Hi all!
Our 16 mos old has been having tonic seizrues for about 8 months now. At
first she was having about 3,000 per day and is now down to 3-4 per day.
She has also had about 4 myoclonic sezures and has been hospitalized 4
times, due to her age and 1 of her seizures lasting 50 minutes. She is
currently on valproic acid and as of Saturday clonazepam. All tests (MRI,
SPECT, blood etc) are "normal") and there does not seem to any known cause.
I have a few questions to start with:
1. Anyone out ther with similar experiences? We are hoping these will
resolve with age but no one seeems to know.
2. We were told that with clonazepam our choice is control with
hyperactivity or we go back to a few hundred seizures per day without it.
thx
Carl ;-)
Rachel - 17 Feb 2004 00:07 GMT
My son's seizures started at 8 mo old and all his tests were originally read
as normal, but his seizures were different than what you describe. Since he
developed seizures so young, the doctor said it was unlikely that he would
outgrow it. It turned out that the MRI was not read correctly and there an
abnormality and he had surgery almost a year ago to correct it. It only the
radiologist read the MRI, I would get a second opinion!
From my personal experience with my son having more than a hundred seizures
a day, I would opt for the hyperactivity.
> Hi all!
>
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>
> Carl ;-)