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Medical Forum / Diseases and Disorders / Epilepsy / March 2004Simple Partial TLE & Tegratol Depakote combo
I have Temporal Lobe epilepsy from a TBI in 92. Started with dilantin and have been on several combo's since. I have been on 1800 mgs tegretol combined with 4000 mgs of depakote since 1995. Sometimes I took an extra 200mgs if needed. I get my trough levels taken every month at first, now I get it done every 6 weeks with LFT's and cholesterol as well as sodium. I have a severe sodium defencicy caused by the tegretol so I take supplements of that too. All the blood is normal levels. Well, the tegretol reading was 8 and I know I can go up to 11 or 10. So I gather it's all okay. My biggest complaint is blurry eyes. My eyes get so blurry I feel and probably look like I'm drunk when I'm walking around. Yeah I get fatigued and unstable but I just want to clear my eyes for now. I don't know if I am built a tolerance to the tegretol now, or if it's a side. I have read it can be a side effect but I did not know the extent of the problem. My doctor has me convinced that this combination and drug amount is best for me, and I have seen an neuro-opthamologist who says this problem is idopathic. (I think that it's from the drugs) It's not a problem with my eyes that much I know. The tegretol definatley cured my TBI alot. I have alot less problems on it then I do without it. Does anyone know what to do to combat this side? Or is it a simple siezure? I drink alot of coffee and eat tons of sugar. Is there anything that can stop the blurry eyes that anyone knows of, or does anyone else get it this bad? Emailing me is fine, I don't know if I will find my way back here. Greg > I have Temporal Lobe epilepsy from a TBI in 92. Started with dilantin > and have been on several combo's since. I have been on 1800 mgs [quoted text clipped - 26 lines] > can stop the blurry eyes that anyone knows of, or does anyone else get > it this bad? ***G** See comment no. 3 below wrt this. > Emailing me is fine, I don't know if I will find my way back here. > Greg Hi. You're taking more than *double the Max. dosage I was, of Tegretol, but I also only weigh ~70 Kg (154 lbs). *G*I have *never used Depakote-> only Dilantin (briefly), Tegretol CR, then latter with Frisium (Clobazam) for Complex Partial (Temporal Lobe) Seizures. Don't worry (generally) about sugar or coffee-at least MY type isn't affected by those. A couple of other questions -- 1) Is your Tegretol one of the Timed (Control Release) types - Tegretol CR, Retard, or XR? Those enter the blood more slowly so you can miss doses plus or minus 2-4 hours of the schedule once you're stable, without problems. If you're *not on a Timed Release version, you might ask your Dr. if they'd consider that, since the Blood Levels once you reach your Target remain more stable, and you can drift ahead or behind the 'pill time' as I mentioned above without greatly affecting blood levels of the med. 2) Tegretol should be taken with Juice, Milk or Food (*not Grapefruit-- see earlier posts from ~Sunday).. You want the Tegretol dissolved in your stomach but without messing up acid levels there. I think it's absorbed in the Kidneys, so that's about 6? hours 'downstream' -- that's only based on some pains I had in ~1995/6 when we were increasing doses, which came from that area of my back. (If I'm at home I drink equivalent of ~4x a 6-cup Thermos of Coffee a Day. So, for me at least, it's not the Coffee.) Some people 'here' might have comments about any Teas, if any are a problem. (Some have different levels of acids etc., but I haven't seen comments about *any of them, including herbal types being a problem with AEDs.) The only things I've found that might interfere with Tegretol levels are Upset Stomach remedies (especially the Pink one), Medications containing Alcohol (so show any to the Pharmacist who **fills your prescriptions). Alcohol from a Liquor store will Compromise some of the AEDs, or behave erratically with some of them, like Tegretol. ***CHOCOLATE is Fine. So are Strawberries and whipped Cream... :-< 3) I had *blurred vision*, about twice, as we *Slowly increased a dose but it cleared after 1-2 days. If symptoms last beyond e.g. 3-4 days, you could call the Dr. to see if either frequency or amount should be adjusted. (The Blurred Vision is caused by one of the Pupils (Black part of the eye) being Larger than the other -- check a mirror. So one of your eyes is focussing e.g. 8 feet away and the Other is focussing 12 feet away !! Only then do we realize what the Stereo Vision does to contribute to our Balance !! Be careful on stairways until that clears up. ) You could also talk to the Pharmacist if they're easier to reach than the Dr. With some of the tablets, these can be Temporary side effects as dose rates are altered, and the Pharmacist has the 'Scripts' from the Drug Manufacturers that show if a side effect is a Problem, or just an Irritation that should clear. (As we increased my doses, we did it by alternating one AM with an extra half tablet, next AM original dose (no extra tablet), day 3 with the Half Tablet, day 4 not, etc. to day 7, then Week 2 with a Half tablet **each AM.) Week 3 (if it were being upped at night) on alternate nights, like above did in Mornings, then Week 4 half tablet each day for a week. Bloodwork (for tegretol) was done usually after about 7-10 days at the New Dose rate. I'll be doing a reply to Darryl later, about how I altered Stronger doses of Tegretol, and replaced some with a second med., but most of what's above is likely more specific for your case. G./ From: g30x40@aol.com (Greg) Newsgroups: alt.support.epilepsy Subject: Re: Simple Partial TLE & Tegratol Depakote combo References: <d392eec1.0403220800.10dee84b@posting.google.com> <qiF7c.1037$uz5.484@twister01.bloor.is.net.cable.rogers.com> NNTP-Posting-Host: 205.188.116.23 Message-ID: <d392eec1.0403221907.2ff27a70@posting.google.com> > Hi. You're taking more than *double the Max. dosage I was, of Tegretol, > but I also only weigh ~70 Kg (154 lbs). I weigh between 180-190/ I may have lost weight, not much though. > *G*I have *never used Depakote-> only Dilantin (briefly), Tegretol CR, then > latter with Frisium (Clobazam) for Complex Partial (Temporal Lobe) [quoted text clipped - 4 lines] > > 1) Is your Tegretol one of the Timed (Control Release) Yes, it is the CR. However, I get them from both Canada and the US. I order them online from North Pharmacy in Canada because they are less expensive and sometimes my doctor gives me samples which are not CR, but he gives me boxes of them. I have the 400 and 800 mg both of CR and I think regular and just take whatever I have. That could be what is screwing everything up. Plus the pills from Canada look totally different then the ones from here in NJ. ??????? types - Tegretol CR, > Retard, or XR? Those enter the blood more slowly so you can miss doses > plus or minus 2-4 hours of the schedule once you're stable, without [quoted text clipped - 4 lines] > > 2) Tegretol should be taken with Juice, Milk or Food Okay, I have always taken with water only and usually don't eat until earliest 2PM. Usually get up around 10am. So this might help. I will try at least the milk or juice. I know about the grapefruit. (*not Grapefruit-- see > earlier posts from ~Sunday).. You want the Tegretol dissolved in your > stomach but without messing up acid levels there. [quoted text clipped - 4 lines] > (If I'm at home I drink equivalent of ~4x a 6-cup Thermos of Coffee a > Day. So, for me at least, it's not the Coffee.) Yes, I drink pots of coffee all day long to stay awake, it helps. > Some people 'here' might have comments about any Teas, if any are a > problem. (Some have different levels of acids etc., but I haven't seen [quoted text clipped - 3 lines] > The only things I've found that might interfere with Tegretol levels are > Upset Stomach remedies (especially the Pink one), I take tons of alka selzer plus!!!!! I wonder? Medications containing > Alcohol (so show any to the Pharmacist who **fills your prescriptions). > Alcohol from a Liquor store will Compromise some of the AEDs, or behave > erratically with some of them, like Tegretol. No Booze, read labels aware of this. > ***CHOCOLATE is Fine. So are Strawberries and whipped Cream... :-< > > 3) I had *blurred vision*, about twice, as we *Slowly increased a dose but > it cleared after 1-2 days. this has been going on for years now. it is getting worse and more frequent. > If symptoms last beyond e.g. 3-4 days, you could call the Dr. to see if > either frequency or amount should be adjusted. > (The Blurred Vision is caused by one of the Pupils (Black part of the eye) > being Larger than the other -- check a mirror. So one of your eyes is > focussing e.g. 8 feet away and the Other is focussing 12 feet away !! Good analogy. Only > then do we realize what the Stereo Vision does to contribute to our Balance > !! Be careful on stairways until that clears up. ) [quoted text clipped - 14 lines] > of Tegretol, and replaced some with a second med., but most of what's above > is likely more specific for your case. G./ Thank you. Greg Post above (I'll shorten this one). You could also ask the Pharmacist (Chemist) about if the alka selzer might be diluting or messing up your Tegretol Balance, before it's getting absorbed into your bloodstream. I'd bet that might be causing some of your swings in control and might be easily fixable. Good luck, complete control is 'so excellent' in improving concentration, self image, etc.. On the Pharmacy --> They could tell you if it does and if there's an Alternative you could use that wouldn't conflict. G./ G. --> I put *3 comments below inside *'s (**1, etc.) > From: g30x40@aol.com (Greg) > Newsgroups: alt.support.epilepsy [quoted text clipped - 29 lines] > > remain more stable, and you can drift ahead or behind the 'pill time' as I > > mentioned above without greatly affecting blood levels of the med. **1* G. You might be inadvertently mixing up the Controlled Release versions with Non-time released? Or they're from different Labs, and although they might be same mgs., the carrier in the pills might be different. There was some discussion here **years ago, about another pill that some people were having trouble with (not Tegretol) between Generic vs. Brand Name meds. Also I think it was Dr. Bob from the UK who said he always wrote 'no substitutions' there on his prescriptions to prevent the Pharmacist using a Generic.. / > > 2) Tegretol should be taken with Juice, Milk or Food > > Okay, I have always taken with water only and usually don't eat until > earliest 2PM. Usually get up around 10am. So this might help. I will > try at least the milk or juice. I know about the grapefruit. ** 2. * But like you said, if you were just using water, the Acid in your stomach might be getting messed up as the Tegretol is dissolving, thus need for Antacids etc. you were using. Maybe just using them with Food, Milk or Juice (I like apple or milder ones, half a cup is usually enough, more is better if it's first of the day), you might get a Better acid level balance between the Pills and your Stomach, so the ant-acids aren't needed any longer. G./ > (*not Grapefruit-- see earlier posts from ~Sunday).. You want the Tegretol dissolved in your > > stomach but without messing up acid levels there. > > I think it's absorbed in the Kidneys, so that's about 6? hours [quoted text clipped - 5 lines] > >** I take tons of alka selzer plus!!!!! I wonder? ** 3. ** G. SEE Comment above about Juice etc. / > Medications containing > > Alcohol (so show any to the Pharmacist who **fills your prescriptions). [quoted text clipped - 35 lines] > Thank you. > Greg My pharmacist warned me not to take any type of antacids with AEDs. He also says Tegretol should be taken with food to avoid stomach upset (I guess that way, you hopefully won't need the antacids). Interesting about the blurred vision - I've been getting that but not knowing it was the Tegretol. > Post above (I'll shorten this one). You could also ask the Pharmacist > (Chemist) about if the alka selzer might be diluting or messing up your > Tegretol Balance, before it's getting absorbed into your bloodstream. I'd > bet that might be causing some of your swings in control and might be easily > fixable. Good luck, complete control is 'so excellent' in improving > concentration, self image, etc.. (snip) > > > 2) Tegretol should be taken with Juice, Milk or Food > > [quoted text clipped - 23 lines] > >** I take tons of alka selzer plus!!!!! I wonder? ** 3. ** G. SEE > Comment above about Juice etc. / (snip) > > 3) I had *blurred vision*, about twice, as we *Slowly increased a dose but > > it cleared after 1-2 days. > > this has been going on for years now. it is getting worse and more > frequent. > > > If symptoms last beyond e.g. 3-4 days, you could call the Dr. to see if > > either frequency or amount should be adjusted. > > (The Blurred Vision is caused by one of the Pupils (Black part of the eye) > > being Larger than the other -- check a mirror. So one of your eyes is > > focussing e.g. 8 feet away and the Other is focussing 12 feet away !!) > > Good analogy. > My pharmacist warned me not to take any type of antacids with AEDs. He also > says Tegretol should be taken with food to avoid stomach upset (I guess that [quoted text clipped - 3 lines] > > "gaross" ---> I only had about 2 or 3? episodes of the blurred vision, as we increased doses twice between the Tegretol CR , possibly once with the Frisium and Tegretol being merged, and once without any apparent cause. A couple cleared within about 2 hours and one other lasted for about 4-6 hours? Just long enough to decide maybe I should call the Doctor to check ( *then it cleared !! ). After those episodes, and when I was at the target dose for a while, they've never returned. G./ I've having a wonderful time with Zonegran at 200 mg controlling my simple partials. I've even lost weight. I also take a low dose of Xanax pretty regularly, and I think that might have quite a bit to do with it too. I do have a bit, not a lot, but some minor, annoying things like word-finding, lefts and rights, change counting, remembering where the car is parked, etc. Of course these are all made worse by the presence of my teenager's smirks, but they really are minor glitches, not big things at all. I was originally supposed to increase up to 300 mg and then to 400, but at 300 they stopped being minor glitches and got scary, so we just stayed at 200 mg. So far so good. I haven't had any seizures since I've been on it. Since December 10. For the first time in almost 14 years. Do you have any idea what that feels like? It's almost like...well it's just downright weird. It actually feels weirder now, because I'm almost ready to believe it's all over. It's not going to happen anymore. And then I come here, and you all talk about medication tolerences building up, and I start thinking about what I would do if they started up again. But, they won't. Right? I mean some people take meds and just never have then never, ever again. Right? Right? > I've having a wonderful time with Zonegran at 200 mg controlling my simple > partials. I've even lost weight. I also take a low dose of Xanax pretty [quoted text clipped - 21 lines] > then never, ever again. Right? > Right? 'Each of us is different' someone named Dave used to say. But if you're at a level that's working, it's stable, and you're not getting any (or few anyway) auras, chances are you're right. Last Med. change I had (mentioned elsewhere) was 1996/7, last seizure (not related to Med. levels or that date), was June 1998 (almost 6 years). I had been told in 1993 to expect a 'possible target' of 2-3 per month. G./ > I do have a bit, not a lot, but some minor, annoying things like > word-finding, lefts and rights, change counting, *******remembering where the car > is parked, etc*****. Of course these are all made worse by the presence of my > teenager's smirks, but they really are minor glitches, not big things at > all. [quoted text clipped - 11 lines] > > Right? And some people think they have some kind of control over their epilepsy, cos they havent had any seizures for a while, so they feel they can go out and drive around in half a ton of steel........a car is just a guided missile. But sometimes the guiding mechanism unexpectedly goes wrong, then people get killed. No epileptic has enough control of their epilepsy to be driving a car. I've made that mistake. A man is dead. Seizures have a habit of coming and going as they please, despite our belief that we may have some degree of control. Things change and we can't see the changes taking place until they show up in an unexpected seizure hitting us. If I'm wrong in my assumption that you have epilepsy and drive a car, then please forgive me, but if I'm not wrong then I make no apology. Darryl. -- To reply, change daryl to darryl in address. "It's all fun and games till someone loses an eye" Quote: My Mum I'm sorry about the experience you suffered. Our experiences are different. My neurologist is confident in my ability to drive. My seizures are simple partials, and involve no loss of motor control. I have had "my type" of seizure while driving several times and had not effect at all. I've had seizures in front of a class of children before and it has had no effect. Yes, my seizures could change unexpectedly. I could also unexpected have a stroke, or be distracted for a split second and a horrible tragedy happen. But for now, I'll trust my knowledge of what my seizures are like and my neurologist's expertise and continue to drive. I understand how horrible what happened to you was, but you, unintentionally, can come off very judgemental whenever this issue comes up. Epilepsy covers so much ground and with such a wide range of symptoms. We don't all have the same type of seizures and can't be expected to all abide by a predefined level of disabilty. > I've having a wonderful time with Zonegran at 200 mg controlling my simple > partials. I've even lost weight. I also take a low dose of Xanax pretty [quoted text clipped - 12 lines] > I haven't had any seizures since I've been on it. Since December 10. For the > first time in almost 14 years. That is so incouraging. I'd like to speak to my doctor about this drug. Is your epilepsy a cause from an accident? Mine is Temporal lobe from a traumatic Brain injury. How are the sides on this med? How long does it take to wean off the other stuff. If you know, I'd appreciate it. Thanks, Greg Do you have any idea what that feels like? > It's almost like...well it's just downright weird. It actually feels weirder > now, because I'm almost ready to believe it's all over. It's not going to [quoted text clipped - 6 lines] > > Right? This message thread has an unfortunate title above, possibly. References to some Medications at the very bottom here, I think were referring to his particular Simple Partial type seizures. The zonagran and other stuff are Not? a replacement for Complex Partial seizure medications, like one of the posters seemed to think. The medications that control C.P. and some stronger types should only be altered with the Doctor supervising those. Prompt stopping of some of the types can produce Stronger seizures than the ones that were being controlled, and in some cases a dose level can take 2-3 weeks to reach a therapeutic level that works. Stopping abruptly cannot then be reversed easily by Restarting at the olde Larger dose if you change your mind. So long as you're aware of that. Topic 2- "Simple Partial" seizures are basically an aura or slightly stronger, but usually without loss of consciousness, although awareness of 'where we are' might be in some cases. "Temporal Lobe Epilepsy" (TLE) is now grouped in a cluster of seizure types called Complex Partials on many websites. S.P. can be as simple as a dizzy feeling, or a mild sensation. *Usually when *uncontrolled, a C.P. seizure ends in **loss of consciousness until (or if) they become controlled by medications, and in many cases loss of consciousness whether or **not it was preceded by an Aura (S.P. seizure) at onset. If those move rapidly from S.P. up to the other types, there isn't enough time to say--> "Oh, I'm about to have a stronger szr., I best find an Offramp to get off this highway for somewhere to rest... " The fact that someone with S.P. seizures is able to have control, or even drive, is *no indication someone with Severe Traumatic Brain Injury (?) or Stronger Seizures might be able to achieve that (I marked comment below on older post with ***s about TBI reference). That's something that your ***Doctor should be able to better consult with you about. Often it will depend too on the degree of control you've reached and how long you've been seizure free. Many of the Anti Ep. Meds. can stay at a stable dose level once you've found it, for a Long time (I haven't had a dose change since about 1995). That was for MY type and history, others will vary from quicker control (mine took 3 years), to longer period, to never. And someone else (Doctor) would have to also assess if any Absences are just an 'oh I forgot where I put my keys', OR which ones might be 'lost time' of 3-10 minutes that might not be noticed by the 'patient'. Three minutes is a long time at highway speeds. (Absence seizures would be noticed by someone else, we don't notice them while they happen, IF they happen. That's why I called it 'lost time' above, since that's the only symptom some people might get who live alone, that would hint at an Absence happening.) Those might NOT be there, but if they are, that ALSO can be another annoyance--> both in general and for the Dr. who didn't report that, in some Jurisdictions. It gets stronger than an annoyance if the seizures weren't controlled and 'The Press and TV' find out an accident was caused by 'someone who had been diagosed with Epilepsy, and drove anyway..' It reflects on legislators and 'the rest of us' who are compliant, if they decide any limits now in place (usually 12 months seizure free? ), should be changed to 3 or 4 Years seizure-free, because of public pressure. /G. > > I've having a wonderful time with Zonegran at 200 mg controlling my simple > > partials. I've even lost weight. I also take a low dose of Xanax pretty > > regularly, and I think that might have quite a bit to do with it too. > > > > I do have a bit, not a lot, but some minor, annoying things like > > word-finding, lefts and rights, change counting, remembering where the car ************************************************************** > > is parked, etc. Of course these are all made worse by the presence of my > > teenager's smirks, but they really are minor glitches, not big things at [quoted text clipped - 9 lines] > That is so incouraging. I'd like to speak to my doctor about this > drug. Is your epilepsy a cause from an accident? Mine is Temporal lobe ********************************************************** > from a traumatic Brain injury. How are the sides on this med? How long *************************************************************** > does it take to wean off the other stuff. If you know, I'd appreciate > it. [quoted text clipped - 11 lines] > > then never, ever again. Right? > > Right? All Greg asked for was more information so he could ask his doctor about this medication. He certainly is within his rights to do so. I'm sure his doctor is quite capable of advising him. My doctor/neurologist has "assessed" my condition and continues to do so on a regular basis. The epilepsy I have is being treated by a board-certified neurologist whom I have complete confidence in. I have dealt with these seizures for almost a decade and a half now. I think I'll continue to trust my doctor and my own experiences, rather then the hard and fast rules of this newsgroup, which apply to all of us with epilepsy, and are based upon the experiences and/or fears of one or two. That doesn't seem quite right. Again, I'm sorry that some of you have had bad experiences, and that some of you feel me continuing to drive (with my neurologist's blessing) with bring the wrath of the world down upon us all, but, seriously...consider chilling just a tad. I never proposed prescribing or giving medical advice other than what I had learned along the way. And it wasn't a reflection on whatever your personal Doctor might have said, nor their qualifications. His seizures are Temporal Lobe-based (now called Complex Partials on most sites). That's what he said on an earlier post on this thread, and what Tegretol is usually prescribed for. Your's are Simple Partials? The onset and result of an uncontrolled seizure are different between those. One site that describes the differences in appearance and behaviours during a szr. type is at http://www.epilepsyidaho.org/seizure.htm /G. > All Greg asked for was more information so he could ask his doctor about > this medication. He certainly is within his rights to do so. I'm sure his [quoted text clipped - 14 lines] > the wrath of the world down upon us all, but, seriously...consider chilling > just a tad. I also used to drive with the blessing of my neurologist in whom I had full confidence. (ask them some time just how much they really know about the human brain - the top neurologist in Australia once made the analogy to my wife, by drawing a dot on a piece of paper and placing a pencil case beside it, saying that the pencil case was the brain and the dot was how much they know about it.) "The experiences and/or fears of one or two"? Maybe there are only a few here who have had the experiences to know how irresponsible, selfish and careless it is to continue driving a car when you have no real idea of what the seizure activity in your head will come up with next. Good luck to you and those who use the road (and the pavements) whilst you continue to be in control of a car. Also, I've been dealing with seizures for three decades. So what? Darryl. -- To reply, change daryl to darryl in address. "It's all fun and games till someone loses an eye" Quote: My Mum > All Greg asked for was more information so he could ask his doctor about > this medication. He certainly is within his rights to do so. I'm sure his [quoted text clipped - 14 lines] > the wrath of the world down upon us all, but, seriously...consider chilling > just a tad. So your belief is that no one who has been diagnosed with any type of seizure disorder whatsoever should ever drive at any time, irregardless of what the law or medical profession says? I think the brush you use to paint who should drive and who shouldn't is so wide it just about encompasses anyone who possesses a brain, 'cause who knows what could happen. Anything could go wrong. A seizure disorder can start up at anytime at any level. Should my sons not drive because their mother has seizures? My brother had a horrible motorcycle wreck several years back. Should he not drive, because at some point he might suffer a seizure from the brain injury? My grandmother died from a sudden stroke, should my mother not drive? Anytime someone here uses the word 'car' in any context, you attack. I don't think that's fair. I think what happened to you was terrible, but casting your tragady's shadow on me and everyone else with a seizure disorder isn't helping anyone, not even you. I don't know what the statistics are about people with epilepsy causing accidents. I do know that there are hard and fast rules for when/if you can drive with a seizure disorder, so someone at some point must've compiled some. People with certain types of seizure disorders (controlled) are allowed by law to drive. If there were great lots of us causing crashes, that wouldn't be happening. Several of us on this newsgroup are driving legally, with our doctor's knowledge. Can't you just let this be, without taking every opportunity you can to try to make us feel like potential mass murderers? I agree, most people aren't good drivers especially when it comes to their concern for pedestrians. The number who regard signalling as showing what they are actually doing rather than what they are intending to do is vast. Most of them don't realise that in Britain pedestrians have the right of way unless they are doing something that might cause an accident. A similar proportion drive far too near to the vehicle in front of them because they have no idea of what their reaction time would be if they had to do an emergency stop. I believe there would be far fewer accidents if all drivers had to take tests every five years and they should include thorough knowledge of the Highway Code. Sooner or later there will neither be enough space nor materials for private cars and there is already insufficient air. None should be allowed in town centres (except for people with disabilities). Chris L. > So your belief is that no one who has been diagnosed with any type of > seizure disorder whatsoever should ever drive at any time, irregardless of > what the law or medical profession says? > I think the brush you use to paint who should drive and who shouldn't is so > wide it just about encompasses anyone who possesses a brain, 'cause who > knows what could happen. Anything could go wrong. A seizure disorder can > start up at anytime at any level. > Should my sons not drive because their mother has seizures? My brother had a > horrible motorcycle wreck several years back. Should he not drive, because > at some point he might suffer a seizure from the brain injury? My > grandmother died from a sudden stroke, should my mother not drive? > Anytime someone here uses the word 'car' in any context, you attack. I don't > think that's fair. I think what happened to you was terrible, but casting > your tragady's shadow on me and everyone else with a seizure disorder isn't > helping anyone, not even you. > I don't know what the statistics are about people with epilepsy causing > accidents. I do know that there are hard and fast rules for when/if you can > drive with a seizure disorder, so someone at some point must've compiled > some. People with certain types of seizure disorders (controlled) are > allowed by law to drive. If there were great lots of us causing crashes, > that wouldn't be happening. > Several of us on this newsgroup are driving legally, with our doctor's > knowledge. Can't you just let this be, without taking every opportunity you > can to try to make us feel like potential mass murderers? What happened to me was not nice, you're right. But I'm not seeking, nor desiring "help" for it. Just trying to prevent it happening to others. What happened to the mother who no longer has a son, and the wife who now has no husband, and the four pre-teen children who no longer have a father was devastating. I guess you would like to tell them to "chill out just a tad" too. If I manage to help even one person to come to their senses and stop risking people's lives, then having to put up with attacks from those too selfish to care has all been worthwhile. By your reckoning I suppose it's ok for someone to drive after drinking alcohol as well. -- To reply, change daryl to darryl in address. > So your belief is that no one who has been diagnosed with any type of > seizure disorder whatsoever should ever drive at any time, irregardless of [quoted text clipped - 25 lines] > knowledge. Can't you just let this be, without taking every opportunity you > can to try to make us feel like potential mass murderers? Have you been checked for diabetes? Martin > I have Temporal Lobe epilepsy from a TBI in 92. Started with dilantin > and have been on several combo's since. I have been on 1800 mgs [quoted text clipped - 30 lines] > > Greg > Have you been checked for diabetes? Yes, I am not diabetic. My sugar stays around 4. My girlfriend is and she thought of testing me a few times with her glucometer. Thank You, Greg > Martin > > I have Temporal Lobe epilepsy from a TBI in 92. Started with dilantin [quoted text clipped - 31 lines] > > > > Greg |
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