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Medical Forum / Diseases and Disorders / Epilepsy / October 2004

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speech problems

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Peter - 17 Oct 2004 03:13 GMT
I've been experiencing some speech problems lately. For example in many
conversations I use another word than what I meant, like today I mentioned
something I did last Saturday but it came out last Wednesday. I also catch
myself looking for something like the ketchup and when I ask for help I'll
say peanut butter and I don't notice. It's the person I'm conversing with
who will normally correct me.

Now it's only happened a bit as of late but I do suffer from complex
seizures and am on epival and tegretol. If I do the math is there a
possibility this may add up to something?

Or is it just something else or just plain bizarre and I should not really
question it?
gaross - 17 Oct 2004 04:58 GMT
> I've been experiencing some speech problems lately. For example in many
> conversations I use another word than what I meant, like today I mentioned
[quoted text clipped - 9 lines]
> Or is it just something else or just plain bizarre and I should not really
> question it?

There's a name for that.   Howdy or Bob (two regulars)  might know it if
they read the group later, then you could try a google search on the
symptom.
  I've never used Epilim, but did you Recently change doses on either of
those 2?  I know that IF Tegretol level gets too high in our blood, one of
the possible symptoms is a drunken disoriented feeling.   I don't know if
that *alone would cause the word errors you describe at top though.   (I use
Tegretol and Frisium = Clobazam and have never had that problem while
controlling Complex Partial szrs.)
   Maybe someone else (there are about *5 of us)  who use Tegretol will
have some ideas over next day or 2.   G./
Mary Fisher - 17 Oct 2004 11:24 GMT
> There's a name for that.

Dysphasia. I either say the wrong word or can't think of the word at all.
Interestingly, it rarely happens when I'm typing. When I give a talk in
public I take Spouse with me, he know what I'm going to say because he's
heard it so often. When I realise I'm stuck I look, very briefly, at him and
he says it, it's almost seamless. When I say the wrong thing he puts me
right. I welcome it, it's not challenging, rather it's making sure that the
audience is given the right information.

It's not a problem. Some people use the wrong words for what they mean all
the time, they don't know any better. It's a sign of intelligence and
wanting to be right which makes us bother about it.

I don't think there's any solution to it, in my case the part of my brain
which controls that part of speech or memory recall was damaged either by my
tumour, a seizure or the surgeon's knife - although my surgery was on the
right side and,m I understand, the essential brain function is on the left.
I don't care which it is, I'm alive, moving and (I claim) sane :-). The
alternative is not to be contemplated. Dysphasia is a small price to pay.

Mary
Bob - 17 Oct 2004 16:26 GMT
> > I've been experiencing some speech problems lately. For example in many
> > conversations I use another word than what I meant, like today I mentioned
[quoted text clipped - 13 lines]
> they read the group later, then you could try a google search on the
> symptom.

I'm not familiar with a name unless you're possible thinking of  "Angelman
syndrome" which wouldn't be applicable in this case
<http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Angelman_syndrome?open>

Quoting a few things from the website at
http://www.cnn.com/HEALTH/library/DS/00342.html
and searching on the keyword "speech"

#  Simple partial seizures.
These seizures begin from a small area in your brain and don't result in loss of
consciousness. They may cause uncontrolled shaking of an arm, leg, or any other
part of your body; alter emotions; change the way things look, smell, feel,
taste, or sound; or cause speech disturbance.

When to seek medical advice
# Your seizure is preceded by a sudden, severe headache or other signs and
symptoms of stroke, including weakness or numbness on one side of your body,
vision loss, confusion, coordination or speech problems
# You change your seizure medication or begin taking other medicines

All of these medications have some side effects, which may include mild fatigue,
dizziness and weight gain. More severe side effects include depression, skin
rashes, loss of coordination, speech problems and extreme fatigue. Discuss any
of these side effects with your doctor as soon as possible. Many people with
epilepsy use these medications for years without significant problems. Ask your
doctor to explain these issues to you when you receive the prescription.

So it would seem that either the epilepsy or the medication could be causing the
speech problems.

Bob
turbinado - 18 Oct 2004 00:47 GMT
I've had dysphasia since starting Topamax three years ago, unfortunately
switching to Tegretol reduced the problem but did not eliminate it entirely.

> > > I've been experiencing some speech problems lately. For example in many
> > > conversations I use another word than what I meant, like today I mentioned
[quoted text clipped - 16 lines]
> I'm not familiar with a name unless you're possible thinking of  "Angelman
> syndrome" which wouldn't be applicable in this case

<http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Angelman_syn
drome?open>

> Quoting a few things from the website at
> http://www.cnn.com/HEALTH/library/DS/00342.html
[quoted text clipped - 23 lines]
>
> Bob
David Ruether - 17 Oct 2004 15:29 GMT
> I've been experiencing some speech problems lately. For example in many
> conversations I use another word than what I meant, like today I mentioned
[quoted text clipped - 9 lines]
> Or is it just something else or just plain bizarre and I should not really
> question it?

I've had the same questions. My history with this:
When things began about a year ago (long story,
but I think cumulative oxygen starvation and then
sudden oxygen starvation - with a propensity for
problems lying in the background), I began to have
moderate stuttering (mostly slurring to keep speech
going). To treat my other symptoms, I began
Topamax, and at a very small dose level, my speech
fell apart (extreme stuttering, blurting in the middle
of normal sentences, involuntary nonsense speech,
nonsense speech when a quick warning was
attempted, swapping vowel sounds within a
sentence, and worst of all, knowing a word, but
being unable to figure out how to go about
saying it aloud). I was off all drugs for a couple
of months, and speech improved, but not to
the point it had been (I still stuttered, with
difficulty starting words, and difficulty with dead
"stops"). I've been on Depakote ER for a while,
and more recently Lamictal has been added.
Speech is still difficult at times, with Tourettes
like outbursts now added to the stuttering (oh,
goody! ;-). I also do not know how much of
the speech problem is due to the medication
and how much is due to the original condition.
Comments from anyone?
Good luck with this, and I hope for you that it
does not get worse!
--DR
Jim Garland - 25 Oct 2004 17:48 GMT
Jim here..
 I am a long time Tegritol user and I get the slurred speech syndrom and
the worst short term memory you can imagine..
 But....I agree with Mary,it is a small price to pay..
I actually tell people I am going to blame that mistake or slur on my
meds...and most laugh ...ha...most!! and thats' all I care about..
Cheers and stay vertical
> I've been experiencing some speech problems lately. For example in many
> conversations I use another word than what I meant, like today I mentioned
[quoted text clipped - 9 lines]
> Or is it just something else or just plain bizarre and I should not really
> question it?
gaross - 25 Oct 2004 18:20 GMT
Hi.  Do you take your Tegretol with Milk, Food or Juice (*not Grapefruit) ?
May not be the case, but sometimes if the dose being absorbed is temporarily
too high, it supposedly can produce a 'drunk, disoriented' feeling.   The
Food or Juice is supposed to help it get past stomach to ?? where ever it
gets absorbed into the bloodstream.   If the pills arrive without some
'buffer' of milk or juice (above)  the blood levels might temporarily go
higher than target dose?
  I assume you're using a Timed Release version (Tegretol XR, CR, Retard).
If you're not, those types are designed as a slower release that spaces out
the absorption rate, and would likely help if your's are just straight
Tegretol.
   The Short Term Memory thing (if it's like mine) comes from the szr. or
damage? starting in one of the Temporal Lobes.  Mine is right side, but
either side is where we store  'new things'  before new information gets
sorted and filed elsewhere in our brains.   Some people also might be
affected by whichever med. they use, but several of us have the Memory thing
as a result of electrical disruptions in the T.Lobes.   (I think ! :-<  )
G./

> Jim here..
>   I am a long time Tegritol user and I get the slurred speech syndrom and
[quoted text clipped - 16 lines]
> > Or is it just something else or just plain bizarre and I should not really
> > question it?
Theo - 27 Oct 2004 06:25 GMT
> Hi.  Do you take your Tegretol with Milk, Food or Juice (*not
> Grapefruit) ? May not be the case, but sometimes if the dose being
[quoted text clipped - 47 lines]
> really
>> > question it?

A strange one I get is that once in a while, when taking a hot shower
after my morning pills, I get disoriented. I dont know if its a reaction
to the water increasing my metabolism or just chance. Has this happened
to anyone else?
gaross - 27 Oct 2004 16:19 GMT
> > Hi.  Do you take your Tegretol with Milk, Food or Juice (*not
> > Grapefruit) ? May not be the case, but sometimes if the dose being
[quoted text clipped - 9 lines]
> > just straight Tegretol.
> >     The Short Term Memory thing (if it's like mine) comes from the
szr. or
> > damage? starting in one of the Temporal Lobes.  Mine is right side,
> > but either side is where we store  'new things'  before new
[quoted text clipped - 5 lines]
> > "Jim Garland" <> >> Jim here..
> >>   I am a long time Tegritol user and I get the slurred speech syndrom
and
> >> the worst short term memory you can imagine..
> >>   But....I agree with Mary,it is a small price to pay..
[quoted text clipped - 6 lines]
> to the water increasing my metabolism or just chance. Has this happened
> to anyone else?

Probably effect of Water Temperature on heart rate or blood pressure.  If
you're using the controlled release Tegretol the pills won't start to be
absorbed for 2-3?  hours after you take them when they reach the Liver ?
   Or as I listed above, if the pills are *not taken with food or juice,
they might be getting absorbed in the stomach faster than some of them are
intended to be.   G./
Satch - 28 Oct 2004 07:31 GMT
> A strange one I get is that once in a while, when taking a hot shower
> after my morning pills, I get disoriented. I dont know if its a reaction
> to the water increasing my metabolism or just chance. Has this happened
> to anyone else?

Hi!

Excuse me when I post rubbish as I did not read the whole thread but I
passed out a couple of years ago while taking a shower. This was because in
the shower room, there was lack of oxygen and the shower was steaming like
hell. I fall down, broke my collarbone in my shoulder and even had to be
operated. At the moment i have a pin in my shoulder.

Could this be related?

Signature

Thanks.

Marco
The Netherlands

Theo - 28 Oct 2004 18:44 GMT
>> A strange one I get is that once in a while, when taking a hot shower
>> after my morning pills, I get disoriented. I dont know if its a
[quoted text clipped - 11 lines]
>
> Could this be related?

I forgot that I also had a grand mal in the shower many years ago, when
control was less effective.
turbinado - 30 Oct 2004 01:18 GMT
I have had both grand mals and complex partials both in and immediately
following a shower.

> >> A strange one I get is that once in a while, when taking a hot shower
> >> after my morning pills, I get disoriented. I dont know if its a
[quoted text clipped - 14 lines]
> I forgot that I also had a grand mal in the shower many years ago, when
> control was less effective.
Satch - 30 Oct 2004 08:25 GMT
Can't tell exactly but my event in the shower which caused me to be operated
on the shoulder may have been caused by an epileptic seizure as well. That
was ages ago and I have never payed attention to it. I do remember that
-while I was passing out, I was desperately trying to hold myself to
something. Fact is that I had a fever and I was in the middle of a rehousing
operation causing lots of stress. So stress, fever and being physically
exhausted could also mean that my seizure threshold was on the wrong side.

Good to know that I am now under supervision of a doctor and diagnosed
correctly :-)

Signature

Thanks.

Marco
The Netherlands

Daz_n_Pat - 28 Oct 2004 11:16 GMT
Hi all,

Patsy here...Darryl's wonderful wife...hehehe...

I know I have not put a post on here for a long time but I thought I might
add my two cents worth in.  I would like to thank everyone for clarifying to
my wonderful, loving and very adorable husband that I am RIGHT and he is
WRONG.

We have been having quite a few DISAGREEMENTS  in the last few months over
the fact that he would blurt something out in the middle of a sentence which
was totally off topic and when I point it out to him, he **strongly
disagrees** with me and blames my hearing ability.

Darryl is on quite a concoction of meds...105 tablets in a week so having a
conversation is fun at the best of times :-)  but I love him heaps and
wouldn't swap him for anything.

Thanks guys again for proving to my husband that his dear darling wife knows
best  ;-)

Good luck and all the best

Patsy

> Jim here..
>  I am a long time Tegritol user and I get the slurred speech syndrom and
[quoted text clipped - 20 lines]
>> really
>> question it?
Mary Fisher - 28 Oct 2004 11:39 GMT
> Hi all,
>
[quoted text clipped - 4 lines]
> to my wonderful, loving and very adorable husband that I am RIGHT and he
> is WRONG.

I wouldn't have expected anything else :-)

> We have been having quite a few DISAGREEMENTS  in the last few months over
> the fact that he would blurt something out in the middle of a sentence
> which was totally off topic and when I point it out to him, he **strongly
> disagrees** with me and blames my hearing ability.

It goes with dangly bits.

> Darryl is on quite a concoction of meds...105 tablets in a week so having
> a conversation is fun at the best of times :-)  but I love him heaps and
[quoted text clipped - 4 lines]
>
> Good luck and all the best

And to you, Patsy, nice to read you :-)

Mary

> Patsy
>
[quoted text clipped - 23 lines]
>>> really
>>> question it?

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