Almost 3 months ago I posted on the list about my 5 year olds 5 minute
seizure at school. He had pushed back on his chair, hit the ground and
was out, eyes rolled back, hands and arms clinched as he lay there for
almost 5 minutes.
A few night ago, my wife was bathing him, he made a weird move with
his arms and made a face, she called to him and he did not respond on
the first two calls, then suddenly, a smile from him. We were not sure
what to make of it.
A few hours ago, his grandmother called crying saying that something
happened to the boy. Also while bathing him, his mouth clinched he
would not respond, he just stood there as if nobody was home. She
dried him up and he mumbled a few senseless things, then complained of
headaches and went right to sleep. The episode - if even that lasted
no more than 30 seconds.
After the first episode we did all the neccessary lab/blood and
specialist work.
They found nothing - which of course is what we were hoping for. We
are now calling the specialist.
Not sure if related, but a number of times this year the boy has come
home from school completely wet after urinating his pants. He's been
potty trained for years now, but sometimes we have to ask him to go to
the bathroom already - especially when he's busy working on projects
or really entertained. Possible seisure related? Anybody with similar
story? comments? info? suggestions? ..
Thanks.
I can be reached privately at jc(atsign)cyberpine.com
gaross - 05 Feb 2004 00:33 GMT
> Almost 3 months ago I posted on the list about my 5 year olds 5 minute
> seizure at school. He had pushed back on his chair, hit the ground and
[quoted text clipped - 14 lines]
> Thanks.
> **** Loss of bladder in control is common in most of the seizure types.
What your wife witnessed
might have also been a milder seizure (not a loss of consciousness, but at
least a loss of awareness). His Doctor should be told about those. I was
going to wonder at first if there might be something (odours, solvents) in
the school area that might complicate his seizure onset, but since he's
having them in other places and in the bath, there may be more than one type
of trigger, or his type might not have a trigger.
In the meantime TOO, he shouldn't swim or bathe on his own. If we have
a szr. in water, if it's deep enough, we can drop below the surface and
Inhale the water, more dangerous than even just losing awareness
temporarily.
Wish I could be more helpful, but the Dr. should do some more tests and
possible start *some type of medication (I don't know what that would be for
a child, but if he's in traffic etc. after school or on way there, it's
better if he's controlled than not (medication-wise).
Keep us posted. (If you can find one of Julie's posts from a while
ago, she puts the Idaho Website at end of them. If not, write to me and I'll
look up a 'form letter' I composed last year that lists about 5
websites --efa.org, howdy dave's, Julie's main site and the First aid for
seizures charts (on land and water now) has an **Excellent description of
the outward symptoms and inward feelings (auras) of each of the main types
of seizures.)
Julie or Dave might **also know if there's a Parent's Support Group (in
addition to This one), where you can exchange information with other adults
too.
If you can't find one of Julie's posts or with google, write me. Try
Google on Idaho and Epilepsy Support or I can look up the correct address
for you.
Howdy Dave has frequent posts on the group, and from **his site you can
get to Ep. Foundation of America main site, and others he's found in his
travels. He may have a link to Julie's Idaho Website as well. Both those
should be on Bookmarks on your system. If anything is prescribed the efa
dot org site has a Med. Glossary that's worth marking too, in addition to
what the Pharmacist should give you anywary. G.R.
> I can be reached privately at jc(atsign)cyberpine.com
Pablo - 05 Feb 2004 07:01 GMT
> Almost 3 months ago I posted on the list about my 5 year olds 5 minute
> seizure at school. He had pushed back on his chair, hit the ground and
[quoted text clipped - 26 lines]
>
> Thanks.
G'day jason
loss of bladder control is not uncommon for someone having a seizure.
unfortunately i nearly always lose bladder control no matter how slight the
seizure. i would be asking your doctor for a referral to a neurologist if i
were you because you will find it more comforting if you speak to someone
who specialises in this type of condition. i would also start a diary and
record any activity which you believe may pertain to the boys problem. also
if you think of anything you may want to ask the specialist or even your
doctor you forget them when your appointment comes around.
pablo
> I can be reached privately at jc(atsign)cyberpine.com
CyberCafe - 05 Feb 2004 17:38 GMT
> Almost 3 months ago I posted on the list about my 5 year olds 5 minute
> seizure at school. He had pushed back on his chair, hit the ground and
[quoted text clipped - 12 lines]
> headaches and went right to sleep. The episode - if even that lasted
> no more than 30 seconds.
I hope you are aware that there is a potentially dangerous situation
here. Bathtubs, hot water, and seizures while bathing are a bad mix.
> After the first episode we did all the neccessary lab/blood and
> specialist work.
> They found nothing - which of course is what we were hoping for. We
> are now calling the specialist.
If they haven't already done so, they will run an EEG and probably an
MRI. If the tests come back normal, that is par for the course. The EEG
is kind of tricky because the patient has to be experiencing abnormal
brain waves at the time the test is done or the test returns as normal.
Abnormal brain waves may not be a constant thing but only occur in the
time frame near the seizure(s).
> Not sure if related, but a number of times this year the boy has come
> home from school completely wet after urinating his pants. He's been
> potty trained for years now, but sometimes we have to ask him to go to
> the bathroom already - especially when he's busy working on projects
> or really entertained. Possible seisure related?
Wetting himself could be seizure related, however, you say this is
happening when he seems to be alert and active. When one of my kids, a
girl, was about the same age as your boy, she also started having
accidents. It turned out she had a urinary infection. She ended up in
the hospital deathly sick because the infection spread.
Barb
> Anybody with similar
> story? comments? info? suggestions? ..
>
> Thanks.
>
> I can be reached privately at jc(atsign)cyberpine.com