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Medical Forum / Diseases and Disorders / Epilepsy / April 2004Scars
Howdy! On the "Oh the pain!" thread a poster commented on some facial scars that a brother had recently acquired some facial scars due to a seizure. AFAIC Scars are just one of the badges of courage that people with epilepsy have. How about sharing what kind of scars we have due to seizures? I'll start. I have: Cut scars, Abrasian scars, Burn scars, Skin grafs and 2 burned off fingerprints.  SignatureDave ???? "Noli illigitemi carborundum decendus" http://www.howdydave.com Took the pins and steel bar out of my ankle so they don't count! SignatureDave ???? "Noli illigitemi carborundum decendus" http://www.howdydave.com > Howdy! > [quoted text clipped - 12 lines] > Skin grafs and > 2 burned off fingerprints. I used to have a burn scar on my hand. That disappeared after about 20 years ;-) -- Julie "Dave ©¿©¬" wrote: > Howdy! > [quoted text clipped - 18 lines] > > http://www.howdydave.com I have to get both shoulders replaced but am waiting till they get so bad I can't stand it anymore.(building muscle doesn't always pay off if you have gran mals) Mike > Howdy! > [quoted text clipped - 18 lines] > > http://www.howdydave.com Mike, my brother has a shoulder that pops out of place all the time and onse he went into a seizure while lifting 185lbs! I had to get the bar off him!! Lialoni >I have to get both shoulders replaced but am waiting till they get so bad I >can't stand it anymore.(building muscle doesn't always pay off if you have >gran mals) >Mike I'm waiting for a head replacement. It's where most of the damage is. SignatureMalcolm > >I have to get both shoulders replaced but am waiting till they get so bad I > >can't stand it anymore.(building muscle doesn't always pay off if you have [quoted text clipped - 4 lines] > -- > Malcolm Maybe if we could get the Politicians to quit trying to "Jump the Queue" we'd have been served by now... :-< G. > > >I have to get both shoulders replaced but am waiting till they get so bad > I [quoted text clipped - 9 lines] > Maybe if we could get the Politicians to quit trying to "Jump the Queue" > we'd have been served by now... :-< G. I've never noticed a politician benefiting from any kind of surgery. Or anything. Mary > I have to get both shoulders replaced Heavens! I didn't think that was possible - tell us more? Mary Sorry I've taken so long to reply but my ISP was down for the weekend :( I've always worked out and I started having Gran Mals about 12 years ago. Apparently what happens is when I have a seizure and all my muscles start pulling against each other the stronger ones win the battle. Then the muscles took to pulling my arms partially out of their sockets. They were always in when ever I woke up but after a few years I had the interesting ability to dislocate my shoulders at will or more times than not, when I didn't want to, i.e. picking up a glass of water. I've had specialists look at them and they basically said the rotator cups are totally destroyed and they are both totally full of arthritis. They told me to tolerate the problems as long as I can stand, then come and get them replaced. Funny thing is, now I have to workout. If I miss going to the gym for more than a week my shoulders start to totally seize up and hurt like hell. Anyway I've rambled on enough. Cheers all Mike > > I have to get both shoulders replaced > > Heavens! I didn't think that was possible - tell us more? > > Mary I had a shoulder dislocated during a seizure, but my husband was holding on to my arm at the time. It dislocated and relocated. So we weren't aware of the problem until months later when I couldn't lift my arm or put it behind my back and I woke up with darting pains up my arm. After a couple years of physical therapy it's good as new - well maybe not new - but better than it was. ;-) Julie > Sorry I've taken so long to reply but my ISP was down for the weekend :( > I've always worked out and I started having Gran Mals about 12 years ago. [quoted text clipped - 18 lines] > > > > Mary > Sorry I've taken so long to reply but my ISP was down for the weekend :( > I've always worked out and I started having Gran Mals about 12 years ago. [quoted text clipped - 10 lines] > week my shoulders start to totally seize up and hurt like hell. Anyway I've > rambled on enough. That sounds terible and is an eye opener to me. I didn't know that such serious things happened. Muscles working against each other ... it's bizarre. The results are awful. Mary Well, I can't claim to have any scars caused by the seizures, but I have one caused by the surgeon. Just under my hair line above my right temple there is a long scar curving down almost to my ear. If I get my hair cut short it shows up and looks yuk. Also have a titanium alloy plate in my head and bumps under the skin which feel like they have put screws in to hold it together. If you could see my brain, I guess you'd see a scar where they took out a piece of it - about the size of a golf ball. Oh, and a man I used to work with has a scar from one of my seizures. I was holding a cabinet scraper (a flat piece of steel about 4 inches by 2 inches, with sharp edges). While I had a seizure he tried to take it from me. Very kind, but I tend to fight against people trying to help and when he had his hand wrapped around the steel I pulled it out of his hand, opening up the palm of his hand. Darryl. -- To email, change daryl to darryl in address. > Howdy! > [quoted text clipped - 18 lines] > > http://www.howdydave.com Hey Darryl, that made me laugh. You gave the person "helping" you a scar. Bet he never did that again! I have had my shoulder dislocated by a "helper" by husband. We both learned about seizure safety after that. You would think that I'd have a duzy of a scar from the time I took a nose dive over the toilet and ended up between the wall and the toilet. It's a good thing I was unconscious and didn't see how that looked. But no scars from that. People keep telling me how young I look. I don't look 50, they say. Maybe I did dive into the toilet water before I hit the floor and that accounts for my youthful beauty ;-) Take care, Julie > Well, I can't claim to have any scars caused by the seizures, but I have one > caused by the surgeon. Just under my hair line above my right temple there [quoted text clipped - 40 lines] > > > > http://www.howdydave.com > Well, I can't claim to have any scars caused by the seizures, but I have one > caused by the surgeon. I have several. When I came round I counted all the tubes and holes in my body and reckoned that they looked for holes and stuck a tube up/down/into it and if they had more tubes than holes they made more. So apart from all the obvious tubes I had one coming out of the back of my head, one in the back of my hand and one in my foot. And a hole in my forehead where they'd clipped the skin they cut and stretched across to reveal my skull to make the question-mark shaped circular saw cut. > Just under my hair line above my right temple there > is a long scar curving down almost to my ear. If I get my hair cut short it > shows up and looks yuk. I'm quite proud of mine but the hair grows so quickly that I've stopped trying to show it off. > Also have a titanium alloy plate in my head and > bumps under the skin which feel like they have put screws in to hold it > together. Show off! there's a dent in my skull but no reinforcement. > If you could see my brain, I guess you'd see a scar where they > took out a piece of it - about the size of a golf ball. Oh, mine was bigger than that nyer nyer :-) > Oh, and a man I used to work with has a scar from one of my seizures. I was > holding a cabinet scraper (a flat piece of steel about 4 inches by 2 inches, > with sharp edges). While I had a seizure he tried to take it from me. Very > kind, but I tend to fight against people trying to help and when he had his > hand wrapped around the steel I pulled it out of his hand, opening up the > palm of his hand. Now that really IS funny! OK, not for him ... Nice post, thanks. Mary > Darryl. > Show off! there's a dent in my skull but no reinforcement. I've got a dent in my temple *and* I can feel a screw at the top of it! Neener, neener... Liz > > Show off! there's a dent in my skull but no reinforcement. > > I've got a dent in my temple *and* I can feel a screw at the top of it! > Neener, neener... Showoff! Mary > Liz > > > Show off! there's a dent in my skull but no reinforcement. > > [quoted text clipped - 6 lines] > > > > Liz Well I've got a box of screws in my garage and I'm going to screw them all into my head just to be better than you all. Ner ner ner ner. > > > > Show off! there's a dent in my skull but no reinforcement. > > > [quoted text clipped - 10 lines] > into my head just to be better than you all. > Ner ner ner ner. HAHAHAHAHAHAHAHAHAHA!!!!!!!!!! Mary >> > > Show off! there's a dent in my skull but no reinforcement. >> > [quoted text clipped - 10 lines] >into my head just to be better than you all. >Ner ner ner ner. I'm sorry, I can't resist it. It may be the only chance in my life to say it without being accused of being rude.... GO SCREW YOURSELF!! :) ooh, I feel better now. SignatureMalcolm > >"Mary Fisher" <mary.fisher@zetnet.co.uk> wrote in message > >> "Liz & Allan MacDonald" <almacdee@bellatlantic.net> wrote in message [quoted text clipped - 8 lines] > >> > Liz >> >Well I've got a box of screws in my garage and I'm going to screw them all > >into my head just to be better than you all. > >Ner ner ner ner. [quoted text clipped - 4 lines] > ooh, I feel better now. > Malcolm G. ** see my earlier post I just put up on 'the dumb thread' You should know better too. I think the original poster (now expired here), was discussing if people had external injuries (as opposed to emotional ones) as a result of their seizures. I expected this thread to morph into a discussion on how someone gets through Airport Security to board airlines without a note from their Doctors, or for Older People, into one of the Monty Python sketches-> "When we were little kids...." G./ > I expected this thread to morph into a discussion on how someone gets > through Airport Security to board airlines without a note from their > Doctors, or for Older People, into one of the Monty Python sketches-> > "When we were little kids...." G./ Here you go: Last time I flew I asked the woman if the handheld scanner would pick up my screw. She scanned my head and said it did. Liz > > I expected this thread to morph into a discussion on how someone gets > > through Airport Security to board airlines without a note from their [quoted text clipped - 5 lines] > my screw. She scanned my head and said it did. > Liz Are you a member of the five mile high club then :-) ? Mary >>Last time I flew I asked the woman if the handheld scanner would pick up >>my screw. She scanned my head and said it did. [quoted text clipped - 3 lines] > > Mary Well, no, not if they were gonna know about it. Liz > >>Last time I flew I asked the woman if the handheld scanner would pick up > >>my screw. She scanned my head and said it did. [quoted text clipped - 5 lines] > > > Well, no, not if they were gonna know about it. There's always a spoilsport about! Mary > Liz > GO SCREW YOURSELF!! > > :) > > ooh, I feel better now. Oh goody! Can I feel you? Sorry, when I had my surgery people would ask how I felt and I'd throw open my arms and invite them to feel me. Not one of them did :-( Mary >Oh goody! > >Can I feel you? >Sorry, when I had my surgery people would ask how I felt and I'd throw open >my arms and invite them to feel me. Not one of them did :-( > >Mary Watch out Mary - with comments like that you'll have the ASE Moderators after you! SignatureMalcolm > X-No-Archive: yes > [quoted text clipped - 9 lines] > Watch out Mary - with comments like that you'll have the ASE Moderators > after you! These days it would be nice to have anyone after me ... Mary > > GO SCREW YOURSELF!! > > [quoted text clipped - 10 lines] > > Mary I have a similar problem. When I ask people to feel my hard, swollen head, they always feel the one on my shoulders :-( Darryl -- To email, change daryl to darryl in address. > Sorry, when I had my surgery people would ask how I felt and I'd throw open > my arms and invite them to feel me. Not one of them did :-( > > Mary You were asking the wrong people. Little kids loved to press the squishy lump in my temple and to feel the screw. Not surprisingly, the parents were totally squicked. Liz > > Sorry, when I had my surgery people would ask how I felt and I'd throw open > > my arms and invite them to feel me. Not one of them did :-( [quoted text clipped - 4 lines] > squishy lump in my temple and to feel the screw. Not surprisingly, the > parents were totally squicked. Kids never asked me how I felt so I couldn't ask them to feel me. They were VERY interested in my wounds when they could see them. The breast cancer one was different from the head one because there were no staples to count, just one long thread which pulled out like a running stitch. Not that they can't see them they're not interested. Funny about parents, innit? Mary > Liz > X-No-Archive: yes > > [quoted text clipped - 23 lines] > -- > Malcolm LOL. You're not the first to say that, though no one has said it in such a nice way. Darryl. -- To email, change daryl to darryl in address. Howdy Liz! I've got dents in BOTH temples where they drilled holes into my skull for my invasive monitoring. SignatureDave ???? "Noli illigitemi carborundum decendus" http://www.howdydave.com > > Show off! there's a dent in my skull but no reinforcement. > > I've got a dent in my temple *and* I can feel a screw at the top of it! > Neener, neener... > > Liz > I've got dents in BOTH temples where they drilled holes into my skull for my > invasive monitoring. Some people will do ANYTHING to get attention! :-) Mary > > > Show off! there's a dent in my skull but no reinforcement. > > > > I've got a dent in my temple *and* I can feel a screw at the top of it! > > Neener, neener... > > > > Liz >Some people will do ANYTHING to get attention! > >:-) > >Mary Will you? :-) SignatureMalcolm > >Some people will do ANYTHING to get attention! > > [quoted text clipped - 3 lines] > > Will you? :-) I'm renowned for it. Mary > > If you could see my brain, I guess you'd see a scar where they > > took out a piece of it - about the size of a golf ball. > > Oh, mine was bigger than that nyer nyer :-) Well, mine would have been bigger, but when they were looking for brain matter to remove, that was all they could find so they took the whole thing. Makes a hollow booming sound when I bump my head now. :-) > > Oh, and a man I used to work with has a scar from one of my seizures. I > was [quoted text clipped - 7 lines] > > Now that really IS funny! OK, not for him . SADIST!!! :-) Darryl. > Nice post, thanks. > > Mary > > > If you could see my brain, I guess you'd see a scar where they > > > took out a piece of it - about the size of a golf ball. [quoted text clipped - 4 lines] > matter to remove, that was all they could find so they took the whole thing. > Makes a hollow booming sound when I bump my head now. :-) My family said that they didn't know the difference between my brain and the lump so they took out the smaller one. The family still avers that the surgeon removed the wrong one ... Mary My seizures have so far only produced black eyes and bruises. The worst damage was to my hand, where the veins were destroyed by a nurse giving me IV Dilantin (against my will) when I ended up in ER after a seizure on the bus. That hurt like hell, and when I complained she remarked that I must have a very low pain threshold. > Howdy! > [quoted text clipped - 18 lines] > > http://www.howdydave.com > My seizures have so far only produced black eyes and bruises. The worst > damage was to > my hand, where the veins were destroyed by a nurse giving me IV Dilantin > (against my will) when I ended up in ER after a seizure on the bus. That > hurt like hell, and when I complained she remarked that I must have a very > low pain threshold. That's awful, professionals should ay such things, it's as though they're blaming you for something you can't help. I KNOW I have a low pain threshold, it should be allowed for. Mary Okayyy, alright, I give. Don't have any battle scars caused by epilepsy, but that's not to say I don't have scars. Have quite a few minor scars on arms and legs (some self-inflicted, but I don't cut anymore). I have a scar on my left middle finger, where I had a boil removed and had two (wow!) stitches after. And then there's the scars from being used as a pin cushion by lab technitians out for blood. My left little toe is crooked, thanks to a botched job taping it up at the ER after I'd dropped a two-kilo handweight on it (that was stupidity, not ep). Otherwise, I look normal (if you count having an eyebrow piercing normal), though I do bruise more easily now. You guys think that could have anything to do with the meds? (I'm on a generic product, which is a copy of Trileptal). - Charlie > Howdy! > [quoted text clipped - 12 lines] > Skin grafs and > 2 burned off fingerprints. Hello Folks...it's been a long time! I may as well add my 'prizes' to the list: 1. A war zone within my mouth. I guess you could call it 'tongue 'n cheek'. 2. A fall worthy of consideration for the movie 'Jackass', resulting in, and I quote: (throat clearing sounds)... 'There is an ununited fracture of the outer end of the left clavicle. The clavicle is tilted superiorly and there is about a 2 cm diastases at the fracture sight. There is an almost complete tear of the left supraspinatus tendon measuring 1.99 x 0.22 x 1.38 cm. The tear is at the insertion. There is fluid buildup in the sub-deltoid sub-acromium bursa. There is marked pitting at the base of the greater tuberosity... (BTW this finding would *really* alarm me if it were in reference to my favourite, and greatest tuberosity) ...and a widening and deformity of the left A.C. joint at the outer end of the clavicle.' That was all from one bad, bad fall. It was going to be my face or my shoulder. I preserved the looks of my face (a blend of Paul Newman and Rin Tin Tin). The bruising was massive though, and the physician who examined me exclaimed 'What happened? Did you fall off your donercycle?'. It all means I have a really broken shoulder, with the cure at my age being worse than the problem. > Hello Folks...it's been a long time! > [quoted text clipped - 29 lines] > It all means I have a really broken shoulder, with the cure at my age being > worse than the problem. Brilliantly expressed post! Thank you. Mary > Howdy! > [quoted text clipped - 12 lines] > Skin grafs and > 2 burned off fingerprints. I was a tongue muncher too; sores and bruises, and needed to take RX troches (like suckable Tums) to fight off yeast infections. I also gnashed my teeth too. I gotten a typed & bound estimate of $11,000 to repair them. Good luck, friend. > I was a tongue muncher too; sores and bruises, and needed to take RX > troches (like suckable Tums) to fight off yeast infections. I also > gnashed my teeth too. I gotten a typed & bound estimate of $11,000 to > repair them. Good luck, friend. Is there no subsidy for conditions like epilepsy? In UK we have free prescriptions for such conditions, I don't know about dental charges though. Anyone? Mary |
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