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Medical Forum / Diseases and Disorders / Epilepsy / March 2004

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Question regarding big seizures...

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Marco - 25 Mar 2004 20:24 GMT
Hello,

Just a small question for you guys.  A couple of weeks ago -actually it
happened on Saturday, February 14, 2004 I got a huge epileptical seizure
(because of stress / alcohol / lack of sleep / etc.). My question is how
long does ones body in general need to recover from this as I am still
feeling a little bit dizzy and I do not know what to think about
this -actually it is killing me because of the uncertainty of the seizures.
I immediately made an appointment with the GP, she sent me to the
neurologist and in the hospital the assistant promised me that I am
scheduled to see a neurologist on April 5, 2004. This of course means that I
am still waiting to have them to answer my questions -I already started
working (computer / IT stuff) and started my social live again but I am not
sure if that is a good decision or not?.

Perhaps someone knows if this dizzy feeling in my head is something normal
that comes after such a huge seizure and that it may take a while before I
have been recovered completely or is this something else? I have to admit
that this feeling may be a result of the minicruise I took on the North Sea.
Maybe my body did not like this boat trip and that this is the only reason I
am still feeling a little bit dizzy? As English is not my native language, I
do not know what it is called but there is an organ in th ears that is
making sure you do not fall when walking or riding a bike, etc., etc. Maybe
that organ suffered the most of the boat trip?

Thank you for responding.

Bye,
Marco
Pablo - 25 Mar 2004 21:08 GMT
g'day marco,
i haven't had a grand mal seizure for quite a few years now but the last one
i did have took me nearly a week to fully recover from. generally it only
took a couple of days to recover. when i was younger i had several seizures
following one after the other, they thought i was going into status
epilepticus so they filled me full of valium, and after this episode it took
me quite a while to bounce back.
i guess it depends on the severity and your own powers of recovery, but
maybe some others here can relate their experiences.
pablo
> Hello,
>
[quoted text clipped - 25 lines]
> Bye,
> Marco
Dawn Compton - 26 Mar 2004 05:06 GMT
I have only been having my grand mals since about Septemeber.  I usually
take up to a few hours to a day to fully recover and longer if I have
more than one in a day.  I know with others, it takes longer.
turbinado - 26 Mar 2004 06:23 GMT
I have taken as long as two weeks to fully recover from a grand mal seizure.
But there are many other times when I feel dizzy and disoriented for no
apparent reason. My doctor is not sure whether this is a type of aura, or
whether I had a seizure without realizing it, or perhaps some other unknown
cause...

> Hello,
>
[quoted text clipped - 25 lines]
> Bye,
> Marco
Marco - 26 Mar 2004 19:53 GMT
> I have taken as long as two weeks to fully recover from a grand mal seizure.
> But there are many other times when I feel dizzy and disoriented for no
> apparent reason. My doctor is not sure whether this is a type of aura, or
> whether I had a seizure without realizing it, or perhaps some other unknown
> cause...

Thank you all for responding (Pablo/Dawn/Turbinado)

That is exactly what I am feeling -it is scarry that it maybe a seizure
without realizing it. It is almost 1.5 months ago that I had the big one.
When I finally get my EEG test, do you know if the neurologist will be able
to define this to something more specific so that I know what is going on in
my head? I always thought that you can see from the outside (eyes whispering
or something else) when one is having a small seizure, but I asked my
parents to monitor me and they did not see anything particular. Maybe I have
become too scared of this huge seizure I had so that I "think" I am feeling
dizzy or whatever that is.
Pablo - 26 Mar 2004 20:25 GMT
g'day marco,
i wouldn't count a lot on the eeg test to give you any definitive answers.
of the several i've had over the years none have shown any abnormality, but
an eeg only monitors your brain waves for the specific period of the eeg. if
you have some sort of epileptic activity during the test then it will show
something of note. it wasn't till i had an mri (magnetic resonance imaging)
that the cause of my condition ( scarring on one of my temporal lobes)
became apparent.
pablo

> > I have taken as long as two weeks to fully recover from a grand mal
> seizure.
[quoted text clipped - 15 lines]
> become too scared of this huge seizure I had so that I "think" I am feeling
> dizzy or whatever that is.
Marco - 27 Mar 2004 08:59 GMT
> g'day marco,
> i wouldn't count a lot on the eeg test to give you any definitive answers.
[quoted text clipped - 5 lines]
> became apparent.
> pablo

Hello Pablo,

Thanks for responding again. Okay, I will set my expectations of the test a
little bit lower so that I will not be disappointed after the EEG -I will
however ask the neurologist a lot of questions then instead. So far so good
but apart from the disorientation and dizzyness I sometimes feel during the
day, nothing big has happened so far which is good. Of course, at least
untill April I do not do much anymore apart from my work which is IT
business.

It is good to hear Pablo that in your case they "finally" found the actual
cause of your condition. It is better knowing it then not knowing it I would
say.

Bye,
Marco
Dawn Compton - 27 Mar 2004 04:24 GMT
EEGs do not always show true results.  On the 1-hr EEGs, I have had one
abnormal, one normal, and I think another abnormal.  I think it depends
on what is going on in your brain while you are having it.  I have went
through a 48-hr one, and it did show strong seizure activity.
Dave ???? - 26 Mar 2004 22:56 GMT
Howdy Marco!

It all depends on what you call a "big seizure."
It also depends on what you call "recover."

I've pulled muscels (think I tore one once) which required up to a month!

I've had my sleep schedule screwed up for a week!

If you mean the post ictal state... everybody is different!

So... if you give us a consise definition of your words I could give an
answer that isn't so vague.

(Analysts can be a pain in the arse, eh?)

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> Hello,
>
[quoted text clipped - 25 lines]
> Bye,
> Marco
Marco - 27 Mar 2004 09:27 GMT
> Howdy Marco!
>
> It all depends on what you call a "big seizure."

What I mean with "big seizure" is what I believe is called a generalized
tonic-clonic seizure (I may of course be wrong about that). First I noticed
that something bad was coming up because I got a really bad feeling
throughout my whole body (maybe my heart went crazy at that time) and my
eyes started blinking which I could not stop anymore; so I was able to warn
my colleagues which was good. Then I do not know what happened anymore but
what I heard later on is that my eyes went away and I got into a shock or
something like that and after that my whole body was shocking as if I was a
mad man. Finally I got into a deep sleep and when I woke up in the hospital
my pants were wet and my tongue was hurt badly :-(

> It also depends on what you call "recover."

When I do not have this disorientated feeling anymore (maybe call it feeling
dizzy). There is absolutely nothing to see from the outside -just as if I am
thinking at something else in a conversation. I do not think that I have an
small epileptic seizure at these times specifically, but I may of course be
wrong about that and that is what scares me the most because if the
specialist cannot say for certain, then I will start my live again which
envolves swimming, playing tennis, going out with my friends, etc., etc.
Though I have my drivers license, I do not have a car -when I need one, I
usually rent a car. I think that is however not a good idea at this time to
rent one but when time passes by I may really have to reconsidering renting
one. Those are the questions I really need answers to.

> I've pulled muscels (think I tore one once) which required up to a month!

Maybe the uncertainty in my case (not spoken to any specialists yet!) and in
your case as well  of course is that is causing us to think that we can have
one within every second of the day!

> I've had my sleep schedule screwed up for a week!

Yes, though I am trying to get a really good sleep, I still sleep badly
which is not good.

> If you mean the post ictal state... everybody is different!

Yes, that makes it difficult to perform a good diagnose.

> So... if you give us a consise definition of your words I could give an
> answer that isn't so vague.
>
> (Analysts can be a pain in the arse, eh?)

Yes Dave, they can indeed be a pain in the arse :-)

Bye,
Marco

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