> Been taking Keppra for 17 months now. Completely seizure free during this
> time. Initial side effects were unpleasant - very drowsy, irritable & bad
> tempered. Wore off after about 6 weeks. As with all AED's, side effects
> & effectiveness will differ from person to person. Getting past those
> first few weeks was difficult, but well worth it in the long run. Good
> luck!
>>Been taking Keppra for 17 months now. Completely seizure free during this
>>time. Initial side effects were unpleasant - very drowsy, irritable & bad
[quoted text clipped - 11 lines]
>
> PS: Have been seizure free since February 15 2004!
I have not posted here for a while, just pleased to feel well with life
under control after going back to Eplim Chrono / Nurontin after really
bad times with Keppra then topiramate.
I can only say for me that Keppra was very good for a short time; felt
more energetic (not so on current meds) but this quickly changed when my
grand seizures twice ended up in status! My doctor did the usual thing
when seizures happen, he upped the dosage which made matters worse the
second time, when I saw strange shapes of memories in the background
with a current image in the foregound etc. (very scary at the time - put
me off any interest in recreational drugs I can tell you)
It brings me back to the usual guidance I suppose; what works for
someone does not work for someone else?
Hope all the longtimers are well on the Group? (Gordon, Dave, Robert,
Barb, Mary et al)
Best wishes,
John
gaross - 10 Oct 2004 15:07 GMT
> >>Been taking Keppra for 17 months now. Completely seizure free during this
> >>time. Initial side effects were unpleasant - very drowsy, irritable & bad
[quoted text clipped - 28 lines]
> Best wishes,
> John
Somewhere after the weekend? you might get some more ideas, since we had a
few people posting who are using Epilim Chrono and Neurontin (?) also the
Keppra. I expect if the Keppra could have been combined with a second
pill rather than going 'back' the Dr. might have tried that. Since they
didn't, I guess they might have decided to go to something they knew that
might have worked for you, rather than experiment with something that might
have been newer to them (the Dr.) ?
It's too bad since you were doing so well the First phaseover that they
upped it beyond (?) the therapeutic level for you (I *assume that's what
would bring on the hallucinations etc. I think Tegretol and even Dilantin?
are supposed to do that when they get above therapeutic level? for a
particular person and their metabolism rate.)
I don't know if you looked at http://efa.org website where the Pill
Glossary is, to see if there was anything listed as side effects that might
describe what you had. Some of us have had to Reduce the Monotherapy
level and add a Second pill to get to more control. I don't know why some
of them work better together, but some of them do. I got that with
Tegretol and Frisium (Clobazam) in ~1995-7, and haven't needed any dose
changes after hitting the target that worked for me.
There might also be a www address for particular pills provided by the
Manufacturers. Sometimes they're listed on any printout if you got one
with new prescriptions, OR the Pharmacist might have one available if
there's not one listed on the stuff you got. You might still be
interested to look around the pills that didn't work to see if there's
something on Those sites that aren't on the ones that worked. The write-up
would also tell if they're supposed to work best as monotherapy (no second
pill recommended) OR if they can be combined with another Class of pills
that might give better control of the symptoms that 'pill 1' doesn't
control.
*****
Also if someone *here knows the 'medical term' for what John describes
in 3rd last paragraph above (foreground and background sensations, marked
with **s above), that might help on any google or ?? searches he might want
to do. Even the Pharmacist (if they're close to you), might know either
the name of that or if it's a possible symptom of some of the pills you
were using. (I found a few times I could just walk in and talk with the
Pharmacist without needing an appointment and a 3 week wait, if I just
wanted to know if what I had was a side effect listed for a pill, or was
something that I should ask my Neuro about. Also some of the symptoms I
had were temporary, and more evident as we were Raising the dose levels, but
after I was at a target level for a week or 2, the auras or other symptoms I
had would decrease then stop as I appeared to adjust to the new level.)
Hopefully someone else here might have some ideas wrt. the pills you
described at top. Gordon.