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Medical Forum / Diseases and Disorders / Epilepsy / March 2004

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EEG report

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maureen - 21 Mar 2004 22:32 GMT
Hi, I'm newly diagnosed, 40 years old and trying to figure this all. This
is what my EEG report says: "Abnormal EEG. Significance III. Continuous
slowing maximal left mid temporal region. This EEg is consistent with a
structural lesion in the left mid temporal region.  There is no evidence
for epileptogenic abnormalities." MRI and CT Scan show no lesions - thank
God. I'm having a terrible time with the meds and am trying to figure out
what the EEg means. Any ideas?
Maureen
gaross - 22 Mar 2004 00:08 GMT
  Hi.  You found the 'right place'.   If you tell us which pills you use,
Someone here will have used it.
 We only have the one Dr. who drops in from the UK,   from time to time
(Dr. Bob).

  Unless someone else wants to do an EEG analysis, your Dr. should probably
do that.  It sounds like you have some electrical activity that's unexpected
(abnormal) on your Left Temporal Lobe (Mine's Right T.L. for example ).
    Do you get any sensations of Jamais Vu? (where you feel disoriented or
your own place might look like a stranger's for example? )  I think one of
the other symptoms for Your's is an Eggy or Acrid taste or odour possibly?
that's not there in reality.   Those are sometimes some symptoms that point
to that part of the brain being where the electrical storms might start (the
seizure focus).    They're a non-invasive way of telling where a szr. might
start from, then the EEGs and other types of tests can be used for more
detail.   The Type of seizure, also can determine which pills might work for
one type, but might not for another.

 (If you get that [jamais vu,etc above], it's called an Aura -- part of a
Simple Partial (minor) seizure, but irritating none the less.   Mine is
Lemony, Deja vu (doesn't help with lotteries), and dizzy feelings as it
ended -- *sometimes, before pills, it went to a larger szr. that led to
unconsciousness.  AS Control was reached by tinkering with dose levels, and
my own experiences with the Dr., we got to full control within about 12-15
months.)
 *Last seizure I had was June 1998.  That only matters, since with the
Internal Damage I have on Right T.Lobe, they suggested I might have to
settle at 2-3 seizures per *month (as of 1993 onset) !! :-o

   I don't know what a 'significance 3' EEG means, that's why I'd expect
your Dr. to tell you that -- then *you can tell us, so we Know next time...
Is that, for example, Less serious than a Significance II one -- and by 10x
or 2x ?? (Dave is into Math, so latter would help him.   I'd be interested
too, if we're getting that detailed. )

  If you look through some of the Ep. News sites (like via Howdy Dave's
site at end of his posts here, or Julie's Idaho website),   if you can't
find anything under Temporal Lobe seizures,  Check also Complex Partial
seizures, and compare any symptoms listed to what you get...  I was told
that Temporal Lobe Seizures was an older term (1930s) that's often now
included within C.P. type seizures.
  *Most times now I find stuff under C.P. (spelled out) seizure types that
apply to me.  Some of the sources still have information under Temporal Lobe
types.   If you want more detail on the latter you can Reply to Me and leave
some of this post intact -- I *Might have some other Websites specific to
TLE -- OR they might be in the bookmarks of my olde computer that I gave to
my son and haven't Extracted the www addresses from it yet. ( !!)   Most of
the stuff you can find of use by doing a Google search on This group or
General Internet using some of those names I listed above.
   You can Also look up your Pills (if you are prescribed any), under
http://efa.org  site, and see what it says each pill type is Prescribed for.
Some are useful for One type of seizure, but useless for another.     HTH,
G.R.

> Hi, I'm newly diagnosed, 40 years old and trying to figure this all. This
> is what my EEG report says: "Abnormal EEG. Significance III. Continuous
[quoted text clipped - 4 lines]
> what the EEg means. Any ideas?
> Maureen
maureen - 22 Mar 2004 01:04 GMT
Thanks for all the information.  I first had seizures when I was pregnant
13 yrs ago. Visual aura following by loss of consciousness, no shaking
limbs. I was on Tegretol for 3 years, no seizures so I was weaned off. All
was fine until Nov. 2003. No aura I just dropped. That seizure was the
worst one. I have no memory of that morning at all until at some pt in the
ER (about 3 1/2 hours). I've had several seizures since that time but none
that lasted as long as that first one. The loss of
consciousness/semiconsciousness is 10-15 mins. Terrible headache
afterwards always. My neuro put me on Keppra 2000mg and I know have no
short term memory and have word finding problems. Which is unfortunate
since I'm a Speech Path! I also have major balance problems. So back to
the neuro, he decreased the Keppra to 1750 mg and added Lamitcal(sp?).
There has been no change in the side effects but I'm not having seizures.
However, I have children who are very upset to see their mother looking
drunk all the time plus I had to take leave from my job. But my neuro said
to come back in 2 months.  Needless to say I'm getting a second opinion.
I'm going to the Epilepsy Center at NYU Hospital tomorrow. I CAN'T wait!
gaross - 22 Mar 2004 04:23 GMT
> Thanks for all the information.  I first had seizures when I was pregnant
> 13 yrs ago. Visual aura following by loss of consciousness, no shaking
[quoted text clipped - 8 lines]
> since I'm a Speech Path! I also have major balance problems. So back to
> the neuro, he decreased the Keppra to 1750 mg and added Lamitcal(sp?).

> There has been no change in the side effects but I'm not having seizures.
> However, I have children who are very upset to see their mother looking
> drunk all the time plus I had to take leave from my job. But my neuro said
> to come back in 2 months.  Needless to say I'm getting a second opinion.
> I'm going to the Epilepsy Center at NYU Hospital tomorrow. I CAN'T wait!

*** Since you're going tomorrow, tell them about the 'drunk feeling'.   I
don't know anything about Neurontin, or whether there's a time released
version, or a way you can take it, e.g. 2 or 3x a day at Lower Dose to keep
the level you want.    With my Tegretol (for one) a Drunk sensation is a
sign the Blood Level is too high.  If that were the case w. your med. too,
by telling your Doctor that they might either alter your dose to drop it a
little and see if you still keep szr. control, OR (like I said elsewhere
earlier) w. my Tegretol we reduced the dose slowly and added a second pill
so that the 2 complement each other and give balance without the side
effects.
  The Temporal Lobes are the short term memory buffers of the brain.  I
expect (but don't know) that the Left one is as important as (my) Right one
in taking new information first, sorting it and moving it 'up' to longer
term storage.  WITH some improvement in Pill balance if you get to a level
of Keppra and Lamictal that gives you balance of control and stable
electrical function, *some of the memory function returns (possibly slowly).
Each of us is different so I hesitate to suggest if it's measured in weeks
or longer (mine was longer).
  *Tell him about the Headaches too.
 (I *hated those -- mine lasted about 4+ weeks, like someone blowing up a
balloon from the Inside!!  It really messed up concentration just from the
pain.   And with Youngsters around, it'll be harder to take some time for
yourself if you need a lie down. (I used a cool cloth and even 10 minutes
was sometimes long enough to reduce the throbbing feeling at the time.)
  Since you had been weaned off the Tegretol before O.K., I wonder why they
decided to use Neurontin this time, rather than try put you Back on the
Tegretol?  I thought after a no. of years, that it could be restarted.

  I think it was inside the http://efa.org  site that I found more detail
on symptoms or effects of Left vs. Right Temporal Lobe injury. I think (like
you said) 'tip of the tongue word thing', comes from Left Temporal Lobe (I
don't have that).  And new learning and short-term memory comes from both
sides. Largest effect I had was reading something and not being able to
recall aloud what I had just read.   It made learning to use a computer,
with a changing screen, a joy !!

   I think Howdy Dave's site lists other websites than just efa.org.
Julie's Idaho site might also.   About 8? months ago I had posted a note
with about 6 sites (their's included) I had found along the way.  That was
from an  'olde computer' and this one doesn't have all the sites except
these main ones I've listed around the group over last week or two.  One was
by a Student (someone might remember it -- something like debra.digbt.... ?
if his site is still up. I think he had put it together since someone in his
Family had seizures and he had assembled the stuff he had searched out, so
others could just wander the site at their own pace.    Pablo or Malcolm
might remember that far back. OR it could be within Howdy or Julie's sites.)
  I'll check my Paper Records Mon. or Tues. and if I find any other sites,
I'll add those too.  Stick around.  Stress can mess up seizure control for
some types too....  I was going to put up a Dartboard for people to unwind
with, but it made an awful mess of the screens !! :-<   G.R.
Mary Fisher - 22 Mar 2004 22:00 GMT
"gaross" <gaross@rogers.com> wrote in message news:ofp7c.131593>

>      Do you get any sensations of Jamais Vu? (where you feel disoriented or
> your own place might look like a stranger's for example? )

OH! I didn't know there was a name for it! Haven't had it for eleven years
though, since my surgery.

You learn something new all the time - thank you.

Mary

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