Medical Forum / Diseases and Disorders / Epilepsy / June 2004
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Raistlin - 13 Jun 2004 13:57 GMT hi all,
i havn't been around for some days because my computer was down. during that time many things happened, some of them bad, more of them good. let's forget about the bad stuff and come to the good: my neuro changed my medication. i'm off keppra now and feeling great
:-))). it is, as if a veil has been taken from my mind. i'm on lamictal now, but it will take some weeks until it is increased to the therapeutical level. we'll see. i havn't had a GM in a week. that's a good start, insn't it?
Raist
Marco - 13 Jun 2004 15:04 GMT > hi all, > [quoted text clipped - 8 lines] > > Raist It is good to have you back Raistlin. What is a GM by the way? Generalist ...????
 Signature Take care.
Bye, Marco
Raistlin - 13 Jun 2004 15:12 GMT > It is good to have you back Raistlin. What is a GM by the way? huh ... i did not not expect somebody might miss me ;-) GM = grand mal - the big nasty ones.
Raist
Marco - 13 Jun 2004 15:27 GMT >> It is good to have you back Raistlin. What is a GM by the way? > > huh ... i did not not expect somebody might miss me ;-) > GM = grand mal - the big nasty ones. > > Raist Haha...okay, okay...call me stu... but blaim it on epil.... not on me :-) Remember I am faily new to this game.
 Signature Take care.
Bye, Marco
gaross - 13 Jun 2004 17:53 GMT > >> It is good to have you back Raistlin. What is a GM by the way? > > [quoted text clipped - 8 lines] > Bye, > Marco That's OK. Ask if you don't know what a note is about. You'll find soon enough though that a lot of us will use Frequently used abbreviations to shorten typing and messages. I don't know if Howdy Dave or any of the sites include the Ep. related ones anywhere. A Bunch (not all) include C.P. (Complex Partial seizure), TLE (Temporal Lobe Epilepsy) -- using included on newer sites within C.P., S.P. (Simple Partial), GM you know now, EFA (Ep. Foundation of America), then often on a Post some of us will try use a name first (Tegretol) then later if it's repeated lots, might shorten to one of our own abbrevs. like Teg. etc. (oh, CR = Controlled Release, XR = Extended Release while I think of it). EEG, CAT, CT etc. are the scan types used to diagnose seizures among other things wrt. the brain. etc. ttfn :-> /G.
Marco - 13 Jun 2004 18:05 GMT > That's OK. Ask if you don't know what a note is about. You'll find > soon enough though that a lot of us will use Frequently used [quoted text clipped - 9 lines] > etc. are the scan types used to diagnose seizures among other things > wrt. the brain. etc. ttfn :-> /G. Well, there are a couple of more abbrevs I do not see that often in this newsgroup; e.g.:
ac = ante cibum => take before meals bid = bis in due => take twice a day gtt = guttae => drops pc= post cibum => take after meals po = per os => take by mouth
etc.
It is not that I learned Latin or something.
:-)  Signature Take care.
Bye, Marco
M - 13 Jun 2004 22:33 GMT >Well, there are a couple of more abbrevs I do not see that often in this >newsgroup; e.g.: [quoted text clipped - 8 lines] > >It is not that I learned Latin or something. When I got hospitalised they wanted to give me some of my meds par rectum but I was conscious enough to refuse and take them by mouth.
And now I play my own doctor. I don't take any and I'm still seizure free :-) I know it'll be a long time before I can say I'm truly no longer epileptic, but it's nice to be 15 days on the way.
 Signature Malcolm
Daz_n_Pat - 14 Jun 2004 16:27 GMT > >Well, there are a couple of more abbrevs I do not see that often in this > >newsgroup; e.g.: [quoted text clipped - 12 lines] > my meds par rectum but I was conscious enough to refuse > and take them by mouth. Ewwwww, you swallowed your suppositories?????? LOL.
Darryl.
> And now I play my own doctor. I don't take any and > I'm still seizure free :-) I know it'll be a long time [quoted text clipped - 3 lines] > -- > Malcolm Allie M - 13 Jun 2004 15:35 GMT Raist,
congrats ... thats good news mate! I changed neuro's last week as well at my local hospital here in sydney australia. Thing is i have to wait till september to see the guy at the earliest.. oh well ...
Im on lamictal, epilim and tegretol and suffer absence seizures, complex/simple partial seizures.
Take Care, from sydney australia
Allie M.
Raistlin - 13 Jun 2004 16:01 GMT well yeah, tegretol i'm taking as well (1200mg/day). my neuro was quite perplex, that i didn`t have any side effects from the tegretol (i started with this high dose), but not getting along with keppra at all. maybe i'm a freak of nature ;-). i may be mistaken - but in some cases they don't use tegretol with absences because it might make them worse. better ask your doc, i'm not an expert.
Raist
gaross - 13 Jun 2004 18:03 GMT > well yeah, tegretol i'm taking as well (1200mg/day). > my neuro was quite perplex, that i didn`t have any side effects from the [quoted text clipped - 4 lines] > expert. > Raist That looks like a **Large Dose, reason he might be perplexed. Although others might be on that high too. I was only ever at 2x 400mg Tegretol CR (Controlled Release), but when a Newer Second med. was added my Neuro phased out the Night dose of the Tegretol so it's only taken in AM now. (My second med. is *not Keppra if above is suggesting you were taking Both Tegretol And Keppra ?? or did the Keppra Replace the Tegretol?)
You might know if it was already posted to you, but in case you don't -- Tegretol behaves erratically with Alcohol (it has a Non-linear Footprint in the Medical terms), and is also compromised by Grapefruit Juice -- one of the acids that's not in other juices, interferes with it's operation. Hmmm, In College, **before E. I often had a non-linear footprint, but then Morning came, and I found my shoes and went to class....... G./
Julie - 14 Jun 2004 07:14 GMT Glad to hear your good news.
Take care, Julie
> well yeah, tegretol i'm taking as well (1200mg/day). > my neuro was quite perplex, that i didn`t have any side effects from the [quoted text clipped - 5 lines] > > Raist Allie M - 15 Jun 2004 13:57 GMT Raist,
I should have been clearer with my meds... (these are daily doses btw) I take 350mgs Lamictal, 1700mgs of Epilim and 200mgs of tegretol (not the controlled release one either) I also get really bad migraine headaches when i have bad seizure periods like last weekend ... didnt clear up till this afternoon ... really sucks ...
Allie M.
Raistlin - 20 Jun 2004 17:37 GMT > I should have been clearer with my meds... (these are daily doses btw) I > take 350mgs Lamictal, 1700mgs of Epilim and 200mgs of tegretol (not the [quoted text clipped - 3 lines] > > Allie M. hi allie, my headaches are not migraine, but there are some things that help me and might be working for you, too. ever tried yoga or playing didgeridoo (no joke!)?
Raist
Marco - 20 Jun 2004 18:06 GMT > ever tried yoga or playing didgeridoo (no joke!)? > > Raist Okay, okay, take a deep breath and wait a minute -let's just wait a minute here! There are foreigners like me struggling with this dindjeedundjee foodoo child language which other may want to call "English"...so what the heck is didgeridoo????
 Signature Take care.
Bye, Marco
Raistlin - 20 Jun 2004 23:24 GMT > Okay, okay, take a deep breath and wait a minute -let's just wait a minute > here! There are foreigners like me struggling with this dindjeedundjee > foodoo child language which other may want to call "English"...so what the > heck is didgeridoo???? it's the traditional musical instrument of the aboriginees. if you wanna know more, check out www.yedaki.de
Raist
Marco - 21 Jun 2004 04:52 GMT >> Okay, okay, take a deep breath and wait a minute -let's just wait a >> minute here! There are foreigners like me struggling with this [quoted text clipped - 6 lines] > > Raist Thx. Raist :-) Never heard of it -but now I have :-)
 Signature Take care.
Bye, Marco
Daz_n_Pat - 21 Jun 2004 14:02 GMT > >> Okay, okay, take a deep breath and wait a minute -let's just wait a > >> minute here! There are foreigners like me struggling with this [quoted text clipped - 14 lines] > Bye, > Marco It originated in Sydney Australia, where the locals decided to peel a banana and remove the inside matter. This they promptly scoffed in a manner unbefitting a civilised nation's people. They then exclaimed "Strewth mate!! Look Sheila, thees banana skeen ees reelly terreefec!!" Our Australian neighbours proceeded to fold the banana skin back into shape, fixing it together with bailing twine and super glue. Then they made a small hole at each end and found that if they blew into the end of it and farted at the same time, it made quite a passable musical instrument.
Hugs to my friends across the ditch!! :-) :-)
Darryl.
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