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Medical Forum / Diseases and Disorders / Epilepsy / February 2004Do you know what your triggers are???
I am interested to hear what triggers others have found for their seizures and form a list of things that we can all watch out for. For me personally, my triggers are.... 1. lack of sleep. 2. stress/nervousness. 3. Caffeine...from coffee, coke, red bull, chocolate, etc. 4. forgetting to take my meds (duh). After brain surgery I have a very bad memory. 5. change in routine. 6. crowds. 7. fluorescent lights. 8. unexpected interruption (someone knocking on the door). 9. interrupted sleep. 10. not giving my body enough time to wake up in the morning. I would be interested to find out what triggers other peoples seizures so maybe I can find a way to better manage mine. Cheers Darryl My triggers I figured out aftr 27yrs of toxic meds and a worthless lebectomy. I chose to take 100% CONTROL to have found out that all my food allergies and chemicals, like perfumes, pine sol, lysol type cleaning agents trigger all my szs. And the way I can now have a nice Quality of Life and health is avoid the allergens when I can, which is 90% of the time. Hi Kathy, it is good to see your name appear on the screen. We used to exchange emails off list way back in 1999. You gave me a lot of valuable info, real eye openers. Hope you are fine, always, warmly , Katharina Hi Katharina, Wow you have a Supurb memory :)))))))) May I borrow some lol You'ld have to remind of a few things to kick in my 20% verbal memory since its been so loooong. How have you been doing? I've been learning so much more than ever before, Wonderful positive things going on, along w/some major awakenings and more changes, I feel-hope just recently I found my main problem to my szs I'm still playing w/this nutrient and everytime I start having a major aura no matter what the trigger I take it immediatley and it stops it right in its' tracks and then I feel great for the next few days. I'm bored alot now thats how good it makes me feel, so I'm doing much more, going out alot and busy doing my past loves again and more. So Katharina please fill me in on how life has been for you and maybe we can keep in touch. God Bless you With Love Kathy > I'm bored alot now thats how good it makes me feel, so I'm doing much >more, going out alot and busy doing my past loves again sounds great! Can you give us a clue how one does past loves again? Am I to assume you mean in the epileptical sense? Please tell how! > > I'm bored alot now thats how good it makes me feel, so I'm doing much > >more, going out alot and busy doing my past loves again > > sounds great! Can you give us a clue how one does past loves again? Am I to > assume you mean in the epileptical sense? Please tell how! Naughty!! You're going to get the 20-30 mails like *I get now in the AM when I log on ya know!! Oh, I may have misunderstood what you meant.... G. :-> > > I'm bored alot now thats how good it makes me feel, so I'm doing much > >more, going out alot and busy doing my past loves again > > sounds great! Can you give us a clue how one does past loves again? Don't go there ... :-) Mary Mary - I have a sense that you know a good deal about going there. I wonder the impact of seizures on the adventure. I imagine some day, sans toothache, in a lovely garden. . . > Mary - I have a sense that you know a good deal about going there. I wonder > the impact of seizures on the adventure. > I imagine some day, sans toothache, in a lovely garden. . . LOL! I remember it well ... :-) Dear dear - now with the spouse in the picture, my epileptic fantasies are dashed. But I will continue to be with you in spirit, Mary. Tim. > Dear dear - now with the spouse in the picture, my epileptic fantasies are > dashed. > But I will continue to be with you in spirit, Mary. > Tim. Oh bugger! I've spoiled everything now ;-( But I don't think that Spouse would be the only barrier - you don't know how old, fat, opinionated and arrogant I am <G> Mary Hey guys, I think there must be an alt.support.I-need-a-date newsgroup for this sort of thing. ;-) -- To reply, change daryl to darryl in address > > Dear dear - now with the spouse in the picture, my epileptic fantasies are > > dashed. [quoted text clipped - 7 lines] > > Mary mea culpa Daryl - most inappropriate! Mary does have a way of fondling the trigger buttons, and if a way can be discovered to avoid ignition in this case, there is hope that a lesson can be learned for alternate applications. What the hell are you talking about tim? -- To reply, change daryl to darryl in address > What the hell are you talking about tim? Oh, it's not just me then :-) Mary > -- > To reply, change daryl to darryl in address [quoted text clipped - 3 lines] > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.583 / Virus Database: 369 - Release Date: 10/02/2004 >> What the hell are you talking about tim? > >Oh, it's not just me then :-) > you don't know how old, fat, opinionated and arrogant I am Mary - could that have been shortened to old, fat and British? Anyway, we upstart epileptic Americans surely have much to learn from the mother country. And I suppose New Zealand falls in that category as well? Thanks to you both for your support and reprimands as needed. Yesterday's seizure was mild. Tim > >> What the hell are you talking about tim? > > [quoted text clipped - 4 lines] > > Mary - could that have been shortened to old, fat and British? Oh no, I'm far more opinionated and arrogant than most British people. More akin to american really. > Anyway, we > upstart epileptic Americans surely have much to learn from the mother country. > And I suppose New Zealand falls in that category as well? Thanks to you both > for your support and reprimands as needed. > Yesterday's seizure was mild. Good. But don't expect it always to be like that :-) Mary > Tim >Oh no, I'm far more opinionated and arrogant than most British people. More >akin to American really. Oh Mary Mary - what a nasty slap! Americans may act arrogant out of an exagerated sense of bravado, but it's just a cover for underlying insecurity. Don't Brits, on the other hand, the great empire builders, have this stuff deep in their bones, and justifiable so? If you are on a higher level than the average, then you must be some cup of tea! Yet, I suspect, you have the dignity and grace to keep the saucer near at hand. > >Oh no, I'm far more opinionated and arrogant than most British people. More > >akin to American really. > > Oh Mary Mary - what a nasty slap! No more nasty than what went before :-) > Americans may act arrogant out of an exagerated sense of bravado, but it's just > a cover for underlying insecurity. Don't Brits, on the other hand, the great > empire builders, have this stuff deep in their bones, and justifiable so? I doubt it. I think very few Brits would understand what the 'Empire' was or meant. When you think about it the Empire was built over a relatively short time, less than the Roman Empire for instance. Less, in fact, than the American Empire - although I do realise that there's nothing which is actually CALLED the American Empire. > If you are on a higher level than the average, Higher in what way and what's the average? I'm just me. I don't think of myself as on any level compared with other people. > then you must be some cup of > tea! Yet, I suspect, you have the dignity and grace to keep the saucer near at > hand. I always use a saucer under my cup or beaker of tea. It stops drips from marring the surface of what my cup/beaker is standing on. I don't understand the significance of that phrase - but am open to learning. Mary >Higher in what way and what's the average? I'm just me. I don't think of >myself as on any level compared with other people. "Oh no, I'm far more opinionated and arrogant than most British people." (That's what I was referring to) >I always use a saucer under my cup or beaker of tea. It stops drips from >marring the surface of what my cup/beaker is standing on. Of course Mary - any reasonably careful and thoughtful person would use a saucer. The British tradition has incorporated many such basics. As have other traditions with some longevity like the French, Japanese or Chinese. The Americans, despite our power, are really the new kids on the block and are a big mish-mash of the world in a big swirling urn. I don't know that we can speak of American traditions in the same way we speak of the others. I suppose if we want to get back to the notion of arrogance - can we say that British arrogance is based on national historical accomplishment and American on its power, and the creativity of its individuals who have been given free reign to explore and invent? Does this make any sense? Tim > I suppose if we want to get back to the notion of arrogance - can we say that > British arrogance is based on national historical accomplishment You can if you like but I still believe that few Brits have any idea of their history. > and American > on its power, and the creativity of its individuals who have been given free > reign to explore and invent? British creativity is a reality, Brits have free rein to explore and invent. If they have the money. That's the great difference between Britons and Americans, I'd say. Both seem to think that money is power. I don't. Just as well I don't want power. Mary > Does this make any sense? Tim >British creativity is a reality, Brits have free rein to explore and invent. >If they have the money. > >That's the great difference between Britons and Americans, I'd say. Appreciate your thoughtful comments Mary. Didn't catch what you were referring to in terms of the great difference. Did you mean that they have a Mary and we don't, or something else? Tim > >British creativity is a reality, Brits have free rein to explore and invent. > >If they have the money. [quoted text clipped - 4 lines] > to in terms of the great difference. Did you mean that they have a Mary and we > don't, or something else? Tim No, that Brits, on the whole, don't have the money to explore and invent. There seems these days to be more will for investment in America - and more private money too. That might be something to do with the American Empire of course. I realise that not all Americans are rolling in it before you say so ... Mary >No, that Brits, on the whole, don't have the money to explore and invent. Thanks for the clarification Mary. Isn't that sad that great minds can't get the resources they need to allow their great ideas to blossom. Discussing the notion of arrogance after Quaker meeting this morning, people were leary about categorizing any culture, race or nation. But there was agreement that arrogance emanated from a sense of superiority. An Afroamerican in the discussion spoke of the arrogance of his African "brothers" who look down on him because they can trace their blood line back for many generations and they see him as rootless. > >No, that Brits, on the whole, don't have the money to explore and invent. > > Thanks for the clarification Mary. Isn't that sad that great minds can't get > the resources they need to allow their great ideas to blossom. Well, they come out anyway, somehow, somewhere. > Discussing the notion of arrogance after Quaker meeting this morning, people > were leary about categorizing any culture, race or nation. But there was > agreement that arrogance emanated from a sense of superiority. I'm not sure about that. I don't feel superior to anyone - nor inferior. But I'm told that my attitude is arrogant. > An Afroamerican in the discussion spoke of the arrogance of his African > "brothers" > who look down on him because they can trace their blood line back for many > generations and they see him as rootless. After seeing 'Roots' a black friend of mine went to the part of Africa he believed some of his ancestors came from and was horrified to have children begging at him because they saw him as white and therefore rich. It really made him think and adjust his attitude. Of course he wasn't black any more than he was white, once he realised that he could come to terms with the way he was seen - and the way he saw others. Your Afroamerican friend's African 'brothers' are no more his brothers than the ones he lives with every day. We are all very mixed. People often tell me that they can trace all their ancestors back to the vikings, or Normans, Angles or some such. I say that they can't, once your ancestors get to even five or six generations in an industrial country you've reached such numbers that it's unmanageable and untraceable. My response is arrogant, not superior though. I like to have things I hadn't realised explained to me and in turn I do the same. If others don't like that it's their problem. Mary we see things not as they are, but as we are. -- Anais Nin >I'm not sure about that. I don't feel superior to anyone - nor inferior. But >I'm told that my attitude is arrogant Thanks Mary, for your thoughts and insights. I believe we got on this "arrogance" track after you initially made that self-declaration. Now it turns out this is the judgement of your observers. You seem thoughtful and expressive. I appreciate that. I see now that it is your attitude that is declared to be arrogant. Sure - nothing to do with superiority. Just a healthy pride in your intelligence and the uses you put it to. Tim > >I'm not sure about that. I don't feel superior to anyone - nor inferior. But > >I'm told that my attitude is arrogant > > Thanks Mary, for your thoughts and insights. I believe we got on this > "arrogance" track after you initially made that self-declaration. I get it in first :-) > ... Just a healthy pride in your > intelligence and the uses you put it to. Tim Well, thanks Tim but I don't even feel particularly intelligent! Nor dull. I know my strengths and my weaknesses, sometimes I let them go too far. Mary Last 3 were caused by a dentist. They gave me novicane with epinephrine. It counteracted the Topamax. My neurologist and I finally realized it, he says it's a known side effect. > > >> What the hell are you talking about tim? > > > [quoted text clipped - 20 lines] > Mary > > Tim > I am interested to hear what triggers others have found for their seizures > and form a list of things that we can all watch out for. [quoted text clipped - 14 lines] > I would be interested to find out what triggers other peoples seizures so > maybe I can find a way to better manage mine. If I get really sick OR run a prolonged temperature, even if it is a low temperature, it will cause some breakthrough symptoms. For example, I had an abscess once under a tooth, no pain so I didn't know it was there, and I ran a low-grade fever for several months and during that time I had seizure symptoms. Having the flu or a sore throat will not cause any problems though. Since I've been on meds, I don't have any problems except for the above. Before meds, hormone fluctuations were the number one trigger. Apparently, I have photosensitivity contribution too (colors, patterns, movement, etc.). Never had problems with food or beverages (the only alcohol I drink is nonalcoholic beer, which still has a tiny amount of alcohol, but it doesn't bother me). Falling asleep, or trying to fall asleep, was another biggee, but I don't know if that is a real trigger or not. Barb > Cheers > > Darryl Howdy! My main trigger is my immune system. Whenever it is activated I get seizures. Seizures are usually my first indication of a cold or the flu. 2 to 3 days after my first seizure I will develop the first symptoms.  SignatureDave ???? "Noli illigitemi carborundum decendus" http://www.howdydave.com > I am interested to hear what triggers others have found for their seizures > and form a list of things that we can all watch out for. [quoted text clipped - 18 lines] > > Darryl >Seizures are usually my first indication of a cold or the flu. 2 to 3 days >after my first seizure I will develop the first symptoms. Howdy Dave - this could have been cited in the subject "Negative about Seizures" as one of the positive values. Now you know when not to schedule a "hot" date. Thanks, Tim Heya, the main triggers I've noticed is stress and lack of sleep. I also have problems with flourencent lighting/strobes, but not to the extend that it triggers a seizure. They 'just' bother my eyes more than usual (from what I remember before I was dx'd). I've not noticed any kind of food triggers or even alcohol (I rarely drink, but when I do, I get /really/ drunk). I suppose I should count myself lucky, having few triggers and few seizures, huh? - Charlie > I am interested to hear what triggers others have found for their seizures > and form a list of things that we can all watch out for. [quoted text clipped - 18 lines] > > Darryl Prolonged hunger and or dehydration are some of mine. > I am interested to hear what triggers others have found for their seizures > and form a list of things that we can all watch out for. [quoted text clipped - 18 lines] > > Darryl g'day darryl, i have a few triggers which mainly affect me. heat, whether it's a very or hot day or even a small rise in body temperature due to illness. strong smells and vapours like glue or ammonia, and also sometimes prolonged periods of sleeplessness. pablo > I am interested to hear what triggers others have found for their seizures > and form a list of things that we can all watch out for. [quoted text clipped - 18 lines] > > Darryl Mine are very similar to yours... 1. lack of sleep 2. emotional stress (the seizures tend to happen after the stress has ended for some reason) 3. MSG/hydrolyzed vegetable protein 4. alcohol 5. waking up too quickly (I have had a few after being startled out of a deep sleep) 6. flashing or flickering lights or computer monitors (these don't often cause actual seizures but give me a very uncomfortable feeling) Caffeine has never seemed to cause a problem - for which I am very grateful since I love tea and coffee! - but doctors have told me I should avoid it. > I am interested to hear what triggers others have found for their seizures > and form a list of things that we can all watch out for. [quoted text clipped - 18 lines] > > Darryl turbinado <turbinadoN@SPAMtelus.net> wrote in article <nFVTb.229$NG1.12@clgrps12>... > Mine are very similar to yours... > 1. lack of sleep [quoted text clipped - 8 lines] > Caffeine has never seemed to cause a problem - for which I am very grateful > since I love tea and coffee! - but doctors have told me I should avoid it. Some similarities some different, surprise surprise!! ;-) 1) alcohol (Doc said a couple of pints of beer would be okay, I've been tea-total for 15 years, why risk it when I can be the designated driver?) 2) combination of lack of sleep and lack of food (probably eventually either on their own would trigger) 3) waking up too quickly (I'll use the same phrase, though with me it is not so much the being startled out of sleep (the alarm clock does that most mornings) I need to wait a couple of minutes either lying down or sitting on the edge of the bed, just to come round properly) 4) extreme emotional stress (like turbinado, the fits start after the stress has ended, probably something to do with coping when we have to but when we relax ) 5) vomiting (guess this has something to do with #2, though I think it also reduces the amount of drug in my system) 6) cold and flu remedies (probably a clash between my drugs and those of the great unwashed) 7) low drug levels (I was having a few problems one time and after investigation it was found that my drug level was about 6 (when I need between 10-20), good job the doctor thought it was fine, it was only after that I found out what it should be!) 8) cannabis (tried it on a few occasions before I was diagnosed and it never seemed to do anything, the one time I've tried it since having epilepsy I had a fit the next day, so that was the last time) I've never had a problem with photosensitivity or caffeine which is good seeing as I live on coffee at work, work at a PC most of the day and enjoy video games. With external triggers, I always seem to have my fit the following morning, if nothing has happened by 1pm nothing probably will. One sign I might have a fit is my twitching eyebrows, there has been an occasion when I have gone back to bed before anything has happened and slept to a natural waking up and been fine (this was at the weekend so I had previously woken naturally as well). SignatureSimon 51:31N 0:38W http://www.cookie-pool.co.uk/Pool1.htm http://www.maidenhead.astronomical.society.care4free.net/ http://www.popastro.com/home.htm I am a bit shocked. It seems like many people are talking calmly about having seizures, despite the fact that they are ingesting doctor prescribed medications to prevent that eventuality. So they get to experience both the seizures as well as the side effects of the meds. When I had my first seizure in 1991 following the death of my closest relative, I found the experience so profound that the notion of attempting to control it through medication was an outrage. When my father asked me about my decision to forego medication, I responded "it just slows down your brain." I have experienced fairly consistent unmedicated seizures (about 1 a month) since then. As I have said before here, it is not the seizure experience itself which is of any particular value - in fact, it can be wrought with danger. I find the value is generated during the post-seizure phase. I find people here are more perplexed with not being "normal" Back to the original point - how are folks squaring their continuing seizures with their intake of prescribed medications? Thanks, Tim Well Tim, I continue to have CP seizures about 15 times a day and take medication for this. Before I was put on meds I was having Grand Mals every 20 minutes and almost killed me. I find the medication and 15 CP seizures to be preferable. It is your choice not to take medication for your epilepsy, you can live with it like that. DON'T come down on people because they need to take the medication to achieve some kind of control in their lives even if it is not total control. You have it good if you don't need to take medication. We who do need the meds, don't have that luxury and I know from where I stand I sometimes don't have the finances either, but they are needed for me to live and because of that I will keep taking them. Darryl & Patsy > I am a bit shocked. It seems like many people are talking calmly about having > seizures, despite the fact that they are ingesting doctor prescribed [quoted text clipped - 18 lines] > > Thanks, Tim Thanks Darryl - I hear you. Your condition does seem to be extreme. It makes it difficult to address the "normal" epileptic who is popping pills. What are you "labelling " as "normal" and what are you "labelling" as "extreme"? I.M.H.O.F.W.I.W. (Tim, that means in my humble opinion, for what it's worth) all epilepsy is extreme. We are all "normal" people with an "extreme" condition. My wife has to take medication to prevent her having migraines. Is that "normal" or "extreme" or is she just a pill popper as well? As far as I'm concerned she takes them to have better control of her life, as do 99% of epileptics, present company excluded of course. Others take insulin for diabetes, is that just a form of "pill popping" for the sake of it, or a method of maintaining a level of control of ones life? Darryl > Thanks Darryl - I hear you. Your condition does seem to be extreme. It makes > it difficult to address the "normal" epileptic who is popping pills. I appreciate Daryl's outrage: "What are you "labelling " as "normal" and what are you "labelling" as "extreme"? I.M.H.O.F.W.I.W. (Tim, that means in my humble opinion, for what it's worth) all epilepsy is extreme. We are all "normal" people with an "extreme" condition."" We all want to be "normal", right? And noone likes to be "labeled". We just want to be who we are. But society has made such a voodooland out of epilepsy that some clear thinking does seem warranted. If your "average" unmedicated epileptic experiences a seizure a month and there are a handful who have seizures all day long and would die without some control, I think a distinction is useful. The predicaments of the all-day-long types ought not be imposed on the others, even though there are some similarities between our conditions. I was informed recently that a "tonic clonic" seizure originates in the occipital lobe, and ends in the temporal lobe via the frontal. Perhaps your frequency, Daryl, is due to a Frontal lobe bypass, kind of a direct line detour. With the frontal lobe clear, I am sure you have increased insight.Certainly your emotional apparatus in unimpaired. Tim > I appreciate Daryl's outrage: "What are you "labelling " as "normal" and what > are you "labelling" as "extreme"? I.M.H.O.F.W.I.W. (Tim, that means in my [quoted text clipped - 15 lines] > detour. With the frontal lobe clear, I am sure you have increased > insight.Certainly your emotional apparatus in unimpaired. Tim You know Tim, your sarcasm is wasted on me. I'm not "normal" enough to understand it. Incidentally, my seizures come FROM the frontal lobe...(that's why I've mentioned several times in my posts that I have right frontal lobe seizures)...if it bypassed it, I wouldn't be having seizures.....duh!! Darryl. Howdy! Sounds as if one is using the sociological def. of "normal" and the other is using the mathematical def. Both are correct! SignatureDave ???? "Noli illigitemi carborundum decendus" http://www.howdydave.com > > I appreciate Daryl's outrage: "What are you "labelling " as "normal" and > what [quoted text clipped - 29 lines] > seizures.....duh!! > Darryl. Ummm, okay. But which is which? > Howdy! > [quoted text clipped - 44 lines] > > seizures.....duh!! > > Darryl. >Ummm, okay. But which is which? Darryl - let's flip? Tim Howdy! See that?!?!?! One of the most basic tools in problem-solving negotiation. Get both sides so befuddled that nobody knows what anybody is talking about so everybody either just walks away wagging their heads in either wonder or disgust or teams up on their mutual enemy -- the negotiator! Pretty neat, eh? :) SignatureDave ???? "Noli illigitemi carborundum decendus" http://www.howdydave.com > >Ummm, okay. But which is which? > > Darryl - let's flip? Tim Damn straight. Let's get him Tim!!!!!!!!!!!!!! > Howdy! > [quoted text clipped - 17 lines] > > > > Darryl - let's flip? Tim TIMMCO <timmco@aol.com> wrote in article <20040204140342.11601.00001145@mb-m12.aol.com>... > I am a bit shocked. It seems like many people are talking calmly about having > seizures, despite the fact that they are ingesting doctor prescribed > medications to prevent that eventuality. So they get to experience both the > seizures as well as the side effects of the meds. <snip> > Back to the original point - how are folks squaring their continuing seizures > with their intake of prescribed medications? Why so shocked? WTF has it got to do with you how I talk and what I take, if it doesn't affect you? 1) What seizures do I experience? 2) What side affects? 1) the last bout, I have mentioned elsewhere, were bought on when my meds fell below the prescribed level. I was fitting between 1 and 5 times a month, granted not a lot compared with some but still too many for my liking. The final straw came when I had a fit a work and in doing so threatened the safety of one of my pregnant co-workers. This was 7 years ago (it will be in October anyway); co-incidentally my meds have been checked annually and were initially adjusted to get me up to the correct level. Since then, I've been fit free! 2) The only 2 side affects I have noticed are i) if I have less sleep than normal I can be a bit more drozy and it'll take longer for me to wake up properly, but then most people are like that without taking drugs!! ii) they have a tendency to stop me fitting. There is a 3rd affect, which my dentist has told me about, but I don't notice my gums are a little swollen. I have not noticed any slowing of my senses or reactions, once I've woken up, or any affect on my memory. So back to the original point if the intake of prescribed meds is helping to control fits that is reason enough in my book. For me the discontinuation of fits gives me the quality of life I need (not even discussing the lack of pain and anguish from not fitting) I need to work, where I work it helps for me to be able to drive. If I didn't drive it would take me and the person I give a lift to over 2 hours each way opposed to the current 45 mins. That gives me an extra 1 ½ with my family (I'm currently working on getting a job nearer home). If my fits got to a stage where I couldn't work, I wouldn't be able to provide for my family. If I couldn't provide the basics how could I hope to do anything special for my kids' birthdays tomorrow? If I couldn't provide for my family, I couldn't contemplate taking courses with the aim of earning a degree at the cost of several thousand pounds. Any of these alone is good enough reason for me to take my meds to stop my fits. You gain a value from experiencing your fits, fair enough. What is not fair enough is judging people by your own standards. I get the impression from your posts that you believe epilepsy is a part of you and should be embraced, fine, but I also get the impression that you think anyone who try's to control their fits is in some sort of denial (I apologise if I've got it wrong). I am in no such denial, I realise that epilepsy is a part of my life and always will be, but like any part of my life that I don't like but can't get rid of totally I want to control it as best I can. To deny it, IMO, would be the worst thing to do. I've been there, part of my denial was to not take meds, not stop drinking (an obvious trigger from the start) and carry on driving, fortunately my family and friends helped me through and I think I've done alright since. SignatureSimon 51:31N 0:38W http://www.cookie-pool.co.uk/Pool1.htm http://www.maidenhead.astronomical.society.care4free.net/ http://www.popastro.com/home.htm > There is a 3rd affect, which my dentist has told me about, but I don't > notice - my gums are a little swollen. Hi Simon, I'm guessing you take Dilantin, as when I was taking dilantin my gums also swelled up, despite my neuro assuring me that they weren't swollen. They went back to normal when I stopped taking the dilantin. I also found that dilantin made me very drowsy. > I have not noticed any slowing of my senses or reactions, once I've > woken up, or any affect on my memory. [quoted text clipped - 35 lines] > http://www.maidenhead.astronomical.society.care4free.net/ > http://www.popastro.com/home.htm Daz_n_Pat <darryl.gaye@paradise.net.nz> wrote in article <Z_AVb.21816$ws.2864728@news02.tsnz.net>... > Hi Simon, I'm guessing you take Dilantin, as when I was taking dilantin my > gums also swelled up, despite my neuro assuring me that they weren't > swollen. They went back to normal when I stopped taking the dilantin. > I also found that dilantin made me very drowsy. I'm on Epanutin, which is a brand name for Phenytoin. AIUI, it is a common side affect, my previous dentist told of one of his patients whose gums were so swollen that you could only see the tops of them!!! Like I said, I can't notice the swelling of mine though I have been assured they are slightly by my dentist. -- Simon 51:31N 0:38W http://www.cookie-pool.co.uk/Pool1.htm http://www.maidenhead.astronomical.society.care4free.net/ http://www.popastro.com/home.htm > Daz_n_Pat <darryl.gaye@paradise.net.nz> wrote in article > <Z_AVb.21816$ws.2864728@news02.tsnz.net>... [quoted text clipped - 11 lines] > -- > Simon Oh, Okay. Well...........dilantin does that too, so there. :-) Cheers, Darryl. > I am a bit shocked. It seems like many people are talking calmly about having > seizures, despite the fact that they are ingesting doctor prescribed > medications to prevent that eventuality. So they get to experience both the > seizures as well as the side effects of the meds. Can only speak for myself here. For myself, there is a huge difference before and after meds (20 years without meds, 14 years with meds). Since being on meds, if I do have seizure activity (usually because of illness), the number of symptoms is reduced, and with some of the symptoms that do remain, the intensity isn't as bad. It's kind of like comparing sore throats. If it's a simple virus, you can go about your daily life just fine, but if it's the flu, you might have a whopper of a sore throat with a fever, coughing, muscle aches and everything else that puts you in bed for a couple of days. Barb > When I had my first seizure in 1991 following the death of my closest relative, > I found the experience so profound that the notion of attempting to control it [quoted text clipped - 13 lines] > > Thanks, Tim Well, I am a lucky one also, Tegretol usually helps 100% control of my seizures. Unless there is another stimulus of course.. as recently revealed, Loprox/Ciclopirox has caused a seizure after prolonged exposure to my skin. Also, in the past after experiementing with St. John's Wort, that also caused a seizure while taking my Tegretol. I can have problems from Caffeine, flourescent lighting, crowds and staring at one thing for too long. Usually fresh air will help clear my head. For instance, I went skydiving a few years ago, and while sitting in the plane awaiting takeoff, there was no air, it was hot and fuel fumes were in the air.. but as soon as they started the engines, and air was coming through the plane, I could breathe without a problem.. The thought of a possible seizure while I am doing anything is always on my mind though. >I am interested to hear what triggers others have found for their seizures >and form a list of things that we can all watch out for. [quoted text clipped - 18 lines] > >Darryl
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