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Medical Forum / Diseases and Disorders / Epilepsy / April 2004Physiological Changes
Hey there, I was seizure free for 2 yrs. until Sat. Having a hard time dealing with reality since, have a very surreal feeling, as though everything around me is a dream or something. My sleep patterns are messed up, my dietary habits have changed, and I can't find the energy to stick to my workout regiment. My dreams are incredibly vivid, and my days are incredibly bland yet surreal, and they pass much quicker than before. My memories of the past few days are reminiscent of trying to remember a dream, basically only fragments that leave me asking what the f.ck has happened in the last 5 days. As a matter of routine, I eat healthy, excercise regularly, and watch my sleep patterns as I believe they are responsible for my epileptic states. I've had numerous seizures before, but something about this last one feels very different. I was wondering if there is any evidence to support the idea that my last seizure has cause some serious physiological change, perhaps some type of onset checmical depression or something. I'm emotionally sound, however I'm starting to question my sanity. Sincerely, Jesse Richard P.S. It seems my senses are heightened a well. I smell things better, or notice smells more. Hi Jesse - I believe the motive of the seizure is to break down some emotional structure inside of us so that we can learn to approach life in new ways. I would recommend that rather than taking a negative view of your altered state, that you open your heart and mind to new views of your life. I didn't think I specified that this was a negative thing. Quite to the contrary, it's almost exhilerating at times. However if we have nothing to trust but our senses, a constant, until one day when things change a quarter-decade into life, I think it's only rational to be hesitant. Aside from putting a positive spin on things, I'm trying to look at this rationally, not emotionally as I think my emotions are out of whack too. > Hi Jesse - I believe the motive of the seizure is to break down some > emotional structure inside of us so that we can learn to approach life in new > ways. I would recommend that rather than taking a negative view of your > altered state, that you open your heart and mind to new > views of your life. > Hey there, > > I was seizure free for 2 yrs. until Sat. *** What happened Saturday? Did you have a Full 'I'm gone' Seizure? or other event? If you describe what you felt, or others saw, someone around here might recognize some possible sources or be better able to offer ideas. > Having a hard time dealing with reality since, have a very surreal > feeling, as though everything around me is a dream or something. My [quoted text clipped - 4 lines] > reminiscent of trying to remember a dream, basically only fragments that > leave me asking what the f.ck has happened in the last 5 days. Parts of above sound like an Aura? or simple partial seizure. A main site that has descriptions of differences between seizure types (unless you know the first type you had), is under Ep. Foundation of America ( ttp://efa.org ). If one of Howdy Dave's posts is still up he has a link to there plus about 4-6 other sites. The 'surreal' part could also be part of the aura of Complex Partial seizures but without loss of consciousness? Older sites might call it Temporal Lobe Epilepsy, but most newer ones are updated now to first name. Is there *anyone around you, who is witnessing any of these? They might be able to tell you if you're doing anything 'strange' or just having an 'absence period' (if you are), and that could help find more information on if any of the seizure types have started again. You didn't mention if you Currently take any Anti Epilepsy Drugs (AEDs) ? Some of those might also produce temporary auras if they are interrupted or have something conflicting with them. Did you change anything in your routine lately that might also contribute (produce stress etc.)? I had thought we only remember Dreams if we're having a restless sleep and awaken in the middle of one. (We're supposed to have 6-8 'REM sleeps' per night? when the dreams take place. REM was old Rapid Eye Movement some researchers used years ago during studies of Dream States, although not specifically wrt. People with Epilepsy.) > As a matter of routine, I eat healthy, exercise regularly, and watch my > sleep patterns as I believe they are responsible for my epileptic [quoted text clipped - 11 lines] > It seems my senses are heightened a well. I smell things better, or > notice smells more. *** Some of above (under PS) can also be heightened following some of the seizure types. Even a mild (absence or simple partial) seizure can sometimes affect those. Anything specific? like Lemon or Eggs? or just a general heightened sensitivity? Just wondering. G.R. You'll probably have better luck with Ep. Foundation of America, via http://efa.org :-< G. > *** What happened Saturday? Did you have a Full 'I'm gone' Seizure? or > other event? If you describe what you felt, or others saw, someone around > here might recognize some possible sources or be better able to offer ideas. Saturday morning, between 10:00 and 11:00, the same time I've had every seizure in the past, I had a grand-mal, tonic clonic episode, or what have you, lasting about minute or two. I dunno how it works for others, but I had a warning of about a minute or so (loss of concentration, fragmented thoughts), however since it's been 2 years since my last seizure I must have ignored the warning signs. In hindsight I knew what was coming, but for some reason I didn't clue in before it happened. In the past I usually lay down and the feeling passes without a fit taking place. Aside from this sensation I'm having now, I also had a great deal of discomfort after the fact. My entire torso, encompassing pretty much every muscle above my waistline and below my neck, hurt as though I'd worked out in excess the day before. I didn't fall on anything, or physically hurt myself outside of the seizure. Once in my life I chopped wood for about 6 hours straight, and the next day I paid the consequences. Saturday and Sunday I felt the exact same discomfort in my ribs, and back, and everything - like my muscles were worked in excess. > Parts of above sound like an Aura? or simple partial seizure. A main site > that has descriptions of differences between seizure types (unless you know [quoted text clipped - 8 lines] > 'absence period' (if you are), and that could help find more information on > if any of the seizure types have started again. After posting I did some reading. I've only ever suffered from Grand-Mal seizures and the feeling I described has been occuring for the last 4-5 days. I've read about Aura, and now about Simple Partial Seizure. The description of the SPS is bang on, exactly how I feel. Anxious one moment, and ellated the next - definately capable of controllable rage, and almost certainly feel as though my moral standings have changed, though I'm not sure how? However from what I understand an SPS is an epileptic episode, and as such the symptons of such should not be on-going for 4-5 days? To me it seems like the symptoms of an SPS episode are the side-effects of the Tonic Clonic episode I experienced. I feel very limited inhabitions towards anything. > You didn't mention if you Currently take any Anti Epilepsy Drugs (AEDs) > ? Some of those might also produce temporary auras if they are interrupted [quoted text clipped - 5 lines] > researchers used years ago during studies of Dream States, although not > specifically wrt. People with Epilepsy.) I don't take any AED's. They make me feel all f.cked up and I don't suffer from epilepsy enough to warrant making myself feel that way. > *** Some of above (under PS) can also be heightened following some of the > seizure types. Even a mild (absence or simple partial) seizure can > sometimes affect those. Anything specific? like Lemon or Eggs? or just a > general heightened sensitivity? Just wondering. G.R. I noticed the smell predominantly because I have a very weak sense of smell normally. People will complain about a smell somewhere at a certain time, but I never notice. As a non-smoker I've never made the complaint that the smell of smoke, or a smoker, is disgusting because in all honesty I didn't find the smell offensive enough. Yesterday I was in a car with a smoker and I almost heaved because of the smell. I've read that the heightened senses thing applies to offensive smells, but this applies to everything. I can smell perfume, food, paint - everything better. I think its fair to say that my physical ability to smell hasn't changed, rather my attention towards it or perception of it. As far as sight goes, things like lights, the sky, look different or skewed in someway. I havn't notice any difference to touch or sound though. >> *** What happened Saturday? Did you have a Full 'I'm gone' Seizure? or >> other event? If you describe what you felt, or others saw, someone [quoted text clipped - 47 lines] > epileptic episode, and as such the symptons of such should not be > on-going for 4-5 days? Both simple partial seizures and complex partial seizures are real epilepsy and can be documented with EEG tracings just like grand mal seizures. Yes, in my experience a person can have chronic symptoms for days and weeks. Sometimes the symptoms are subtle, but sometimes they are not. I had simple partial seizures and now have complex partial seizures documented by EEG abnormal brain waves. Before medication controlled my seizures, I was having symptoms every single day although I wasn't having seizures every single day (as far as I know). Barb To me it seems like the symptoms of an SPS > episode are the side-effects of the Tonic Clonic episode I experienced. > I feel very limited inhabitions towards anything. [quoted text clipped - 35 lines] > sight goes, things like lights, the sky, look different or skewed in > someway. I havn't notice any difference to touch or sound though. That sounds exactly like how I usually feel for up to a week after a grand mal. I believe that it's just my brain and body recovering from the trauma. The muscle soreness you mentioned in another post are also an effect of the seizure. Take it easy until you feel normal again. Hope you feel better soon! Hilary > Hey there, > [quoted text clipped - 8 lines] > reminiscent of trying to remember a dream, basically only fragments that > leave me asking what the f.ck has happened in the last 5 days. |
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