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Medical Forum / Diseases and Disorders / Epilepsy / March 2004

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How Many Are Diagnosed Epileptic With No EEG Indication?

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David Ruether - 09 Mar 2004 17:59 GMT
I'm curious if none?/some?/many?/most?/all? of those
diagnosed with epilepsy show abnormalities on a
short/long/24-hour/multi-day EEG... Some here have
noted that EEG irregularities do not show up for them,
but I'm trying to get an idea of how common this is.
Thanks.
Signature

David Ruether
rpn1@cornell.edu
http://www.ferrario.com/ruether

TIMMCO - 09 Mar 2004 18:37 GMT
Hi David - I think that is a excellent question.  I have regular seizures
(grand mal) about once a month but my MRI and EEG have never diagnosed anything
out of the ordinary.  My suspicion is that doctors are in the awkward position
of not knowing what to do.  As far as I am concerned, if you have a documented
seizure, that is the fact of life.  There isn't much need in trying to confirm
it by some scientific instrument.  And frankly, if you have a seizure, I see
little value in being able to determine what point in the brain is it's origen.
I hope you continue this pragmatic line of thought David.
                                           Tim
Mary Fisher - 09 Mar 2004 20:58 GMT
> Hi David - I think that is a excellent question.  I have regular seizures
> (grand mal) about once a month but my MRI and EEG have never diagnosed anything
> out of the ordinary.  My suspicion is that doctors are in the awkward position
> of not knowing what to do.

They can't help it, they're not magicians.

Mary
Daz_n_Pat - 09 Mar 2004 21:22 GMT
Well there are some of us here who like to know what is causing the problem
as sometimes it can be helped with oh...... medication, surgery, etc. If the
focal point of ones seizures isn't determined then there is NO possibility
of ever having it treated with surgery. Finding the focus can also rule out
the possibility of surgery and leave one to concentrate on other methods of
treatment. But you know all this already.

You're right in that doctors don't know a lot about the brain and the causes
of epilepsy, though they try their best with what knowledge they have. For
instance, my mother-in-law's neurologist (the best in Australia) drew a dot
on a piece of paper and placed a pencil case next to it. He said that the
pencil case was the brain and the dot was how much they knew about it. They
also had neurologists in New York, Paris and London all saying they don't
know what's going on with her.

Most of us here Tim, don't enjoy having seizures and want to investigate the
causes and possible treatments to minimise them.

Good luck to you.
Darryl.
--
To reply, change daryl to darryl in address.

"It's all fun and games till someone loses an eye"
Quote: My Mum

> Hi David - I think that is a excellent question.  I have regular seizures
> (grand mal) about once a month but my MRI and EEG have never diagnosed anything
[quoted text clipped - 5 lines]
> I hope you continue this pragmatic line of thought David.
>                                             Tim
Cheryl DeVoll - 18 Mar 2004 00:59 GMT
My negative eeg's used to drive me crazy and I thought what are the chances
that I would have a seizure at the appointed time for the eeg?

Cheryl
> Well there are some of us here who like to know what is causing the problem
> as sometimes it can be helped with oh...... medication, surgery, etc. If the
[quoted text clipped - 37 lines]
> > I hope you continue this pragmatic line of thought David.
> >                                             Tim

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Mary Fisher - 09 Mar 2004 18:37 GMT
> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
> short/long/24-hour/multi-day EEG... Some here have
> noted that EEG irregularities do not show up for them,
> but I'm trying to get an idea of how common this is.
> Thanks.

I had no reaction to eegs or to flashing light tests or - well - anything. I
felt like a fraud!

Mary
Charlie S. - 09 Mar 2004 20:46 GMT
I had a total of /one/ EEG and /one/ CT scan seven years ago when I was
first diagnosed. As far as I remember (which isn't much from that long ago),
neither scan showed anything much, since I've never been told the type of
epilepsy I have. But as Tim wrote, I also have grand mals (about 4-5/year),
which is the only indication that I have epilepsy.
On the lighter side of this story; I moved and my new neurologist department
seems much more eager to find out my type than the old one. I have an EEG
scheduled in a few weeks and an MRI in June.

- Charlie

> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
> short/long/24-hour/multi-day EEG... Some here have
> noted that EEG irregularities do not show up for them,
> but I'm trying to get an idea of how common this is.
> Thanks.
turbinado - 09 Mar 2004 21:44 GMT
Apparently my EEG shows abnormalities, although I did not have any seizures
during the test.

> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
> short/long/24-hour/multi-day EEG... Some here have
> noted that EEG irregularities do not show up for them,
> but I'm trying to get an idea of how common this is.
> Thanks.
CyberCafe - 10 Mar 2004 01:44 GMT
> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
[quoted text clipped - 6 lines]
>  rpn1@cornell.edu
>  http://www.ferrario.com/ruether

My EEG was abnormal, MRI was normal.  Wore a portable 24 hour EEG
monitor, which caught the abnormal brain waves (I was having seizures
off and on during the wearing of the portable monitor).  I've had a
couple of other EEGs before the portable monitor reading that were
normal including one conducted under deprived sleep.

Barb
Bob - 10 Mar 2004 04:02 GMT
> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
[quoted text clipped - 6 lines]
>  rpn1@cornell.edu
>  http://www.ferrario.com/ruether

My only EEG irregularities have shown up during an overnight hospital
stay and showed up only during periods of sleep or drowsiness.
Strangely enough, during the day there at the hospital when I had a
button to press, no abnormal EEG activity showed up while I was
actually having my Simple Partial Seizures there.

MRI's & CT-Scans have shown no evidence of tumors or scarring and I
have had only normal EEG's at other times. I've had both Simple &
Complex (with absence) Partial Seizures that are somewhat controlled.

Bob
Pablo - 10 Mar 2004 07:40 GMT
g'day dave,
i've had 5 eeg's none of which showed anything and two mri's whiched showed
scarring on my right temporal lobe, so in a way i suppose i'm lucky because
i have something that i can point to which is the probable cause of my
epilepsy.
pablo

> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
> short/long/24-hour/multi-day EEG... Some here have
> noted that EEG irregularities do not show up for them,
> but I'm trying to get an idea of how common this is.
> Thanks.
Daz_n_Pat - 10 Mar 2004 09:41 GMT
I had a 24 hour EEG during which I went into status (non-stop seizures) for
SEVEN HOURS. You better believe they caught some epileptic activity on that
one.

Darryl.

--
To reply, change daryl to darryl in address.

"It's all fun and games till someone loses an eye"
Quote: My Mum

> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
[quoted text clipped - 6 lines]
>  rpn1@cornell.edu
>  http://www.ferrario.com/ruether
David Ruether - 11 Mar 2004 15:50 GMT
> I'm curious if none?/some?/many?/most?/all? of those
> diagnosed with epilepsy show abnormalities on a
> short/long/24-hour/multi-day EEG... Some here have
> noted that EEG irregularities do not show up for them,
> but I'm trying to get an idea of how common this is.
> Thanks.

Many thanks to all who responded here and in email
(some lenghty - thanks for taking the time to give me
so much information!). All this helps me place myself
"in context" - sometimes hard to do otherwise with
a condition that "doesn't follow the rules"...
Thanks, again!
Signature

David Ruether
rpn1@cornell.edu
http://www.ferrario.com/ruether

Dona - 13 Mar 2004 20:17 GMT
I've had four normal EEGs, but this last one, after the big seizure, was
abnormal.

I've never had an EEG during a cluster. I suspect that if I had it would
have showed something.
Dawn Compton - 14 Mar 2004 19:39 GMT
With me, the first EEG just showed a slight irregularity on the right
side of my brain.  My seizures are supposedly caused because I have a
chemical imbalance on the right side of my brain.  Many, many tests
later showed this diagnosis.  Does that help?  My neurologist never said
on what test he came up with the diagnosis.
 
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