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Medical Forum / Diseases and Disorders / Epilepsy / November 2004Trileptal
Is anyone on trileptal? If so , what side effects have you noticed bad and good? Do this one have a reputation(sp?) of being good or bad? sorry I am so full of questions.I have read all the sheets on it but i'm interested in personal feelings. Piper I've been on Trileptal for about 2 months. So far I haven't noticed any side effects. I seem less absent-minded on this than on Dilantin or Lamictal. I am also curious what others have to say about it. You don't see much on here about Trileptal. > Is anyone on trileptal? If so , what side effects have you noticed bad and > good? Do this one have a reputation(sp?) of being good or bad? [quoted text clipped - 3 lines] > > Piper Hi, I'm on Trileptal(oxcarbazepine) as well... I realy don't know anything about for example: 'a bad reputation'. I've been on lots of medication, from depacine to tegretol, dyphantuine, lamictal etc etc etc, a lot of good reputations. Well, they made me sick, depressed or something like that. The most important thing is: Is has to work by you. I haven't noticed a main progression by trileptal (I still have absances) but however it doesn't make me sick. By the way, I've also been on a combination of trileptal/neurontin. Anyone experiances? And for piper whos feeling sorry asking questions, Your doctor should feeling sorry not answering your questions. (if you did ask them) My experiance with serval doctors is like a story of walking in a supermarket. A supermarket? Yes! 'Dear customer, you can try this, or you can try that, without giving a good advise or suggestions. They just try. It's a pitty, but it's true. In the other hand, sometimes it's nothing more than a doctor can do. It's your job giving him the best information you can. And if he doesn't answer your questions, repeat them. Greez, pieter > Is anyone on trileptal? If so , what side effects have you noticed bad and > good? Do this one have a reputation(sp?) of being good or bad? [quoted text clipped - 3 lines] > > Piper > Hi, I'm on Trileptal(oxcarbazepine) as well... I realy don't know > anything about for example: 'a bad reputation'. I've been on lots of [quoted text clipped - 20 lines] > > pieter Hello Pieter, Are you from The Netherlands as I noticed your (Dutch) nickname "1e verdieping" (which is translated in English as "first floor". Funny nickname :-)  SignatureTake care. Bye, Marco Hi, It's me again. I wanted to shut my computer down when I thout about a side effect of trileptal. I've noticed that when I take to much of the drug I'm having a double vision. Pieter > Hi, > [quoted text clipped - 5 lines] > > Pieter Hi Since I take trileptal I noticed that I have more problems of concentration. Currently I have a rather heavy treatment: I take of Keppra (2*1500mg per day) and I replace Epitomax by Trileptal. I noticed problems of concentration: I must write my way, make sound my watch, plan my work... I forget certain things. But it is difficult to make the right share of the things between what is due to the treatment and what is due to the after-effects of the meningoencephalitis I had 10 years ago. Moreover I do not feel all my crises. I feel only the "simple" partial crises: I feel unpleasant feelings of anguish, and a rise of adrenalin. I do not perceive my "complexe" partial crises (absences): it is necessary that it is somebody who sees the crisis and his symptoms and says to me: "JR you made a crisis". Bye JR I have been on trileptal for about 1 and a half years. I am not diagnosed as being bipolar. I am currently on 150 milligrams of generic wellbutrin. I am currently on 1200 milligrams of trileptal. Trileptal has made me a completly different person but in a bad way. I have been angry, violent, and I do not know who I am anymore. Not only did it make me this way I feel dizzy and tiared after taking trileptal for about an hour. A few weeks ago I tried to get off of trileptal because I learned that trileptal is used for biopolar disorders and of course seizures. I have also learned that it has also done a number on other people. I was off of the 1200 for two days and on the second day for supper I could not eat, and I like my food very much. I almost fainted and I also felt extremly hot. I have never felt that bad before. As soon as I took it I felt better. Now I am trying to go off of it over a few weeks and I will update what happens. Hopefully everything goes well. Hi, Great to see you are acquainted with your meds and their uses; but don't be afraid because a drug is used for more than one illness. Lots of these AEDs are. Offhand, it sounds like you are suffering toxic side effects, but which drug? You must tell your doctor what is happening and ask him to test your drug blood levels. If he will not go to someone who will! You are in "need of being watched". This just involves how much of each drug you are absorbing and correcting the dose:) 1200mgs. is a lot of any drug, but don't automatically blame Trileptal just because you heard it is used for bi-polar disorder. Do people with that illness blame epileptics for their troubles???????? keep on keeping on:) Rich. -------------------------------------------------------------------------------- >I have been on trileptal for about 1 and a half years. I am not diagnosed > as being bipolar. I am currently on 150 milligrams of generic wellbutrin. [quoted text clipped - 10 lines] > trying to go off of it over a few weeks and I will update what happens. > Hopefully everything goes well.
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