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Medical Forum / Diseases and Disorders / Epilepsy / April 2004Question On Tonight's Experiences
I just want some opinions on what you all think is going on; I know none of you (but Bob) is a doctor. Earlier, I first started having this off (feeling mentally like I was there and also not there at the same time. hard to explain) feeling and being somewhat spacey. It developed into light-headiness and some dizziness (about twenty minutes ago I came this close to walking into a wall and then almost falling). Now, the dizziness has calmed some, but I have a funny feeling headache and still feeling a bit spacey. My question is, could this be all from the fact I have had some cold symptons this afternoon OR could my Dilantin or Keppra level be falling and this could be signs of seizure activity to come? I would be grateful for any opinions. This has started to scare me. > I just want some opinions on what you all think is going on; I know none > of you (but Bob) is a doctor. [quoted text clipped - 10 lines] > and this could be signs of seizure activity to come? I would be > grateful for any opinions. This has started to scare me. The symptoms you described sound like seizure activity in and of themselves, but that doesn't mean that anything else will follow. Some of it sounds like a Simple Partial Seizure and is somewhat similar to one of the seizure activity types I experience. I can't see any reason for drawing any conclusions about the cold & the Dilantin/Keppra levels. Seizures just seem to happen when they feel like happening and hopefully that was the end of it. I've noted that having light seizure activity sometimes seem to relieve things so that no more follows. Let's hope that was the case. All the best! Bob [...] Sorry to approach you this way, but your email is invalid. I'm in a bit of a quandary, having been recently "dead-ended" in seeking answers to what has been happening to me for the last six months. If you are willing to respond, I will send you the details (yes, I know - but desperation *is* setting in...;-). The address below (not the auto-responder) is valid. Thanks.  SignatureDavid Ruether rpn1@cornell.edu http://www.ferrario.com/ruether > [...] > Sorry to approach you this way, but your email is invalid. I must remain anonymous, but I don't think you're looking for me personally anyhow. > I'm in a bit of a quandary, having been recently "dead-ended" > in seeking answers to what has been happening to me for the > last six months. If you are willing to respond, I will send you > the details Hi David - Do you possibly have me confused with "Doctor" "Bob"? That's someone else! See http://www.rafink.com/ I'm just a fellow epileptic like the rest of the good people here. > (yes, I know - but desperation *is* setting in...;-). I think I know how you feel. :-) > The address below (not the auto-responder) is valid. > Thanks. > -- > David Ruether > rpn1@cornell.edu > http://www.ferrario.com/ruether The collective knowledge & wisdom of this newsgroup is greater than that of any one of us. It's best to post your questions to the entire group for comments, unless you are unhappy with your current doctor(s) and were seeking a private discussion with a doctor. Good luck! Bob [...] > Hi David - Do you possibly have me confused with "Doctor" "Bob"? > That's someone else! See http://www.rafink.com/ > I'm just a fellow epileptic like the rest of the good people here. Thanks for responding. I picked up on what DC said, and I'm desperate enough to grab at "straws", at this point...;-) [...] > The collective knowledge & wisdom of this newsgroup is greater than that of any one of us. > It's best to post your questions to the entire group for comments, unless you are unhappy > with your current doctor(s) and were seeking a private discussion with a doctor. The latter... But, thanks. Briefly, I went to a new GP about six months ago for (among other things) seizure-like events that were getting much worse. I was referred to a local neurologist, and then to another local neurologist, and then to a "big whig" neurologist in a nearby city. His declaration a few days ago, after a brief visit, some basic tests, and looking at my MRIs (and likely little else, though a short EEG was negative, as were two partial EEGs taken during sleep-studies) was, "You have no neurological problems, but you do have emotional problems". While I have not dismissed that possibility, along with several others that have been considered, it doesn't fit very well (for many reasons, too complex to get into here). Unfortunately, I'm now "labeled" as far as my local neurologists and GP are concerned, leaving me in "limbo" in terms of local help. I do have a friend in another state who is a neurologist, and he believe that something neurological is amiss - and he interprets my MRIs in a far different way from everyone else (he specializes in treating children with serious brain damage), and he is a little surprised that short or partial EEGs were considered sufficient. Many things that I experience do not fit "traditional" epilepsy or other neurological ailments well, but something *is* happening, outside of my "imagination". At this point, my options appear to be: waiting out whatever this is (it has generally been getting better, but with some "hefty bumps" along the way), seeing a therapist (for being settled and generally happy with my life and what I've done, with little evidence of depression, and no current life "issues" except this ailment), going out of the area and starting the search again (I will not do this - my tolerance limit for "things medical" has been greatly exceeded at this point), or seeking help with treatment elsewhere (I need to know more before doing this). At this point, I feel medically "left out in the cold" by the local doctors... -- DR > [...] > > Hi David - Do you possibly have me confused with "Doctor" "Bob"? > > That's someone else! See http://www.rafink.com/ > > I'm just a fellow epileptic like the rest of the good people here. > > Thanks for responding. I picked up on what DC said, When she said: "I know none of you (but Bob) is a doctor."? There are a lot of Bob's in this world, but the only "Bob" in this newsgroup that I know of who is a doctor is Dr. Bob Fink http://www.rafink.com/ and he always signs his posts as such. > and > I'm desperate enough to grab at "straws", at this point...;-) and I'm the straw? :-) > [...] > > The collective knowledge & wisdom of this newsgroup is greater than that of any one of us. [quoted text clipped - 11 lines] > as were two partial EEGs taken during sleep-studies) was, "You > have no neurological problems, but you do have emotional problems". Being a professional, I assume that he made that statement only after you had taken a battery of psychological tests and he had analyzed the results? You do know that, all too often, the only evidence for epilepsy is the seizures themselves? > While I have not dismissed that possibility, along with several others > that have been considered, it doesn't fit very well (for many reasons, [quoted text clipped - 20 lines] > -- > DR Either that or a different GP who has a different circle of specialists he refers too. or is there possibly an "epilepsy clinic" in your area? Bob [...] > > and > > I'm desperate enough to grab at "straws", at this point...;-) > and I'm the straw? :-) Yep! ;-) (Sorry, though, to "horn in" on Dawn Compton's thread - I should probably have moved this out to another thread...) [...] > > Briefly, I went to a new GP about six months ago for (among other > > things) seizure-like events that were getting much worse. I was [quoted text clipped - 4 lines] > > as were two partial EEGs taken during sleep-studies) was, "You > > have no neurological problems, but you do have emotional problems". > Being a professional, I assume that he made that statement only after you had taken a battery of > psychological tests and he had analyzed the results? Nope. About five minutes of questions, and about as long on basic tap-the- knee-with-a-hammer/scratch-the-foot/take-the-blood-pressure kind of stuff, then write my name, and copy a spiral he had drawn. Passed, no problem...;-) >You do know that, all too often, the only > evidence for epilepsy is the seizures themselves? Yes. My main neurologist, and the two he referred me to, do not seem to know that, though (they insist that epilepsy will always show on even a short EEG, even between "events"). I have been careful with my descriptions of them to avoid "making them fit" things others have described. In some important ways, though, they do not fit epilepsy well (some "events" have lasted as long as about seven hours, though the average is much shorter - and I have never lost consciousness with any of them). > > While I have not dismissed that possibility, along with several others > > that have been considered, it doesn't fit very well (for many reasons, [quoted text clipped - 20 lines] > > -- > > DR > Either that or a different GP who has a different circle of specialists he refers too. or is > there possibly an "epilepsy clinic" in your area? > Bob I do not really want to start this whole many-month cycle over, and I think I had about the best locally-available people (plus the "big-whig" in a city about two hours away) look at this. For insurance purposes (assuming that my GP would not now do any more referrals for this ['cept for a therapist...;-]), I would be starting at the very beginning again. I'm not up for this, and whatever it is, it *appears* to be slowly going away by itself (it's hard to know that, though, and hard to plan my life for the next many months). The epilepsy center nearest me is where I went, though it was just for an office-visit with someone known by my neurologist - and he was someone who appeared to have great breadth and depth (having experience in neurology, movement-disorders, and psychology - with research, teaching, and practice). I had requested he look at my records (which included some video tapes of some event types, and a general history of the last six months, in addition to the MRIs, EEGs, etc.), and give me his best-judgement of what he thought might be going on. Without apparently looking at much, he did do the second part...;-) Unfortunately, this label now makes it difficult to proceed with trying to figure out what is happening, and it may also make it harder to be taken seriously in the future if I go in with any other hard to define (or diagnose) ailment I may have. This result for the visit was unexpected. Ah, well... Thanks for the response. SignatureDR > (Sorry, though, to "horn in" on Dawn Compton's thread - I > should probably have moved this out to another thread...) This is true, but we're about finished now. I sure hope she is doing ok since we haven't heard from her again. <snip> > For insurance purposes > (assuming that my GP would not now do any more referrals for this > ['cept for a therapist...;-]), Do it! The borderline between neurology & psychiatry crosses many times. > The epilepsy center nearest me > is where I went, though it was just for an office-visit with someone [quoted text clipped - 12 lines] > unexpected. > Ah, well... Try the therapist now (if insurance will cover it) and it will not only establish good faith on your part, but you may easily get kicked back to the neurologist. He won't be able to go into denial over it then. Bob > > (Sorry, though, to "horn in" on Dawn Compton's thread - I > > should probably have moved this out to another thread...) > This is true, but we're about finished now. I sure hope she is doing ok since we haven't heard from > her again. Likewise. Dawn, are you OK? > > For insurance purposes > > (assuming that my GP would not now do any more referrals for this > > ['cept for a therapist...;-]), > Do it! The borderline between neurology & psychiatry crosses many times. Yes, but in the last 20 years or so, neurology has "gobbled up" a LOT of territory that used to belong to psychiatry! ;-) > > The epilepsy center nearest me > > is where I went, though it was just for an office-visit with someone [quoted text clipped - 12 lines] > > unexpected. > > Ah, well... > Try the therapist now (if insurance will cover it) and it will not only establish good faith on your > part, but you may easily get kicked back to the neurologist. He won't be able to go into denial over > it then. > Bob I have little trust now in the medical system (except, possibly, for handling acute ailments that are well-known and researched, or minor things that can be treated quickly and easily) - and I have NO trust that what you suggest above would ever happen. I have decided to seek another reading of the MRIs to see if I can find out who is more likely right, and to just "wait it out" if there really is little of interest in the MRIs. But, thanks anyway... SignatureDavid Ruether rpn1@cornell.edu http://www.ferrario.com/ruether <edited> > > > For insurance purposes > > > (assuming that my GP would not now do any more referrals for this [quoted text clipped - 4 lines] > Yes, but in the last 20 years or so, neurology has "gobbled up" a LOT > of territory that used to belong to psychiatry! ;-) G- Perhaps that's because things that would once get someone 'locked away' or 'burned at the stake', can now be explained by a Trained EEG Technician or MRI reader. A lot of newer research on the brain has revealed new treatments and details that just weren't available even 20 years ago. Similarly, concurrent with that, many new treatments or medications have come out that also weren't as targeted at particular seizure types or syndromes, so something that might have been untreatable in the 1980s, is now withn reach. Or they might have already been added to the 'Data base' about a particular seizure type. If we need to bug some of the Treatment Sources to get referred on or further testing, then that's what we need to do. It's unfortunate, and (I find that) disappointing, that sometimes that still seems to be the case. Don't be afraid to become 'the squeeky wheel' as they used to say. G.R. (question below) > > > The epilepsy center nearest me > > > is where I went, though it was just for an office-visit with someone [quoted text clipped - 5 lines] > > > last six months, in addition to the MRIs, EEGs, etc.), and give me > > > his best-judgement of what he thought might be going on. ***** Without apparently looking at much, he did do the second part...;-) **G. I might have missed something earlier on this thread. What did he give you as 'his best judgment' you referred to as the second part? And did he give you a 'quick and dirty' analysis as you sat there, so he hadn't seen the MRIs etc. that you said he didn't look at? I don't follow if he already had a preconceived idea what he was treating (with respect to your case), or if he was Psychic? If he didn't look at the tests, how did he do a Diagnosis? (Analogy--> a Mechanic leans on the hood of your car and says 'You need a new Transmission -- $600. please.' Do you have him go ahead or at least open the hood, or look at engine test results? Why would we expect less of our Doctors than we would of other Employees? Or did I misunderstand his approach, in my reading the earlier stuff? ) > > > Unfortunately, this label now makes it difficult to proceed with > > > trying to figure out what is happening, and it may also make it harder > > > to be taken seriously in the future if I go in with any other hard to > > > define (or diagnose) ailment I may have. This result for the visit was > > > unexpected. > > > Ah, well... **G* What 'label' did you mean in above? Did he give a diagnosis 'name' for the seizure type or what's causing your condition? Or did he not refer to a particular condition? Does he plan any treatment as a Result -- Medications, followup? Anything? / > > Try the therapist now (if insurance will cover it) and it will not only establish good faith on your > > part, but you may easily get kicked back to the neurologist. He won't be able to go into denial over [quoted text clipped - 12 lines] > rpn1@cornell.edu > http://www.ferrario.com/ruether **G. --> Hopefully if someone else looks at the MRIs they can relate what you experienced (I asked about above) and what the Tests showed. If you have a Family Dr. who gets the Neuro results they might have a report they can read to you or give you a copy to read (often at that stage the Neuro detail is distilled into Readable Form, without an MD degree). That way you can see what is being said about your particular case. *Often a Technician might 'read the MRI' and pass on a report to the Doctor. Hopefully if you were seeing a Trained Neurologist (what I assumed above), THEY would be doing the analysis, based on your History, and other tests you had, as well as the MRI. I also forgot to scan the earlier posts on this thread (but will after I send this), to see if your condition seemed to be getting worse without interpretation or treatment, or was static. Some types of szr. events can be subtle and may not produce new symptoms for a period, or unless some other event aggravated the situation. Others might be better served by having effective treatment at the Initial Analysis Point, so they don't progress to something more severe. /G. > > Yes, but in the last 20 years or so, neurology has "gobbled up" a LOT > > of territory that used to belong to psychiatry! ;-) > G- Perhaps that's because things that would once get someone 'locked away' > or 'burned at the stake', can now be explained by a Trained EEG Technician > or MRI reader. Or declared to have "emotional problems" when this appears unlikely (without elaborating here...) - and that was my point...!;-) (Probably best to pick up this thread at my post of 4/4/04 12:54PM...) > **G. I might have missed something earlier on this thread. What did he > give you as 'his best judgment' you referred to as the second part? And > did he give you a 'quick and dirty' analysis as you sat there, so he hadn't > seen the MRIs etc. that you said he didn't look at? "Emotional problems". I'm now "stuck" with the "it's mental" label (look up "pseudoseizures" on google, for a generally nonsense diagnosis - or, as my neurologist friend calls it, "the last refuge of the diagnostically bankrupt"...;-). For the rest, see the earlier post... > I don't follow if he already had a preconceived idea what he was > treating (with respect to your case), or if he was Psychic? If he didn't > look at the tests, how did he do a Diagnosis? That was my question...;-) I can conceive of NO ONE who is competent in the field who would dare state flatly (particularly with apparently fairly little to go on) to anyone at all, no matter how apparently healthy, "You have no neurological problems..." The field is too broad and complex, with too many as yet undefined areas, to permit this. While it may yet turn out to be true statement for me, it is an absurd thing to say... > > > > Unfortunately, this label now makes it difficult to proceed with > > > > trying to figure out what is happening, and it may also make it harder > > > > to be taken seriously in the future if I go in with any other hard to > > > > define (or diagnose) ailment I may have. This result for the visit was > > > > unexpected. > > I have little trust now in the medical system (except, possibly, for > > handling acute ailments that are well-known and researched, or minor [quoted text clipped - 3 lines] > > more likely right, and to just "wait it out" if there really is little of > > interest in the MRIs. But, thanks anyway... > **G. --> Hopefully if someone else looks at the MRIs they can relate what > you experienced (I asked about above) and what the Tests showed. From my earlier post, "I do have a friend in another state who is a neurologist, and he believes that something neurological is amiss - and he interprets my MRIs in a far different way from everyone else (he specializes in treating children with serious brain damage), and he is a little surprised that short or partial EEGs were considered sufficient" (they did not show abnormalities). >If you have > a Family Dr. who gets the Neuro results they might have a report they can > read to you or give you a copy to read (often at that stage the Neuro detail > is distilled into Readable Form, without an MD degree). That way you can > see what is being said about your particular case. I have not only the reports, but also the MRIs (in digital and film copies). I'm sending out digital copies to a couple of friends who know other people who may read them. They clearly show several abnormal structures - though many people can have these and show no resulting problems. But, as my neurologist friend points out, it may be possible that I "teeter on the edge" as a result of these structural oddities (mostly not mentioned in the MRI reports), and that chemical-imbalances, emotional-stresses, or whatever can cause the episodes of what I experience... > Some types of szr. events can > be subtle and may not produce new symptoms for a period, or unless some > other event aggravated the situation. Others might be better served by > having effective treatment at the Initial Analysis Point, so they don't > progress to something more severe. /G. I did not go into what things I experience, and of the several possible explanations for these, and as of now I think "emotional problems" is relatively low in probability - and "epilepsy" may not be much higher. I did show unusual sensitivity to Topamax, and this *may* be a clue. As for "episodes", they can be numerous through the day, very short to very long, and are always without loss of consciousness. I have totally "normal" periods, and these can also be short or very long (even a couple of days). In general, things have been improving a lot over the last couple of months. I did not intend to give a lot of detail here, but describing what goes on with me may help. During these episodes, I may experience any of the following (or sometimes combinations, up to about a dozen a day): periods with single large jerks (like Tourettes), repeating large jerks (sort of like a GM [rare], or much less), jittering (this can last for MANY hours, and can be slight to fairly intense), fairly sudden loss of muscle strength (this is the most frequent type - and it is often immediately preceeded by a visual image of a fast-closing iris cutting off my vision, though vision remains OK afterward if my eyes remain open a bit - and I am not-dizzy, but with the same feeling one has when dizzy, and much time can pass without being very aware of it), "freezes" (during which I'm often very aware of the sound field around me, and can see everything in front of me, but I feel confused by the image, as if everything is about 3" away, with the other feelings from the "limps" added - and these episodes tend to be short, and though I feel not limp and feel I can move, I don't), periods when I feel like my muscles have lost the "memory" of how to do things (it is hard to find things, and pick them up or do things smoothly, without "trials", to walk "evenly" or stand/sit reliably "straight"), and speech problems (these can be moderate stuttering, through worse stuttering [with difficulty figuring out how to form/speak familiar words], to not being able to speak at all - and with "blurting" nonsense within sentences or when quick responses are called for, to jabbering unintended nonsense [these last were particularly bad on Topamax, on which minor speech problems got very bad {I had none before about six months ago, though}]). I had little depression with any of this except when on Topamax at 50mg for a week, and a few days since, when all this stuff is "getting to me". Yuh, I know, "nuttier than a fruit cake"...;-) Heck, sometimes even I think that - until I'm in my next "event", and it then seems all too real, absurd as it is. Anyway, there it is... -- DR >(Sorry, though, to "horn in" on Dawn >Compton's thread Do not feel bad. You know I won't care. I was just looking for basic advice, but it is okay if you change the topic. Sorry that I didn't specifically mention Dr. Bob. I thought he was the only "Bob" who posted here. Sorry. > <snip> Sorry that I didn't > specifically mention Dr. Bob. I thought he was the only "Bob" who > posted here. Sorry. Well!!!! Is that an insult or a compliment? Just kidding. Welcome back, Dawn, and glad to hear you are Ok. Bob (not a doctor) >Well!!!! Is that an insult or a compliment? Just >kidding. Welcome back, Dawn, and glad to >hear you are Ok. It was not an insult. I just hadn't been paying that much attention to recognize that there was more than one Bob. I am sorry. Thanks. I am glad I am ok too!!!!!!! > >Well!!!! Is that an insult or a compliment? Just > >kidding. Welcome back, Dawn, and glad to > >hear you are Ok. > > It was not an insult. I just hadn't been paying that much attention to > recognize that there was more than one Bob. I am sorry. Don't worry about it. :-) It was actually a compliment that you thought everything that Bob said sounded like a doctor was saying it.<vbg> > Thanks. I am glad I am ok too!!!!!!! I was really really hoping that you hadn't gotten worse! Glad to hear that all's well!! Bob (IANAD) (I am not a doctor) >Don't worry about it. :-) It was actually a >compliment that you thought everything that >Bob said sounded like a doctor was saying >it.<vbg> I still feel bad I didn't realize there was more than one. It just shows I am even spacier than we all thought. >I was really really hoping that you hadn't >gotten worse! Glad to hear that all's well!! I am not sure it is ALL well. I don't see my neurologist until Wednesday. I am hoping he can explain what happened to me Saturday. It was scary and it still freaks me out on a day to day basis. > >Don't worry about it. :-) It was actually a > >compliment that you thought everything that [quoted text clipped - 3 lines] > I still feel bad I didn't realize there was more than one. It just > shows I am even spacier than we all thought. I honestly think that would be drawing too many conclusions. It's more a matter of what someone is keeping track of and what they are thinking about on a daily basis. This newsgroup is a small percentage of your entire daily activities and keeping track of such things wouldn't be a top priority since your schoolwork and medical situation have most of your attention. > >I was really really hoping that you hadn't > >gotten worse! Glad to hear that all's well!! > > I am not sure it is ALL well. As long as you aren't continuing to have those same problems as a week ago and as long as those problems didn't progress into a more serious seizure situation. > I don't see my neurologist until > Wednesday. I am hoping he can explain what happened to me Saturday. It > was scary and it still freaks me out on a day to day basis. I doubt that your neurologist will have any explanation other than that it was some seizure type activity. There are a lot of strange things that happen to us and there's no way the doctors can explain it all. If it continued, then he might have wanted to adjust your meds, but since it sounds like it was a one time sort of thing then you can only wait & see. Bob >I honestly think that would be drawing too >many conclusions. It's more a matter of what [quoted text clipped - 5 lines] >schoolwork and medical situation have most >of your attention. I have been paying a lot of attention to this group also. I usually pick up on things, like people with same names. I still feel bad. I don't like to make excuses for things that I do that should have not beed done. > >I honestly think that would be drawing too > >many conclusions. It's more a matter of what [quoted text clipped - 10 lines] > don't like to make excuses for things that I do that should have not > beed done. But you haven't been making any excuses. You keep saying you feel bad, but it's all over with. Now stop feeling bad about it and that's an order! :-) Cheer up!!!!! :-) Bob >But you haven't been making any excuses. >You keep saying you feel bad, but it's all over >with. Now stop feeling bad about it and that's >an order! :-) Cheer up!!!!! :-) I do not take orders lightly. =:-)- I feel like I am making up excuses since it was my memory that sucks. Hi Dawn, I recently started taking Clobazam (Frisium) along with my tegretol and epilim. My levels of clobazam were too high for a wee while and caused me to be the way you describe. I bounced off several walls and on one occasion I actually ended up losing balance and falling on my face. (Embarassing when you're 38 yrs old and 6 foot 3.) Mentally I just wasn't there and had trouble forming words, remembering the topic of a conversation - and staying awake. This all occured from too much clobazam, but I don't know what effect taking too little meds would have on you. I do know that I'm affected significantly by a change in my temperature (a fever), and I suppose if you have a fever (with your cold symptoms), this may contribute to the way you've been feeling. Cheers Darryl. -- To reply, change daryl to darryl in address. > I just want some opinions on what you all think is going on; I know none > of you (but Bob) is a doctor. [quoted text clipped - 10 lines] > and this could be signs of seizure activity to come? I would be > grateful for any opinions. This has started to scare me. Did you take any over the counter cold medicines for your symptoms? Those can interact badly with some AEDs and lower your seizure threshold. I'm not allowed to take any antihistamines or decongestants. The symptoms you describe sound like what I get when a complex partial is on its way, or after I've had one. > I just want some opinions on what you all think is going on; I know none > of you (but Bob) is a doctor. [quoted text clipped - 10 lines] > and this could be signs of seizure activity to come? I would be > grateful for any opinions. This has started to scare me. I suppose If I had read Your post first, I wouldn't need the Post that just went up Below it !! :-< G. Well that's 2 votes in favour of checking anyway... > Did you take any over the counter cold medicines for your symptoms? Those > can interact badly with some AEDs and lower your seizure threshold. I'm not > allowed to take any antihistamines or decongestants. > The symptoms you describe sound like what I get when a complex partial is on > its way, or after I've had one. >Did you take any over the counter cold >medicines for your symptoms? Yes, I had, but I doubt they were the trigger. I have taken them before with my meds, and there was no reaction. That is why I was looking for other causes. If you're 'by' the Pharmacy you could always ask them if there might be any conflicts possible on the advisories they get with Pills. (I was told, for mine, that some cold medicines might contain alcohol as a carrier, and conflict with my Tegretol (for one), or other pills. My pharmacist asked me to show her any Cold Medicines if I ever needed them, so she could look at them. Strangely I've only had about 3 colds in last 6+ years, vs. average of 4-6 per winter.) Or there might be other things that conflict with the particular pills you use. (Grapefruit conflicts with Tegretol, for one, and can produce effects I didn't relate to some seizures I had at that time. I just assumed the Tegretol had stopped working or something else had gone wrong. Once I stopped all Grapefruit juice, the problems never recurred.) Just an example. G.R. > >Did you take any over the counter cold > >medicines for your symptoms? > > Yes, I had, but I doubt they were the trigger. I have taken them before > with my meds, and there was no reaction. That is why I was looking for > other causes. >If you're 'by' the Pharmacy you could always >ask them if there might be any conflicts >possible on the advisories they get with Pills. I will try to do so next time I go. I still doubt the that was what triggered it. I had a cold a little while back and I took the same cold pills then. There were no problems. I did take Nyquil once with my seizure pills and it just knocked out what the other pills were supposed to do and I had a grand mal. I really think David is right and I am developing Simple Partials. That explains everything better. The description fits. Below is the 'oldest post' I still have on this thread. If you just increased the Frisium recently (last week or 2), or even some of the other Anti EP. Medications, those can temporarily produce a dizzy, drunken feeling as we adjust to them. Too High a dose of some can be the case if this condition persists. But usually the feelings should clear within 3-5? days at a new dose level. (I use both Tegretol CR and Frisium in Morning for Complex Partial szrs., and Frisium alone at night.) I think the Frisium (Clobazam) is similar to Tegretol in that regular dosing schedule should be followed as prescribed. That is don't Skip or Miss doses or Double up on any without talking to the Dr. or Pharmacist. Usually too high a dose can produce a Drunken feeling, then a Withdrawal type effect as levels drop from a Too-High level to where you were supposed to be at. G./ P.S. we had an earlier thread (about a week ago), I don't recall if that was with you or someone else -- *if you're using some types of cold remedies, etc. the Pharmacist should be asked if any 'over the counter' type syrups etc. might conflict with the Prescription Meds. you are using. Some of the cold remedies might contain conflicting materials, or even alcohol in some cases (the latter conflicts with Tegretol, and I think Frisium too). Upset stomach remedies and other treatments can also mess up blood levels of some of the AEDs. G./ > I just want some opinions on what you all think is going on; I know none > of you (but Bob) is a doctor. [quoted text clipped - 10 lines] > and this could be signs of seizure activity to come? I would be > grateful for any opinions. This has started to scare me. Hi Dawn That was back on Saturday evening that you posted about the problems you were having. How have you been doing since? Are you still having problems? Are you better? worse? Please let us hear from you. I'm a little concerned by the silence. Bob > I just want some opinions on what you all think is going on; I know none > of you (but Bob) is a doctor. [quoted text clipped - 10 lines] > and this could be signs of seizure activity to come? I would be > grateful for any opinions. This has started to scare me. > Hi Dawn > [quoted text clipped - 5 lines] > > Bob I'm worried too - Dawn and I have been corresponding outside the group, and she emailed me at 10:15PM with about what she posted on this NG at 10:32PM, to which I responded and then received an email at 11:19PM from Dawn. I responded the next morning when I found it, but I have not heard from her since, which is unusual. There are other possible explanations in addition to the obvious, but I am worried. I have also tried to contact someone else I know she has been writing to see when she last heard from Dawn, but she will not be available until about noon today (all EST). It is unusual for Dawn to "disappear"... SignatureDavid Ruether rpn1@cornell.edu http://www.ferrario.com/ruether David wrote: >I'm worried too - Dawn and I have been >corresponding outside the group, and she [quoted text clipped - 7 lines] >obvious, but I am worried. I have also tried to >contact someone else I know she has been >writing to see when she last heard from Dawn, >but she will not be available until about noon >today (all EST). It is unusual for Dawn to >"disappear"... I AM OK, I AM OK. Sorry all. I did not know that you all cared so much (not meant to sound mean). It makes me laugh that so many people here really do care about me. That is something I haven't seen in awhile. More people here care about me than in my family or friends or school. Sorry, sorry, sorry, sorry, sorry that I disappeared. Would y'all forgive me? The reason it took me so long to get back is because I restarted school on Monday (last week was my spring break). With school, by the time I get home, I am usually way too wiped out and tired to check up on stuff online. If I had knew that you all were worried, I swear I would have gotten back sooner. FYI-Until school is out, I will probably only be posting here on the weekends. > David wrote: > [quoted text clipped - 27 lines] > gotten back sooner. FYI-Until school is out, I will probably only be > posting here on the weekends. Welcome to 'The Matrix' !! :-> O.K. we'll just expect you to check in (curfew) on the weekends... G. / >Welcome to 'The Matrix' !! :-> O.K. we'll just >expect you to check in (curfew) on the >weekends. I will try to check in every weekend. Now, there has been a few weekends (very rare though) that I couldn't. So what is my curfew, Gaross? Pick one (curfew) , that was just a 'tease' (at bottom). You're writing 1-2 others off the group-> so long as you keep some contacts (if you think it would help), they can see that you're O.K. provide an outlet or contact outside of an local stressors you might encounter. There's not a whole lot we can do out here 'in cyberspace', unless you need a Pep Talk or some Psychological Support anyway. Unless your inbound messages auto-delete, you might (sometime) need a spamkiller or ?? sometime later if your address is getting picked up on 'here' (this group). Most of the providers (I think) delete older messages after a period if they're not picked up from newsgroups. Not sure.) Those ~4 posts I did **last night moved my Junk Posts, via my Inbox, from under *10 to 119 <-- a new record for 12 hours. I guess some of the Colleges are on a break over the 'long weekend', although the trapped trash is also coming from 'overseas; -- both Europe and Asia. It is discarded after it's counted, since I don't accept mail from about 15 Providers and Countries. My Spam Filter software discarded all of them (3 Double Netsky.p Worms, 1 single and an Iframe dot exploit Worm). Junk that is addressed TO ME, gets Auto logged by the software, then Deleted. ( The Filters even discarded a Microsoft Letter by mistake!! since it didn't have a recognizable From Address! ) Now I have to write 'Bill' again, and figure out which Filter discarded 'his' Reply to me (I suggested an easier way to confirm the Sender ID of mails, so that Spams and Trash could be trapped, based on fake 'from' addresses that didn't match a sender dns number, and software for New Versions with Dialups would have to conform to a Pre-set (Permanent) DNS number, that the computer user couldn't Alter to create fake 'From Addresses'. Geek stuff .) We'll think of something, it'll probably involve keeping Chocolate and Strawberry stocks under control, by selective Harvesting, or something.... :-< for people who don't get allergies etc. from those. Raspberry chocolate is good too. G. >Welcome to 'The Matrix' !! :-> O.K. we'll just >expect you to check in (curfew) on the >weekends. I will try to check in every weekend. Now, there has been a few weekends (very rare though) that I couldn't. So what is my curfew, Gaross? Gaross wrote: >Pick one (curfew) , that was just a 'tease' (at >bottom). I will try to post at least once a week. Is that good? That is about the most I can promise. >You're writing 1-2 others off the group-> so >long as you keep some contacts (if you think it >would help) I am writing to David and a friend of his, who I don't think is affiliated with this ng. I try to e-mail David at twice a week; at least once anyway. So what is with the rest of your post? The stuff about the spam filters, etc? Does that have to do with me? > Gaross wrote: > >Pick one (curfew) , that was just a 'tease' (at bottom). > > I will try to post at least once a week. Is that good? That is about the most I can promise. > >You're writing 1-2 others off the group-> so long as you keep some contacts (if you think it > >would help) > > I am writing to David and a friend of his, who I don't think is affiliated with this ng. I try to e-mail David at twice a week; at least once anyway. **G* It was probaby his fault! :-< I think he had tried to write you a couple of times and since he hadn't heard back (studying etc.) was concerned, so he posted here. I think that's what started the earlier Thread. / > So what is with the rest of your post? The stuff about the spam > filters, etc? Does that have to do with me? G-- Not really. I had been trying to reduce the number of (my) posts except where there might be information of use to someone new. The figures I listed on the earlier posts were the changes in number of (offgroup) spam junk-mails my filters discarded, *after the exchanges about whether you were o.k. or not, etc. This group (like many others) is being Auto-Harvested by several Robot sites. For a period those spiked at the level I quoted earlier. Part of it could be Colleges that might be 'out' for the Easter Break, but with unsupervised Terminals. A big Spike of Multiple Worm-packs were coming from at least 2 sites in my timezone (Eastern time), and the other 2/3rds were coming from Offshore countries where I discard all their mails. From 1-2 worms, I had a couple of Floods that included 12-15 per signon, several Multiples hoping to get past the Discard Software. They failed Although they get discarded, they come through the spamkiller (bean counter) first and get added to the statistics I quoted. Your use of <>s around your Email address probably foils most of the SpamBots (for now) since they likely don't take off the <>s to see what address is inside. I leave mine 'open' since I used to get the odd mailing from someone asking about Websites or links I had mentioned, without including the addresses involved in a particular posting. Those 1 or 2 logons (of mine) were unusual to go from 8-10 junk range to over 50 each time last Thurs. + Friday. Source sites that are worth the time have the Source Headers on their desks (showing which terminal sent them). The rest were 6-8 countries I discard all of, but they used open relays in U.S., Canada or Europe to launder their mails. I can hardly wait for Windows XP-2 or whatever 'Bill' calls it, where they're going to have certification and auto spam-cleaners built-in (at least that's what they were working on when I was doing surveys for them). End off-topic ramble. G./ >It was probaby his fault! :-< I think he had tried >to write you a couple of times and since he >hadn't heard back (studying etc.) was >concerned, so he posted here. I think that's >what started the earlier Thread. It was my fault really. I should have known to check back sooner after sending him that scary experience and being confused. I forget people still worry about me; not much of that in the "real world". I am still sorry! >Hi Dawn >That was back on Saturday evening that you [quoted text clipped - 4 lines] >concerned by the silence. >Bob I am sorry it took so long to reply to all of you. I am fine now, though I have had several petit mals/absence seizures this week. I am definetly feeling better than I was Saturday. Again, I am sorry for keeping you all in suspense.
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