A while ago I posted here about my daughter, now it's my sons turn.
My boy is 7 months old, and is developing fine. However a short time ago he
was lying in his chair (bouncy on an angle), when he arched his back and his
head went to the right looking up, and his left shoulder jerked about 3-4
times in a pattern. My husband said his eyes were rolled back, but this was
all over very quick and he is now playing happily.
Should we be concerned?

Signature
Andrea.
Daz_n_Pat - 19 Jan 2004 15:18 GMT
Hi Andrea,
I think this would be worth mentioning to your doctor. It sounds very much
like the way my seizures started (when I was eight). I wouldn't be overly
concerned though. Young children do sometimes have seizures, but don't
develop epilepsy.
All the best.
Darryl.
> A while ago I posted here about my daughter, now it's my sons turn.
>
[quoted text clipped - 8 lines]
> --
> Andrea.
CyberCafe - 19 Jan 2004 23:36 GMT
> A while ago I posted here about my daughter, now it's my sons turn.
>
[quoted text clipped - 5 lines]
>
> Should we be concerned?
I'm not saying yes or no. It would be good to watch your little boy and mention
this at his next pediatric appointment, but I don't think you should worry about
seizures at this point. The other question to ask yourself, if you are worried
about seizures, is how was your pregnancy and delivery; was there anything there
that could contribute to a seizure condition.
I'd like to know how knowledgable or experienced your hubby is about infant
care/health/development. I don't really expect an answer from you. This is
more of a question for yourself. I mean, the back arching could be due to tummy
upset and the other movements could be due to just the way babies are (it takes
time for infants to mature neurologically, so you could expect some jerky
movements). They eyes rolling back could be from anything (including
seizures). I mean, I can see lots of logical reasons for all those things
happening to your baby that have nothing to do with seizures.
Barb
> --
> Andrea.
Andrea - 20 Jan 2004 09:37 GMT
> > A while ago I posted here about my daughter, now it's my sons turn.
> >
[quoted text clipped - 25 lines]
> > --
> > Andrea.
I was with my hubby at the time. I witnessed the jerking (which was
fit-like), and he witnessed the eye rolling. We both felt sure he'd had a
fit.
I took him to the dr who sent me to casualty. They said it was a fit which
is normal, due to the developing brain.
I have never witnessed a fit like that when my other 4 were babies.

Signature
Andrea.
Jan Silbermann - 20 Jan 2004 10:37 GMT
>I took him to the dr who sent me to casualty. They said it was a fit which
>is normal, due to the developing brain.
>I have never witnessed a fit like that when my other 4 were babies.
I am the mother of a child who had seizures as a baby.
If it is at all possible, try to get an episode (if there is another
one) on videotape.
I would be suspicious of the behavior you described. I would
definitely monitor it.
How did the baby react after the fit?
Andrea - 20 Jan 2004 11:53 GMT
"Jan Silbermann" wrote in message ...
> Andreawrote:
> >"CyberCafe" wrote in message
> >I took him to the dr who sent me to casualty. They said it was a fit which
> >is normal, due to the developing brain.
[quoted text clipped - 6 lines]
> definitely monitor it.
> How did the baby react after the fit?
He was quiet, then was a bit grizzly. I thought it seemed to match the
desription of an infantile spasm.
I don't know if this counts but the same shoulder was twitching in his sleep
last night, the same way as when he had his fit.
I can try and tape it, but it's hectic round here with 5 kids!

Signature
Andrea.
Jan Silbermann - 20 Jan 2004 23:19 GMT
>"Jan Silbermann" wrote in message ...
>
[quoted text clipped - 6 lines]
>
>I can try and tape it, but it's hectic round here with 5 kids!
I can relate..we also have five (-:
My daughter had infantile spasms. She would have many
movements ina day adn was constantly fussy. After a seizure
she would scream at the top of her lungs.
If you haven't seen it but that one time, I would be
willing to bet it is NOT IS. IS has a characterisitc
EEG pattern that is always present even when the child
is not actually seizing at the time.
Is there any possibility they could do an EEG?
Jan
Andrea - 21 Jan 2004 07:50 GMT
> >"Jan Silbermann" wrote in message ...
> >
[quoted text clipped - 19 lines]
>
> Jan
Not for some time. I am taking the baby to the dr Fiday.
My daughter is still waiting on having an EEG, theres a waiting list!

Signature
Andrea.
CyberCafe - 21 Jan 2004 00:17 GMT
> > > A while ago I posted here about my daughter, now it's my sons turn.
> > >
[quoted text clipped - 44 lines]
> is normal, due to the developing brain.
> I have never witnessed a fit like that when my other 4 were babies.
I am glad you clarified the information. Did casualty give you any advice such
as follow-up with a doctor?
Barb
> --
> Andrea.
Andrea - 21 Jan 2004 07:48 GMT
> > > > A while ago I posted here about my daughter, now it's my sons turn.
> > > >
[quoted text clipped - 52 lines]
> > --
> > Andrea.
They just told me to go home, and return if he did it again. When my
daughter had a fit they kept her in overnight.
I have got my baby a dr's appointment for Friday.

Signature
Andrea.
TVA12082208 - 21 Jan 2004 22:46 GMT
Hi Andrea,
please, read the thread about pyridoxine, and you might also want to contact
the moms of the below list. They will be of great help to you.
All the very best to you and your babe!
Katharina
PS
pyridoxine is Vitamine B6
http://b6saveslives.com/
quote from this website:
----------------------------
Vitamin B6 Saves Lives!
Hello & Welcome! We hope that within these pages you are able to find what you
are looking for. If you have any questions, feel free to e-mail us. We are
always happy to answer questions about our kids and we feel very strongly about
advocacy for children with special needs. Our dream is that one day no one will
need to make use of the information contained in these pages. Our sincere hope
is, that if you are here because you have a sick child, that you find the
information needed to help your child. We have all been there. We know how
heart- breaking it is to watch your infant in a state of desperate illness.
Please, take a while to look around, read our stories and visit our links to
other sites that may help you. Then feel free to e-mail us with any questions
you may have. There is a lot to take in, a lot of research to be done and a lot
of questions to be asked…so ask away!
Please note: The information contained within this site is not intended to
replace medical care by a physician. We are a group of parents sharing our
stories, we are not medical professionals.
This site has been established to increase awareness of a genetic disorder
called Pyridoxine Dependency (PD). Pyridoxine is Vitamin B6. PD is an inborn
error of metabolism. Inborn means that a person is born with the condition, and
metabolism is the process by which chemicals are used within the body. So, when
a person has an inborn error of metabolism, they are born with a condition that
doesn’t allow their body to use certain chemicals in quite the right way.
Pyridoxine Dependency results in seizures. These seizures may initially respond
to anti-seizure medications, but will only fully be controlled with high doses
of Vitamin B6. Many children with PD are taking only Vitamin B6 with good
seizure control. Some kids with PD are taking other medication(s) in addition
to their daily Vitamin B6. These kids may have another type of seizures in
addition to the B6 responsive seizures. Others may have sustained brain damage
(from seizures and resulting in more seizures) before they were given a PD
diagnosis. Whatever the situation, there are many families for whom Vitamin B6
has been the miracle in answer to their prayers.
Another thing to take note of: Even in people who are not B6 Dependent (that is
those with Pyridoxine Dependency), B6 can still work as an anti-seizure
medication. These people are said to have B6 (or Pyridoxine) Responsive
seizures. These people take Vitamin B6 in addition to other anti-seizure
medications. It is important to note that this IS significant, as many people
with Epilepsy must take multiple medications to control their seizures.
_____________end of quote.
Best to you all,
Katharina
>Subject: 7 month old baby
>From: "Andrea" andrea22_uk@(nospam)hotmail.com
[quoted text clipped - 10 lines]
>
>Should we be concerned?
ROSALIE PILONE - 25 Jan 2004 01:10 GMT
Hi,
I have 4 children and none of them has ever done that. I would have
that behavior checked out. Not that I'm saying anything is wrong, but
just to be on the safe side. Because you never know when it would happen
again it's good to know what it is you are dealing with if anything . I
hope your baby is ok. My children range in ages from 25-19. I have two
19 year olds. The boy suffered from his first seizure Jan 5.
Scared the day lights out of me and my husband. What a way to start the
new year. Right? Well we are waiting to go to the neurologist to see
results of EEG.
I hope your baby is fine. Like I said It's always good to be safe than
sorry.
Rose
Andrea - 25 Jan 2004 13:13 GMT
> Hi,
> I have 4 children and none of them has ever done that. I would have
[quoted text clipped - 9 lines]
> sorry.
> Rose
My children are all little yet. 7,5.4.2 and 7months.
People warn me I'm going to have my hands full when they are teeneagers! I
have 4 boys and a girl.
I wish you all the best of luck, and hope you get some answers at the
appointment.
Best wishes,

Signature
Andrea mom of 5.
Rachel - 28 Jan 2004 00:01 GMT
Andrea,
My son's seizures started at about 7 months old after his 3rd DTaP
vaccination. They were breif...the first time I found him slouched over and
stiff, and he wanted to sleep following the episode. I highly recommend
taking your child to a pediatric neurologist and having an EEG and MRI done.
My son's seizures escallated from that point, until we found a good
combination on medication which in turn caused a developmental delay.
My son had an abnormality in his right frontal lobe which was removed when
he was 18 months old (last April). He is on 1 of 2 meds that he took prior
to surgery, and is doing well. His speech is still delayed, but I see
improvement every day.
Rachel
> A while ago I posted here about my daughter, now it's my sons turn.
>
[quoted text clipped - 5 lines]
>
> Should we be concerned?