Hello Everyone:
Mike said that he "distinctly remember[s] being sore after [. . .]
seizure[s].
I'm curious. When I see the neurologist for my first visit, should I
tell her about how my legs become very sore and ache after my legs do
that jerking thing they do? I never thought of it as being signifigant
until now. Is it signifigant?
My leg muscles only hurt the first time it happens and after a few days
of these attacks, my legs get used to it. This happens maybe 4 or 5 days
in a row, stops, then starts up again days later (really there is no
pattern that I'm aware of).
I have another question about eye rolling. My family says that I get
this blank look on my face and stop whatever it is that I am doing and
that my eyes roll back and forth (to them what seems a hundred miles per
hour). When it happenes, I'm aware of my surroundings but not totally,
Whoever I'm talking to seems to sort of fade out kind of, they're there,
but like they got pulled away (if that makes sense). My family doctor
said she suspects absense seizures. . . what do you think?
I'm just scared. Knowing that my mom's aunt had to have surgery to help
her epilepsy and the fact that my uncle still has grand mal's scares the
wits out of me. The whole thing scares me.
I can't remember if I mentioned this in my first post, but I was born
with the chicken pox (my mom got it when she was 8 1/2 months pregnant
with me), and I have learning disabilities as well (not sure what or if
this has anything to do with the possibilty of me having a seizure
disorder or not, but thought I'd mention it).
Thanks for all of your help. Finding this group has helped me already.
Karen
Lisa Dapper Butts - 25 Jul 2003 17:15 GMT
> I'm curious. When I see the neurologist for my first visit, should I
> tell her about how my legs become very sore and ache after my legs do
> that jerking thing they do? I never thought of it as being signifigant
> until now. Is it signifigant?
Nope, isn't significant. It's normal. You've just used every muscle in
your body.
> I have another question about eye rolling. My family says that I get
> this blank look on my face and stop whatever it is that I am doing and
[quoted text clipped - 3 lines]
> but like they got pulled away (if that makes sense). My family doctor
> said she suspects absense seizures. . . what do you think?
You're just having a seizure. Nothing to worry about. Is this the
beginning of the horizontal mambo or is the only thing that happens? If it
then leads into a grand mal you're having an aura.
> I'm just scared. Knowing that my mom's aunt had to have surgery to help
> her epilepsy and the fact that my uncle still has grand mal's scares the
> wits out of me. The whole thing scares me.
Being scared is normal. Once you get used to what's happening & know what's
happening with the different feelings things will calm down.

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Lisa Dapper Butts
http://www.geocities.com/lisa_gail
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I suffer from C.R.S........can't remember sh.t!
gaross - 25 Jul 2003 17:42 GMT
Here are some weblinks for you and a few people who posted earlier today or
yesterday.
Julie's Idaho website has lots of general information on Experiences,
First Aid and other topics of interest to pwe (people with epilepsy) and
their Families. I think there is also a link to efa.org site which is the
General U.S. Ep. Foundation of America --> that site has a Medications
glossary and more detail on some of the seizure types. IF it's not there
try http://efa.org (That's just a guess from Memory! )
***********
Most of these should be added to your Favourites list or Bookmarks for
easy recall. When you first Click to the site, if you Mark it there at the
Entrance, it will be available without needing to remember all the 'geek
stuff' of the addresses here:
The Main Idaho site is at http://www.epilepsyidaho.org/index.htm
I have 2 other addresses, One that has a 'First Aid for Seizures Chart'.
If you specifically look at Absence Seizures or Simple Partial Seizures, I
think you'll see some of the reactions you've described, or that others have
observed. You should probably mention the leg pains as well as what people
observed, since those will help the Doctor make a more accurate assessment
of what's happening. (I used to get pains at night- expect I was having
Nocturnal Seizures and twisting muscles or bones in ways they weren't
designed to operate! :-< Since during some of the seizures, we aren't aware
we're doing that, OR of any pain while we're 'away', telling the Dr. about
those will get you a better assessment quicker.)
The First Aid Chart is at http://www.epilepsyidaho.org/seizure2.htm .
There's another site I have listed the Might be the older site, or have
more detailed information on Seizure Recognition too -->
http://www.epilepsyidaho.org/seizure.htm .
Some Light (really!) reading to get you started on your Road of
Discovery! G.R.
On your fears (below after 3 ***s), don't let yourself become Afraid of
something that might not be THERE! It's Rare that someone can inherit
seizures, and Medical Science and treatments have improved Greatly over the
last 20 or more years. Things that Might have been done many years ago to
cure some types of seizures, might now be more easily fixed with newer
medications or therapies that weren't known about back then.
Let the Doctors know whatever you noticed (or were told) like below and
let them do their jobs. (I used to take a *notepad with a list of
questions, so I didn't forget to ask him something I had been told by
witnesses to my seizures, OR that had been 'bugging me' or that I was Afraid
of. This is Just a 'Condition' now that can be Treated.
Come on, I'll show you where we hide the Chocolate and Strawberries. :-)
G.R.
> Hello Everyone:
> Mike said that he "distinctly remember[s] being sore after [. . .]
[quoted text clipped - 29 lines]
> Thanks for all of your help. Finding this group has helped me already.
> Karen
CyberCafe - 25 Jul 2003 22:41 GMT
> Hello Everyone:
>
[quoted text clipped - 5 lines]
> that jerking thing they do? I never thought of it as being signifigant
> until now. Is it signifigant?
Yeah, you need to tell the doctor EVERYTHING even if you don't think it is
related or you are embarrassed.
> My leg muscles only hurt the first time it happens and after a few days
> of these attacks, my legs get used to it. This happens maybe 4 or 5 days
[quoted text clipped - 8 lines]
> but like they got pulled away (if that makes sense). My family doctor
> said she suspects absense seizures. . . what do you think?
It's possible.
> I'm just scared. Knowing that my mom's aunt had to have surgery to help
> her epilepsy and the fact that my uncle still has grand mal's scares the
> wits out of me. The whole thing scares me.
Naw, don't be scared. You are probably at your worst right now, and with
medication things should improve. Your uncle and your aunt are not you.
You really can't judge how severe your seizures are going to be, or
whatever, by looking at their history.
> I can't remember if I mentioned this in my first post, but I was born
> with the chicken pox (my mom got it when she was 8 1/2 months pregnant
> with me), and I have learning disabilities as well (not sure what or if
> this has anything to do with the possibilty of me having a seizure
> disorder or not, but thought I'd mention it).
It is possible that the two are connected. You've got to take this with a
grain of salt because I'm not a doctor and your statement is very general.
It could be that the two are separate issues.
Barb
> Thanks for all of your help. Finding this group has helped me already.
> Karen