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Medical Forum / Diseases and Disorders / Epilepsy / March 2004

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Do you feel your crisis?

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jr - 19 Feb 2004 11:32 GMT
Currently, I take 1500 Mg of Keppra and 100 Mg of Epitomax twice per
day. This treatment decreases my crises but does not go completely: I
make still sometimes some crises. My principal problems is that I do
not feel absolutely my crises: neither front, nor afterwards! I do not
feel "discontinuity" in what I do: I do not have a "mirror" to analyze
the situation. According to my friends and my family, that arrives
especially in banal situations (not when I work, nor when I distract
myself). The only day when I realized of a crisis is (unfortunately),
at the time of a car accident, with a fracture of the back.
I would like to know if it is the same for you:
- do you feel your crises?
- how?
- if not how do you live this situation?
Thank you.
JR
Daz_n_Pat - 19 Feb 2004 11:39 GMT
Hi JR,
I'm not sure what it is you are asking. Do you mean to ask if we know what
it is that caused our seizures to start in the first instance? or what it is
that triggers each seizure? or do we feel them while we are having them?
Could you please clarify this for me.

Thanks
Darryl

--
To reply, change daryl to darryl in address

> Currently, I take 1500 Mg of Keppra and 100 Mg of Epitomax twice per
> day. This treatment decreases my crises but does not go completely: I
[quoted text clipped - 11 lines]
> Thank you.
> JR
jr - 19 Feb 2004 20:58 GMT
What I mean is: After having had an epileptic crisis, are you aware
from what occurred just before? i.e that you have had a crisis!!!
(Personnaly, I do not realize anything, and that's a big problem!)
CyberCafe - 20 Feb 2004 05:52 GMT
> What I mean is: After having had an epileptic crisis, are you aware
> from what occurred just before? i.e that you have had a crisis!!!
> (Personnaly, I do not realize anything, and that's a big problem!)

I have complex partial seizures, so I can feel everything, and I can
remember all the sensations.  But I might not remember events
surrounding the seizure. To me, that is weird.  I mean, how can you
remember the seizure but not stuff that you were doing around that time.

Barb
jr - 21 Feb 2004 18:19 GMT
I understand what you mean. I think I had the same type of seizures as
you ten years ago: I felt strange sensations. But today, it seems to
be an other type of seizures: I never feel the "dicontinuity" between
before and after, and that is the problem. I know that I had a seizure
only when my parents or my friends say it to me.
JR
turbinado - 23 Feb 2004 03:05 GMT
After an absence seizure, I feel the missing time, i.e. as if I had just
woken up. With complex partials I am "partially" aware of what's happening
(at least for some of the time - they last up to 20 minutes), so when I come
out of it I can remember it happening. With a grand mal, there's no
mistaking it since I am on the floor groaning in pain, feeling like I've
just been hit by a truck.

> I understand what you mean. I think I had the same type of seizures as
> you ten years ago: I felt strange sensations. But today, it seems to
> be an other type of seizures: I never feel the "dicontinuity" between
> before and after, and that is the problem. I know that I had a seizure
> only when my parents or my friends say it to me.
> JR
Chris Lesurf - 05 Mar 2004 21:18 GMT
I feel I'm about to have a fit. I used to describe the feeling as being
like extreme nerves before an exam but it definitely indicates something
epileptic. It either just fades away and I describe it as an aura or it
develops into an actual complex partial fit and I have no memory of what I
do just afterwards. According to my husband these 'automatic patches' may
last for 5-20mins. They used to end up with my finding myself on the way
home, or if already there, then in bed.

The last time was yesterday evening when I hadn't started eating my dinner.
I felt it coming on, told my husband and the next thing I knew was that I
was sitting in another room. Apparently I had been screaming for about a
minutes, saying I was terrified, and staggering about before saying I
didn't want any more to eat and insisted that what was left of both our
meals was thrown away in the way I decided. I apparently also said I
should take the pills I usually take after dinner but included one which
should only be taken on a full stomach. Later, when I asked why he hadn't
stopped me taking it, he pointed out that it was not surprising he'd
forgotten after having spent some time trying to control me when I was not
willing to listen to any other suggestions he'd made.

The social effects of having epilepsy can affect one's life a great deal
but I'm still glad I don't have to look after anyone else having fits like
mine.

One good thing about them is that they do sometimes seem to release a lot
of tension and make me feel a bit more relaxed the next day.

Chris L.

In article <3aecde79.0402211019.590007b7@posting.google.com>,
> I understand what you mean. I think I had the same type of seizures as
> you ten years ago: I felt strange sensations. But today, it seems to
> be an other type of seizures: I never feel the "dicontinuity" between
> before and after, and that is the problem. I know that I had a seizure
> only when my parents or my friends say it to me.
> JR
 
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