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Medical Forum / Diseases and Disorders / Epilepsy / April 2004

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Can someone with epilepsy go on an exotic holiday?

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Julie Dennison - 30 Mar 2004 18:12 GMT
I have posted an article to my web site that attempts to answer that
question. The simple answer is "Yes, with care and support", but
please read the full article . . .

Julie
http://www.livingwithepilepsy.org.uk
Dave ???? - 31 Mar 2004 03:48 GMT
Howdy Julie!

How on earth can you DARE to make such a prejudicial sweeping statement as
that?

I don't know about other epileptics, but I for one do not need (and have not
needed in the passed) my a.s covered and nose wiped if I care to take any
trips -- exotic or otherwise!

Are you saying that everybody with epilepsy, including those whose seizures
are fully controlled, need supervision?

You are the ideal subject of my motto:
"Noli illigitemi carborundum decendus"

With care and support maybe you can get somebody to translate that for you!

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> I have posted an article to my web site that attempts to answer that
> question. The simple answer is "Yes, with care and support", but
> please read the full article . . .
>
> Julie
> http://www.livingwithepilepsy.org.uk
Dave ???? - 31 Mar 2004 04:18 GMT
Howdy AGAIN Julie!

You may want to check your guestbook...

I made some rather provocative statements.

re: a statement on your site about your VNS - It is NOT on all the time, it
is active all the time (big difference!)

If it was on all the time the device would constantly be sending a charge to
your vagus nerve. I assume that this is not the case.

Do not write so that things can be understood.
Write so that things can NOT be MISUNDERSTOOD!

Especially watch out for those sweeping and/or absolute statements (always,
never, everybody, nobody etc.)

Don'cha just HATE it when a technical writer gets on your case?  :)

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> Howdy Julie!
>
[quoted text clipped - 19 lines]
> > Julie
> > http://www.livingwithepilepsy.org.uk
Dave ???? - 31 Mar 2004 04:24 GMT
Then again...

It could just be the difference between English and American English.

I've got to remember that we are both writing for an international audience
with differing fluency in the language.

"Two peoples separated by a common language." --Winston Churchill

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> Howdy AGAIN Julie!
>
[quoted text clipped - 42 lines]
> > > Julie
> > > http://www.livingwithepilepsy.org.uk
Daz_n_Pat - 31 Mar 2004 07:06 GMT
> Howdy AGAIN Julie!
>
[quoted text clipped - 15 lines]
>
> Don'cha just HATE it when a technical writer gets on your case?  :)

I don't understand what you mean Dave. Do you mean YOU are on her case, or
some other technical writer is on her case? And what does on her case mean?
Does Julie have a wooden box upon which you are standing or are you perhaps
sitting upon her medical files or perhaps you are the judge in a trial in
which Julie is the defendant?
Please in future Dave would you clarify things a little more.
Because I ALWAYS get confused and NEVER understand it, when EVERYBODY writes
things that NOBODY understands.
JK.

Cheers   :-)

Darryl.

> --
> Dave ????
[quoted text clipped - 34 lines]
> > > Julie
> > > http://www.livingwithepilepsy.org.uk
Mary Fisher - 03 Apr 2004 17:01 GMT
> > Howdy AGAIN Julie!
> >
[quoted text clipped - 26 lines]
> Please in future Dave would you clarify things a little more.
> Because I ALWAYS get confused and NEVER understand it,

You have a problem ...

> when EVERYBODY writes
> things that NOBODY understands.

Dave hasn't doen't that in my experience.

Mary
Mary Fisher - 03 Apr 2004 17:00 GMT
> Howdy AGAIN Julie!
>
> Don'cha just HATE it when a technical writer gets on your case?  :)

Somebody has to.

Mary
Tappy Lappy - 09 Apr 2004 21:24 GMT
> Howdy Julie!
>
[quoted text clipped - 18 lines]
>
> http://www.howdydave.com

Here's one for you which will not need much translation - Pompus Prickus.
gaross - 09 Apr 2004 21:49 GMT
> > Howdy Julie!
> > How on earth can you DARE to make such a prejudicial sweeping statement as
> > that?
> > I don't know about other epileptics, but I for one do not need (and have
not
> > needed in the passed) my a.s covered and nose wiped if I care to take any
> > trips -- exotic or otherwise!
> >
> > Are you saying that everybody with epilepsy, including those whose
seizures
> > are fully controlled, need supervision?
> >
> > You are the ideal subject of my motto:
> > "Noli illigitemi carborundum decendus"
> >
> > With care and support maybe you can get somebody to translate that for
you!
> > --
> > Dave ????
[quoted text clipped - 6 lines]
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004

G.  I guess that makes you new in Town...   Most of us recognize when Howdy
is being teased by the women on the group, or 'versa vice'.   He only wins
about 1 in 3.   But he never asks for much more than that.
 Just click 'next' and let him play   Bachelors need love too ya know (I'd
heard).   G./
nospam - 10 Apr 2004 02:08 GMT
> > Howdy Julie!
> >
[quoted text clipped - 23 lines]
> >
> Here's one for you which will not need much translation - Pompus Prickus.

Is that from your autobiography?  I guess you're selling books too.

> ---
> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004
Mary Fisher - 10 Apr 2004 10:06 GMT
> Is that from your autobiography?  I guess you're selling books too.

Not to anyone here, I'll bet.

Mary
M - 10 Apr 2004 10:54 GMT
>> Is that from your autobiography?  I guess you're selling books too.
>
>Not to anyone here, I'll bet.
>
>Mary

Dunno. Some of my posts are long enough, aren't they?

All I gotta do is find a publisher :(

Signature

Malcolm    

Mary Fisher - 10 Apr 2004 19:20 GMT
> Dunno. Some of my posts are long enough, aren't they?
>
> All I gotta do is find a publisher :(

They're not long enough :-)

Mary
gaross - 12 Apr 2004 17:48 GMT
I hooked onto here since I don't want to be part of the last 2-3 day's
exchanges that went up on this thread.   This post has to do with earlier
stuff and not specifically with Malcolm or Mary's post at bottom.

It's unfortunate the woman who posted earlier (a newbie?) who used the above
Subject title, wanted to tell us about a trip she took, then had the thread
diverted so easily onto a silly thread that went nowhere wrt. PWE.
Hopefully she hasn't left and will continue to post here.
   As a support group for PWE and Families with members Living with
Epilepsy, it serves no purpose to get into Flame Wars and personal attacks,
while there's someone who's only posted one or two times here, trying to
join in.
   Hopefully the woman who wanted to tell us about her travels is still
around and will continue to post.

   WRT posting 'on behalf' of someone else, let them do their own posts.
More than 80% of people who post here have personal experiences with living
with Epilepsy, and while we have family members and Doctors who come here to
find out what they can do to best help people newly diagnosed, the
'auxiliary observers' make up less than 10-15% of the people who read this
group (and don't post) or become reluctant to post in the middle of a 'Brush
Fire' .
   Less than 20% of the people who read this group or search out
Information with Google and other engines, are actually *active here.
Earlier types of exchanges just create 'noise' that will either drive them
away from posting the first time, or 'mask out' subjects that search engines
might use to find useful information wrt. being newly diagnosed, or coping
approaches some of us have found to work around various seizure types, or
side effects, of Living with Epilepsy, plus how to best inform Families and
Co-workers on helping us when we're have seizures.

   Those people should be respected too, and a little more 'support' back
in alt.support would encourage more of the lurkers to participate.   G.R.

  (I didn't hook onto earlier messages, or join in, since they are rapidly
expiring on my server and I wanted to keep that happening.   Some of the
thread, if someone looking down it at the centre might also think it might
be feeding one of the Phishers who come through here once or twice a week.
And I don't know what the ordering (internal to a CPU) of the Date of a
Post -- set by software, has to do with Living with Epilepsy. Set 'Sort
message threads by Subject' and the related messages will stay together
without needing to check the date and time they were added. )  /

> > Dunno. Some of my posts are long enough, aren't they?
> > All I gotta do is find a publisher :(
[quoted text clipped - 3 lines]
> > --
> > Malcolm
Tappy Lappy - 12 Apr 2004 21:48 GMT
> I hooked onto here since I don't want to be part of the last 2-3 day's
> exchanges that went up on this thread.   This post has to do with earlier
[quoted text clipped - 38 lines]
> message threads by Subject' and the related messages will stay together
> without needing to check the date and time they were added. )  /

Sorry if I caused any offence, or upset you or anyone else over the
past few days.Thnigs didn't pan out the way I expected, as the last thing I
wanted was to
get involved in was a slanging match on such a serious subject.
Altough I don't post here often, I do visit the NG on a regular basis and
will
honestly try to avoid the sort of exchange that took place with "no spam" in
the future.
Once again if I have upset anyone, please forgive me as there was no hurt
intended
Tappy Lappy - 10 Apr 2004 13:13 GMT
> > > Howdy Julie!
> > >
[quoted text clipped - 25 lines]
>
> Is that from your autobiography?  I guess you're selling books too.

Pogue mahon - for want of a better phrase.
nospam - 10 Apr 2004 13:25 GMT
> > > > Howdy Julie!
> > > >
[quoted text clipped - 31 lines]
> >
> Pogue mahon - for want of a better phrase.

Your book title?  By a multi-lingual foulmouth. We can guess what the contents
are like can't we.

> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004
Tappy Lappy - 10 Apr 2004 20:03 GMT
> > > > > Howdy Julie!
> > > > >
[quoted text clipped - 34 lines]
> Your book title?  By a multi-lingual foulmouth. We can guess what the contents
> are like can't we.

A multi-lingual foulmouth being criticised by a multi-lingual fol, now
theres a first.
nospam - 10 Apr 2004 21:57 GMT
> > > > > > Howdy Julie!
> > > > > >
[quoted text clipped - 41 lines]
> A multi-lingual foulmouth being criticised by a multi-lingual fol, now
> theres a first.

Still autobiographical I see.

> Outgoing mail is certified Virus Free.

But not free of foul language & other stupidity.

> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004

I'm impressed. Released in the future.
Tappy Lappy - 11 Apr 2004 06:36 GMT
> > > > > > > Howdy Julie!
> > > > > > >
[quoted text clipped - 52 lines]
>
> I'm impressed. Released in the future.

O wise one, here in the UK we use the correct method of writing the date,
Day/Month/year. Still impressed, or are you now enlightened?
Try to broaden your knowledge of the world by reading something other than
the
cartoon section of the Sunday newspapers.
Now to the serious bit. My wife suffers from epilepsy, and is not an
EPILEPTIC,
which is a term that is offensive to most people with this illness. She HAS
taken a major seizure
while on holiday and spent 5 days in intensive care. Believe me she was glad
there
were people on hand to  see that her "a.s was covered and nose wiped" (fuuny
how
you don't seem to take offence at the  word "a.s", but have problems when it
is used
in the Gaelic form), so you see why I got annoyed at the original post. Then
you come along
with your self righteous comments defending the idiot who wrote it.
Point made - I hope.

reading
M - 11 Apr 2004 09:13 GMT
>O wise one, here in the UK we use the correct method of writing the date,
>Day/Month/year. Still impressed, or are you now enlightened?
[quoted text clipped - 15 lines]
>with your self righteous comments defending the idiot who wrote it.
>Point made - I hope.

Yes, but we are all different.

I *don't* mind being referred to as an epileptic - as I've posted here
before, epilepsy is inextricably intertwined with my character and I
wouldn't be the person I am today without it. It's part of me and I'll
only ever accept myself if I accept that I'm epileptic.

If I *can't* accept that, then I should ask myself "Why not? What is
there to be ashamed of?" Nothing, so let's just accept that I have it
and get on with life.

That doesn't mean that I *like* having epilepsy, or the side effects of
the meds. And I sometimes wonder where I'd have got to in life if I
wasn't epileptic. And yes, there are some people who think I should not
take the risks I should re climbing, swimming, sailing, etc.  But I
dismiss those risks because I can think of no better way of enjoying
life, and if it leads to a premature end, then at least I'll have
enjoyed what I've had.

I acknowledge that there are those who don't like the word epileptic, or
calling seizures fits. But that's what the world calls them, and I can't
carry my own little bubble of self-delusion around with me.

Or maybe I could - but I don't want to. We are all different.

Regards,
Signature

Malcolm    

Tappy Lappy - 11 Apr 2004 19:18 GMT
> >O wise one, here in the UK we use the correct method of writing the date,
> >Day/Month/year. Still impressed, or are you now enlightened?
[quoted text clipped - 44 lines]
> --
> Malcolm

Hi Malcom, sorry if you were offended by the above, but the comments were
made to one person in particular and were not pointed at people with
epilepsy
in general. Without sounding patronising, I think it is great that you
refuse to let
your condition interfere with your enjoyment of life, but the original post
was
about people with epilepsy not needing anyone to "Wipe noses, and clean
a.s".
I am afraid they do, as I have never known anyone having a seizure being in
a position
to call an ambulance for example. My wife has had two spells in intensive
care
and both times was eternally grateful that help was on hand to get her to
hospital in the first place, hence my annoyance at the "I don't need help
from no one"
attitude. Any way keep doing what you are doing and good luck fono r the
future.
Tappy

.
nospam - 11 Apr 2004 15:43 GMT
> > > > > > > > Howdy Julie!
> > > > > > > >
[quoted text clipped - 59 lines]
> O wise one, here in the UK we use the correct method of writing the date,
> Day/Month/year. Still impressed, or are you now enlightened?

Perhaps you are the one who could explain a couple of things then. At the end of
the website
http://www.grisoft.com/us/us_index.php   it says "Modified on 4-11-2004"  Which
"correct method" are they using? One would expect them to be consistent?

and what's that about UK? they have
GRISOFT, s.r.o. (Czech Republic) and
Grisoft, Inc. (Delaware, United States)
I don't see UK mentioned.

> Try to broaden your knowledge of the world by reading something other than
> the
> cartoon section of the Sunday newspapers.

Follow your own advice or are the soccer scores all that interest you?

> Now to the serious bit. My wife suffers from epilepsy, and is not an
> EPILEPTIC,
[quoted text clipped - 9 lines]
> you come along
> with your self righteous comments defending the idiot who wrote it.

The "point" is that the man whom you originally attacked has  _personally_
experienced such major seizures. Your comments were out of place in this
newsgroup.

> Point made - I hope.
>
> reading

Think about it.
Tappy Lappy - 11 Apr 2004 19:18 GMT
> The "point" is that the man whom you originally attacked has  _personally_
> experienced such major seizures. Your comments were out of place in this
[quoted text clipped - 5 lines]
>
> Think about it.

Yes, and my better half has had two life threatening status episodes, but
she
doesn't go around with a chip on her shoulder. Have you given any thought
to the people who might have been offended by this persons comments,
or are you so wrapped up in your own world that no ones elses feeling are
taken
in to account. I have never known anyone who has had a seizure to be in
a position to say "I don't need help" .

By the way, this NG is for peoples thought and feelings on the subject
matter
and any post should be made on the understanding that is is up for criticism
and comment. I am afraid you are in no position to determine what is in or
out of place
as you are not the censor for "alt.support.epilepsy".
nospam - 11 Apr 2004 19:59 GMT
> > The "point" is that the man whom you originally attacked has  _personally_
> > experienced such major seizures. Your comments were out of place in this
> > newsgroup.
> >
> Yes, and my better half has had two life threatening status episodes, but
> she doesn't go around with a chip on her shoulder.

But she's got you to do that for her.

> Have you given any thought
> to the people who might have been offended by this persons comments,

He happens to be one of the more helpful people in this newsgroup. He also
maintains a website with important information for epilepsy sufferers.

> By the way, this NG is for peoples thought and feelings on the subject
> matter
> and any post should be made on the understanding that is is up for criticism
> and comment. I am afraid you are in no position to determine what is in or
> out of place
> as you are not the censor for "alt.support.epilepsy".

It sounds like you're bidding for that job.
Tappy Lappy - 11 Apr 2004 22:20 GMT
> > > The "point" is that the man whom you originally attacked has  _personally_
> > > experienced such major seizures. Your comments were out of place in this
[quoted text clipped - 4 lines]
>
> But she's got you to do that for her.

Well you must be the most balanced person I have ever come across, a chip
on both shoulders.

> > Have you given any thought
> > to the people who might have been offended by this persons comments,
>
> He happens to be one of the more helpful people in this newsgroup. He also
> maintains a website with important information for epilepsy sufferers.

How does that make him right every time? Rubbishing someone else who
suffers from the same complaint counts as helpful, important information
does it?

> > By the way, this NG is for peoples thought and feelings on the subject
> > matter
[quoted text clipped - 4 lines]
>
> It sounds like you're bidding for that job.

Pathetic response. Can't you think of something original or maybe even a
reply to my questions.
Seems to me you are one of the "I'll get the last word in, no matter what
rubbish I spout" crowd.
Either come up with something sensible to say, or butt out.
Tappy Lappy - 11 Apr 2004 19:19 GMT
> > > > > Checked by AVG anti-virus system (http://www.grisoft.com).
> > > > Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004
[quoted text clipped - 13 lines]
> Grisoft, Inc. (Delaware, United States)
> I don't see UK mentioned.

Consistent they are, and clever too. The dates are modified to suit the
country
where the software is being used eg USA - month/day/year, UK -
day/month/year.
Now surely that didn't need explaining.

> > Try to broaden your knowledge of the world by reading something other than
> > the
[quoted text clipped - 15 lines]
> > you come along
> > with your self righteous comments defending the idiot who wrote it.

Have you no comment on the a.s issue above?
nospam - 11 Apr 2004 20:03 GMT
> > > > > > Checked by AVG anti-virus system (http://www.grisoft.com).
> > > > > Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004
[quoted text clipped - 22 lines]
> day/month/year.
> Now surely that didn't need explaining.

You guessed, but you guessed wrong, wrong, wrong!  Better take a look at the
code before you put your other foot in it.
Tappy Lappy - 11 Apr 2004 22:20 GMT
> > > > > > > Checked by AVG anti-virus system (http://www.grisoft.com).
> > > > > > Version: 6.0.654 / Virus Database: 419 - Release Date: 06/04/2004
[quoted text clipped - 25 lines]
> You guessed, but you guessed wrong, wrong, wrong!  Better take a look at the
> code before you put your other foot in it.

Your original faux pas concerned the date 06/04/2004. Explain why your
feeble attempt
at sarcasm failed miserably.
M - 31 Mar 2004 17:56 GMT
>I have posted an article to my web site that attempts to answer that
>question. The simple answer is "Yes, with care and support", but
>please read the full article . . .
>
>Julie
>http://www.livingwithepilepsy.org.uk

Julie,

Nothing stopped me from going solo in the remote Himalaya, where the
nearest hospital of any kind was hundreds of miles away across mountains
with no roads. I took my epilepsy with me (at the time it was
uncontrolled - 'the falling sickness' they called it in Ladakh) and do
not expect to be rescued if something goes very wrong.

Who needs a Mile-High Club membership when the 20,000 ft climbing
seizure club is far more elite? But I do not let it stop me. I'm also
happy out sailing solo and again, if something goes wrong, I do not
expect anyone to mollycoddle me out of trouble. It is not
irresponsibility, it is independence.

Although I am an epileptic I am not Epilepsy, and I refuse to let it
rule my life.  *I* make the decisions. If epilepsy makes things
difficult I find a way around, rather than cancel the decision. It is my
life, not my epilepsy's.

Even to suggest that people with epilepsy cannot go on holiday implies
we are slaves to our condition. Whatever happened to the independence
and guts we are supposed to have?

In the words of Ellen MacArthur - " à donf ! "
Signature

Malcolm    

Mary Fisher - 03 Apr 2004 17:02 GMT
"M" <webmaster@need.to.remain.anon> wrote in message
> Julie,
>
[quoted text clipped - 18 lines]
> we are slaves to our condition. Whatever happened to the independence
> and guts we are supposed to have?

I gree with all the above.

> In the words of Ellen MacArthur - " ? donf ! "

But I'd like to know what that means - and who is Ellen MacArthure?

Mary
jedi and son - 06 Apr 2004 16:16 GMT
> > In the words of Ellen MacArthur - " ? donf ! "
>
> But I'd like to know what that means - and who is Ellen MacArthure?
>
> Mary

Google is your friend my dear
http://www.google.com/search?sourceid=navclient&ie=UTF-8&oe=UTF-8&q=Ellen+MacArthure

Though  "? donf !" was not recognizable to me nor did it translate....French
perhaps?

Jedi and Son
Mary Fisher - 06 Apr 2004 22:41 GMT
> > > In the words of Ellen MacArthur - " ? donf ! "
> >
[quoted text clipped - 3 lines]
>
> Google is your friend my dear

Don't patronise me.

http://www.google.com/search?sourceid=navclient&ie=UTF-8&oe=UTF-8&q=Ellen+MacArthure

> Though  "? donf !" was not recognizable to me nor did it translate....French
> perhaps?

It's not like any French I know.

Mary

> Jedi and Son
Dave ???? - 07 Apr 2004 07:26 GMT
re: " ? donf ! "

Doesn't sound like French to me! Sounds more like me talking with a fully
congested head.

You know...

" I hope you figured oud what "? donf !" meanths... Ath for mythelf '? don'f
! habe a clue!"

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> > > > In the words of Ellen MacArthur - " ? donf ! "
> > >
[quoted text clipped - 5 lines]
>
> Don't patronise me.

http://www.google.com/search?sourceid=navclient&ie=UTF-8&oe=UTF-8&q=Ellen+MacArthure

> > Though  "? donf !" was not recognizable to me nor did it
> translate....French
[quoted text clipped - 5 lines]
> >
> > Jedi and Son
M - 07 Apr 2004 11:41 GMT
Dave ©¿©¬ <dave@_nospam_howdydave.com> wrote
>re: " à donf ! "
>
[quoted text clipped - 5 lines]
>" I hope you figured oud what "à donf !" meanths... Ath for mythelf 'à don'f
>! habe a clue!"

Just waiting patiently to see if this thread gets there in the end
<beg>!

I have only two life heroes. No film-stars, footballers, 6 nations rugby
players, FA cup teams, etc. so I'm not very good at male-bonding in the
pub. My heroes are famous but real people.

1) Muhammad Ali, because he stuck by his principles, he set his mind on
a route in life and he didn't let anything divert him from that route.
He hasn't even let Parkinsons disease take away his dignity or self
respect.

2) Ellen MacArthur, because she has more guts than I have, she has a
life-style which I envy and yet she's not afraid to be human. When she
gained fame as a result of her achievements, she's accepted it but still
remains just 'Ellen who enjoys the sea'.

Both of my heroes share one thing in common - a 100% belief in their own
abilities - an attitude of "I want to, so I will!"  

à don'f !

Signature

Malcolm    

Mary Fisher - 07 Apr 2004 15:32 GMT
> Just waiting patiently to see if this thread gets there in the end
> <beg>!
[quoted text clipped - 4 lines]
>
> 2) Ellen MacArthur,

Not famous enough ...

Mary
M - 07 Apr 2004 17:56 GMT
>> Just waiting patiently to see if this thread gets there in the end
>> <beg>!
[quoted text clipped - 8 lines]
>
>Mary

More famous than Mary Fisher   :-þ

Signature

Malcolm

Mary Fisher - 07 Apr 2004 18:22 GMT
> >> Just waiting patiently to see if this thread gets there in the end
> >> <beg>!
[quoted text clipped - 10 lines]
>
> More famous than Mary Fisher   :-?

That's not at all difficult.

But you didn't say who Ellen MacArthur was :-)

Mary
Dave ???? - 07 Apr 2004 22:53 GMT
Howdy!

If we're gonna' list heros, I think it warrants a thread dedicated to itself
(some folks may have probably tuned this thread out by now.)

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> > >> Just waiting patiently to see if this thread gets there in the end
> > >> <beg>!
[quoted text clipped - 17 lines]
>
> Mary
Charlie S. - 07 Apr 2004 22:58 GMT
<snip>
> I have only two life heroes. No film-stars, footballers, 6 nations rugby
> players, FA cup teams, etc. so I'm not very good at male-bonding in the
> pub. My heroes are famous but real people.

<snip>

> 2) Ellen MacArthur, because she has more guts than I have, she has a
> life-style which I envy and yet she's not afraid to be human. When she
> gained fame as a result of her achievements, she's accepted it but still
> remains just 'Ellen who enjoys the sea'.

Ellen MacArthur rocks. I remember watching a documentary about her sail
around the Globe. If I'm not mistaken, she rescued one of the other sailors
in the race... Go, Ellen! (btw, my mom's name is Ellen) ;)

And I do love the name of her boat. Kingfisher.

- Charlie
Mary Fisher - 08 Apr 2004 10:34 GMT
> <snip>

> <snip>
>
[quoted text clipped - 8 lines]
>
> And I do love the name of her boat. Kingfisher.

Well, thanks. I know a little more about her now. But not much ...

Mary

> - Charlie
M - 08 Apr 2004 11:36 GMT
>Well, thanks. I know a little more about her now. But not much ...

Ellen's great-grandparents came from Skye and were boating people and a
great-uncle ran away to sea when young, but any real connection with the
sea is tenuous. When Ellen was eight, an aunt took her sailing on the
east coast, after which she was hooked.

At school, she saved up all her dinner money for three years to buy her
first boat, an eight-foot dinghy. She spent all her spare time reading
sailing books in the library and soaking up information like a sponge.
She was going to be a vet but a bout of glandular fever while she was in
the Sixth Form set her back. Instead, she resolved to become a
professional sailor.

At 18, she sailed single-handed round Britain and won the Young Sailor
of the Year award for being the youngest person to pass the Yachtmaster
Offshore Qualification, with the highest possible marks in theory and
practical examinations.
The nautical establishment looked on benignly at "Little Ellen" from
Derbyshire, just 5' 2'' tall, and metaphorically patted her on the head.
She wrote 2,500 letters to potential sponsors - and received just two
replies.

They stopped patting her on the head and looked at her in a new light
when she undertook the Mini-Transat solo race from Brest in France to
Martinique in the French Caribbean in 1997. With little money, no major
sponsorship and not even a return ticket, she took the ferry to France,
bought Le Poisson, a 21ft yacht, and refitted it on site. She learned
French in order to deal with French shipwrights and camped next to Le
Poisson while she worked on the mast and hull.

Then she sailed 2,700 miles across the Atlantic; a race, which she
completed in 33 days. This achievement brought her first major
sponsorship from Kingfisher, who believes in backing young people with
an ambition to succeed.

Ellen smashed a number of records during her Vendée Globe challenge in
2000/ 2001, including becoming the fastest woman to sail round the
world, the second-fastest single-handed man or woman, the youngest
person, at 24, to complete the Vendée Globe, and the first woman to
secure a podium finish. The Vendée Globe is far the toughest challenge
that the world's oceans have to offer: 100 days alone at sea, racing
round the world.

Since then, she has been very much in the public eye (in the UK and
sailing world anyway) with her racing and real-time broadcasts from
storms in the middle of nowhere in the ocean.

And the story goes on, with a new trimaran just launched and ready for
the next race....  

Enough?

What do we do with our dinner money :(

Signature

Malcolm    

Mary Fisher - 08 Apr 2004 12:05 GMT
> >Well, thanks. I know a little more about her now. But not much ...
>
[quoted text clipped - 46 lines]
> And the story goes on, with a new trimaran just launched and ready for
> the next race....

Oh! That's who she is - Of course I've heard of her and been moved and proud
too, I just hadn't remembered the name.

> Enough?

That was brilliant, I know much more now, thank you. And she IS a hero isn't
she :-)

Persistence pays - not just for Ellen but for me ...

> What do we do with our dinner money :(

I can't remember what I did with mine but I know that and bus fares and once
a piano lesson fee weren't always used for what they should have been. But
never anything as worthwhile as Ellen ...

Mary
turbinado - 09 Apr 2004 02:44 GMT
We still don't know what "? don'f" means - or did I miss something?
M - 09 Apr 2004 08:37 GMT
>We still don't know what "à don'f" means - or did I miss something?

OK... French experts please correct me if I'm wrong:

You won't find 'à donf' in any English/French dictionary as it is Verlan
( = French slang ). Verlan transposes letters and phonemes in order to
make the word sound smoother and more audibly acceptable. I presume
Ellen picked it up when she was living in a French shipyard getting her
boat ready. It is painted on the front of the hulls of her rather more
expensive new trimaran.

à donf is a transposition of à fond, which means 'very much', but this
still doesn't really help. You don't go sailing round the world and
shout "Very much!" when you set off. It is one of those phrases where
the literal doesn't transfer the meaning (like 'alors' which means
'then' but is used with a shrug to mean 'OK, it's not going to happen,
too bad!'). Probably the best un-literal translation of 'à donf' is
"Full on! Go for it!"

Unless, or course, someone knows different?

Signature

Malcolm    

Mary Fisher - 09 Apr 2004 10:19 GMT
> >We still don't know what "? don'f" means - or did I miss something?
>
[quoted text clipped - 16 lines]
>
> Unless, or course, someone knows different?

I'm not a French expert and don't know what it means but I wondered if we
could ask Ellen?

Mary
Mary Fisher - 09 Apr 2004 10:27 GMT
> I'm not a French expert and don't know what it means but I wondered if we
> could ask Ellen?

Done.

It could take some time to get an answer, watch this space.

Mary
Mary Fisher - 09 Apr 2004 10:26 GMT
"Mary Fisher" <mary.fisher@zetnet.co.uk> wrote in message news:...

> "M" <webmaster@need.to.remain.anon> wrote in message
>
> I'm not a French expert and don't know what it means but I wondered if we
> could ask Ellen?

Further to that, I have done, asked her I mean. I'll let you know but it
might be some time before she replies.

Mary
Julie Dennison - 13 Apr 2004 15:01 GMT
> I have posted an article to my web site that attempts to answer that
> question. The simple answer is "Yes, with care and support", but
> please read the full article . . .

Well, I never thought my attempt at helping people would cause so much
trouble.

Amongst all of the flames, there was some very useful feedback and I
have slightly altered my article to emphasise the fact that I was
referring to someone with an uncontrolled condition (admittedly not
clear from the subject of my original post, but made clear in the
article itslf). My experience is that there are many more people
worried that their epilepsy means they cannot live life to the full,
than those who have the confidence to do their own thing. It was that
group who the post was aimed at.

In my own case, if I did not have a vigilent and supportive family I
would injure myself every few days. Going on an exotic holiday, and
other things I have done such as a balloon flight and speaking about
epilepsy on television, took the care and support I mentioned in my
original post.

I hope some of you enjoyed the article. My thanks go to those whose
criticism helped me see my writing through the eyes of others.

Julie
http://www.livingwithepilepsy.org.uk
gaross - 13 Apr 2004 20:43 GMT
  Thanks for staying around.   I did a post somewhere in the middle of that
exchange.  The stuff they started arguing about  had *Nothing to do with
your post, but got started with something someone posted on the same message
(sort) thread, rather than starting a separate message title. Then 3-5
others joined in and it got further off subject, unrelated to living with
Seizures,  and off-subject more from there.

   I'm sorry that happened, it happens from time to time, but not usually
with a 'Newbie'..   Hopefully they'll be a little more supportive and
friendly like 90% of the Regulars who aren't all active at the moment.  Some
might be travelling (too!), and rest might be doing Federal Taxes ! :-o
Too, so entering the Depression part of Springtime.

   And besides, now that you're still posting, you're not a Newbie
anymore!!   Some of the Regulars are currently 'up' on my threads, and a
couple--> Julie Walton - Idaho USA and Howdy Dave (USA, Canada, on the road,
bachelor on the loose) who have their own (separate) Websites, if you
haven't seen them yet,  should be back around this week or next.  If you
don't see an older post that has their www addresses at the end, Bob? and I
did a couple of posts about 1-3 weeks ago that listed ~5 sites, including
theirs.
  I like 2 of the Charts on Julie's site that have easy to follow First Aid
for Seizures (general chart for all the main seizure types), and a New one
that has First Aid in Water (for those who swim or stand too close the side
of the Deck).
  We had one or two people in the  UK posting before, we have 1 or 2 in
Australia, a Bunch in the U.S.A. or Canada across 5+ timezones, and some
occasional ones in Europe.
  Our Main Doctor (when he has time) is Dr. Bob, who hasn't posted for TOO
long.  I hope he hasn't Left !!   He kept us from getting too far astray a
few times wrt Medications,  when to see a Doctor about side effects, etc.
Really helpful stuff.   (I hope he SEES THIS!! :->  )

   Please stay around, too.   We all benefit from each others experiences
and input.
   We need all the Fresh Input and participation we can encourage.   This
is one case where More is Better.   G.R.

> > I have posted an article to my web site that attempts to answer that
> > question. The simple answer is "Yes, with care and support", but
[quoted text clipped - 23 lines]
> Julie
> http://www.livingwithepilepsy.org.uk
Bob - 13 Apr 2004 21:22 GMT
>  <snip>
> Julie Walton - Idaho USA and Howdy Dave (USA, Canada, on the road,
> bachelor on the loose) who have their own (separate) Websites,

Julie Dennison's website:
http://homepage.ntlworld.com/mike.dennison/
has a pointer to Howdy Dave's  VNS page at:
http://homepage.ntlworld.com/mike.dennison/advice/index.htm
It looks like Dave has taken that site down though.

> if you
> haven't seen them yet,  should be back around this week or next.  If you
> don't see an older post that has their www addresses at the end, Bob? and I
> did a couple of posts about 1-3 weeks ago that listed ~5 sites, including
> theirs.

Sure thing! Here's they are:
http://www.howdydave.com/
http://www.epilepsyfoundation.org/
http://www.epilepsyidaho.org/

This one is very good!
http://www.epilepsy.com/

Bob
 
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