My father died in 1999, and in my role as the family genealogist, I
recently obtained his records from 1940 regarding service in the
Civilian Conservation Corps.
To my surprise, I found the following in a section called ABSENCE DUE
TO ILLNESS & INJURY: JULY 23/40 to AUG 14/40. DIAGNOSIS: Epilepsy.
TREATMENT VENUE: Sta. Hosp.
So, I asked Mom if this meant anything to her. Here was her answer,
emailed to me today:
"Yes. I know what that was about. He had several of those while we
were dating. He would get stiff and foam at the mouth. They seemed to
go away after awhile and I don't remember him having them after we
married. It might have been working on him even then, because he
missed so much work and would just stay in bed and you could not get
him to move. One time I took you and left him and went to [my
parents'] for 10 days. I did this mainly because he would not go to
the doctor. If he wasn't working for relatives, like his brother, he
would have been out. Your uncle put up with his missing work most
every Monday. This is something I realize you kids knew nothing about.
All in all he was a great man. mom"
I hope it is not inappropriate to ask for comments in this forum,
because I'm really just trying to understand dad.
Thanks.
Dona - 11 Feb 2004 02:48 GMT
You can't imagine what these things feel like. Nothing on earth prepares you
for the feeling of everything dropping out from underneath you.
Your father might not have even been thinking epilepsy, he might have been
thinking "I'm insane, and I can't let anyone know." Chances are, even the
best of those around him would have looked at him very strangely if they had
known he had epilepsy.
The big seizures are just a part of it. There are so many other things that
can "ding" up a person's days, aura, partials, sensory tics and psychic
tricks like you wouldn't believe your mind could play (That couch didn't use
to be that color of green).
I can't imagine having this disorder/disease without the support of my
family. Your father must have had much stronger shoulders then mine.
CyberCafe - 11 Feb 2004 03:43 GMT
> My father died in 1999, and in my role as the family genealogist, I
> recently obtained his records from 1940 regarding service in the
[quoted text clipped - 23 lines]
>
> Thanks.
How do you mean "understand dad?" Do you mean some kind of behavior, his
regular Monday problems (which makes me want to know what he did on the
weekends), his need for sleep, or something else?
Barb
Mary Fisher - 11 Feb 2004 09:52 GMT
> How do you mean "understand dad?" Do you mean some kind of behavior, his
> regular Monday problems (which makes me want to know what he did on the
> weekends), his need for sleep, or something else?
I thought he wanted to know more about his dad. You find something
previously unknown about someone and ask them about it to understand and
know more - you can't when they're no longer there.
Mary
> Barb
Bob - 11 Feb 2004 04:19 GMT
> My father died in 1999, and in my role as the family genealogist, I
> recently obtained his records from 1940 regarding service in the
[quoted text clipped - 23 lines]
>
> Thanks.
Hi Tom
Let me say that you've come to the right place and I'd like to welcome you
to the group. The purpose of the group is to support & help not only those
who have epilepsy, but also their family & friends who also need to cope
with the situation.
Please feel to ask any questions that you have in mind. The following
websites will give you some additional information on epilepsy and seizure
types:
http://www.epilepsyfoundation.org/index.cfm
http://www.epilepsyidaho.org/
You can also review the posts in the group by various members who describe
their symptoms.
Due to the lateness in the day, I'm a bit short on time. but will be back
tomorrow. You're sure to get a lot of help from many people here though!
Bob
Julie - 11 Feb 2004 05:56 GMT
Hi Tom, sorry to hear of your father's death. My father died in 1995. I was
with him at every medical appointment, so I know all too well about all his
medical problems.
I am the one with epilepsy in my family. In reading your post it reminded me
of my life as a teenager. I had many seizures, but was not aware they were
seizures. For me there was no diagnoses until I was 18. So people were not
aware of my problems.
If your father was having tonic clonic seizures (they used to call this grand
mal) he would have been very exhausted for several days. After a seizure you
feel like you've been run over by a truck and you ache all over from the
muscles convulsing. You just want to sleep. It takes several days to be able
to walk and talk like a "normal" person. Depression can set in. What your
father needed was love and support from his family and friends. Maybe he
didn't know how to ask for that, or felt he didn't deserve it.
If you want to get involved in educating the public and empowering people with
epilepsy, your local Epilepsy Foundation may have fund raisers that you can
participate in. For example, here in Idaho we have a mud volleyball
tournament (http://www.epilepsyidaho.org/mud2003) that the community supports.
Take care,
Julie Walton, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org
> > My father died in 1999, and in my role as the family genealogist, I
> > recently obtained his records from 1940 regarding service in the
[quoted text clipped - 44 lines]
>
> Bob
Bob - 11 Feb 2004 17:11 GMT
> My father died in 1999, and in my role as the family genealogist, I
> recently obtained his records from 1940 regarding service in the
[quoted text clipped - 23 lines]
>
> Thanks.
Hi again. Just a few more observations.
It's pretty clear that your dad had some form of epilepsy & seizures. It
sounds unlikely though that he was having what are called "grand mal" or
sometimes "tonic-clonic" seizures. Those are the type where the person
falls to the ground and goes into convulsions. It's all very obvious as to
what's going on when these occur. Since these happen at random, you would
have seen them yourself when you were a child at home.
Others will step in here with their thoughts, but his seizures might have
been one of the varieties of Complex Partial Seizures. Those come in many
different forms with many different symptoms.
One thing that catches my eye is the missing of work on Mondays. That's
usually a sign of someone who drinks heavily on the weekend and is too
hungover to go to work on Monday. Alcohol is also a known trigger for
seizures i.e. a trigger is something that can bring on a seizure. You'd
certainly know if your dad was a drinker and it sometimes doesn't take
much alcohol to bring on seizures.
I'm sure that your dad was a great guy and it must be a shock to discover
that he was going through this living hell called epilepsy. It's
definitely no fun and, even today, the doctors can't always find the
right combination of medicines to control & alleviate the situation. Most
of the drugs used today were not available back in the 1940's, so there
was a lot less that could be done for the condition.
Keep posting and we'll try to answer any questions you have.
Bob
gaross - 11 Feb 2004 17:21 GMT
I added one note at bottom at ***s. G.
> > My father died in 1999, and in my role as the family genealogist, I
> > recently obtained his records from 1940 regarding service in the
> > Civilian Conservation Corps.
> >**** removed text **
Your uncle put up with his missing work most
> > every Monday. This is something I realize you kids knew nothing about.
> > All in all he was a great man. mom"
[quoted text clipped - 22 lines]
> certainly know if your dad was a drinker and it sometimes doesn't take
> much alcohol to bring on seizures.
*** G. ** Another possibility, depending on the type of work he did was if
it was a Stressful job, that could aggravate a tendency to have a seizure,
if the condition already existed. OR something at his work environment
might have increased a minor seizure type to a stronger one -- e.g. extreme
odours (if it was a factory, refinery, etc.), flashing lights that might be
at a work site but not at home.
After becoming used to those (Tues. onward), then the chances of a szr.
might have been lower.
Just another possible source of a Monday Seizure. G./
> I'm sure that your dad was a great guy and it must be a shock to discover
> that he was going through this living hell called epilepsy. It's
[quoted text clipped - 5 lines]
> Keep posting and we'll try to answer any questions you have.
> Bob
Dave ???? - 12 Feb 2004 00:23 GMT
Howdy!
Here's a shot in the dark!
It sounds to me like your father may have been afraid of the stigma that
would be fall upon him and the family.
Whether the fear was founded or not, he took a plan of action that he felt
was best - to conceal the fact from everybody who did not have a first hand
encounter with it.

Signature
Dave ????
"Noli illigitemi carborundum decendus"
http://www.howdydave.com