> Do the meds work 100 percent for you or just help lessen the intensity??
No and Yes
> What's some of your seizures feel like?
When the partials are bad, an inability to understand anyone talking (in
person, on tv, or on the radio), talk back to them, or read.
When they arent bad, they are similar, but just 'there' in the sense that I
only have to focus a little more, and pass very quickly.
There are several kinds of meds, dilantin is often the first used. Was on
it for years, got off it, have been on tegretol for years (then keppra
added), am in the process of getting off keppra, then probably the
tegretol. Replacement is lamictal. So far it isnt %100 either. But as more
of the old stuff is decreased (or eliminated) the new stuff will probably
go up.
Danceman - 13 Oct 2004 11:18 GMT
> > Do the meds work 100 percent for you or just help lessen the intensity??
>
[quoted text clipped - 14 lines]
> of the old stuff is decreased (or eliminated) the new stuff will probably
> go up.
Hi,
Be careful with Lamactil, I had it a couple of years ago and it
had unpleasant side effects loss of sleep ,couldnt wait to get off
it,now I am on tegretol.dilantin and nuerontin.
Theo - 16 Oct 2004 18:04 GMT
>> > Do the meds work 100 percent for you or just help lessen the
>> > intensity??
[quoted text clipped - 20 lines]
> had unpleasant side effects loss of sleep ,couldnt wait to get off
> it,now I am on tegretol.dilantin and nuerontin.
one problem Ive had for years it too much sleep. couldnt get up in the
mornings. a bit better now, mostly becuase Im programmed to take my
morning pills when I didnt have to before (I have crazy hours anyway).
One thing about Lamictal I didnt realize what that its very expensive.
While building up slowly Ive been on those packets. I wanted to get off
Keppra because its also expensive, but wasnt working well. (I said this
to the neuro) Now Im on both for the time being, a double whammy. Im not
sure what to do yet because its getting unaffordable, and the plan is to
increase Lamictal even more.
gaross - 16 Oct 2004 21:10 GMT
> >> > Do the meds work 100 percent for you or just help lessen the
> >> > intensity??
[quoted text clipped - 29 lines]
> sure what to do yet because its getting unaffordable, and the plan is to
> increase Lamictal even more.
*G* Some countries (don't know if your's is one), I had heard that Some of
the Manufacturers made arrangements where people couldn't always afford
their newer pills, to provide them at *discount or cheaper through the
Doctor? You could ask your Doctor if something like that was available
where you are OR through your local Epilepsy Association.
Not all the Manufacturers do that, in All the countries, but it's worth a
try. G./
Theo - 17 Oct 2004 08:56 GMT
> *G* Some countries (don't know if your's is one), I had heard that
> Some of the Manufacturers made arrangements where people couldn't
[quoted text clipped - 5 lines]
> worth a
> try. G./
Thank you, I will ask.
> So is anyone willing to describe their brand of medication taken for the
> kind of seizure(s) you are experiencing?
[quoted text clipped - 3 lines]
> Do the meds work 100 percent for you or just help lessen the intensity??
> What's some of your seizures feel like?
Hello,
Aged 0 till 4 (don't know exactly):
Type of epilepsy: unknown (probably grand mal type of seizures)
Medications being used: Phenobarbital (Luminal/Alepsal) + (Diphantoine /
Dilantin)
Quickly seizure free with these medications
Discontinued meds after it was allowed to do so (based on statistics at that
date)
Aged 10 till 14 (don't know exactly):
Type of epilepsy: absence type of seizure
Medication being used: Depakote (Depakine / Depakene)
Quickly seizure free with these medications
Discontinued meds after it was allowed to do so (based on statistics at that
date)
Age 29 till present:
Type of epilepsy: tonic-clonic seizure (happend only once)
Medication being used: Depakote ER (Depakine Crono / Depakene ER)
Seizure free with meds till present
Personal expectations: will be disconnuing meds after 4 years of seizure
free period
Best of luck.
Marco