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Medical Forum / Diseases and Disorders / Epilepsy / February 2004

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AVM

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Dick - 26 Feb 2004 21:49 GMT
Been a while since I have been here. Have an AVM have known about it for
about 18 years and have had two siezures both when I wasn't taking medicine.
I take 400 mill of dilantin a day acutually one night 200 and the next night
300 and 100 in the mornings. Been very lucky. I still have wierd feelings
every once in a while. Sometimes every day and sometimes I will go for a few
weeks without the feeling coming on. The feelings are so hard to explain. I
can feel something coming on and I just have to deal with it
CyberCafe - 27 Feb 2004 18:05 GMT
> Been a while since I have been here. Have an AVM have known about it for
> about 18 years and have had two siezures both when I wasn't taking medicine.
[quoted text clipped - 3 lines]
> weeks without the feeling coming on. The feelings are so hard to explain. I
> can feel something coming on and I just have to deal with it

Does your doctor know about those feelings.  What does your blood level show.  I
mean, if your Dilantin is on the low side of therapeutic, they might have to
boost it.  Have you noticed any association with certain activities that bring
on those feelings.  I mean, even something that happened a couple of days
prior.  You know, things like lack of sleep, drinking alcohol, maybe exposure to
something related to photosensitivity, and even your health.

I take Dilantin and generally have excellent control.  The times I have not had
control have always been during times of some kind of health problem that causes
a prolonged temperature (even a very low elevation in temperature).  My most
unusual health-related problem that caused breakthrough symptoms was an abscess
under a tooth, which I didn't feel at all (no pain at all although I ran a low
temperature).  The day they did the surgery was the day my symptoms went away
(after four straight months of minor breakthrough symptoms).  I have been told
by the doctor that I can boost my dose by 100 mg if I have health problems that
are causing problems.

Barb
Dick - 28 Feb 2004 16:52 GMT
> > Been a while since I have been here. Have an AVM have known about it for
> > about 18 years and have had two siezures both when I wasn't taking medicine.
[quoted text clipped - 23 lines]
> Barb
> Hi Barb, thanks for the reply. It could be a lack of sleep at times. and
my doctor adjusted my meds a few months ago.

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