Re: Surgical Operation of Epilepsy

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Liz & Allan MacDonald - 25 Aug 2004 13:27 GMT

Greetings, JR,
I had surgery in July 1999 to remove part of my right temporal lobe
including a benign tumor. My simple and complex partial seizures ended
immediately. I still take a small dose of dilantin (phenytoin). I had a
grand mal two years after the surgery, shortly after I had weaned off
the dilantin completely, so I resumed taking it. My short-term memory
remains poor, but I had no other consequences.
Best wishes,
Liz

jr wrote:

> Hello.
> I am epileptic since the 12 years age, following a meningitis. For two
> years, my treatments have not been effective any more, and I again
> make complex partial crises with loss of consciousness.
> Next October, I will make a very precise neurological assessment to
> determine if a surgical operation is possible.
> I seek testimonys of people who underwent this operation:
> - When were you operated?
> - Which was the origin of your epilepsy?
> - Do you still make crises?
> - Did your epilepsy disappear? Immediately? A few months later?
> - Did you keep a pharmaceutical treatment?
> - Which were the consequences in your everyday life? (for the memory,
> the attention, for autonomy: to be able to lead, work...)
> - Do you know which procedure was used in your case? (cortectomy?
> colosetomy? gamma knife?).
> I thank you. Sincere greetings. (Excuse my "bad English")
> JR

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Chris - 28 Aug 2004 00:25 GMT

Hey JR,
I was diagnosed with epil at 8 months old due to meningitis and
ensphilitis, am 41 now. My seizures were Complex partial with
secondary generlized.
In 1999 I had the right hippocampus removed.
Yes, I am still on meds, doubt I'll ever get off of Tegratol, been on
it since 1976. :}}}
I was having about 1200 seizures a year before the surgery, compared
to now that it is 1 seizure a year.

Hope this helps.

Chris

> > Hello.
> > I am epileptic since the 12 years age, following a meningitis. For two
[quoted text clipped - 14 lines]
> > I thank you. Sincere greetings. (Excuse my "bad English")
> > JR

Reply to this Message

Mary Fisher - 28 Aug 2004 19:14 GMT

> Hey JR,
> I was diagnosed with epil at 8 months old due to meningitis and
[quoted text clipped - 5 lines]
> I was having about 1200 seizures a year before the surgery, compared
> to now that it is 1 seizure a year.

That's impressive!

Mary

> Hope this helps.
>
[quoted text clipped - 18 lines]
> > > I thank you. Sincere greetings. (Excuse my "bad English")
> > > JR

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