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Medical Forum / Diseases and Disorders / Epilepsy / July 2004

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Seizure Alarms

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Carl Weatherell - 27 Jul 2004 02:39 GMT
Me again.

Ou rneurologist thinks our nearly 2 yr old i having nocturnal seizures.  I
have been looking for a seizure alarm that wil detect very subtle myocolonic
seizures.  Most of the alarms I have seen (Australia and UK) are under the
matress and require shaking of the bed or are just not sensitive enough.
She has very mild myoclonic "twitches".

Anyone seen anything else out there?

thx

Carl ;-)
Eric - 30 Jul 2004 01:02 GMT
> Me again.
>
[quoted text clipped - 9 lines]
>
> Carl ;-)

Carl,

I have not seen any alarms, but a sleep study at a reputible clinic
would be advised, having my first tonic-clonics in my sleep.  If you
choose to do so, find one that only does two or a few patients at a
time.  I went to a hospital sleep clinic that didn't tell me anything
when I first tried out a sleep study.  But they had one lousy guy
observing probably around 50 people.  Some sleep clinics are just
there for the money, especially here in the U.S., and are worthless.
I went to another hospital who only did 2 patients each night.

The tricky part is to be at a sleep study when a seizure occurs, if
she does not have them nightly. You could go many times and they might
not see anything.

Another possibility, as many people have already read with me, is
sleep apnea.  That is what triggered my nocturnal seizures because of
lack of oxygen to the brain.  Regularly nothing happens, but with
someone seizure-prone, sleep apnea becomes just a trigger for a big
night monster.  Keeping my chin propped up at night to breathe helped,
but I finally got over it by having my golf-ball sized tonsils removed
at age 37, but I still have shallow breathing at night.

If I hear anything I'll post it,

Eric
Fay - 30 Jul 2004 02:24 GMT
I also have Myoclonic Seizures, but I am 89 years young.It started when
I was in my 70 with restless leg syndrome.
I also have vocal out burst like Tourette syndrome.
Is there anyone here have the same?
I would like any info that could help my find the right label.
Thanks Fay
Fay - 30 Jul 2004 02:26 GMT
I see the 9 didn't print .lol I am 89
Fay

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