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Medical Forum / Diseases and Disorders / Epilepsy / September 2004

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Think this might be epilepsy

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clearingskies - 18 Sep 2004 10:19 GMT
Hi,
I was lying in bed on Monday morning, rested and relaxed reading Bill
Bryson and laughing out loud, when I started regurgitating dreams. This is
much more than merely remembering them. It's like my brain being sick,
throwing up bits of dreams I have forgotten about for years. (Or maybe
giving me that sensation while inventing new bits). I don't lose
consciousness - it's like  a teletext overlay.

This went on for a couple of minutes and then stopped for a moment. As it
began again, I remeber thinking "Stop it - I'm trying to read my book" It
stopped eventually- don't know how long. I first experienced this about 3
years ago when I was extremely stressed and put it down to that. However,
have had it once or twice since then. Most recently a month ago and then
this one, so perhaps it is getting more frequent, perhaps not.

This one on Monday lasted a little longer and I felt the memory of it all
day. It reminded me of short-circuiting, so I thought I would check
epilepsy on the net, and eventually found the descriptions of deja-vu and
dream recall related to simple partial seizures of the right temporal
lobe.

However, I haven't found anywhere the aftereffect I have, which is to lose
my place in time for a while. Once the dream thing stops, I can't find
where I am in the year. Normally we have plans based on time - I'll go
shopping this afternoon, need clean clothes for the course next week,
shame it wasn't a nicer summer etc. I lose that for a while, then it
gradually comes back again. Initailly wondered if it was Alzheimers or
some such, but now wonder if it is my poor old brain trying to reassemble
itself after the shock.

I have also noticed losing what I was going to say in the middle of
conversations happening more and more. Brain goes to blank screen. This
could just be my age (50 boohoo). However, once trusty old brain starts
playing up I'm finding I'm distrusting all sorts of thoughts/sensations I
would previously have thought of as just a funny moment.

So it is most reassuring to hear other people's stories. As far as I can
remember have never had anything like this before, and never had brain
injuray or disease.

Anyway, would appreaciate some thoughts on the subject.

B
cabbagecaff - 18 Sep 2004 16:51 GMT
It could well be epilepsy, but it needs checking out whatever it is.
Do you drink a lot of diet drinks, or eat sugar-free food, or chew lots of
gum and use breath freshener squares?
You could be sensitive to aspartame. It can cause loads of problems,
particularly around eyes/balance/vertigo type areas.
Just a thought!
Cathy
SK - 18 Sep 2004 16:54 GMT
> Hi,
> I was lying in bed on Monday morning, rested and relaxed reading Bill
[quoted text clipped - 39 lines]
>
> B

This sounds similar to my experiences.  All of a sudden I get  'dreams' pop
into my head that feel so familiar I wonder why I haven't remembered them
before.  This is accompanied by a horrible sick sort of feeling  and a sort
of cold tingle sometimes down my left side, and ends with actually wanting
to throw up.  While I am having these I just about know where I am and what
I'm doing, but have to concentrate really really hard if I'm in a public
place as everything seems slightly different.  The fit is over in a minute
or so and I can't remember any of the dreams.  After the fit I have trouble
remembering ordinary everyday things for a couple of minutes.  These fits
have happened for two and a half years now (I am 35).

I had an EEG and an MRI scan and they found a small 'scar' on the right
temporal lobe of my brain, which can often be caused by a blow to the head
or an illness, although I don't know how I got it.  A diagnosis of complex
partial seizures was made.  Recently things have been getting worse as,
although the fits themselves are not a huge problem as I know what is
happening and how to handle it, I have been getting odd sensations, sort of
strange half-thoughts, throughout the day when I have had a fit which is
affecting me.  As I have on average two or three fits a week and sometimes
more, this has become a bit of a problem and I have started taking
Gabapentin.

I think you should see your doctor and get referred to a neurologist -
although on the NHS in the UK it takes a long time.  From first seeing my GP
to getting the results of the MRI took a year and a half as there are long
waiting lists for MRI scans.

Sally
clearingskies - 18 Sep 2004 20:02 GMT
Thanks for the replies - the 'so familiar that I wonder I haven't
remembered them before' is exactly what I get. So tell me the worst - did
it mean you had to stop driving?

I've no idea whether I will be able to get a response from my GP, but I
think I might like to get this thing checked out in case it is going to
develop into something fancier.
B
Theo - 18 Sep 2004 22:44 GMT
> Thanks for the replies - the 'so familiar that I wonder I haven't
> remembered them before' is exactly what I get. So tell me the worst -
> did it mean you had to stop driving?

There are so many possibilities to this one, the laws, the doctors, the
severity of the problem, that its probably hard for anyone to say. I
just got suspended effective today... based on a letter from a doctor
who wasnt a neurologist. I didnt have one at the time... long story. But
I do have one again now and is going to help me with the appeal. Then
again, I wont get my hearing until December. And by the time everything
is reviewed, if Im lucky I will be able to drive again in early 2005. So
it will be several months anyway.

Im in the US, and in California doctors are required to report patients
having problems... a requirement I think is unfair and an issue
discussed at length here before. But perhaps someone in the UK can say
whether or not doctors there have to report patients to the govt.
gaross - 18 Sep 2004 23:09 GMT
Check the symptoms on this chart --
http://www.epilepsyidaho.org/seizure.htm

  Unless you're having a Simple Partial seizure or (possibly) myoclonic?
you wouldn't be *aware if you were having a seizure, as you described on an
earlier post.  Someone else would have to witness it happening and tell you
about it.
  If you're not losing consciousness at the end, it's not likely either a
Complex Partial or Grand mal on that list.

  I think an Absence seizure is listed under Simple Partial types.   Likely
more detail at http://efa.org   the U.S. Ep. Foundation site.   Some of the
milder Simple Partials include an Aura, but your's don't even sound like
they fall into that description.   Usually the Aura -- taste or aroma that's
not there or disorientation, precedes a stronger seizure if it moved from a
Simple Partial (aura) into one of the other seizure types.
  Why did you think some of the occurrences you described on an earlier
post might be Epilepsy?  Lots of people who don't have seizures or damage
that would produce seizures, can have symptoms like that without it needing
an Organic Root.  ??   G/

> Thanks for the replies - the 'so familiar that I wonder I haven't
> remembered them before' is exactly what I get. So tell me the worst - did
[quoted text clipped - 4 lines]
> develop into something fancier.
> B
clearingskies - 19 Sep 2004 11:32 GMT
The memory loss thing is probably just oldness - but the thing about losing
my place in time only comes after I've had a dream episode/seizure.

Thanks for info about sites - I looked at about 20,000 sites before coming
across this one and only ever saw dreams mentioned twice - lots about deja
vu etc. (It is so good to hear from people who know what I am talking
about) I'm sure this isn't an absence seizure; I was with a friend when it
happened once and told her while it was happening.

Quite interested to observe the symptoms a bit more now I know what might
be going on. I was so busy being amazed at the old dreams, I didn't really
notice if I felt sick or anything. Probably won't have another for months
now I am on the lookout.
B
Liz & Allan MacDonald - 20 Sep 2004 01:31 GMT
... I'm sure this isn't an absence seizure; I was with a friend when it
> happened once and told her while it was happening.

I was always aware during my absence (simple partial) seizures.  Only
someone who knew me well could tell I was having one.
Liz
clearingskies - 21 Sep 2004 06:45 GMT
How was an absence seizure for you? I have only read about the ones that
the person concerned didn't know about - as though their awareness was
absent.
Liz & Allan MacDonald - 21 Sep 2004 11:55 GMT
> How was an absence seizure for you? I have only read about the ones that
> the person concerned didn't know about - as though their awareness was
> absent.

They lasted only 60-90 seconds.  I called them 'flashes', because they
came on instantly and ended just as fast.  I'd become aware that my
brain was racing.  There'd be a second thought-track going as part of me
was wondering "did I say that already, or did I think I was going to say
that, or was I thinking about whether I thought I'd say that..."
If speaking, I'd only pause for a moment. A stranger might think I was
searching for the right word.
Liz
Seizure free for 5 years after surgery
SK - 19 Sep 2004 12:27 GMT
My doctor told me that once you are diagnosed with epilepsy of any type (in
the UK) you are not allowed to drive for one year from having your last
seizure.  If you feel however that you would be able to drive safely even
during a seizure, then you can go for a special assessment with another
doctor who could possibly say that you were OK to drive.  Take a look at
www.dvla.gov.uk for more details of UK driving regulations.

Sally

> Thanks for the replies - the 'so familiar that I wonder I haven't
> remembered them before' is exactly what I get. So tell me the worst - did
[quoted text clipped - 4 lines]
> develop into something fancier.
> B
Montyna - 19 Sep 2004 04:24 GMT
>I started regurgitating dreams.

What a wonderful way to put it! Exactly what it feels like.
TIMMCO - 19 Sep 2004 18:53 GMT
>>I started regurgitating dreams.
>
>What a wonderful way to put it! Exactly what it feels like.

I consider this attribute of the human brain yet another testimony to its
wonder and mystery.
Dave ???? - 20 Sep 2004 06:43 GMT
Howdy!

Whatever it is, it definately warrents medical investigation.

I would keep an open mind, report ALL of the symptoms and let the doctors
draw the conclusions.  My first association with "flashbacks" wouldn't be
epilepsy. (Then again, I'm not a doctor.)

Signature

Dave ????

http://www.howdydave.com

> Hi,
> I was lying in bed on Monday morning, rested and relaxed reading Bill
[quoted text clipped - 39 lines]
>
> B

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