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Medical Forum / Diseases and Disorders / Epilepsy / September 2004Out of body experience
About a year ago I got diagnosed epilepsy, besides cramps and other types of seizures, I have a kind of out of body experience, example in front of my computer I suddenly feel like being sucked out of my body so I look at my self or looking out from my stomach, kind a creepy feeling and really can't use my body to anything while the seizure is on. Anyone one else has this kind of seizures, and how are u feeling them. Because sometimes I start question myself that if it's even epilepsy it comes from or another thing. Stephan > About a year ago I got diagnosed epilepsy, besides cramps and other > types of seizures, I have a kind of out of body experience, example in [quoted text clipped - 6 lines] > > Stephan Hi Stephan, I do not have these kind of experiences but I read a lot about this topic and I am diagnosed with epilepsy myself. What you describe sounds like a "simple partial seizure". These symptoms can manifest itself in weird feelings as you describe very well. You may want to have a look at: http://www.epilepsy.com/epilepsy/seizure_simplepartial.html When you receive a complex partial seizure after the weird feelings, then call the symptoms an aura. When they diagnosed you, did they prescribe you medication? You may want to tell your doctor / neurologist about this strange feelings but yeah, it definitely sounds like epilepsy and not something else.  SignatureTake care. Marco > About a year ago I got diagnosed epilepsy, besides cramps and other > types of seizures, I have a kind of out of body experience, example in [quoted text clipped - 6 lines] > > Stephan Hi Stephan, I do not have these kind of experiences but I read a lot about this topic and I am diagnosed with epilepsy myself. What you describe sounds like a "simple partial seizure". These symptoms can manifest itself in weird feelings as you describe very well. You may want to have a look at: http://www.epilepsy.com/epilepsy/seizure_simplepartial.html When you receive a complex partial seizure after the weird feelings, then call the symptoms an aura. When they diagnosed you, did they prescribe you medication? You may want to tell your doctor / neurologist about this strange feelings but yeah, it definitely sounds like epilepsy and not something else. SignatureTake care. Marco > > About a year ago I got diagnosed epilepsy, besides cramps and other > > types of seizures, I have a kind of out of body experience, example in [quoted text clipped - 22 lines] > strange feelings but yeah, it definitely sounds like epilepsy and not > something else. I got a definite sense of deja vu reading this ... Mary >>> About a year ago I got diagnosed epilepsy, besides cramps and other >>> types of seizures, I have a kind of out of body experience, example in [quoted text clipped - 26 lines] > > Mary Yeah, that may be it :-) SignatureTake care. Marco > About a year ago I got diagnosed epilepsy, besides cramps and other > types of seizures, I have a kind of out of body experience, example in [quoted text clipped - 6 lines] > > Stephan If those symptoms are coming around the same time as a seizure, particularly the short time frame before a seizure, it probably is caused by seizure activity. None of us have exactly the same symptoms, but I have heard that if a person has a particular type of aura/symptoms, it's likely to be the same or similar aura/symptoms for most or all seizures. With my seizures, there were several symptoms that would rotate. In other words, if I had ten total symptoms, maybe this month I would have symptom 1, 2, 4, 7, and 9. Next month symptoms 1, 2, 3, 5, and 8 would appear. You probably should be keeping a log of the types of symptoms, when they are happening, and about your environment. You already mentioned that those feelings have happened at the computer (add that to your log). I used to have seizures at my computer too. Changing the monitor to a LCD helped, and so did muting the colors. The only thing I noted with monitors is that a seizure doesn't take place the second you begin looking at the monitor. It's almost like your brain has to get annoyed enough first by the exposure, and then when it reaches that 'I can't stand it anymore' stage, then the seizure kicks off. In fact, there were plenty of times I knew a seizure was going to happen, and to force it just to get it over with, I would play cards or do something my brain didn't like on the computer to hurry it on and get it over. You know, even your doubts about whether those feelings are coming from epilepsy or something else might actually be due to the epilepsy. It could also be denial. With some types of epilepsy, you don't necessarily lose all the symptoms in-between seizures (that's been my experience). With myself, the paranoia/fear component hung on all the time. After being diagnosed and placed on meds, most of those things/symptoms went away pretty fast. Some of the symptoms hung on and were a little harder to get rid of. At any rate, you need to tell your doctor about the symptoms you have now because it is very, very possible that your seizures are not totally under control (yet). Barb I can't speak for "Out-of-Body Experience", but I do have a couple similar symptom that you have. I agree with whoever suggested it may be a "simple partial seizure", but you may want to check on "panic attacks" as well. I have had seizures almost all of my life, and had brain surgery myself in the temporal lobe. Several years back, I noticed my hearing was..."strange" for lack of better wording. In a normal environment, out of nowhere, my hearing would ( and sometimes still do...) go haywire on me, and at the same time, I feel myself getting scared. They have happened often enough now that I now can control my "fear" with ease. ; ) Also about the same time, my arm, usually my right arm, I believe, would have the feeling it wanted to just float up. During this time of the "fear" and the "floating arm", as I said, my hearing would go haywire. I would not hear things "out THERE" : Anything within normal hearing distance, I heard ( or "hear" ) inside my head. Someone I told these experiences to put it in a good way - I was "hearing 2-D in a 3-D world." I can also hear the air moving in and out as I breathe during these "head-games". ( THAT can rattle you....) I call my episodes "head-games". I think you can see why. Mine are usually over in about two minutes or so. But one of the last times I had that happen, I went to bed, thinking it would wear off in my sleep, and I would wake up O.K. I woke up about an hour later in a full blown panic attack - my first one ever. I had my roommate take me to the hospital, where at first, they thought it was a HEART attack, but after tests, decided on "Panic Attack". ( The hospital put me on Xanax for a while. ) I've had I don't know how many "head-games", and this is the ONLY one that led to a panic attack. So I don't know if there's a connection or not. But as I said, you may want to have it checked out. One other point to make, is that the hearing "center" in the brain, is in the temporal lobe. I also agree with keeping a log of all that kind of activity. Since you have access to a computer, it should be easier these days than it was with pen and paper. ; ) My best to you. Jerry BibleGuy03@hotmail.com About a year ago I got diagnosed epilepsy, besides cramps and other types of seizures, I have a kind of out of body experience, example in front of my computer I suddenly feel like being sucked out of my body so I look at my self or looking out from my stomach, kind a creepy feeling and really can't use my body to anything while the seizure is on. Anyone one else has this kind of seizures, and how are u feeling them. Because sometimes I start question myself that if it's even epilepsy it comes from or another thing. Stephan yes,i too have had 'OBES'. ask your neurologist more about this and i am sure he can give you more indepth in- formation. as with me,it is a comforting thing,but not scary,and i know that pro- bably sounds abit off the wall,but that's okay. there are other issues that could be attributing to your OBES so again i'd ask your neurologist. hope i was abit of help. lance http://community.webtv.net/biblical1/ladymychihuahuaandi Frankly, unless the neurologist has had such an experience, I doubt that he/she would be able to offer much insight. Was there an original description here of what type of experience is being referred to? Thanks, Tim hi everyone, Iv been searching boards the last few weeks trying to get some answers. twice in about 2 weeks Iv had what I think my be an out of body experience. I found it very interesting that I found posts about it on this board as Iv always felt I may be having some kind of seizures. I'll start with what Iv felt at night, both times I was sleeping in a very light sleep. Both times I felt I left my body and was in other rooms.Both times my legs wouldnt work and I knew it was because I was not in my body, the secound time while this was happening I felt an awful tingle that started at my feet and traveled very fast up my body. Before both of these I was feeling very strange all evening, felt a shiver kind of thing in my body like when your cold and you shiver to warm up but you cant stop it, drugged feeling, chest and stomach felt strange. Witht he first one I kept waking up and seeing things in the room, scarey things it was freaking me out but I was too drugged feeling to ask hubby for help. The reason Iv always wondered about seizures is because Iv had so many strange things happen all my adult life, drugged feelings, panic, dread, zoning out, a few times when Id slur words, I can be talking to someone and all of the sudden Ill feel strange and its like Im looking at them but cant understand them even thier faces will look distorted to me. Sometimes Ill see things it'll be just a fast thing then gone.Iv always had weird dejavo (sp?) feelingsand almost always Ill feel drugged during them. I have passed out before but even when I hit the ground and cant seem to move I know everything thats going on around me. After I get up I seem drained but almost better feeling for a while if that makes any sense. Sometimes while driving I feel like things Im looking at are distorted,sunlight dim, things Im seeing seem unreal, or longish looking. Sometimes when going to sleep Ill get weird shock waves that seem to shoot into my brain, or I'll be drifting off and suddenly wake up cause I cant breath or it feels like Im holding my breath. I could fill tons of pages with strange and weird things that have happened to me that all seem connected with my brain somehow. At times I wonder if Im losing my mind.ONe thing I do know is Im 41 and Im tired of spending my life trying to figure out why Im not normal.btw I have been to doctors no I dont tell them everything anymore Im sick of being told its all in my head, I do know I have fibromyalgia. Kim Someone else can reply to bottom (whether fibromyalgia can produce the symptoms you describe at end). I'll leave your who post below in case I find other stuff that might be of use. There are 2 sites to start with you can check and Bookmark so you can go back to them when you wish. First the Idaho "First Aid for seizures Chart" describes symptoms of various szr. types you can check. Look at Simple Partial, but others too (*some you can skip if they end with loss of consciousness, although you might have a mild version of those). You can also move from that page to the Rest of the Idaho website and might want to Bookmark its Doorway too. The Ep. Foundation of America has a General Index + more detail if you have particular topics you want to look at. The Idaho First Aid Chart is at ttp://www.epilepsyidaho.org/seizure.htm -- Ep. Foundation is at http://efa.org . *Note the Dr. should be told about any weird feelings. Some of the seizure types can become active as we relax or are about to fall asleep. But I'm more concerned about these 'feelings' you get as you **Drive. *IF you have a Minor or other seizure condition, you probably shouldn't be Driving while you feel that way, until you are better controlled. Depending where you are, the Dr. Might also either tell you that, Or report it. In some jurisdictions you have to be seizure free for 2-6? months before a licence is re-enabled. But if you were to have an accident and it was found you had these symptoms, your Liability Insurance could become Void in those cases. I'm not being Pickie, just thought you should know. The OBE feeling (out of body) might be something else (it's not real), and it could be Sinus or Other condition that can be Treated and Fixed in short order, so is worth being checked. OR it could be a clue for the Dr. to which possible seizure type it could be and save some time and tests as they do the assessment. The Dr. might likely either refer you to a Neurologist, or if he has access might get an Electroencephalogram (EEG) run as part of checking things. That would be interpreted by an Neuro whether your Dr. was one or not. **Sometimes an EEG may not show any Epileptiform waves, even if they were active, but many times they will show up there **if that's what's happening. Like I said, there can be lots of other reasons (disturbed sleep etc.) for OBE type feelings, so a Med. check is worth the time. And stick around here too. You'll get help, support, and input from around the world. Someone might recognize what you describe below and can give you personal experiences too, over next few days. Since we're an International Newsgroup we have people from Central Europe to N. and South America to New Zealand and Australia So that's why you'll want to watch for replies to your message below over next ~3-5 days. I put 2x **s below to mark parts you mentioned that I refer to above, otherwise I didn't change anything. It's there in case *I find something else of use to you also. (And it irritates the Bottom Posters too.. :-< ) Welcome to our neighbourhood. G./ > hi everyone, > Iv been searching boards the last few weeks trying to get some [quoted text clipped - 24 lines] > around me. After I get up I seem drained but almost better feeling for > a while if that makes any sense. Sometimes while driving I feel like ***************************************************** > things Im looking at are distorted,sunlight dim, things Im seeing seem > unreal, or longish looking. Sometimes when going to sleep Ill get [quoted text clipped - 6 lines] > tired of spending my life trying to figure out why Im not normal.btw I > have been to doctors no I dont tell them everything anymore Im sick of ******************************************************* > being told its all in my head, I do know I have fibromyalgia. > Kim THE Idaho site will connect a little better with the 'h' at the Front -- typo !! :-< > The Idaho First Aid Chart is at > http://www.epilepsyidaho.org/seizure.htm -- Ep. Foundation is at > http://efa.org . > Iv been searching boards the last few weeks trying to get some > answers. twice in about 2 weeks Iv had what I think my be an out of [quoted text clipped - 35 lines] > being told its all in my head, I do know I have fibromyalgia. > Kim (I am not a doctor.) I would suspect two different things going on: -Sleep paralysis (see this site: http://www.arts.uwaterloo.ca/~acheyne/S_P.html) -Temporal lobe seizures (these can result in odd perception effects - see this site: http://www.emedicine.com/NEURO/topic365.htm). With all of this weird stuff, one can wonder about sanity (and it doesn't help when doctors tell you "it's in your head") - but these odd experiences most often have origins in the brain rather than in the mind... Also, you may want to look into obstructive sleep apnea if you snore, snort, feel tired often, and have to get up in the night to use the john. Use of a simple recording oximeter can be prescribed by your doctor to check blood-oxygen levels through a night - this is about 70% accurate in testing for OSA. BTW, I WOULD NOT DRIVE AT ALL until your condition is controlled! -- David Ruether rpn1@cornell.edu http://www.ferrario.com/ruether |
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