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Medical Forum / Diseases and Disorders / Epilepsy / June 2004

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Roll Call - for Kylie

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Mary Fisher - 27 May 2004 18:21 GMT
Hello Kylie,

I've never seen a Roll Call on this ng although others I inhabit have them
fairly regularly. We find them useful, reminding those of us with poor
memories who others are and introducing ourselves to newcomers.

So. I'm Mary. I'm old, fat, opinionated and arrogant. That's because I'm
English (she says, getting it in before anyone else does). I'm the butt of
very many jokes and insults - as you'll discover when I go to Scotland
tomorrow and they talk about me behind my back. Everyone has to have a
hobby.

I also like cuddling up to Howdy Dave and Malcolm but I have rivals <spit>

As for epilepsy, I'm unusual in that I've only had one grand mal seizure,
eleven years ago. I had a meningioma (a benign tumour in my skull, causing
pressure on my brain). When it was discovered by a scan it was removed
immediately (well, the family says the wrong lump was removed) and I ws back
to normal again. Whatever that is. I don't take any epilepsy related
medication but am drugged to the eyeballs with analgesics, for arthritis.

But before that surgery I had what I now think were absences, perhaps they
weren't. I'd suddenly realise that I hadn't been listening to people and had
to ask them to repeat themselves. I was also doing all sorts of
uncharacteristic things which I don't like to think about. I was hearing
voices and music.

The remnant of the brain injury, the only one I know of, is that about once
a month I have a few seconds of feeling sick and as though I can see people
and things which aren't there, a sort of deja vu.

Today I sent a parcel by air to Australia, Queensland I think. That had
nothing to do with epilepsy, it's a way of cuddling up to you :-)

So, I hope that now others will tell all about themselves. We're a very
mixed bunch, in terms of age, condition and character. Stick around, you'll
find out :-)

If yu do stick around you'll learn a lot, I promise. That's why I'm here, I
don't need the support but I love learning.

Mary
Dave ???? - 27 May 2004 19:40 GMT
Howdy!

I'm Dave (he said frantically looking over his shoulder while Mary chases
him all over the countryside.)

I'm one of the "wise old sages" here.  Well... 2 out of 3 ain't bad!

I have: simple partials, complex partials (used to have grand mals/tonic
clonics.) I also have several other medical conditions that I'm dealing
with.

I have a vagus nerve stimulator and a web site.

I'm kind, considerate, handsome, wise, generous, adorable and HUMBLE.

I never start a fight (just ask anybody!)

Signature

Dave ????
http://www.howdydave.com

> Hello Kylie,
>
[quoted text clipped - 38 lines]
>
> Mary
Dona - 27 May 2004 21:59 GMT
I have nasty, yucky, creepy simple partials that I hate beyond all else, and
lately I've started to have some pretty distrubing memory issues. The only
thing worse was the one God-awful grandmal I had.

I'm young, slendar, quite beautiful and extremely intelligent. Totally in
control of all aspects of my life. Scads and scads of money. :)
Fifty Hertz - 27 May 2004 22:27 GMT
> I'm young, slendar, quite beautiful and extremely intelligent. Totally in
> control of all aspects of my life. Scads and scads of money. :)

Woof !

C.
Dona - 28 May 2004 01:04 GMT
> Woof !

Can I take that as a compliment?

It was so much more fun to write then middleaged, overweight, living from
paycheck to paycheck with no social life at all.
Fifty Hertz - 28 May 2004 01:11 GMT
> > Woof !
>
> Can I take that as a compliment?
>
> It was so much more fun to write then middleaged, overweight, living from
> paycheck to paycheck with no social life at all.

You betcha can!

This from an awfully well-rounded, flea-infested, arthritic, old mutt that I
am.

C.
Mary Fisher - 28 May 2004 08:29 GMT
> > Woof !
>
> Can I take that as a compliment?
>
> It was so much more fun to write then middleaged, overweight, living from
> paycheck to paycheck with no social life at all.

I prefer that one though ...

Mary
David Ruether - 27 May 2004 22:29 GMT
I lurk here a lot, and add someting once in a while if it seems
appropriate, but I don't know if I have epiilepsy in any form.
I do have a bunch of odd episode types that all got kinda
"preoccupying", as in having maybe MANY a day, starting
about eight months ago (though some of the forms had some
presence much earlier). Still trying to figure out what this is,
what caused it, and what to do about it. "Crunch" time is
coming in June, when I will either find out answers, or will
just give up on "the doctor thing" (which I'm very tired of),
and just live with whatever is going on. I also have obstructive
sleep-apnea, recently discovered (this is one of those common
ailments that is very underrated in importance, and hard to
get people, including doctors, to take it seriously - but it may
be the root cause for many other ailments...). I just turned
officially "elderly", and took early Social Security (does
THAT ever seem weird!!!). Haven't driven in many months,
and the boat is up for sale (darn!), but "safety first". If you
want to know more about me (I've been very lucky, and
have had a lot of fun!), see the web page, below (though
it doesn't mention my ventures into politics and teaching, or
much about my museum shows of  photography - though
there are some examples there). Overall, I'm quiet, and just
enjoy seeing and hearing - and fortunately I live in a great
place for doing both (EXCEPT during that &%^$# 17-month
winter we have - do you know what black snow is?!?!? ;-).
I'm glad this NG exists, and that it is as friendly as it is!
--
David Ruether
rpn1@cornell.edu
http://www.ferrario.com/ruether
Dona - 28 May 2004 01:08 GMT
David, I'm in awe. I'd love to have talent like that.
little mouse - 28 May 2004 14:09 GMT
Wow, what a great welcome from everyone!

Allow me to introduce myself in a bit more detail then:

I'm Australian, female, 24, I live an exiting life as a legal secretary by
day and need to do a bit more about improving my social life.

I have a cat named Bob (who is actually female) and my boyfriend has a
kitten named Catbert who is quite insane, even for a kitten which keep me
entertained.

I'm really happy to have this diagnosis and therefore an explanation to why
I'm exhausted, nearly falling asleep at work, and taking days off just to
sleep.  And I do find myself staring into space almost every day, usually
I'm aware that I got distracted and started daydreaming, but I'm not always
sure, and I then get told off by my boss for slacking off.  At least now I
have a reason for it all and things might start to get better.

> Hello Kylie,
>
[quoted text clipped - 38 lines]
>
> Mary
Daz_n_Pat - 01 Jun 2004 22:31 GMT
> Wow, what a great welcome from everyone!
>
[quoted text clipped - 13 lines]
> sure, and I then get told off by my boss for slacking off.  At least now I
> have a reason for it all and things might start to get better.

Hi Kylie,

I'm Darryl.
Mostly I just lurk around here, throwing in my two cents worth occasionally
and annoying people.
I'm 38 yrs old, 6 foot 3 and damned good looking - just ask my wife. (Who's
5 foot 1)

I live in New Zealand. Three years ago I met a 24 yr old Australian girl
online, so I went over there and dragged her back to NZ and married her. She
also posts on here occasionally, mostly when I'm in no fit state to.

I've had seizures since I was 8 yrs old. Started off having grand mals every
20 - 30 minutes, which almost killed me, but once I got on the right
medications they turned into complex partials preceded by simple partials
several times a day. Until recently I have been having up to 15 C.P's a
day - had surgery three years ago, didn't help - but a recent change in meds
has reduced my seizures to about three a day, but no longer preceded by a
simple partial....so I don't know when they are coming.

I have pretty much no short term memory, which is cool cos I can watch the
same movie about three times a week and enjoy it just as much each time. ;-)

Since I always knew when my seizures were about to occur, I always felt it
safe to drive. Five years ago that changed when without warning I had a
complex partial seizure and left the road and hit a pedestrian. My bumper
went through his leg and his head went through my windshield. He later
killed himself because he couldn't live with his injuries.
So please forgive me if occasionally I have a rant at someone who is
continuing to drive despite having epilepsy. It's just that I simply don't
want anyone else having to live with the knowledge that they have cost
someone their life when they could have prevented it. That's just my little
hobby horse.

All in all this is a great place to come for support and to offer support to
others.

Welcome.

Darryl.
Jan Silbermann - 02 Jun 2004 06:27 GMT
I have been a lurker and occasional poster for years.
I am the mother of a child with infantile spasms, that
was very
successfully resloved, but I still have a great
deal of interest in epilepsy and new treatments etc..
as I run a yahoo group for 650 parents of children
with the condition.

Jan
Tovah 13
Eliana 11 (IS)
Asher 9
David 6
Shoshana 4
gaross - 02 Jun 2004 16:19 GMT
 I remember You !!  :->  You were around when I was still using Windows 95
in  1997 or 98.   You and Lulu used to exchange posts about your Kids on the
Group.     G./

> I have been a lurker and occasional poster for years.
> I am the mother of a child with infantile spasms, that
[quoted text clipped - 10 lines]
> David 6
> Shoshana 4
Jan Silbermann - 02 Jun 2004 17:25 GMT
>  I remember You !!  :->  You were around when I was still using Windows 95
>in  1997 or 98.   You and Lulu used to exchange posts about your Kids on the
>Group.     G./

Yep, been around for ages. Where's my rocker and my false teeth (-:

Jan
turbinado - 28 May 2004 22:24 GMT
Hi, I'm Hilary, 39 years old and living in Vancouver. I was working as a
proofreader until recently, but I'm unemployed at the moment. I've been
living with my boyfriend for almost 20 years.

I've had epilepsy since my teenage years. It started as absences, then I had
my first grand mal in my sleep at age 22 or so. I'm on Tegretol now which
stops the grand mals, but now I get complex partials instead. I still get
absences too every so often.

We're having an election here in Canada, so I just signed up to volunteer
for the Green Party. Flame me if you will, but they're the only ones I can
support in good conscience...

The people here are friendly, funny and full of useful information. Welcome
to the group!
Daz_n_Pat - 07 Jun 2004 12:57 GMT
> Hi, I'm Hilary, 39 years old and living in Vancouver. I was working as a
> proofreader until recently, but I'm unemployed at the moment. I've been
[quoted text clipped - 4 lines]
> stops the grand mals, but now I get complex partials instead. I still get
> absences too every so often.

Isn't it great how we get to take medications for one thing and *surprise*
it causes another.
I've altered my meds recently and it's been great at reducing the number of
CP's I have, but now I get no warning aura at all.
It's like Forrest Gump says, "Life is like a box of chocolates, you never
know what you're going to get."

Darryl.

> We're having an election here in Canada, so I just signed up to volunteer
> for the Green Party. Flame me if you will, but they're the only ones I can
> support in good conscience...
>
> The people here are friendly, funny and full of useful information. Welcome
> to the group!
Dave ???? - 07 Jun 2004 19:10 GMT
> Hi, I'm Hilary, 39 years old and living in Vancouver. I was working as a
> proofreader until recently, but I'm unemployed at the moment. I've been
[quoted text clipped - 11 lines]
> The people here are friendly, funny and full of useful information. Welcome
> to the group!

Howdy!

Well... you've got a long row to hoe...

"It's not easy being green" don'cha know!

Signature

Dave ????
http://www.howdydave.com

Mary Fisher - 07 Jun 2004 21:00 GMT
> > Hi, I'm Hilary, 39 years old and living in Vancouver. I was working as a
> > proofreader until recently, but I'm unemployed at the moment. I've been
[quoted text clipped - 19 lines]
>
> "It's not easy being green" don'cha know!

We're green as far as we possible can. You have to put your money where your
mouth is.

We've just had the ridiculous postal votes in Yorkshire. I've voted green
candidtates for both local and EU elections.

Mary
Dave ???? - 07 Jun 2004 21:13 GMT
> > > Hi, I'm Hilary, 39 years old and living in Vancouver. I was working as a
> > > proofreader until recently, but I'm unemployed at the moment. I've been
[quoted text clipped - 31 lines]
>
> Mary

Howdy Mary!

"It's not easy being green" is a wonderful song sung by "Kermit the Frog!"

It's all about the difficulties that a person (or a frog) who is "different"
has to deal with in everyday encounters with the rest of the world.

I guess you either have to be from NA, listen to late 20th Century childrens
music or be a Muppits fan!

Signature

Dave ????
http://www.howdydave.com

Mary Fisher - 07 Jun 2004 21:53 GMT
> > > > Hi, I'm Hilary, 39 years old and living in Vancouver. I was working as
> a
[quoted text clipped - 45 lines]
> I guess you either have to be from NA, listen to late 20th Century childrens
> music or be a Muppits fan!

Oh - I'm none of those things, I obviously lead a deprived life :-)

One of my very favourite childhood books was 'Uncle Blunder's Studio', about
a beetle who painted. Nobody's ever heard of it. One of the characters was a
frog, his favourite saying was, "Green's a good colour".

Just day-dreaming ...

Mary
turbinado - 14 Jun 2004 01:14 GMT
> > We're having an election here in Canada, so I just signed up to volunteer
> > for the Green Party. Flame me if you will, but they're the only ones I can
[quoted text clipped - 13 lines]
> Dave ????
> http://www.howdydave.com

That's for sure - there's a surprising amount of hostility out there. They
say we're dividing the "progressive" vote... Well that depends on what you
call progressive. ;)
Mary Fisher - 14 Jun 2004 09:59 GMT
> > > We're having an election here in Canada, so I just signed up to
> volunteer
[quoted text clipped - 19 lines]
> say we're dividing the "progressive" vote... Well that depends on what you
> call progressive. ;)

Well, bugger them. Green is the future - if we're to have a future.

We in UK have just had local and European elections. I voted Green.

More power to your elbow and keep the faith!

Mary

Mary
turbinado - 15 Jun 2004 00:05 GMT
> > > "It's not easy being green" don'cha know!
> > >
[quoted text clipped - 13 lines]
>
> Mary

Right on sister! :)
Dave ???? - 15 Jun 2004 01:51 GMT
From "The Sesame Street Book and Record". 'Green' is (c)1970 Jonico Music,
Inc.
It's not that easy being green;
Having to spend each day the color of the leaves.
When I think it could be nicer being red, or yellow or gold...
or something much more colorful like that.

It's not easy being green.
It seems you blend in with so many other ord'nary things.
And people tend to pass you over 'cause you're
not standing out like flashy sparkles in the water
or stars in the sky.

But green's the color of Spring.
And green can be cool and friendly-like.
And green can be big like an ocean, or important like a mountain,
or tall like a tree.

When green is all there is to be
It could make you wonder why, but why wonder why?
Wonder, I am green and it'll do fine, it's beautiful!
And I think it's what I want to be.

> > > > "It's not easy being green" don'cha know!
> > > >
[quoted text clipped - 17 lines]
>
> Right on sister! :)
turbinado - 15 Jun 2004 22:18 GMT
Thanks Dave, I grew up watching Sesame Street! That really brings back some
childhood memories... :)

> From "The Sesame Street Book and Record". 'Green' is (c)1970 Jonico Music,
> Inc.
[quoted text clipped - 40 lines]
> >
> > Right on sister! :)
Mary Fisher - 15 Jun 2004 22:30 GMT
> Thanks Dave, I grew up watching Sesame Street!

So did our younger children :-)

Mary
Christine - 17 Jun 2004 16:59 GMT
"Dave ©¿©¬" <dave@_nospam_howdydave.com> wrote in message news:<uKrzc.6002$wc2.4171@news02.roc.ny>...
> From "The Sesame Street Book and Record". 'Green' is (c)1970 Jonico Music,
> Inc.
[quoted text clipped - 18 lines]
> Wonder, I am green and it'll do fine, it's beautiful!
> And I think it's what I want to be.

Thank you Dave! I was trying to remember the words. All I ahd in my
head was 'Halfway up the stairs', sung by Kermit's little nephew
Robin......

Christine
Christine - 17 Jun 2004 17:05 GMT
Hello,

I'm Christine, yet another lurker and occasional poster.

I'm (nearly) 39, English, married to a Spaniard and living in Spain.
Two enormous cats but no kids yet. Not for lack of trying! Had 2 grand
mals in 1999 and have been on tegretol ever since. And also various
alternative remedies. Neurologist says he would start reduce my
medication, as I've been for so long without any epileptic activity
but as I'm trying to get pregnant he refuses to play around with the
dose, just in case. So I continue to have 'brain fog', trouble with
concentration and a dodgy memory, but well.....

This group is excellent and has really, really helped me over the last
few years. There is nothing like hearing somebody else describe what
you've been feeling and just couldn't put into words!

Christine
Mary Fisher - 17 Jun 2004 18:13 GMT
> Hello,
>
[quoted text clipped - 12 lines]
> few years. There is nothing like hearing somebody else describe what
> you've been feeling and just couldn't put into words!

Well, why not get more involved and help others, not as experienced as you?

:-)

And where in England were you?

Mary
> Christine
Christine - 18 Jun 2004 14:13 GMT
> > This group is excellent and has really, really helped me over the last
> > few years. There is nothing like hearing somebody else describe what
[quoted text clipped - 8 lines]
> Mary
> > Christine

Hello Mary,

I was in Reading, Manchester and Brighton.

One of the reasons I've been lurking more than posting is that my PC
is a dinosaur and used to crash frequently. And then it stopped being
able to show most websites and so I just used to stop by cybercafes
sometimes to use the Net and never had much time. But now I'm in an
office with great facilities and so I can log on at lunchtime to check
things out.

Unfortunately I just found out yesterday that the company might be
closing soon so I'll just have to convince my husband that we really
have to get a new computer!

Christine
Mary Fisher - 18 Jun 2004 15:22 GMT
> > > This group is excellent and has really, really helped me over the last
> > > few years. There is nothing like hearing somebody else describe what
[quoted text clipped - 23 lines]
> closing soon so I'll just have to convince my husband that we really
> have to get a new computer!

Don't bother trying to convince him, just buy one. It will be yours, he
can't use it unless he pays for it!

Mary - in Leeds

> Christine
 
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