Hi all
Im curious about peoples experiences in areas where there are alot of
lights, noise, and attractions like Vegas (indoors and out) or nightclubs.
Also, experiences in ammusement parks, rollercoasters, at the like.
Cheers :-)
CyberCafe - 25 Jul 2004 20:55 GMT
> Hi all
>
[quoted text clipped - 3 lines]
>
> Cheers :-)
Here's a little story of my experience, and this is just an example.
There were two malls in Eau Claire. One mall had gray tiled walls and
floors. That gray mall did not have fancy decorative elements, fancy lighting
or 'glamour.' The other mall, the new mall, had highly polished floors,
shiny metal decorative posts, blinking likes. The new mall was set up so you
could see into many stores at the same time, giving a visual 'busy' effect.
I never had problems from the gray mall. Every time we went to the new mall
though, I would end up feeling bad. My kids noticed that every time we went
to the new mall, I had to go sit down in the cafeteria. Back then I didn't
know I had epilepsy. There was just too much visual stimulus in that new
mall.
I visited that new mall again some time later, and this time I thought I would
avert my eyes from all the visual stimulus, so I looked down at the floor as I
walked. Every once in a while I felt kind of strange and would have to sit
down. This happened over and over. It was the floor itself that was causing
trouble. It was very polished, highly reflective and shiny. The floor was
not completely even (smooth) and every time I walked I got the effect of
something that resembled ocean waves. The main thing that surprised me about
this was how fast it happened and how every time I sat down I would quickly
feel better; then as I walked again the same thing happened.
Other stuff that has bothered me includes reading (large print such as
newspaper headlines, signs, are okay though), anything that's highly
patterned, intense color contrasts/intensity, standard computer monitors, my
own hair blowing in the breeze (had to cut my bangs), and stuff like that.
Noise doesn't bother me. I never had problems with outdoor activities held
during the day (fairs, amusement rides, etc.) because I think the sunlight
kind of washed everything out, kind of blended everything so there wasn't as
much visual stimulation.
I don't have problems with visual stimulation as long as my Dilantin is
controlling seizures. I try to avoid environments that would expose me to
heavy photosensitivity triggers, and my house decorating scheme is bland
(neutral colors, no patterned drapes, carpets, etc.). I also feel I have to
close curtains and drapes at night because the black windows (no street
lighting where I live) is too much contrast against the walls.
I've known a couple of people whose seizures were triggered by patterns only
(white ceiling tiles, for example).
You might be able to tolerate some of the visual stimulus you mentioned if you
wear sunglasses. You should put the glasses on BEFORE being exposed to all
that stimulus.
Barb
Charani - 25 Jul 2004 21:07 GMT
> Im curious about peoples experiences in areas where there are alot of
> lights, noise, and attractions like Vegas (indoors and out) or nightclubs.
> Also, experiences in ammusement parks, rollercoasters, at the like.
My son loves roundabouts and carousels but he can't watch them or ride them
because they cause him to fit :(( If he's riding one it must make him feel
rough because after a couple of revolutions he wants to get off which isn't
always possible, so he doesn't ride them any more :(( I daren't let him go
on any fairground rides at all.
He's never liked places where there's a lot of noise or too many people.
He's a bit better now, but he'll go and stand outside if it becomes too
much for him.
Raistlin - 26 Jul 2004 22:38 GMT
hi theo,
until i had my brain surgery i had no problems with the stuff you
mentioned. after the surgery i reacted extremly sensitive to crowds,
noise, especially many people talking, it was`impossible to focus on a
single voice. since i started having seizures, i avoid situations
like this, because they may cause me easily to seize even with my
medication.
i've thought about earplugs, but where's the difference between not
understanding someone because you can't focus and not understanding
because you can't hear? ;)
raist
> Hi all
>
[quoted text clipped - 3 lines]
>
> Cheers :-)
Ron Darr - 02 Aug 2004 06:43 GMT
I use ear plugs. They cut down on the volume of all but the closest voices.
By trying different ear plus with diff. levels of noise reduction you can
find a balance that still allows you to hear people close to you.
I always use mine in malls, restaurants etc.
Ron
> hi theo,
>
[quoted text clipped - 17 lines]
> >
> > Cheers :-)
Mike - 03 Aug 2004 06:28 GMT
After my surgery if I were sitting in a restaurant it would be like
something from a bad star trek show, I could listen to conversations at any
table within about thirty feet and at times it would become quite
overwhelming. Then one day it just went away, it was almost like when your
ears pop when you're in a plane.
Mike
> I use ear plugs. They cut down on the volume of all but the closest voices.
> By trying different ear plus with diff. levels of noise reduction you can
[quoted text clipped - 25 lines]
> > >
> > > Cheers :-)
Theo - 10 Aug 2004 23:41 GMT
> After my surgery if I were sitting in a restaurant it would be like
> something from a bad star trek show, I could listen to conversations at any
> table within about thirty feet and at times it would become quite
> overwhelming. Then one day it just went away, it was almost like when your
> ears pop when you're in a plane.
> Mike
Im not exactly a crowd person either, and am generally not comfortable in noisy
rooms. But I always thought it was more because Im not very extroverted and
dont function well in crowds. I was like that before I was diagnosed as well.
Then again, I can make presentations to large groups with no problem,
especially when I know the topic well. Its all so confusing.
In restaraunts I also tend to hear other tables. I guess Ive just learned to
tune them out. Comes in handy when I want to tune out people Id rather not
listen to ;o)
bugs@bugs.com - 27 Jul 2004 01:43 GMT
Used to be the hard driving bass in lots of today "younger" music would
cause me to start having seizures. It hasn't happened in quite awhile
though. Then again I tend to stay away from areas where there is a lot of
loud music playing.

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I wish you all the best
Tim W
www.onepest.com