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Medical Forum / Diseases and Disorders / Epilepsy / June 2004

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Does someone know a good book / literature / magazine about Frontal Lobe Epilepsy

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Marco - 18 Jun 2004 19:10 GMT
Hello,

As I recall correctly, I am diagnosed with that type of epilepsy so I need
to read about it.

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Take care.

Bye,
Marco

Bob - 18 Jun 2004 19:50 GMT
>  Hello,
>
[quoted text clipped - 6 lines]
> Bye,
> Marco

Hallo Marco

Just put those three words
Frontal Lobe Epilepsy
into the Google search engine and you will get more to read than a book would
have.

Groeten,

Bob
Marco - 18 Jun 2004 20:38 GMT
>>  Hello,
>>
[quoted text clipped - 17 lines]
>
> Bob

I did that already but I would like to have a more structured way of reading
and I would like to have an enchiridion.

Thanks anyway.
Signature

Take care.

Bye,
Marco

KTI@webtv.net - 19 Jun 2004 19:09 GMT
The best book to ever read on TLE is called "Seized" by Eve LaPlante.
It's Supurb! Enjoy if you dare.
Marco - 19 Jun 2004 23:27 GMT
> The best book to ever read on TLE is called "Seized" by Eve LaPlante.
> It's Supurb! Enjoy if you dare.

Good day,

I saw that book on Amazon but that was AFTER I bought:

Epilepsy You're Not Alone
Stacey Chillemi;Paperback; $15.95

Epilepsy: Patient and Family Guide
Orrin Devinsky M.D.;Paperback; $26.95

Epilepsy and Seizures: Everything You Need to Know (Your Personal Health)
Donald F., Dr Weaver;Paperback; $10.47

Brainstorms-Epilepsy in Our Words: Personal Accounts of Living With Seizures
(Brainstorms Series, 1)
Steven C. Schachter;Paperback; $32.90

So, the next book I buy will indeed be "Seized" :-)

Thanks for your responding.

Signature

Take care.

Bye,
Marco

Bob - 19 Jun 2004 23:35 GMT
> > The best book to ever read on TLE is called "Seized" by Eve LaPlante.
> > It's Supurb! Enjoy if you dare.
[quoted text clipped - 25 lines]
> Bye,
> Marco

but I thought you were interested in _Frontal_ lobe epilepsy, not Temporal lobe?

Bob
Marco - 19 Jun 2004 23:58 GMT
>>> The best book to ever read on TLE is called "Seized" by Eve
>>> LaPlante. It's Supurb! Enjoy if you dare.
[quoted text clipped - 30 lines]
>
> Bob

That is right -but I cannot find these kind of books and before I meet my
neurologist again at the end of June, I would really like to know what she
is talking about -that is why I am reading everything I get my hands on.
Last time I met her she told me what kind of epilepsy I had -unfortunately,
she was talking about things I never heard of so I now cannot remember
anymore what she said 7 weeks ago :-( I need to know these things as I need
to ask her the right questions.

Hopefully, these books somehow also describe a couple of things about
frontal lobe epilepsy. People with frontal lobe epilepsy are being
discriminated/ignored by the publishers and authors I guess :-) They should
be punished very hard!

Take care.

Bye,
Marco
gaross - 20 Jun 2004 00:30 GMT
> >>> The best book to ever read on TLE is called "Seized" by Eve
> >>> LaPlante. It's Supurb! Enjoy if you dare.
[quoted text clipped - 40 lines]
> Bye,
> Marco

   I don't remember anyone here posting about Frontal Lobe-based Seizures
in last 5 years.   If you can get the Correct name and Write it Down, it'll
save getting a lot of extra books and articles that *don't apply to YOU.

   Also if you go to the http://efa.org site and enter the Medications you
currently use (or other medications sites),  those should tell you what the
Particular medication is used for.   (More of the newer pills are targeted
for particular areas of the brain where the Seizure Focus is.   In that case
if your focus was e.g. the Frontal Lobe, there should be reference to that
site either within the Pill Description, or the EFA site about what the aura
and seizure symptoms are for that type.   By comparing what you find there
vs. what your experiences are, you can tell if any of the seizure types more
closely match what you're having.
   And several of the books at top (unless you were going to a Library or
Local Ep. Association chapter to borrow them, are about Temporal Lobe
seizures, or Other types, not necessarily the type you described..  There's
no point buying or (for that matter) reading books about seizure types you
aren't having.   That's why the 'name of your's '  would help reduce the
amount of reading you'd have to do to learn more about your own type. G./
Marco - 20 Jun 2004 06:46 GMT
Hello Garros,

>    I don't remember anyone here posting about Frontal Lobe-based
> Seizures in last 5 years.   If you can get the Correct name and Write
> it Down, it'll save getting a lot of extra books and articles that
> *don't apply to YOU.

Here you go:
Frontal Lobe Seizures and Epilepsies (Advances in Neurology, Vol. 57)
by Patrick Chauvel, Eric Halgren
Availability: Out of Print--Limited Availability

This is however a book for neurologists which means I simply do not
understand what they are talking about :-(

Signature

Take care.

Bye,
Marco

Marco - 20 Jun 2004 06:59 GMT
>>    I don't remember anyone here posting about Frontal Lobe-based
>> Seizures in last 5 years.   If you can get the Correct name and Write
>> it Down, it'll save getting a lot of extra books and articles that
>> *don't apply to YOU.

Hello Garros,

And some more of what I found regarding this topic:
http://www.epilepsy.com/epilepsy/epilepsy_frontallobe.html
http://www.epilepsyfoundation.org/answerplace/Medical/seizures/syndromes/frontal
lobe.cfm


These are very good articles and describe what I experience -especially the
following:

And another person's experience: "Usually I don't get any warning, I just
have tonic-clonic seizures. Occasionally I get a momentary warning before
the seizure-a strange feeling in my head."

How to tell your neurologist what a strange feeling is ones head -she must
think I start getting crazy :-) Right now, the meds seems to prevent the
seizure itself which is great.

Cheers,
Signature

Take care.

Bye,
Marco

Marco - 20 Jun 2004 09:10 GMT
Hello,

http://www.emedicine.com/NEURO/topic141.htm
Signature

Take care.

Bye,
Marco

gaross - 20 Jun 2004 15:46 GMT
> Hello,
> http://www.emedicine.com/NEURO/topic141.htm
> --
> Take care.
> Bye,
> Marco

Several of the medications listed there (within the article), are also used
on other types of seizures (Complex Partial, S.Partial, etc.).  Probably not
surprising since some of them work by suppressing erratic electric firing,
so if they work on one area of the brain, they might reasonably be expected
to be some use in another area of the brain too.

 They did use MRIs and other tests to determine where the szrs. appeared to
start, and in some cases appear to be able to use surgery (20-30% ?)  while
some other areas of the brain are not as easy to operate on without being
disruptive to other functions that are controlled by those areas.  (e.g. one
of the sides is more dominant in allowing speech, vision etc.  and damage to
which side controls those, can affect patient being able to 'come back' as
the same patient who went 'under'.  )    So you found an article.    G./
Bob - 20 Jun 2004 14:30 GMT
> <snip>
>  Occasionally I get a momentary warning before
> the seizure-a strange feeling in my head."
>
> How to tell your neurologist what a strange feeling is ones head -she must
> think I start getting crazy :-)

That warning is what is called an Aura.

Bob
gaross - 20 Jun 2004 15:26 GMT
> Hello Garros,
>
[quoted text clipped - 15 lines]
> Bye,
> Marco

 So you DID find a book about Frontal Lobe seizures.   I don't have szrs.
there, a lot of the symptoms described earlier on some of these posts
sounded like Temporal Lobe Szrs. (or below your's too? post), Tonic Clonic
is older name sometimes put into Grand Mal and sometimes TLE szrs. (Mine had
been called Tonic Clonic in 1993, then Complex Partial when the full MRIs
etc. came in.  I assumed those 2 were older or newer names, but technically
they're only Remotely related somewhere under the symptoms. )

  If that is a book on Frontal Seizures, then you found one, even if it's
medical.  You suggested you wanted a Patient formatted one?    I'm sure I
could find Medical ones with details on T.Lobe Ep.  from a Doctor's point of
view.  But they'd be of no use to me.  ( I might have Thought they would be
of use to me, the first 6 months after I was diagnosed, but that was 1993.
I haven't done much (Any)  detailed reading on my type, since I became fully
controlled in 1996-8.)   G./
 
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