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Medical Forum / Diseases and Disorders / Epilepsy / October 2004

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Coma like seizures

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Nick - 12 Oct 2004 03:44 GMT
Has anyone had any experience with seizures that seem as if the person
is in a coma?  My daughter was out for 40 minutes yesterdau and the only
thing I can relate it to is a type of seizure I have not seen before.
She has mostly tonic clonic seizures but this one through me for a loop.
     Any help?

Nick
gaross - 12 Oct 2004 04:22 GMT
> Has anyone had any experience with seizures that seem as if the person
> is in a coma?  My daughter was out for 40 minutes yesterdau and the only
> thing I can relate it to is a type of seizure I have not seen before.
> She has mostly tonic clonic seizures but this one through me for a loop.
>       Any help?
> Nick

Here are some sites, that include a couple that have First Aid for Seizures,
etc.  It would help if you know the Type of Seizures she is having -->  I
think tonic clonic is the older name for Grand Mal, but I'm not sure.   Some
of her symptoms might also appear under Complex Partial.
  **Note (my concern)  on the  Idaho First Aid site,  there is a 'limit'
for how long a seizure should run before you call for Medical Help or an
Ambulance.    You should discuss above with your Doctor, since depending on
how severe the seizures are that she's having,  they could result in
permanent damage if they're one of the more Severe Types of seizures.    I'm
not medically trained to comment further on that, but I AM concerned if
she's having a full seizure that's running for *40 minutes (IF that was
really the length of her **seizure, vs. length of time being unconscious --
not the same thing.) I can't really tell what you mean exactly by being
'out' for 40 minutes.  If these are seizures that last that long, that is a
concern.
  Sites I've posted before on older posts (***Look at the descriptions
under Descriptions of seizure types within the *First of the First Aid
charts (***s below), in this list under the Idaho Website).   -->

 Below is a repeat of an older post, that I did after new people were
looking for sites about Living with Epilepsy.  It has all the sites except
for Howdy Dave's and another medications site that was posted about a week
ago.   I'll add those in a moment if I find them.  G./
//////////////
I did a couple of posts over last ~3 days where I referred a few people to
'the Idaho First Aid Chart' or 'Idaho Website' without seeing it up on any
posts I have right now in my charts.

 So for anyone who hasn't seen these already -->
The General Site that Julie operates for Epilepsy Idaho group is at:
http://www.epilepsyidaho.org .

The 'First Aid chart' I frequently refer to can be located by entering and
wandering about site above, but can be reached direct at
http://www.epilepsyidaho.org/seizure.htm  .   <---- *************
 There's a Second topic added about 4? months ago that goes more into First
Aid in Water, on Aircraft, etc.  It's at
http://www.epilepsyidaho.org/seizure2.htm  .

 Also accessible from top site, but more detail on Learning about Epilepsy
can be found at http://www.epilepsyidaho/learn.htm   .  That one has quite a
few more links, information on kids newly diagnosed? (I think) and general
questions that others might ask, or those newly diagnosed.

  If there's no link there to a Medications Glossary, the Ep. Foundation of
America has one (of several)  within http://efa.org   .        G./
David Ruether - 13 Oct 2004 14:30 GMT
> Has anyone had any experience with seizures that seem as if the person is in a coma?  My daughter was out for 40 minutes yesterdau
> and the only thing I can relate it to is a type of seizure I have not seen before. She has mostly tonic clonic seizures but this
> one through me for a loop. Any help?
>
> Nick

Send me a usable email address (you can do it
by responding to this as an email only), and I may
have something of use...
--DR
gaross - 13 Oct 2004 14:55 GMT
> > Has anyone had any experience with seizures that seem as if the person is in a coma?  My daughter was out for 40 minutes yesterdau
> > and the only thing I can relate it to is a type of seizure I have not seen before. She has mostly tonic clonic seizures but this
[quoted text clipped - 6 lines]
> have something of use...
> --DR

He posted in Plain Text (headers below).   I was able to read his post O.K.
with Win.XP.   Do you have something in settings that edit out his ISP?
  These were the headers he used in above post on alt.ep group -->
(G./  )  I put **s to show plain text marking. /

Path:
internal1.nntp.dca.giganews.com!border2.nntp.dca.giganews.com!nntp.giganews.
com!wns13feed!worldnet.att.net!attbi_s52.POSTED!53ab2750!not-for-mail
From: Nick <nlack2@comcast.net>
User-Agent: Mozilla Thunderbird 0.7.2 (Windows/20040707)
X-Accept-Language: en-us, en
MIME-Version: 1.0
Newsgroups: alt.support.epilepsy
Subject: Coma like seizures
Content-Type: text/plain; charset=us-ascii; format=flowed
*********************************************************
Content-Transfer-Encoding: 7bit
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Message-ID: <8yHad.221933$MQ5.43026@attbi_s52>
NNTP-Posting-Host: 24.8.172.233
X-Complaints-To: abuse@comcast.net
X-Trace: attbi_s52 1097549060 24.8.172.233 (Tue, 12 Oct 2004 02:44:20 GMT)
NNTP-Posting-Date: Tue, 12 Oct 2004 02:44:20 GMT
Organization: Comcast Online
Date: Tue, 12 Oct 2004 02:44:20 GMT
Xref: number1.nntp.dca.giganews.com alt.support.epilepsy:66302
David Ruether - 14 Oct 2004 17:29 GMT
>> Send me a usable email address (you can do it
>> by responding to this as an email only), and I may
>> have something of use...
>> --DR

> He posted in Plain Text (headers below).   I was able to read his post O.K.
> with Win.XP.   Do you have something in settings that edit out his ISP?
>   These were the headers he used in above post on alt.ep group -->
> (G./  )  I put **s to show plain text marking. /

The problem turned out to be at my end - the server
was not sending any email out for a short time, and
it was saying that the problem was at the other end
(improper address, or some such...), wouldn't you
know...;-)
Thanks.
--DR
Carl Weatherell - 14 Oct 2004 14:26 GMT
Hi Nick!

Sounds like this may be a post-ictal state.  My daughter has done the same
thing, had a seizure and then was put for 30-60 minutes.

Carl ;-)

> Has anyone had any experience with seizures that seem as if the person is
> in a coma?  My daughter was out for 40 minutes yesterdau and the only
[quoted text clipped - 3 lines]
>
> Nick
Dave ???? - 15 Oct 2004 03:33 GMT
Howdy!

Since I am not a doctor and did not witness the seizure take everything that
I say with a POUND of salt!

I would talk to her doctor and ask him/her what the difference is between
epilepsy and narcolepsy.

Signature

Dave ????

http://www.howdydave.com

> Has anyone had any experience with seizures that seem as if the person
> is in a coma?  My daughter was out for 40 minutes yesterdau and the only
[quoted text clipped - 3 lines]
>
> Nick
Sean - 15 Oct 2004 04:27 GMT
Hi,

Just off the top of my head... I thought epilepsy involves either/or or a
combination of convulsive seizures or "spacing out" type "seizures", where
as narcolepsy - depending on the extreme - involves abruptly going to sleep
or similar. Right?

Sean

Signature

---> Drop the [hat]. <---

> Howdy!
>
[quoted text clipped - 11 lines]
> >
> > Nick
Dave ???? - 15 Oct 2004 19:58 GMT
> Hi,
>
[quoted text clipped - 4 lines]
>
> Sean

Howdy Sean!

You have described very well my VERY LIMITED experience with epilepsy  (I'm
only familier with Temporal Lobe Epilepsy.)

I'm just going by your use of the word "coma" and my understanding of it.
For all I know, you could be talking about drop seizures.

That's why I said take it with a pound of salt!

In narcolepsy the person instantaniously falls asleep.  (coma?)

Signature

Dave ????

http://www.howdydave.com

> > Howdy!
> >
[quoted text clipped - 4 lines]
> > I would talk to her doctor and ask him/her what the difference is between
> > epilepsy and narcolepsy.
Sean - 16 Oct 2004 03:32 GMT
Hi,

I don't believe I mentioned the "coma" stuff but I do know that effect, or
the narcolepsy symptoms, are different from epileptic ones - in fact I had
an appointment with my doctor today and he said that narcolepsy is
completely different from epilepsy.

Interesting thing though, he prescribed a narcolepsy medication to me today
also! However, it's not for the same reasons as for which someone with
narcolepsy would take it. I am on enough medications for bipolar and
epilepsy that I am *extremely* drowsy *all day* every day and it's getting
to drive me mad because I can't get anything done, so he gave me the
medicine: provigil, I believe is what it's called.

It's not FDA approved yet but can still be given to patients, so I'm on that
for the time being at least. It's new, thus the patent hasn't expired, thus
other companies haven't been able to provide "generic" variants of the same
drug, thus I would have to pay approximately $540 per 100 pills. Yes,
expensive. However, he gave me samples and will be giving me drug-coupons,
haha, to at least last me a while until we see if it works for me. We'll
see, my 1st day of taking it will be tomorrow morning.

How much worse could it get? I have gone through a plethora of prescriptions
and I'm only 27!

Sean

Signature

---> Drop the [hat]. <---

> > Hi,
> >
[quoted text clipped - 27 lines]
> between
> > > epilepsy and narcolepsy.
Dave ???? - 16 Oct 2004 03:35 GMT
Howdy Sean!

Look at the header:

"Coma like seizures"

Signature

Dave ????

http://www.howdydave.com

> Hi,
>
[quoted text clipped - 58 lines]
> > between
> > > > epilepsy and narcolepsy.
Nick - 15 Oct 2004 23:15 GMT
Dave ©¿©¬ wrote:
> Howdy!
>
[quoted text clipped - 3 lines]
> I would talk to her doctor and ask him/her what the difference is between
> epilepsy and narcolepsy.

Dave, she does have epilepsy.  The doctor postulates this is a new type
of seizure for an adult that is similar to a hypomotor seizure in infants.

Nick
 
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