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Medical Forum / Diseases and Disorders / Epilepsy / June 2004

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Dona - 20 May 2004 23:51 GMT
I am worried about my parents coming home. They spend the winters in Arizona
with my sister. This winter I had my big-bad and went on meds for the first
time.

My brain has shriveled to pea size. I can't remember things. It's fine, I
have kids to make fun of me so I don't take it very seriously. :) I know
it's a side effect, and can deal with it, BUT...

My mother's freak thresehold is set very low, and I know she's going to get
hysterical. There is so much horrible stress in my family right now, there
is just no room for any more.

My ideal solution would be secretly slipping Xanax into my mother's and
sister's water pipes, but I can't figure out the logistics of that.

The memory lapses are 1000 times over better than the seizures. I'm happy
with the trade. My boys snigger when I "go blond" momentarily, but my
mommy's going to cry. I so don't want to deal with it. She's going to go
into must-fix-it mode and drive me up the wall!!!!
turbinado - 21 May 2004 00:49 GMT
Ironic that stress is THE major trigger for seizures, yet people trying to
be helpful can generate more stress than anything else. Maybe if you tell
her that 1) there's nothing she can do to fix this problem, and 2) her
"fix-it mode" stresses you out, and that you need to avoid stress?

> I am worried about my parents coming home. They spend the winters in Arizona
> with my sister. This winter I had my big-bad and went on meds for the first
[quoted text clipped - 15 lines]
> mommy's going to cry. I so don't want to deal with it. She's going to go
> into must-fix-it mode and drive me up the wall!!!!
Dona - 21 May 2004 00:57 GMT
Do you have any idea the kind of stress it would cause if I told my mother
she was stressing me?

My family invented passive aggressive. My mother's sighs are WMDs.

I would do anything for my family, absolutely anything. And I'd walk on fire
to avoid being in a room with them for more than an five minutes at a time.
turbinado - 22 May 2004 01:21 GMT
I can relate to that! Luckily, I live thousands of miles away from all of
them, so it's only once every couple of years. :)

> Do you have any idea the kind of stress it would cause if I told my mother
> she was stressing me?
[quoted text clipped - 3 lines]
> I would do anything for my family, absolutely anything. And I'd walk on fire
> to avoid being in a room with them for more than an five minutes at a time.
Marco - 21 May 2004 07:30 GMT
> I am worried about my parents coming home. They spend the winters in
> Arizona with my sister. This winter I had my big-bad and went on meds
[quoted text clipped - 16 lines]
> but my mommy's going to cry. I so don't want to deal with it. She's
> going to go into must-fix-it mode and drive me up the wall!!!!

Hi Dona,

Good to hear that you are having so much fun with your kids, how old are
they anyway? In regards to your mother: it looks like she has not yet
accepted that you are dealing with epilepsy. Though she might want to help
you a bit, she stresses you up to the limits which make it worse for
you -even the days after your mother visits you.

Fact is that you need to speak / communicate with her in regards to your
worries -maybe writing a letter will help beforehand?

Signature

Thanks for responding.

Bye,
Marco

Mary Fisher - 21 May 2004 10:36 GMT
> Good to hear that you are having so much fun with your kids, how old are
> they anyway?

Yes - are they old enough to explain and try to prepare and comfort your
mother? Sometimes grandchildren are better received than children - there's
not the responsibility link.

It doesn't always work though ...

Mary
Julie - 22 May 2004 07:22 GMT
Hi Dona, I remember when my mom & dad were snow birds (went to Arizona every
winter).  Now my dad is gone (passed away in 95) and my mom has so many doctors
I can't keep track.  TALK ABOUT STRESS!

I'll tell you something funny that happened years ago.  Mom was staying with us
for a few days.  She was taking a shower and I heard a loud thud.  I ran into
the bathroom and saw my 80 year old mother wet and bare naked laying on her back
with her head bleeding.  She had slipped and grabbed ahold of the shower
curtain, the curtain rod wacked her on the head causing the blood to drip
forth.  I wapped her up in a towel and asked her how she was feeling.  She said
she was fine.  No problem.  (It turned out she was OK, just put a bandage on her
head)  But, this stress caused me to feel sick and I ended up in bed for a
couple days trying not to have a seizure ;-)  She kept coming in my room and
checking ON ME!

Take a deep breath and think beautiful thoughts.
Julie

> I am worried about my parents coming home. They spend the winters in Arizona
> with my sister. This winter I had my big-bad and went on meds for the first
[quoted text clipped - 15 lines]
> mommy's going to cry. I so don't want to deal with it. She's going to go
> into must-fix-it mode and drive me up the wall!!!!
Raistlin - 22 May 2004 10:34 GMT
hey dona,

you've made a trade, you're fine with it. so is your family.
it's a natural thing, i think, that mothers take a thing worse than
oneself, especially a thing like this.
i believe your kids are doing the best thing there is to do. they're
taking it with humour. try to make your mother see it this way, too -
maybe with a little help from your kids.

marco's idea with the letter is not bad, but - if your mother is like i
imagine it (that means like my sister...), i would not recommend it.
because in the pause between reading the letter and seeing you to talk to
you about it there can be a lot of time used for hystereic thoughts.
people are that way, no matter how much you try to calm them down. thus,
it seems better to calm them down face-to-face. because you're in control
then.

so, just talk to her. explain her the situation, tell her about all the
postive things and ... well, forget to tell her about the negative things
;-). i do not mean you shoudn't tell her about these at all. but she
needn't know at this point. there will be time for it.

yours
Raist
Dona - 22 May 2004 15:53 GMT
Thank you all.

I think I'm going to drop hints that she needs to deal with it with a sense
of humor for the kids' sake. Which is true. And she'll want to keep things
on an even keel for them.
Jim Garland - 10 Jun 2004 20:42 GMT
Hi Dona
 I love your sense of humor  in dealing with our wonderful side effects..
My  mother is the same but my 8 and 10 yr old and girlfriend keep her
smiling when they tease me about a Jimbo moment....
can't remember stuff..
Keep up the good work and your mum will most likely get used to it as one
never accepts it.
cheers.
and remember ...you have epilepsy....epilepsy doesn't have you!!!!!!!1
> I am worried about my parents coming home. They spend the winters in Arizona
> with my sister. This winter I had my big-bad and went on meds for the first
[quoted text clipped - 15 lines]
> mommy's going to cry. I so don't want to deal with it. She's going to go
> into must-fix-it mode and drive me up the wall!!!!
 
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