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Medical Forum / Diseases and Disorders / Epilepsy / May 2004

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bridget - 07 May 2004 05:08 GMT
hi,
I am new to this support group. I am a little confused about a lot of
things. I guess I would like to know what many other people go through
with epilepsy. I have done everything in my power to help myself but
it is still staying with me. I am in a little denial I guess. Can
anyone help me with health insurance ideas? I can't get approved
anywhere.
I hope I hear from someone.
Thanks.
gaross - 08 May 2004 01:04 GMT
  You might get some more replies if you tell them the approximate area you
live in (Province/state?) wrt. below.
It looks like you might be on the West Coast of N.America?   (We have
posters here from the UK, Australia, U.S. and Canada, currently,  and have
had posters from Spain, Germany and S.America from time to time.
    Since you were asking about Health Insurance, I'll assume you're in the
U.S.?   Did you mean to pay for Doctors and tests? or to cover Prescriptions
etc. that a Doctor might write.   Someone here might have some ideas if they
know which is your main concern.
   Have you been Diagnosed or do you have a Name for which type of seizures
you might have?   If they wrote any prescriptions already, the Name of the
Pill might help indicate which type of szr. it's designed for in some cases.

   How many episodes have you had?  Do you lose Consciousness at the end,
or is it 'just' a Dizzy Spell?    Do you get any strange Odours or Tastes
that aren't there at onset?   Stuff like that will help identify the seizure
you have, unless you have a Name (mentioned above), so those who have
experiences with those can try help you.
    There were about 5 'help sites'  posted about a week ago, if Google
will show those older posts to you.   They have lots of information and
descriptions of different seizure types.   (The post has expired on my
display -- I did it by the way, if you need to search that way w. google, or
I can look it up and Repost it here, if that's easier for you.)   G.

> hi,
> I am new to this support group. I am a little confused about a lot of
[quoted text clipped - 5 lines]
> I hope I hear from someone.
> Thanks.
gaross - 08 May 2004 21:06 GMT
> hi,
> I am new to this support group. I am a little confused about a lot of
[quoted text clipped - 5 lines]
> I hope I hear from someone.
> Thanks.

 You might have missed a post (since you're new), that I did about 4-5 days
ago listing some Websites I had found.
Howdy Dave still has a couple of posts up on the group (on my reader
anyway) -- he has his own site and I forgot :-<
to include his here, but did on a later post.  His site can be reached from
the www address at end of his posts.
  The rest here are what I posted earlier.   Some are worth having on a
Bookmark or Favorite so you can go back to them whenever you want without
needing to look up the www addresses each time.  G./
  Older post -->
 Below is a repeat of an older post, that I did after new people were
looking for sites about Living with Epilepsy.  It has all the sites except
for Howdy Dave's and another medications site that was posted about a week
ago.   I'll add those in a moment if I find them.  G./
****************
I did a couple of posts over last ~3 days where I referred a few people to
'the Idaho First Aid Chart' or 'Idaho Website' without seeing it up on any
posts I have right now in my charts.

 So for anyone who hasn't seen these already -->
The General Site that Julie operates for Epilepsy Idaho group is at:
http://www.epilepsyidaho.org .

The 'First Aid chart' I frequently refer to can be located by entering and
wandering about site above, but can be reached direct at
http://www.epilepsyidaho.org/seizure.htm  .
 There's a Second topic added about 4? months ago that goes more into First
Aid in Water, on Aircraft, etc.  It's at
http://www.epilepsyidaho.org/seizure2.htm  .

 Also accessible from top site, but more detail on Learning about Epilepsy
can be found at http://www.epilepsyidaho/learn.htm   .  That one has quite a
few more links, information on kids newly diagnosed? (I think) and general
questions that others might ask, or those newly diagnosed.

  If there's no link there to a Medications Glossary, the Ep. Foundation of
America has one (of several)  within http://efa.org   .        G./
Dave ???? - 09 May 2004 00:26 GMT
Howdy Bridget!

From my past experience and the experiences of other people that I've talked
with, you can pretty much forget about ever getting a health insurance
policy for yourself. You will immediately be disqualified because of:

PRE-EXISTING CONDITIONS clauses!

About the only ways I know of getting health insurance are:
1. Get it as an employment benefit.
2. Get yourself involved with an organization of some sort that offers a
group insurance program.

As to the "help myself" part. Here are the steps involved (I stole them
right off of the "Epilepsy" page on my site):

=================================
A diagnosis -- at last I know what's wrong with me!

Epilepsy! -- What's epilepsy?

Refusal (No I DON'T have epilepsy!)

Why me? / Why is God punishing me?

I'm some sort of freak! / My life is ruined! / I can't do any of the things
that I want to do!

OK I have epilepsy... Guess I'm going to have to learn to live with it! --
Now I'll find out who my REAL friends are!

I am not an epileptic, I'm a person who happens to have epilepsy! -- Lots of
great people have had epilepsy!

Life goes on.

Epilepsy/epileptic what's the big deal? People with diabetes are diabetic;
people with asthma are asthmatic. It's just a word...

Epilepsy is just one facet of what makes me ME! -- This is ME, take it or
leave it!

=================================

These are MY steps...
Some folks won't get all the way down the list.
Some folks won't experience some of the steps.
Some folks may have some extra steps along the way.
Some folks may have a couple of steps in a different order.
There may be more steps that I'm not aware of yet.

Hope this is of some assistance.

Signature

Dave ????
"Noli illigitemi carborundum decendus"
"Ego sum quis ego sum quod ut est quicumque ego sum"

http://www.howdydave.com

> hi,
> I am new to this support group. I am a little confused about a lot of
[quoted text clipped - 5 lines]
> I hope I hear from someone.
> Thanks.
Mary Fisher - 14 May 2004 22:42 GMT
> Howdy Bridget!
>
[quoted text clipped - 48 lines]
>
> Hope this is of some assistance.

What a wise post.

Now try substituting cancer for epilepsy.

I tell you, it's very similar. Except that you forgot:

"Why does this have to happen to me?"

[as if you'd rather it happened to someone else :-)))]

Mary

> > hi,
> > I am new to this support group. I am a little confused about a lot of
[quoted text clipped - 5 lines]
> > I hope I hear from someone.
> > Thanks.
 
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