Hey all. How is everyone going?
Im chris, i dont have Epilepsy but rather i have Bipolar. Ive been reading a
lot of information sugesting that bipolar is linked to Epilepsy and vice
versa, i guess this information is controversial but i dont know.
Anyway, my question is, my Mother (who is a nurse) noticed throughout my
childhood and now that i appear to be having petit mal seizures but i have
never seen a neurologist so not sure.
Should i bring this up with my psychatrist? He has been talking about me
having an MRI or some similar scan (cant remember the name of what he
actually said just presume its an MRI). If i did have anything like this
would it come up in the scan?
I'm currently taking 1000mgs of Depakote and everything seems to be going
well so its nothing much of a concern im just rather curious.
Thanks for reading and take care
Chris :)
CyberCafe - 10 Mar 2004 18:29 GMT
> Hey all. How is everyone going?
>
[quoted text clipped - 6 lines]
> never seen a neurologist so not sure.
> Should i bring this up with my psychatrist?
Yes!!
> He has been talking about me
> having an MRI or some similar scan (cant remember the name of what he
> actually said just presume its an MRI). If i did have anything like this
> would it come up in the scan?
Good question. I tried to look up information about what would not show up on
an MRI and found out a few things, but not a lot. The MRI is looking at the
anatomy, the structure of the soft tissue. The MRI can't see everything like
what's going on at the cellular level and it can't see electrical activity and
things like that. My impression is that if there is something caused by
hormones, chemical imbalances, etc., the MRI won't know that unless it produces
some kind of resulting visible change in the brain. If there is a tumor, the
MRI can't tell if it is a malignant or benign (that seems kind of strange to
me). The other interesting thing came from a site that talked about MRI being
used to detect breast cancer and apparently there is a distadvantage to MRI over
conventional mammography because the MRI can't "see" calcium deposits, which are
an indicator of breast cancer, while the mammogram can "see" the calcium
deposits. When a functional MRI is done, it can see what is happening in the
brain during activity. I don't know if they use functional MRI's in epilepsy
diagnosis.
On a personal note, my MRIs have been normal although my EEG was abnormal. The
EEG is used to test for electrical activity in the brain and that test, the EEG,
is very common in diagnosing epilepsy.
> I'm currently taking 1000mgs of Depakote and everything seems to be going
> well so its nothing much of a concern im just rather curious.
I'd be curious too. Heck, it's your body and you have the right to know what is
going on with it.
Barb
> Thanks for reading and take care
>
> Chris :)
alien - 10 Mar 2004 22:24 GMT
Thanks so much for the information, its greatly appreciated.
So if i do see a neurologist should i just go and ask my local doc for the
referal? Or woud the Psychatrist give me that? Maybe it was an EEG he wanted
to give me, i kinda forget it was a while back when he suggested it.
Take care
Chris.
> > Hey all. How is everyone going?
> >
[quoted text clipped - 45 lines]
> >
> > Chris :)
CyberCafe - 11 Mar 2004 16:47 GMT
> Thanks so much for the information, its greatly appreciated.
>
> So if i do see a neurologist should i just go and ask my local doc for the
> referal? Or woud the Psychatrist give me that? Maybe it was an EEG he wanted
> to give me, i kinda forget it was a while back when he suggested it.
Where I live some other doctor has to refer patients to neurology. That might
not be the case in other places. Your local doctor or psychiatrist would be
able to refer you to a neurologist or to an epilepsy center for testing.
Barb
> Take care
>
[quoted text clipped - 67 lines]
> > >
> > > Chris :)
billx - 11 Mar 2004 14:54 GMT
>>If there is a tumor, the
> MRI can't tell if it is a malignant or benign (that seems kind of strange to
> me).
A contrast dye is injected into patients with brain lesions during MRI to
help classify as benign or malignant. Malignant growths tend to be more
vaculature and absorb more of the contrast dye than surrounding tissue
thereby enhancing their structure on an MRI. The term benign is misleading
when classifying brain tumors in that any uncontrolled growth within a
confined area such as the cranium can be life threatening.
Bob - 10 Mar 2004 21:20 GMT
> Hey all. How is everyone going?
>
> Im chris, i dont have Epilepsy but rather i have Bipolar. Ive been reading a
> lot of information sugesting that bipolar is linked to Epilepsy and vice
> versa, i guess this information is controversial but i dont know.
From what I understand also, they have related causes.
> Anyway, my question is, my Mother (who is a nurse) noticed throughout my
> childhood and now that i appear to be having petit mal seizures but i have
> never seen a neurologist so not sure.
You should see a neurologist.
> Should i bring this up with my psychatrist?
I agree with Barb there. Your doctors should always be given full information
and I would also request a referral to a neurologist. A psychiatrist is not the
right kind of doctor to be treating that condition.
> He has been talking about me
> having an MRI or some similar scan (cant remember the name of what he
> actually said just presume its an MRI).
Perhaps it is a CT-Scan that you are thinking of? I would want all of that to be
done under the supervision of a neurologist.
> If i did have anything like this
> would it come up in the scan?
The purpose of those scans, MRI & CT-Scan is to detect any tumors or scarring,
i.e. physical damage to the brain. They won't actually show either seizures nor
the type of seizures.
> I'm currently taking 1000mgs of Depakote and everything seems to be going
> well so its nothing much of a concern im just rather curious.
>
> Thanks for reading and take care
>
> Chris :)
Good luck!
Bob
alien - 10 Mar 2004 22:25 GMT
Thanks so much for the reply to.
I should have asked, if i am having petit mal seizures are they really that
bad? Is it something to be concerned about? Everything i read says only
information concerning children, is it something that one grows out of?
Thanks and take care
Chris :)
> > Hey all. How is everyone going?
> >
[quoted text clipped - 40 lines]
>
> Bob
Bob - 11 Mar 2004 01:20 GMT
> Thanks so much for the reply to.
>
> I should have asked, if i am having petit mal seizures are they really that
> bad? Is it something to be concerned about? Everything i read says only
> information concerning children, is it something that one grows out of?
That's the sort of thing that you need to talk to a doctor (neurologist) about.
The only way you get to see one is if your psychiatrist or another doctor makes
a referral. You will then get all the diagnostic tests including EEG, MRI,
CT-Scan that are necessary.
Your psychiatrist is a lot better than the ones that I used to go to and I'm a
bit touchy about the topic. I went for years without being diagnosed with the
epilepsy that I have and wasn't medicated properly. Yours seems to have a better
idea about what's going on.
Good luck
Bob
> Thanks and take care
>
[quoted text clipped - 52 lines]
> >
> > Bob
CyberCafe - 11 Mar 2004 18:02 GMT
> Thanks so much for the reply to.
>
> I should have asked, if i am having petit mal seizures are they really that
> bad? Is it something to be concerned about? Everything i read says only
> information concerning children, is it something that one grows out of?
Here is a link plus some text pulled from that web page that might answer some
of your questions.
http://www.emedicine.com/NEURO/topic641.htm
"Prognosis and evolution
Prognostic parameters need to include both the seizure and the psychosocial
prognosis. The reported percentage of patients who become seizure free varies
widely, ranging from 33-79.3%. The longer the follow-up, the smaller the
percentage of patients whose seizures are controlled, as many of them develop
GTC seizures later in the course of the epilepsy. Absence seizures persist in
about 6% of cases (although less frequent). GTC seizures develop in about 40%.
They are infrequent, easily controlled, and generally occur 5-10 years after the
onset of absences. Juvenile myoclonic epilepsy (JME) is reported to occur in 44%
of patients who failed to have remission of their seizures. Problems with
cognition, social adaptation, or behavior are not uncommon. Such difficulties
may occur in one third of patients."
That page also has a short list of other medical conditions that can mimic the
symptoms of petite mal seizures.
Barb
> Thanks and take care
>
[quoted text clipped - 52 lines]
> >
> > Bob
M - 13 Mar 2004 18:32 GMT
CyberCafe <pkbk@badger.tds.net> wrote
"
>Prognostic parameters need to include both the seizure and the psychosocial
>prognosis.
...
> Problems with
>cognition, social adaptation, or behavior are not uncommon. Such difficulties
>may occur in one third of patients."
Thanks Barb - I just wish more people in both the medical profession and
on epilepsy newsgroups would realise this!

Signature
Malcolm
Bob - 13 Mar 2004 19:21 GMT
> X-No-Archive: yes
> CyberCafe <pkbk@badger.tds.net> wrote
[quoted text clipped - 10 lines]
>
> Malcolm
Let's also not forget that in the case at hand that the seizures are still
continuing per: "Anyway, my question is, my Mother (who is a nurse) noticed
throughout my childhood AND NOW [emphasis added] that i appear to be having petit
mal seizures but i have never seen a neurologist so not sure."
Bob
CyberCafe - 13 Mar 2004 21:32 GMT
> > X-No-Archive: yes
> > CyberCafe <pkbk@badger.tds.net> wrote
[quoted text clipped - 17 lines]
>
> Bob
Bob, I agree. The girl didn't give her age but I'm assuming she must be at least an
older teen. If that is the case and she hasn't grown out of the seizures, if they are
seizures or not, she needs to be evaluated for sure. As far as I am concerned, and I
don't care if her mother is a nurse, that failure to seek professional medical advice
was child neglect. I don't know, maybe there is more to her story that we don't know
about, but I'm just basing my opinion on what she said thus far.
Barb, who is cranky today.
Bob - 13 Mar 2004 22:28 GMT
> > > X-No-Archive: yes
> > > CyberCafe <pkbk@badger.tds.net> wrote
[quoted text clipped - 26 lines]
>
> Barb, who is cranky today.
They could easily be making the same mistake that I made for so many years and may think
that a psychiatrist gives the appropriate professional medical advice?
The problem is that, if you go to a psychiatrist, you will get a psychiatric diagnosis!
like bipolar etc! If the only tool you have is a hammer, then every problem looks like a
nail.
Bob
Julie - 15 Mar 2004 20:25 GMT
<snip>
> As far as I am concerned, and I
> don't care if her mother is a nurse, that failure to seek professional medical advice
> was child neglect. I don't know, maybe there is more to her story that we don't know
> about, but I'm just basing my opinion on what she said thus far.
<snip>
I know you are talking about someone else here, but thought I would give my 2 cents worth
since I was a teen when I started having seizures which went undiagnosed.
When I think back on my childhood I do kind of feel like I was neglected. My mother did
take me to the family doctor and I even had a seizure in a hospital and burned my hand
because I fell on the floor and my hand was under the radiator. I still wasn't given any
tests for epilepsy. There was no diagnosis until I was 18 and living in a different state
away from my parents. But this was about 35 years ago and in a tiny town in Alaska. I
always blamed the doctor for not sending me to Anchorage to be checked out. It could be
that he told my mother to take me there and she didn't think it was necessary. I really
don't know. I do know that I wish I would have gotten medical attention sooner.
Take care,
Julie
Bill Wolcott - 21 Mar 2004 19:15 GMT
Since I just joined the group, I'm not sure if there are other parents
checking in or not so I'll give my parental saga: My daughter began having
unexplained black outs in the 8th grade, to which I was very concerned but
the pediatrician seemed to blow off until she had a seizure at school and
they had to call me at work. We then proceeded to go to an "expert" at
Children's Hospital, who focused on my daughters migraines. After seeing
her for 7 months, she proposed that this was all in my daughters head!! 2
more doctors and we finally got referred to Cleveland Clinic, where they
have told us the why (scar tissue on the brain from ?????) So you see, not
a whole lot has changed and as far as the nurse not taking the child in - if
this was the first for her to see then she may have been hopeful that this
was a one time deal!
> <snip>
>
[quoted text clipped - 19 lines]
> Take care,
> Julie
Chris Lesurf - 22 Mar 2004 06:48 GMT
I theory it should be a good idea to see a consultant in an area as near
to one's problems as possible. However, I had been seeing neurologists for
years, began to have psychiatric problems with my menopause, read a web
page recommended in this newsgroup which referred to symptoms similar to
schizophrenia due to taking too much medicine for epilepsy.
I was suffering from depression to sufficient depth to feel
suicidal and was referred to a consultant psychiatrist. He was too afraid
to risk increasing the number of fits I have to prescribe anti-
depressants. This went on for years until I saw a new neurologist and I
asked her to talk to the psychiatrist. They still offered no help until I
had attempted suicide 3 times.
Then the psychiatrist prescribed citolapram which made me relax
quite a bit. I had been going up and down for weeks at a time. I was very
disturbed before Christmas 2002 and was taken into hospital for a few
days. At the beginning of 2003, I was well enough to leading an active
life but began to get more and more anxious until the end of May.
I was frightened to let my husband go out in case I injured
myself. He called a doctor who came in and without asking any questions
said @you've had another tiff; there's nothing we can do about your
anxiety, depression or eilepsy so, if you want to commit suicide, go ahead
and do it. I was desperate for help and shook him, so he said he could
accuse me of assault but he wouldn't bother and left.
I went up to bed and took an overdose of anti-convulsant drugs. A
few weeks later my husband said he would retire if I promised to try and
get better. I didn't feel I could do all that was necessary to please him
so I tried to commit suicide again. This was very serious by being in the
garage, taking drugs and alcohol, with tape over my mouth and nose and
skewers to electrocute myself. I didn't succeed because the drugs and
alcohol made me keep falling down so when my husband came home, read my
note and called the police, they found me needing 2 stitches in my scalp.
We then asked the psychiatrist to prescribe for bipolar disorder,
read a lot about it and asked for carbamazepine which is also an
anti-convulsant. When I saw the neurologist in September and told her
about the GP having said 'go ahead and commit suicide' she couldn't hide
her amusement and I took another overdose later that week.
The next few days in a psychiatrist ward was horrible because
another patient was being allowed to wander round and move our possessions
round the ward. No help is offered and there is little chance to do
anything but worry and that will not reduce the amount of work needed to
be done at home.
The psychiatrist referred me to an Occupational Therapist who was
more help than any of the doctors and helped me relax and act positively
until Christmas last year. Since then I sank until I had a bad fit a
couple of weeks ago.
When I see the psychaitrist this afternoon, I shall ask again for him to
suggest to the neurologist that my anti-convulsant dose is reduced. I am
still waiting for an appointment with a different neurologist than the one
who showed no sympathy.
I'll let you know if I manage to get any real help.
Chris L.
> Hey all. How is everyone going?
> Im chris, i dont have Epilepsy but rather i have Bipolar. Ive been reading a
> lot of information sugesting that bipolar is linked to Epilepsy and vice
> versa, i guess this information is controversial but i dont know.
> Anyway, my question is, my Mother (who is a nurse) noticed throughout my
> childhood and now that i appear to be having petit mal seizures but i have
[quoted text clipped - 5 lines]
> I'm currently taking 1000mgs of Depakote and everything seems to be going
> well so its nothing much of a concern im just rather curious.
> Thanks for reading and take care
> Chris :)