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Medical Forum / Diseases and Disorders / Epilepsy / July 2004

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Can fish oil make epilepsy worse?

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Ulf - 10 Apr 2004 09:08 GMT
Anyone ever had problems with fish oil making epilepsy worse?

Our son had a first tonic-clonic seizure in January. Nothing else
happened for 9 weeks, until we started to give him Eskimo-3 fish oil.
1 ½ week after starting (1 tsp) he had another seizure. We increased
the dose to 3 tsp, and he had another seizure one week later. He has
had another 4 tonic-clonic seizures during the last 2 weeks. Recently
he also started to have jerks that could be myoclonic seizures.

The reason we tried fish oil was that we read a lot about the benefits
of DHA and EPA to epilepsy patients. I haven't found anything saying
that it could get worse. But now, in retrospect, it really looks like
the fish oil could have played a role here. After one initial seizure
(which was provoked by sleep deprivation and physical exhaustion)
nothing happened until we started the fish oil. And when we increased
the dose it got worse. Until now he has not been on medication, but we
started with a low dose of valproic acid yesterday. He is still on
fish oil too, since it's generally a bad idea to change two things at
the same time (you don't know which one that had effect) but we are
getting increasingly concerned about the fish oil.

-Ulf
gaross - 10 Apr 2004 18:57 GMT
I deleted Sci. med. nutrition Group above,  since I don't post there.
 Leave my thread as *Only on alt.support.ep,   please.
*******************************************

  Make sure the Doctor knows which other substances he's taking (Bottom)
when they're prescribing stuff.   They might have more detail on Medication
scripts, which a Pharmacist might also have, that would list any conflicts
that might be possible but not listed on that standard prescription
instructions.
  There are some things that might seem 'healthy' but that can conflict or
de-activate valid anti seizure medications.

  (Grapefruit Juice will corrupt Tegretol for one, and render it either
ineffective or unstable.   I never related several seizures that I had in
1995, to having drunk that 24-36 hours previous with the Morning Medication
I used.  I found the negative link, between those two, after I went online
in 1998, Long after I had decided to not use Grapefruit Juice blends with my
morning pills.)
  I haven't used Valproic Acid, although there were others around here a
year or two ago who were prescribed that.  Most of the people I think were
in the UK?

   (You could also ask on the uk.people.support.epilepsy group too.   That
group became almost inactive about 6 years ago, since it was being so
heavily 'harvested' by one of the alleged 'Network Coordinators'  that most
people had stopped posting there.    But if it's active you could try a
*separate Posting there.   If it's not active, just leave it.   )

  What 'possessed you' to try something like that? (Below)  -->  Just some
posters on the internet and a Google count of how many posted about that?
Yeah, I guess I have a few biases, especially when it might affect kids for
the rest of their Lives if we mess something up in their treatments.

  Depending on the seizure type -->  I think Tonic Clonic seizures now are
grouped either within Grand Mals or Complex Partials (depending on the side
effects they have while they happen?).

  I had been told at first that mine were T.C. , but later told they were
really Complex Partials. Although a lot of the Google sites list the older
term, most of the newer Internet Information is listed using the Newer
Terms?  (I think).
*******************
   Some of us get an Aura that might be triggered anew or **aggravated by
particular tastes or odours.  (My right Temporal Lobe auras were sour lemon
taste or odours.   If I drink anything now with a Lemon Taste, food that's
been **cooked with lemon, or go near Floor Cleaners that use lemon, I start
getting the swirling, dizzy feeling of an Aura Onset-- start of a potential
seizure, that I haven't had since late 1990s.  )   Is he old enough to tell
you if he gets any strange Tastes or Odours or feelings just ahead of the
type of seizure he is having?
  If he gets a Sour or Eggy taste (different types) the Doctor should know
that already, since each is from a different seizure type.   Similarly there
are other symptoms the Dr. should be monitoring since he's already
prescribing a Medication to try control his type of seizures.

   Unless you have a strong reason to, I'd stay away from mixing Herbal
medicines with Prescription Medicines unless the Doctor is aware that you're
doing that.   In many cases some of the products might be mutually exclusive
of each other.  (No, I didn't try fish oil, btw.  )   But if the Doctor is
bumping pill levels up to try control seizures that might be being
aggravated by other effects or 'home' treatments,  you might inadvertently
work against each other, with your Son caught in the middle.
  Try do what's best for him, if you can..     G./

> Anyone ever had problems with fish oil making epilepsy worse?
>
[quoted text clipped - 17 lines]
> getting increasingly concerned about the fish oil.
> -Ulf
raybakes - 30 Jul 2004 16:51 GMT
Hi you might want to try EPA and DHA supplements that are distilled to
remove impurities like mercury (we pollute the seas with it) and
arachadonic acid, that may make epilepsy worse. I know Jarrow's MaxDHA is
distilled, and ethyl EPA has been found to be of benefit too, especially
when it is distilled from DHA - we can make DHA from EPA and vice versa
(some people have difficulty, though).

Good Luck,

Ray

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