I have a question about something the happened to me yesterday. My
wife and I we're in a store shopping. I was standing up holding the
shopping cart while my wife was looking at something. Next thing I
knew I was on the floor. I fell backwards into some cardboard boxes. I
don't remember falling but I do remember laying thier unable to move,
while laying thier I felt as though my arm was flailing around and my
head was moving side to side. I felt aware but unable to do anything.
My wife thought I had tripped and fell, until she noticed my left hand
and arm twitching slightly and a vacant stare. The whole episode
lasted maybe 30-45 seconds. When I snapped out of it I didn't know
where I was or how I got thier, I then remembered where I was. I felt
a little off balance for a little while afterwards. At the emergency
room I had blood tests, ekg, cat scan, and left with a clean bill of
health. The Doc said he didn't think if was a seizure because I didn't
soil myself. Over the years I've had very short episodes where I feel
like I'm going to pass out and slight involuntary movements lasting
only seconds, never really though much about them though. I have an
appointment with my regular Doc today. Any thoughts on what it could
have been?
gaross - 12 Oct 2004 19:30 GMT
> I have a question about something the happened to me yesterday. My
> wife and I we're in a store shopping. I was standing up holding the
[quoted text clipped - 15 lines]
> appointment with my regular Doc today. Any thoughts on what it could
> have been?
I just put a note up to someone earlier (2 actually). One has list of
websites including the first aid chart that lists the outward appearance of
various seizures, another that lists http://efa.org. U.S. website. You
could look at Absence seizures, as well as Simple Partial ones, as examples
(not a diagnosis).
An absence (I've had) we usually are 'away' without passing out or
falling down. A Simple Partial is similar where we might be unaware of
where we are or what we're doing.
An ekg (if that's what you meant ) checks the Heart?
An EEG, Electro Encephalogram checks Brain Waves -- but you actually
have to have (minor at least) seizures During the test for them to record on
the chart. Some people who have harder to detect types, might need more
than one EEG before any Epileptiform waves show up.
Your Doctor Too could use a refresher course -- not ALL types of seizures
require one of us to 'soil ourselves'. I'm becoming disillusioned about
how little some of the G.P.s know about something that will affect More of
us as the population ages... Ask for a referral to a Neurologist if you'd
feel more comfortable with more accurate tests. I think the ones I listed
above aren't usually interpreted (anyway) by a G.P. G./
Julie - 12 Oct 2004 20:13 GMT
Welcome to the group Pierre. Please see my note below.
> I have a question about something the happened to me yesterday. My
> wife and I we're in a store shopping. I was standing up holding the
[quoted text clipped - 11 lines]
> health. The Doc said he didn't think if was a seizure because I didn't
> soil myself.
When I read this part from the emergency room doc I wanted to scream!
What are they teaching people at doctor school. I'm sorry it just drives
me nuts. A person who has a seizure does not have to soil themself. I
have had epilepsy for over 30 years and I have never soiled myself. Some
people do lose control of their bodily functions, but it is not always the
case. And there are so many different kinds of seizures. If your general
practice doctor does not send you for tests and listen to your concerns,
please seek out a neurologist who specializes in seizure disorders. Make
note of everything that has happened before during and after one of your
episodes.
Please let us know what happens.
Here is a chart that describes seizure types.
http://www.epilepsyidaho.org/seizure.htm
Take care,
Julie Walton, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org
> Over the years I've had very short episodes where I feel
> like I'm going to pass out and slight involuntary movements lasting
> only seconds, never really though much about them though. I have an
> appointment with my regular Doc today. Any thoughts on what it could
> have been?
owlvee - 12 Oct 2004 20:42 GMT
> I have a question about something the happened to me yesterday. My
> wife and I we're in a store shopping. I was standing up holding the
[quoted text clipped - 15 lines]
> appointment with my regular Doc today. Any thoughts on what it could
> have been?
I have had at least three Grand Mals in the past year and have NOT
"soiled" myself during any of the episodes.
To better that, I have two, three, or more (that I am aware of) partials
a week, and have not "soiled" myself during any of those times either.
Get the opinion of more than an emergency room doctor is my advice :)
owlvee
Mary Fisher - 12 Oct 2004 21:57 GMT
Pierre, I'm sorry to read of your experience but confirm what the other
replies have said.
You've done the right thing by coming here, take note of what's been said by
those who know about such things - that is those who experience them.
Do seek more experienced advice and let us know how you go on.
Mary
Pierre - 13 Oct 2004 17:25 GMT
I went to my regular Doc yesterday. He thought I might have had a
seizure. When I told him the ER Doc said he didn't think it was a
seizure due to the fact I didn't soil myself, he was blown away. He
asked for the doctors name and said he was going to call him an
straighten him out, lol. I have an MRI on monday, I also have an
appointment with a Neurologist. I'm really scared, this has been a
life altering event for me. I'm 33yrs old with a wife and three kids.
I work as a locomotive engineer for a major railroad and have been
suspended as a result of the incident. I've worked for the RR since I
got out of the Navy, if I had to find another job I have no
qualifications. Railroad experience doesn't really apply to anything
else. I appreciate all your comments and support it means alot right
now.
Mary Fisher - 13 Oct 2004 17:58 GMT
> I have an MRI on monday, I also have an
> appointment with a Neurologist.
Good.
> I'm really scared, this has been a life altering
> event for me. I'm 33yrs old with a wife and three kids.
Don't be scared, there are worse things, honestly. Everyone here is
testimony to the fact that, even if you ARE diagnosed with the 'Big E' you
can still function as a husband and father with not too many alterations to
your life.
I also have the 'Big C' and know many others who do, we also learn that it's
not like having a fatal heart attack where there's NO chance of a future :-)
> I work as a locomotive engineer for a major railroad and have been
> suspended as a result of the incident. I've worked for the RR since I
> got out of the Navy, if I had to find another job I have no
> qualifications. Railroad experience doesn't really apply to anything
> else. I appreciate all your comments and support it means alot right
> now.
Earning your living might well be a problem - but not an insurmountable one.
Who knows what other talents you have? I can't help you in that regard but
no doubt others who've been in your situation will be able to.
There are very good reasons why you shouldn't be doing the job you do if you
are affected by epilepsy, I'm sure you understand that. You wouldn't want
others to do it, would you?
Do keep posting here, tell us what happens and what the results of your
tests are. When more is known there'll be more approaches to try.
But also keep reading the posts, eventually you might be able to support
others.
Hugs to you and your family,
Mary
gaross - 13 Oct 2004 18:17 GMT
> I went to my regular Doc yesterday. He thought I might have had a
> seizure. When I told him the ER Doc said he didn't think it was a
[quoted text clipped - 9 lines]
> else. I appreciate all your comments and support it means alot right
> now.
I can't tell where you're posting from (possibly U.S.? ). Most
employers here (Canada) carry long term disability insurance that would
cover income after 1 year off work. Short term insurance usually covers
first year -- either from state or province, or possibly also by employer.
Rules vary by Country and Laws of the area, and I don't know how or if
Similar is available (yet) in the U.S. .
In Canada, I had 'extended disability insurance', that topped up what
was covered by Canada Pension Plan and Employer's insurance -- from the
initial Encephalitis I had -- before the seizures. The Longer term
insurance didn't kick in until I had been off on 'short term leave' for one
year.
Second -- IF your seizures are classed as Minor and become Controlled by
medications, there's no reason you couldn't still carry out the work you
might have been qualified for. Many of us are either Fully Controlled (I
am) or Largely Controlled after an assessment is done of where the seizures
originate from, and when there are pills that will control that type of
seizure.
That's good and extremely **Fast for you to get an MRI. Many places
people can wait up to 3-5 months, because of backlogs or people waiting for
access -- even in areas here where the MRIs are running 24 hours. Sounds
like you finally found a Doctor who's trained. That also is good to have.
G./
Pierre - 15 Oct 2004 06:07 GMT
Yes I'm in the United States, no the company I work for although the
second largest railroad in the US provides no disability to union
employees. I appreciate all the replies. What I was hoping for though
was wether anyone here thought that what happened to me was a seizure?
I've been told it could have been Hypoglycemia.
gaross - 15 Oct 2004 15:45 GMT
> Yes I'm in the United States, no the company I work for although the
> second largest railroad in the US provides no disability to union
> employees. I appreciate all the replies. What I was hoping for though
> was wether anyone here thought that what happened to me was a seizure?
> I've been told it could have been Hypoglycemia.
Some *other symptoms people have when having Other types of seizures,
might really be a Stroke or other condition that is Still serious.
Pay attention to (what's left of) the Debates--> I watch them and I
can't even Vote 'down there'. You get the Government you ELECT, and as
the Largest 'Democracy' it seems 'silly' to not provide for the Aging
Baby Boomers who are going to hit the Fan over the next 10 years.
Medical companies and prescription patent sites are making record
profits because of above and 'free market enterprise' that leaves people
behind. Ironically, Companies 'up here' are judged by prospective
employees by the types of Benefit Packages they have, and not just by their
size or how much they pay. Unfortunately that might take a while to catch
on without people steering the 'Ship' another direction. (With a
Trillion Dollar !! Debt, someone someday will have to Pay that Back -- and
people without Vested Medical and Prescription Benefits OR the option to buy
them through a Group (often cheaper than buying insurance person by person),
will eventually be the victims of a 'system' that doesn't have a Heart....
End unexpected rant (to me), Vote early , Vote often..... :->
Maybe someone here (in the U.S. ?) can offer some ideas about your
situation as you described it. Hope so. G. /
Julie - 15 Oct 2004 02:20 GMT
So good to hear you have a doctor in the know. I laughed when I read
that he will straighten out the emergency room doc. Good for him.
Don't be afraid. Try to look at this in a positive way. You need to
find out what is wrong so it can be treated properly.
Take care,
Julie
> I went to my regular Doc yesterday. He thought I might have had a
> seizure. When I told him the ER Doc said he didn't think it was a
[quoted text clipped - 9 lines]
> else. I appreciate all your comments and support it means alot right
> now.
Satch - 15 Oct 2004 09:54 GMT
>I went to my regular Doc yesterday. He thought I might have had a
> seizure. When I told him the ER Doc said he didn't think it was a
[quoted text clipped - 9 lines]
> else. I appreciate all your comments and support it means alot right
> now.
Pierre, we were all scared while we were being diagnosed and while we were
undertaking the tests! I remember I was! The same applies to close relatives
/ partners. They are scared as well. The period of testing and finding out
whether or not you are having epilepsy sucks. It is an uncertain period and
you will need all help of your friend / colleagues and of course
relatives/partner. The tests are not that hard to undertake but waiting for
the outcome will certainly give you a hard time.
It is true that a drivers license will be suspended including a job like
yours that needs special safety instructions. It is the best thing to do
because without doing so, your three kids may end up having no father at
all!
From logical point of view, I agree with Mary Fisher's statement that in
"worst" case scenario, finding yourself another job is not an insurmountable
one -even while you have specialised qualifications which do not really help
applying for other jobs. She told me similar things months ago regarding my
suspension of my drivers license. I however agree that at this point, right
now, you do not want to hear this. Finding yourself another job while you
liked the one you currently have so much, suck big time.
However, with a proper diagnose, doctors can start with treatment which may
result in full control of your epilepsy. which may be acceptable for your
employer (read: law). Also note that it is good that you are now being
diagnosed because untreated epilepsy can develop itself from bad to worse.
Best of luck.
Marco
Satch - 15 Oct 2004 09:32 GMT
>I have a question about something the happened to me yesterday. My
> wife and I we're in a store shopping. I was standing up holding the
[quoted text clipped - 15 lines]
> appointment with my regular Doc today. Any thoughts on what it could
> have been?
Three lines Pierre:
1. I am sorry to hear about your experience;
2. BAD DOCTOR!;
2. find another doctor as soon as possible.
Best of luck.
Marco
turbinado - 18 Oct 2004 00:11 GMT
> I have a question about something the happened to me yesterday. My
> wife and I we're in a store shopping. I was standing up holding the
[quoted text clipped - 11 lines]
> health. The Doc said he didn't think if was a seizure because I didn't
> soil myself.
That's a strange thing for the MD to say! I have never soiled myself during
any type of seizure (I've had grand mals, complex partials and absences for
almost 20 years). I'm not a doctor, but your episode sounds like it could
well be a seizure to me.
>Over the years I've had very short episodes where I feel
> like I'm going to pass out and slight involuntary movements lasting
> only seconds, never really though much about them though. I have an
> appointment with my regular Doc today. Any thoughts on what it could
> have been?