complex seizures and am on epival and tegretol. If I do the math is there a possibility this may add up to something?
Or is it just something else or just plain bizarre and I should not really question it?
gaross - 17 Oct 2004 04:58 GMT > I've been experiencing some speech problems lately. For example in many > conversations I use another word than what I meant, like today I mentioned [quoted text clipped - 9 lines] > Or is it just something else or just plain bizarre and I should not really > question it? There's a name for that. Howdy or Bob (two regulars) might know it if they read the group later, then you could try a google search on the symptom. I've never used Epilim, but did you Recently change doses on either of those 2? I know that IF Tegretol level gets too high in our blood, one of the possible symptoms is a drunken disoriented feeling. I don't know if that *alone would cause the word errors you describe at top though. (I use Tegretol and Frisium = Clobazam and have never had that problem while controlling Complex Partial szrs.) Maybe someone else (there are about *5 of us) who use Tegretol will have some ideas over next day or 2. G./
Mary Fisher - 17 Oct 2004 11:24 GMT > There's a name for that. Dysphasia. I either say the wrong word or can't think of the word at all. Interestingly, it rarely happens when I'm typing. When I give a talk in public I take Spouse with me, he know what I'm going to say because he's heard it so often. When I realise I'm stuck I look, very briefly, at him and he says it, it's almost seamless. When I say the wrong thing he puts me right. I welcome it, it's not challenging, rather it's making sure that the audience is given the right information.
It's not a problem. Some people use the wrong words for what they mean all the time, they don't know any better. It's a sign of intelligence and wanting to be right which makes us bother about it.
I don't think there's any solution to it, in my case the part of my brain which controls that part of speech or memory recall was damaged either by my tumour, a seizure or the surgeon's knife - although my surgery was on the right side and,m I understand, the essential brain function is on the left. I don't care which it is, I'm alive, moving and (I claim) sane :-). The alternative is not to be contemplated. Dysphasia is a small price to pay.
Mary
Bob - 17 Oct 2004 16:26 GMT > > I've been experiencing some speech problems lately. For example in many > > conversations I use another word than what I meant, like today I mentioned [quoted text clipped - 13 lines] > they read the group later, then you could try a google search on the > symptom. I'm not familiar with a name unless you're possible thinking of "Angelman syndrome" which wouldn't be applicable in this case <http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Angelman_syndrome?open>
Quoting a few things from the website at http://www.cnn.com/HEALTH/library/DS/00342.html and searching on the keyword "speech"
# Simple partial seizures. These seizures begin from a small area in your brain and don't result in loss of consciousness. They may cause uncontrolled shaking of an arm, leg, or any other part of your body; alter emotions; change the way things look, smell, feel, taste, or sound; or cause speech disturbance.
When to seek medical advice # Your seizure is preceded by a sudden, severe headache or other signs and symptoms of stroke, including weakness or numbness on one side of your body, vision loss, confusion, coordination or speech problems # You change your seizure medication or begin taking other medicines
All of these medications have some side effects, which may include mild fatigue, dizziness and weight gain. More severe side effects include depression, skin rashes, loss of coordination, speech problems and extreme fatigue. Discuss any of these side effects with your doctor as soon as possible. Many people with epilepsy use these medications for years without significant problems. Ask your doctor to explain these issues to you when you receive the prescription.
So it would seem that either the epilepsy or the medication could be causing the speech problems.
Bob
turbinado - 18 Oct 2004 00:47 GMT I've had dysphasia since starting Topamax three years ago, unfortunately switching to Tegretol reduced the problem but did not eliminate it entirely.
> > > I've been experiencing some speech problems lately. For example in many > > > conversations I use another word than what I meant, like today I mentioned [quoted text clipped - 16 lines] > I'm not familiar with a name unless you're possible thinking of "Angelman > syndrome" which wouldn't be applicable in this case <http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Angelman_syn drome?open>
> Quoting a few things from the website at > http://www.cnn.com/HEALTH/library/DS/00342.html [quoted text clipped - 23 lines] > > Bob David Ruether - 17 Oct 2004 15:29 GMT > I've been experiencing some speech problems lately. For example in many > conversations I use another word than what I meant, like today I mentioned [quoted text clipped - 9 lines] > Or is it just something else or just plain bizarre and I should not really > question it? I've had the same questions. My history with this: When things began about a year ago (long story, but I think cumulative oxygen starvation and then sudden oxygen starvation - with a propensity for problems lying in the background), I began to have moderate stuttering (mostly slurring to keep speech going). To treat my other symptoms, I began Topamax, and at a very small dose level, my speech fell apart (extreme stuttering, blurting in the middle of normal sentences, involuntary nonsense speech, nonsense speech when a quick warning was attempted, swapping vowel sounds within a sentence, and worst of all, knowing a word, but being unable to figure out how to go about saying it aloud). I was off all drugs for a couple of months, and speech improved, but not to the point it had been (I still stuttered, with difficulty starting words, and difficulty with dead "stops"). I've been on Depakote ER for a while, and more recently Lamictal has been added. Speech is still difficult at times, with Tourettes like outbursts now added to the stuttering (oh, goody! ;-). I also do not know how much of the speech problem is due to the medication and how much is due to the original condition. Comments from anyone? Good luck with this, and I hope for you that it does not get worse! --DR
Jim Garland - 25 Oct 2004 17:48 GMT Jim here.. I am a long time Tegritol user and I get the slurred speech syndrom and the worst short term memory you can imagine.. But....I agree with Mary,it is a small price to pay.. I actually tell people I am going to blame that mistake or slur on my meds...and most laugh ...ha...most!! and thats' all I care about.. Cheers and stay vertical
> I've been experiencing some speech problems lately. For example in many > conversations I use another word than what I meant, like today I mentioned [quoted text clipped - 9 lines] > Or is it just something else or just plain bizarre and I should not really > question it? gaross - 25 Oct 2004 18:20 GMT Hi. Do you take your Tegretol with Milk, Food or Juice (*not Grapefruit) ? May not be the case, but sometimes if the dose being absorbed is temporarily too high, it supposedly can produce a 'drunk, disoriented' feeling. The Food or Juice is supposed to help it get past stomach to ?? where ever it gets absorbed into the bloodstream. If the pills arrive without some 'buffer' of milk or juice (above) the blood levels might temporarily go higher than target dose? I assume you're using a Timed Release version (Tegretol XR, CR, Retard). If you're not, those types are designed as a slower release that spaces out the absorption rate, and would likely help if your's are just straight Tegretol. The Short Term Memory thing (if it's like mine) comes from the szr. or damage? starting in one of the Temporal Lobes. Mine is right side, but either side is where we store 'new things' before new information gets sorted and filed elsewhere in our brains. Some people also might be affected by whichever med. they use, but several of us have the Memory thing as a result of electrical disruptions in the T.Lobes. (I think ! :-< ) G./
> Jim here.. > I am a long time Tegritol user and I get the slurred speech syndrom and [quoted text clipped - 16 lines] > > Or is it just something else or just plain bizarre and I should not really > > question it? Theo - 27 Oct 2004 06:25 GMT > Hi. Do you take your Tegretol with Milk, Food or Juice (*not > Grapefruit) ? May not be the case, but sometimes if the dose being [quoted text clipped - 47 lines] > really >> > question it? A strange one I get is that once in a while, when taking a hot shower after my morning pills, I get disoriented. I dont know if its a reaction to the water increasing my metabolism or just chance. Has this happened to anyone else?
gaross - 27 Oct 2004 16:19 GMT > > Hi. Do you take your Tegretol with Milk, Food or Juice (*not > > Grapefruit) ? May not be the case, but sometimes if the dose being [quoted text clipped - 9 lines] > > just straight Tegretol. > > The Short Term Memory thing (if it's like mine) comes from the szr. or
> > damage? starting in one of the Temporal Lobes. Mine is right side, > > but either side is where we store 'new things' before new [quoted text clipped - 5 lines] > > "Jim Garland" <> >> Jim here.. > >> I am a long time Tegritol user and I get the slurred speech syndrom and
> >> the worst short term memory you can imagine.. > >> But....I agree with Mary,it is a small price to pay.. [quoted text clipped - 6 lines] > to the water increasing my metabolism or just chance. Has this happened > to anyone else? Probably effect of Water Temperature on heart rate or blood pressure. If you're using the controlled release Tegretol the pills won't start to be absorbed for 2-3? hours after you take them when they reach the Liver ? Or as I listed above, if the pills are *not taken with food or juice, they might be getting absorbed in the stomach faster than some of them are intended to be. G./
Satch - 28 Oct 2004 07:31 GMT > A strange one I get is that once in a while, when taking a hot shower > after my morning pills, I get disoriented. I dont know if its a reaction > to the water increasing my metabolism or just chance. Has this happened > to anyone else? Hi!
Excuse me when I post rubbish as I did not read the whole thread but I passed out a couple of years ago while taking a shower. This was because in the shower room, there was lack of oxygen and the shower was steaming like hell. I fall down, broke my collarbone in my shoulder and even had to be operated. At the moment i have a pin in my shoulder.
Could this be related?
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Marco The Netherlands
Theo - 28 Oct 2004 18:44 GMT >> A strange one I get is that once in a while, when taking a hot shower >> after my morning pills, I get disoriented. I dont know if its a [quoted text clipped - 11 lines] > > Could this be related? I forgot that I also had a grand mal in the shower many years ago, when control was less effective.
turbinado - 30 Oct 2004 01:18 GMT I have had both grand mals and complex partials both in and immediately following a shower.
> >> A strange one I get is that once in a while, when taking a hot shower > >> after my morning pills, I get disoriented. I dont know if its a [quoted text clipped - 14 lines] > I forgot that I also had a grand mal in the shower many years ago, when > control was less effective. Satch - 30 Oct 2004 08:25 GMT Can't tell exactly but my event in the shower which caused me to be operated on the shoulder may have been caused by an epileptic seizure as well. That was ages ago and I have never payed attention to it. I do remember that -while I was passing out, I was desperately trying to hold myself to something. Fact is that I had a fever and I was in the middle of a rehousing operation causing lots of stress. So stress, fever and being physically exhausted could also mean that my seizure threshold was on the wrong side.
Good to know that I am now under supervision of a doctor and diagnosed correctly :-)
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Marco The Netherlands
Daz_n_Pat - 28 Oct 2004 11:16 GMT Hi all,
Patsy here...Darryl's wonderful wife...hehehe...
I know I have not put a post on here for a long time but I thought I might add my two cents worth in. I would like to thank everyone for clarifying to my wonderful, loving and very adorable husband that I am RIGHT and he is WRONG.
We have been having quite a few DISAGREEMENTS in the last few months over the fact that he would blurt something out in the middle of a sentence which was totally off topic and when I point it out to him, he **strongly disagrees** with me and blames my hearing ability.
Darryl is on quite a concoction of meds...105 tablets in a week so having a conversation is fun at the best of times :-) but I love him heaps and wouldn't swap him for anything.
Thanks guys again for proving to my husband that his dear darling wife knows best ;-)
Good luck and all the best
Patsy
> Jim here.. > I am a long time Tegritol user and I get the slurred speech syndrom and [quoted text clipped - 20 lines] >> really >> question it? Mary Fisher - 28 Oct 2004 11:39 GMT > Hi all, > [quoted text clipped - 4 lines] > to my wonderful, loving and very adorable husband that I am RIGHT and he > is WRONG. I wouldn't have expected anything else :-)
> We have been having quite a few DISAGREEMENTS in the last few months over > the fact that he would blurt something out in the middle of a sentence > which was totally off topic and when I point it out to him, he **strongly > disagrees** with me and blames my hearing ability. It goes with dangly bits.
> Darryl is on quite a concoction of meds...105 tablets in a week so having > a conversation is fun at the best of times :-) but I love him heaps and [quoted text clipped - 4 lines] > > Good luck and all the best And to you, Patsy, nice to read you :-)
Mary
> Patsy > [quoted text clipped - 23 lines] >>> really >>> question it?
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