http://b6saveslives.com/
quote from this website:
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Vitamin B6 Saves Lives!

Hello & Welcome! We hope that within these pages you are able to find what you
are looking for. If you have any questions, feel free to e-mail us. We are
always happy to answer questions about our kids and we feel very strongly about
advocacy for children with special needs. Our dream is that one day no one will
need to make use of the information contained in these pages. Our sincere hope
is, that if you are here because you have a sick child, that you find the
information needed to help your child. We have all been there. We know how
heart- breaking it is to watch your infant in a state of desperate illness.
Please, take a while to look around, read our stories and visit our links to
other sites that may help you. Then feel free to e-mail us with any questions
you may have. There is a lot to take in, a lot of research to be done and a lot
of questions to be asked…so ask away!

Please note: The information contained within this site is not intended to
replace medical care by a physician. We are a group of parents sharing our
stories, we are not medical professionals.

This site has been established to increase awareness of a genetic disorder
called Pyridoxine Dependency (PD). Pyridoxine is Vitamin B6. PD is an inborn
error of metabolism. Inborn means that a person is born with the condition, and
metabolism is the process by which chemicals are used within the body. So, when
a person has an inborn error of metabolism, they are born with a condition that
doesn’t allow their body to use certain chemicals in quite the right way.

Pyridoxine Dependency results in seizures. These seizures may initially respond
to anti-seizure medications, but will only fully be controlled with high doses
of Vitamin B6. Many children with PD are taking only Vitamin B6 with good
seizure control. Some kids with PD are taking other medication(s) in addition
to their daily Vitamin B6. These kids may have another type of seizures in
addition to the B6 responsive seizures. Others may have sustained brain damage
(from seizures and resulting in more seizures) before they were given a PD
diagnosis. Whatever the situation, there are many families for whom Vitamin B6
has been the miracle in answer to their prayers.

Another thing to take note of: Even in people who are not B6 Dependent (that is
those with Pyridoxine Dependency), B6 can still work as an anti-seizure
medication. These people are said to have B6 (or Pyridoxine) Responsive
seizures. These people take Vitamin B6 in addition to other anti-seizure
medications. It is important to note that this IS significant, as many people
with Epilepsy must take multiple medications to control their seizures.
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Best to you all,
Katharina