Medical Forum / Diseases and Disorders / Epilepsy / October 2004
First Time Seizure
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CindyC - 08 Jul 2004 21:14 GMT I am a 41 year old woman, who had her first seizure 3 weeks ago. I'm soooo glad I found this site! I've read a lot of the postings. Needless to say I'm still upset and confused about this.
I was at work, and fortunately there were EMT co-workers on site. I don't remember anything about it, but apprently my teammates heard me "vocalizing" and when they came over I was in my chair with my back arched. They laid me down on the floor and I went into convulsion. The convulsions lasted a few minutes, and I did bite my tongue. It was about 30 minutes before I was really "aware" of what was going on ... just as they were loading me into the ambulence.
At the hospital they gave me an anti-convulsive drip and did some test. My ekg, eeg and blood work were all fine. A few days later I had an MRI done, and it was fine too. I don't do drugs, not on any weird diet, and pretty much am in top physical condition (I run 5 or 6 miles 4-5 times a week).
So now I'm in that questioning phase of why I'm on the dilantin. My neurologist wavers back and forth between 1) I have to stay on this 3-6 months and 2) I could go off it if I wanted to. I just had blood-work done last week and they told me my dilantin level was too low (5.1) and I should increase the dosage. But I was really dizzy on the higher dosage initially.
I guess I'm just looking for advice on how/when to decide whether or not to stay on medication. I certainly don't want to make light of the situation, but I'd feel better if there were a medical rationale ... other than the one "incident". My husband insists on driving me everywhere, and I constantly worry about it happening again. I just don't know where to go from here ...
Thanks for letting me vent!
Cindy
gaross - 08 Jul 2004 21:54 GMT > I am a 41 year old woman, who had her first seizure 3 weeks ago. I'm soooo > glad I found this site! I've read a lot of the postings. Needless to say [quoted text clipped - 7 lines] > 30 minutes before I was really "aware" of what was going on ... just as > they were loading me into the ambulence. Do you know or remember if there was any Construction type work or ?? going on around where you were working? Sometimes some of the paint or equipment used can contain ether or other gases that might affect someone Sensitive but not necessarily prone to Seizures under Normal atmospherics. Some of the szrs. I had, when first started in 1993 could be triggered or made worse by just Bleach or Lemon Cleaners in Shopping Malls where I was. That's why I wondered if something like that that you might not have thought about, might have been a trigger for you.
> At the hospital they gave me an anti-convulsive drip and did some test. > My ekg, eeg and blood work were all fine. A few days later I had an MRI [quoted text clipped - 8 lines] > should increase the dosage. But I was really dizzy on the higher dosage > initially. G. It's probably best to use it like he says. Dilantin is one of the oldest meds. so more benign that some of the stronger ones, less side effects when it works, and if you get to a stable level, they can still do another EEG or ?? after 3-6 months to see if anything shows up. I thought the EEG only worked if they were able to trigger a minor szr. while you're 'wired up'. IF there are no other Seizures or auras (dizzy, swirling sensations, sometimes with either a taste or aroma (eggs or lemon) that's not there, they will likely Reduce the Dilantin and remove it. Dilantin is also Easier to Remove from your Dose schedule than some of the stronger pills some of us use. (To stop my Tegretol -- 2 tablets, if I were to, would be done over 4-7 weeks, if they did it at same rate they altered the Morning dose about 7years ago.) Usually a dizzy feeling means the dose is too high, or your body isn't used to it yet. If the tablets are solid and can be Broken (there's a slot in them if they can), they can be Increases by alternating, e.g. increase of half a tablet at dose time, then none next day, half a tablet for a week, then half a tablet (increase above) for a week), then alternate days at the Half tablet and a Full Tablet for a week, then one week at a full tablet. It depends when they want you back for more Bloodwork -- if it's before you could get up that way, you might have to increase it faster... But Dilantin is Somewhat milder than some other pills. Take it with Food, Juice or Milk to help absorb it, don't Crush the Tablet or Chew it (often on some pills) or use any Stomach Upset Medicines or Alcohol. Both the latter will flush out the medical levels you're trying to get to. (With Tegretol, by the way, Grapefruit Juice has one acid that other juices don't have that interferes with it. I don't know if the same would apply with Dilantin, but Grapefruit is Disgusting anyway.... IF your Druggist didn't give you a printout about anything to watch with Dilantin, there's a Medications Glossary at http://efa.org where you can look up the Pill and get a Printable page on how to use it.
> I guess I'm just looking for advice on how/when to decide whether or not > to stay on medication. I certainly don't want to make light of the [quoted text clipped - 4 lines] > Thanks for letting me vent! > Cindy G. They'll probably keep you on Dilantin for 3-6 months, possibly with another EEG if they don't find anything This time to explain why you had that One Episode. If nothing to explain it turns up, or a later test is Clean, they Might slowly reduce or phase you off the Dilantin. By the way, do you remember anything just before the Onset of the one you had? What you described at the top could be any one of about 3 types of seizures, but definitely sounds like a seizure. That's why I wondered if it could have been triggered by something near where you were working. If not, then you might just have to join our group. :-<
If your Group Scan didn't turn up a couple of posts that I or Bob (sps) did about 2-3 months ago that listed some of the Ep. Websites, I can re-post the older note. Mainly it has Julie's Idaho website (her www is at end of one of her posts in the last week or so), Howdy Dave has a site listed at end of his posts. Both those have a link to above http://efa.org U.S. site, but Julie's Site also has some other stuff you or your husband would find interesting -- specifically it includes *2 other pages -- One on First Aid for Seizures he might want to Print since it tells you what to do and *not to do, the Second one is First Aid in Water -- if you swim or boat much. Latter is newer but techniques are slightly different for Water, vs. on Land. They do however produce a level of Comfort to see how easy it is to help someone come out of a seizure by just knowing what to do and what *not to do, that makes it easier for us both. G./
CindyC - 08 Jul 2004 22:26 GMT Oops, forgot to say I'm on phenytoin capsules. I started with 3-100mg pills at bed-time but got really dizzy during theday. So my doctor told me to try 2 ... but then my level is low. I'm going to try a 3 one day, 2 the next pattern and see if I can find a balance between the blood levels and dizziness. Maybe work my way back up to 3 pills every day.
Robert A. Fink, M. D. - 08 Jul 2004 22:55 GMT >Oops, forgot to say I'm on phenytoin capsules. I started with 3-100mg >pills at bed-time but got really dizzy during theday. So my doctor told >me to try 2 ... but then my level is low. I'm going to try a 3 one day, 2 >the next pattern and see if I can find a balance between the blood levels >and dizziness. Maybe work my way back up to 3 pills every day. Your neurologist is giving you good advice. You should stay on the medication for at least 6 months; and, depending on what happens then, possibly longer. There is significant risk of your having another seizure, and if that were to happen while you were driving a vehicle, climbing a ladder (or even stairs), things could be dicey for you as well as others around you.
In most states, a seizure must be reported to the Department of Motor Vehicles, and your drivers license can be suspended until your doctor states that you are "controlled".
There are other medications (other than Dilantin [Phenytoin]) if you continue to have bad side-effects. Ask your neurologist.
Best,
Bob
Robert A. Fink, M. D. Neurological Surgery 2500 Milvia Street Suite 222 Berkeley, CA 94704-2636 USA 510-849-2555
********************************** NOTE: The material above is not "medical advice". Medical advice can only be given after an in-person contact between doctor and patient. **********************************
Tim Evans - 11 Jul 2004 22:50 GMT Hi Cindy
Don't they take your licence away as soon as you've had a seizure, especially if the Dr says you could experience another within 3-6 months. They do in England.
I've had epilepsy for 21 years and have taken phenytoin for nearly 3 1/2 yrs. I was taking 175mg three times a day (along with 4 other anti-epileptic drugs); they come in 25mg/50mg/100mg capsules, so perhapsy you could try and middle dose and see if that works.
Adey
> >Oops, forgot to say I'm on phenytoin capsules. I started with 3-100mg > >pills at bed-time but got really dizzy during theday. So my doctor told [quoted text clipped - 32 lines] > doctor and patient. > ********************************** Dawn Compton - 12 Jul 2004 04:19 GMT Tim wrote:
>Don't they take your licence away as soon as >you've had a seizure, especially if the Dr says >you could experience another within 3-6 >months. They do in England. I live in the U.S. (Indiana precisely) and my license was suspended right after I had my first grand mal seizure and went to the hospital. Soon after I started seeing my neurologist, I was told I would have to go a minimum of six months without having another seizure before I could hope to get them back.
CindyC - 12 Jul 2004 05:36 GMT Interestingly, the state in which I live doesn't require a doctor to report driving restrictions. It's up to the doctor's discretion based on the individual case. So my neurologist told me he would recommend that I didn't drive, but since it was my one and only seizure he wasn't reporting it to the state. Fortunately, I only live a half-mile from where I work so restricting my driving on my own decision isn't a problem.
I have decided to stay on the medicine and have increased my dosage back to the original level. I'll be going back in for blood work in a couple weeks to see how it's doing. Hopefully all will continue to be well.
CindyC - 08 Jul 2004 22:22 GMT Thanks for the quick response!! And thanks for all the great information in your post. I'll go checkout those other sites.
I work in a large office, and I don't think there was any construction or anything that day. I work with computers all day, and had just come back from lunch and sat down. I started having what I've been thinking were anxiety attacks ... the first sensation I get is as if I've been holding my breath, then a feeling of panic. I just started getting these in the past couple of years, and when I do I just take some deep breaths and try to relax. And it goes away. My anxiety attacks are always work related. I never have them at night or on the weekends.
Anyway, I did that this time and remember thinking "Well that wasn't so bad." And the next thing I new I was on a stretcher with an EMT asking me if I knew what day it was. Yikes! Of course, now I wonder if these are aura's, or if my anxiety attack led to the seizure somehow (hyperventilating, etc.)
My neuro did tell me that people who have first-time seizures are likely to have a repeat in the next 3-6 months if at all. I assume that's why he wants me to stay on the dilantin during this time. I'm thinking I'll stay on it, make sure my blood level is right, and see if the "anxiety attacks" go away too. That might tell me something.
Thanks again for the great input. I really appreciate it =)
Cindy
gaross - 09 Jul 2004 03:24 GMT > Thanks for the quick response!! And thanks for all the great information > in your post. I'll go checkout those other sites. [quoted text clipped - 22 lines] > Thanks again for the great input. I really appreciate it =) > Cindy You can pay attention too to anything Dr. Fink posts here. He's our only (main) Doctor who looks in from time to time, and any of his advice wrt. medications or what you should tell your Dr. you can take as Correct.
Also if you look at any of those Ep. support sites, take a look at Simple Partial seizures (or Auras) and see if some symptoms sound like the Panic feeling you are getting. I used to get those ahead of a Stronger seizure (Complex Partial), but my Doctor told me the Aura was part of a Simple Partial seizure that can end there or (in my case) move on to the C.P. type seizure. I don't get Either of those symptoms any longer, but still use the medications I started with back then.
I wondered on this latest post, since you hadn't mentioned Computer Screens earlier. *Some older screens might have a Slower 'refresh rate' that can cause some people who are Photo-sensitive to get Auras or Simple partial seizure effects. Do you remember if you ever get sensitivity e.g. near Flickering Lights or Neon Tubes? or with light flashing through trees as you travel along a road? Some of these (if they happen) can indicate more sensitivity to Flicker rates from lighting. I've seen some computer stores here advertising 'screen guards' that fit over a computer screen and supposedly cut down on screen Flicker (if you thought that might be something you're sensitive to). *But I've never seen anyone post here over last ~5 years about having Used one of those or if they worked for them IF they were Photosensitive. One woman here about that long ago, used a Liquid Crystal computer screen, since she couldn't use the types of screens that were available around the time of Windows 95. (Newer screens likely have Faster Refresh rates now, so should be Less a potential problem -- but if you were using an older CRT or system, I wondered if that might be part of an effect you get. After Lunch vs during the morning? I wondered too (but don't know anything about), if some of that might be from changing Blood Sugar levels during the day -- e.g. up to Lunch and for an hour? after lunch. /G.
KTI@webtv.net - 09 Jul 2004 05:45 GMT Cindy, you mentioned you just came back from lunch, Curiosity, have you been tested for food and chemical allergies? I ask because this is when I got all my answers to the cause of my szs and i was medicated for the 1st 27yrs of my life before I took control of my health, So before you start the drugged up medicated road, Maybe get tested for allergies, cuz it sounds like it was an immediate allergic reaction or possibly from the computor itself.
CindyC - 09 Jul 2004 15:10 GMT It's interesting you say that. I jokingly told my husband "Well I'll never eat pastrami and turkey on rye again!" That's what I'd had just had for lunch that day. It's unusual for me to eat sandwiches, and almost never on rye.
I was mostly joking ... and partially thinking what if the bread happened to have some weird mold or something in it. I didn't think about allergies.
I'll definitely talk to my doctor about that possibility.
Thanks for the input!
KTI@webtv.net - 09 Jul 2004 20:33 GMT Cindy, If you want to read some science on allergies and the brain. Go to your library and get a book called "Brain Allergies" by Dr. William Philpott. BTW Wheat was a major sz trigger for me and as the dr. said, Most everything we eat, if not fresh, is wheat based which is true! So I switched to all natural rye bread for awhile and now use Spelt. Hopefully you wont have many allergies as I did and you can be healthy and fine in the end!
Sincerely Kathy
CyberCafe - 10 Jul 2004 15:22 GMT > Thanks for the quick response!! And thanks for all the great information > in your post. I'll go checkout those other sites. [quoted text clipped - 23 lines] > > Cindy They might not be real anxiety attacks but actually seizures. My first symtoms (I started with simple partial seizures then progressed to complex partial seizures) were panic attacks followed by sudden tiredness. I was diagnosed with epilepsy when I was 42 or 43 although I started having problems around age 20 or so. .
When I read your original post, I felt you needed to be on meds at least for a while, and this post makes me feel even stronger about it. I hope you mentioned these anxiety attacks to your doctor because he needs to know that.
Gaross mentioned the possibility of photosensitivity, which I agree with, because this stuff is only happening to you during the week. There is probably something in your work environment that your brain doesn't like that is triggering your seizures (Sorry about assuming it's seizures, but we'll trust the doctors and the EMT's opinions that's what the problem is).
Barb
CindyC - 10 Jul 2004 17:38 GMT Yes the more I read these posts the more I believe my "panic attacks" were either auras or seizures themselves. That's another reason why I've decided to stay on the dilantin and make sure by blood level is in the right range. If the panic attacks go away ... that will tell me something. I did mention that to my neurologist when I met with him. Even at the time I had a feeling that was something important.
I'm definitely going to read more about photosensitivity. I've worked with computers since 1984, and never had a problem. But I recognize that it could be something about the office I'm in now ... or my aging brain =)
Marco - 09 Jul 2004 05:32 GMT > I am a 41 year old woman, who had her first seizure 3 weeks ago. I'm > soooo glad I found this site! I've read a lot of the postings. [quoted text clipped - 31 lines] > > Cindy Hello Cindy,
Your experience looks a little bit similar to what happend to me -though root cause is clear to me in my case and I have a family history. Also, the EEG in my case which was taken a couple of weeks afterwards showed abnormalities which may trigger a new seizure.I was hospitalized as well because of tonic-clonic seizure, I bit my tongue and urinated.
Stress, alcohol, lack of sleep can cause seizures and sometimes the screen resolution of a computer can cause a seizue when not configured OK. Furthermore, when one is getting older, the brain structure / brain cells is / are changing all the time and yes, sometimes this can cause epilepsy to occur as well. Good news for you however is that MRI was OK (no tumor, etc.). The bad news in these cases is of course that a good diagnose is still to be done as and you still don't know what actually happend that triggered the seizure.
Your doctor seems to have given you a good advice -you may (no guarantees!) indeed get another seizure within 3-6 months when you do not take anti epileptics to prevent it from happening again. At your age, I believe you will have to take drugs at least 3 to 4 years to make sure it does not get back again. At my age (29), I will take drugs at least the next 4 years. That is what they told me.
Dilantin is as far as I know not the first drugs a neurologist should prescribe to someone as it is a fairly old drug? Depakene may be a better choice (as it is "first choice drug for neurologist" depending on what type of epilepsy you have) and with the right dose, there are not so many side effects.
By the way I take 1000mg of Depakene per day to prevent primary generalized seizures in both the frontal lobes. The side effects are OK to deal with. Good luck to you -being diagnosed is the worst part of epilepsy including the uncertainty of what the prognoses will be, etc.
 Signature Take care.
Bye, Marco
CindyC - 10 Jul 2004 17:44 GMT I agree ... the good news is that there's no mass or tumor. That was definitely a relief.
I'm also coming to the understanding that I need to just stay on the medication and worry about the side effects if and when they happen. I have a very mild heart murmer so I always try to avoid meds ... just in case.
Thanks for sharing your experience, and info on Depakene!
Robert A. Fink, M. D. - 10 Jul 2004 17:55 GMT >Dilantin is as far as I know not the first drugs a neurologist should >prescribe to someone as it is a fairly old drug? Depakene may be a better >choice (as it is "first choice drug for neurologist" depending on what type >of epilepsy you have) and with the right dose, there are not so many side >effects. Dilantin (Phenytoin) is still the drug of choice in many cases of major seizures, although there are many drugs which are now available. Valproate (Depakene or Depakote) is another good drug, but it also has significant side-effects, some of which can be more troublesome than Phenytoin.
One of the major advantages of Phenytoin (Dilantin) is that it is a long-acting, slow-acting drug, and can, in most cases, be taken as a once a day dose, whereas Valproate and others need to be dosed several times a day.
Sometimes "old drugs" are better than new ones. The drugs which ave been around for a while have all of their side-effects known and documented and there are fewer "surprises".
Best,
Bob
Robert A. Fink, M. D. Neurological Surgery 2500 Milvia Street Suite 222 Berkeley, CA 94704-2636 USA 510-849-2555
********************************** NOTE: The material above is not "medical advice". Medical advice can only be given after an in-person contact between doctor and patient. **********************************
Bob - 10 Jul 2004 19:59 GMT > <snip> > [quoted text clipped - 12 lines] > been around for a while have all of their side-effects known and > documented and there are fewer "surprises". Which might have been the drug(s) of first choice in the 1963-4 timeframe for the various seizure types? (Simple & Complex partials, Grand Mals, etc)? Phenytoin? and/or? (in San Francisco, if that matters. :-) )
Bob
gaross - 10 Jul 2004 18:33 GMT > > I am a 41 year old woman, who had her first seizure 3 weeks ago. I'm > > soooo glad I found this site! I've read a lot of the postings. [quoted text clipped - 29 lines] > Bye, > Marco ** G. ** My Doctor told me what Dr. Bob said earlier on this message thread. Since Dilantin has been in use for many General szr. types and has been longer studied, it's a good First Med. for several of the seizure types. Also since the Research costs were recovered in the 1930s? it's one of the Cheapest for the Patient to use, and has the least potential side effects, if it alone will give full control. (I only used it about 18 months for C.P. seizures then had to move to more Targeted (newer) meds. to get control.)
If she's able to get close to full control using it, that would save her more testing to try other meds. looking for one that will work. And it would save higher costs, if she could use a well studied med. vs. a new one. Many of the newer meds. are also targeted for a particular szr. type or area of the brain. I don't remember if she mentioned if they knew where her szrs. started, so a med. for C.P. seizures (mine) or Frontal Lobe might not be appropriate for her. G./
Chris Lesurf - 17 Jul 2004 22:08 GMT In article <7723f0660626a57f27b675265de62b59@localhost.talkaboutsupport.com>,
> I am a 41 year old woman, who had her first seizure 3 weeks ago. Your age may be a significant factor because epilepsy is often associated with hormones and has a tendency to start or stop at puberty, pregnancy or menopause. My own began when I started taking contraceptive pills 33yrs ago. It didn't stop when I reached mt menopause but the types of fits I have are certainly different.
I rarely have convulsions but have an aura and then my memory stops recording. I remain aware of what's going on (ie I don't do anything dangerous like crossing a road without looking) but often initially relax and sing and then get in a panic and say I'd rather be dead. If anyone tries to force me to do anything then I fight, but have no memory of it when I come back to normal.
Make sure your colleagues know what to do so they make no fuss about your continuing to work. WRT driving, I would certainly give it up. You are legally obliged to and in Britain must get someone to vouch for the fact that you have not had a fit for 2yrs before you may start again.
It is also worth carrying a brief instruction note to show anyone when you think a fit is coming on. Then they'll know whether to just wait and see what happens or ring someone like your husband and if you are taken to a hospital while still in a muddle whoever treats you will be able to see your current drug doses.
By the way, I know it's very disturbing when it starts, drugs can slow you down, you may suffer prejudice caused by other people's ignorance but I reckon I suffer more from my catarrh than my epilepsy !
Cheers,
Chris L.
cabbagecaff - 05 Sep 2004 11:10 GMT Hi Cindy, My husband, also 41, has just had his first seizure, and are awaiting further tests -an EEG and MRI. CT Scan showed nothing, bloods showed no infection. He needs to drive for his job, and we are both absolutely poleaxed by this event. He had been in very close contact with two very friendly parrots 7 days before, who licked the inside of his ears for about 20 minutes. Does anyone think that this could have introduced bacteria which could have caused this seizure? Would that have shown up in the blood tests? I am going mad watching him, waiting for the next episode. I love him so much, and want to help him regain confidence. Thanks
gaross - 05 Sep 2004 15:33 GMT > Hi Cindy, > My husband, also 41, has just had his first seizure, and are awaiting [quoted text clipped - 8 lines] > and want to help him regain confidence. > Thanks Hi. Stick around, we have lots of people who can reply in about 12-14 timezones (they don't all read the newsgroup over the weekend but will see your message when they log on). My (non-medical) opinion is it's not likely he's get seizures from the Bird (although I originally had encephalitis in 1979 that preceded by seizures in 1993-- I got That from a Mosquito, but that type is Rare.). The CT scan shows no major? internal damage that could cause seizures, the other 2 tests will look for smaller sized damage or erratic electrical activity. Some people can have 1 or 2 seizures then no others without a cause showing up, and it doesn't return. Others of us, once diagnosed get 100% control with some level of medications. I was told I might expect 1-2 seizures per month in 1993. Last seizure I had was June 1998. FYI.
If you still have an older post I did last week 'up' that lists Epilepsy News Sites, I listed about 3-4 main sites I had found over the years- or you can post back and I'll dig it out to post again. Both Julie and Dave Naess list their sites at the ends of their posts, and the Main sites are their's plus they both link to http://efa.org the U.S. Ep. Foundation Main site. For now you might be Better supported just reading, asking, and staying *here until you have more details about your husband. There's no point getting worried about some of the Multi Seizure types if his turns out to be transient or minor and easily treatable. G./
Robert A. Fink, M. D. - 05 Sep 2004 22:41 GMT >Hi Cindy, >My husband, also 41, has just had his first seizure, and are awaiting [quoted text clipped - 8 lines] >and want to help him regain confidence. >Thanks It is very unlikely that the parrot had anything to do with the onset of seizures. If the CT scan is negative, that's good, but the MRI is more sensitive to structural things such as vascular abnormalities and/or tumors.
I am assuming that he was given anti-seizure medication. His seizures should be easily controlled if handled properly. BUT, he should not drive a vehicle until he has been seizure-free for a time. In California, it is six months, and it requires a statement from the doctor that the patient is being treated and is cooperating with treatment. In California (and most of the other states), a seizure must be reported to a government agency (the DMV or the Health Department), and drivers licenses can be suspended or placed on probation.
Best,
Bob
Robert A. Fink, M. D. Neurological Surgery 2500 Milvia Street Suite 222 Berkeley, CA 94704-2636 USA 510-849-2555
********************************** NOTE: The material above is not "medical advice". Medical advice can only be given after an in-person contact between doctor and patient. **********************************
Dave ???? - 06 Sep 2004 07:22 GMT > >Hi Cindy, > >My husband, also 41, has just had his first seizure, and are awaiting [quoted text clipped - 40 lines] > doctor and patient. > ********************************** Howdy!
The "seizure free" time required before a drivers license can be reinstated differs from state to state. Check with your doctor or your state DMV.
 Signature Dave ????
http://www.howdydave.com
Dave ???? - 06 Sep 2004 07:30 GMT > > >Hi Cindy, > > >My husband, also 41, has just had his first seizure, and are awaiting [quoted text clipped - 45 lines] > The "seizure free" time required before a drivers license can be reinstated > differs from state to state. Check with your doctor or your state DMV. BTW: If you don't want to raise any red flags at the DMV, check with your local EFA branch office.
 Signature Dave ????
http://www.howdydave.com
Robert A. Fink, M. D. - 06 Sep 2004 21:53 GMT On Mon, 06 Sep 2004 06:22:47 GMT, "Dave ©¿©¬" <dave@_nospam_howdydave.com> wrote:
>Howdy! > >The "seizure free" time required before a drivers license can be reinstated >differs from state to state. Check with your doctor or your state DMV. If the doctor is quick with the (mandated) report, and if the patient follows the doctor's instructions (to stop driving until certified as being "controlled"); very often the paperwork will take about 6 months to be completed. If the patient is seizure-free at that time, the drivers license may not be suspended, and the only requirement might be for the patient to have periodic statements from the doctor that their seizures are controlled.
Once this goes on for a while, the license status is returned to "normal", and the only reason for the DMV to get involved again would be if the patient had another seizure.
Best,
Bob
Robert A. Fink, M. D. Neurological Surgery 2500 Milvia Street Suite 222 Berkeley, CA 94704-2636 USA 510-849-2555
********************************** NOTE: The material above is not "medical advice". Medical advice can only be given after an in-person contact between doctor and patient. **********************************
cabbagecaff - 01 Oct 2004 16:35 GMT Husband Ian has now had a second fit, and is on 25mg Lamictal for 2 weeks, then 50mg for 2 weeks etc etc. We are starting to get a better perspective on this now, and I can see life (a different one) will continue on in the future. In England you have to give up your driving licence for a year following a fit, and have to remain fit-free for a year to get it back. Ian would not dream of driving again until we are certain that he is controlled - so roll on next Septemeber, and lets hope my confidence will increase in the meantime. Its very hard, all this - but you have all helped me SO much. Thanks everyone Cathy
Mary Fisher - 01 Oct 2004 18:05 GMT > Husband Ian has now had a second fit, and is on 25mg Lamictal for 2 weeks, > then 50mg for 2 weeks etc etc. [quoted text clipped - 3 lines] > remain fit-free for a year to get it back. Ian would not dream of driving > again until we are certain that he is controlled Good for him. The regulations are well founded - even though that year can seem very long and very hard. after my only fit the regulation was TWO years, it was changed during my period of being grounded.
Mary
Satch - 02 Oct 2004 07:57 GMT > Husband Ian has now had a second fit, and is on 25mg Lamictal for 2 weeks, > then 50mg for 2 weeks etc etc. [quoted text clipped - 7 lines] > Thanks everyone > Cathy Hello Cathy,
I had my first tonic clonic seizure in February 2004 and I did not have any seizures up to this moment which is great. In The Netherlands, where I live, it is also law that one cannot drive one year after first seizure and that one needs to be seizure free during that year. Personally, I use other good ways of transportation (bus/train and even a bicycle!) to go from one place to another place. Of course, it depends a little bit on what job your husband is doing (for bus drivers there are other rules by law, etc.).
Time passes by I have to admit and I already feel that I get my drivers license within short time while it is even four or five months away! I already forgot about it. Anyway, I will keep using bus/train and bicycle as well as I am pretty happy using that. For long distances, I kindly ask someone to drive me but up to this moment, I do not have to ask anymore.
Cheers, Marco
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