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Medical Forum / Diseases and Disorders / Epilepsy / January 2004

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Went to neurologist

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Sasha - 11 Jan 2004 03:38 GMT
I saw the neurologist on Thursday and he said from what I told him and what
my psychiatrists told him that it sounded like complex partial seizures.  He
ordered an EEG and I had it Friday with special instructions to look for
temporal lobe seizures.  The tech who did it did a much more advanced type
test than what I had in the past and he also said from the report he got
that it sounded like complex partial seizures but he could not tell me
anything about the test because it would be unethical.  So I get an MRI on
Wednesday and I have a return appointment with the neurologist on the 27th.
I really don't want to wait until then to know the results though.  He had
mentioned trying the med trileptal on me.  Also, do they take away the
driver's liscense for complex partial seizures?  And my internet has been
down a lot lately so don't mind if I don't respond to your responses right
away.

Sasha
Daz_n_Pat - 11 Jan 2004 05:54 GMT
>  Also, do they take away the
> driver's license for complex partial seizures?  And my internet has been
> down a lot lately so don't mind if I don't respond to your responses right
> away.
>
> Sasha

Hi Sasha,
I'm in New Zealand and I don't know if they take away your license for
complex partials where you are. But if you have ANY type of seizures you
should not be driving. I have complex partial seizures and always thought I
could drive. Now a man is dead because of that. That's no easy thing to live
with, knowing it could have been prevented.
Darryl.
Sasha - 12 Jan 2004 00:29 GMT
> >  Also, do they take away the
> > driver's license for complex partial seizures?  And my internet has been
[quoted text clipped - 10 lines]
> with, knowing it could have been prevented.
> Darryl.

That is terrible.  Now I'm scared to drive even more.  I have always been
scared to drive for fear I will hurt someone.  I have another two weeks or
so before I see the doctor again to find out if I'm having seizures for
sure.  Maybe I shouldn't drive even now?

Sasha
Bob - 11 Jan 2004 17:33 GMT
> I saw the neurologist on Thursday and he said from what I told him and what
> my psychiatrists told him that it sounded like complex partial seizures.  He
[quoted text clipped - 6 lines]
> I really don't want to wait until then to know the results though.  He had
> mentioned trying the med trileptal on me.

Hi Sasha

Glad to hear that some progress is being made. Do keep us posted on what's
happening!

> Also, do they take away the
> driver's liscense for complex partial seizures?

It depends on where you live. If you're in the US, the website at:
http://www.ncsl.org/programs/health/pcepilepsy.htm
gives some information on the various state requirements. Also look at:
http://www.epilepsyfoundation.org/answerplace/Social/driving/statedrivinglaws.cfm

> And my internet has been
> down a lot lately so don't mind if I don't respond to your responses right
> away.
>
> Sasha

All the best to you!

Bob
Sasha - 12 Jan 2004 00:34 GMT
Thanks for the info.  I am afraid to ride the bus.  I do all the errands
because I don't work so I don't know how getting groceries or things like
that will go.  My husband is going to be pissed if I lose my liscense and
ask him to drive me around.  I will still be glad to know what is wrong with
me and get treatment, but this could be a major inconvenience.  I guess it
is good to know that I shouldn't be driving before I hurt someone.

Sasha

> > I saw the neurologist on Thursday and he said from what I told him and what
> > my psychiatrists told him that it sounded like complex partial seizures.  He
[quoted text clipped - 18 lines]
> http://www.ncsl.org/programs/health/pcepilepsy.htm
> gives some information on the various state requirements. Also look at:

http://www.epilepsyfoundation.org/answerplace/Social/driving/statedrivinglaws.cfm

> > And my internet has been
> > down a lot lately so don't mind if I don't respond to your responses right
[quoted text clipped - 5 lines]
>
> Bob
Bob - 12 Jan 2004 00:55 GMT
> Thanks for the info.  I am afraid to ride the bus.  I do all the errands
> because I don't work so I don't know how getting groceries or things like
> that will go.

That shopping can actually be a fun shared experience!

> My husband is going to be pissed if I lose my liscense and
> ask him to drive me around.

He would be a lot more pissed if you ran the family car into a telephone pole and
then the insurance premium would go up too.

> I will still be glad to know what is wrong with
> me and get treatment, but this could be a major inconvenience.

We all have to live with it. Be thankful that it's not cancer or something else even
worse.

> I guess it
> is good to know that I shouldn't be driving before I hurt someone.

You might want to wait until you find out for sure and then if it can be controlled
with the right drugs you may be able to drive again.

Bob

> Sasha
>
[quoted text clipped - 39 lines]
> >
> > Bob
Sasha - 12 Jan 2004 18:06 GMT
> > Thanks for the info.  I am afraid to ride the bus.  I do all the errands
> > because I don't work so I don't know how getting groceries or things like
> > that will go.
>
> That shopping can actually be a fun shared experience!

Ok.  My husband said a while back that he missed going shopping and being
able to get exact things he wanted that he saw there, so maybe it won't be
too bad.

> > My husband is going to be pissed if I lose my liscense and
> > ask him to drive me around.
>
> He would be a lot more pissed if you ran the family car into a telephone pole and
> then the insurance premium would go up too.

True

> > I will still be glad to know what is wrong with
> > me and get treatment, but this could be a major inconvenience.
>
> We all have to live with it. Be thankful that it's not cancer or something else even
> worse.

Yes, it could be worse.

> > I guess it
> > is good to know that I shouldn't be driving before I hurt someone.
>
> You might want to wait until you find out for sure and then if it can be controlled
> with the right drugs you may be able to drive again.

In CA it could only take 3 months or up to 1 year.  I will just have to deal
with it.  I just needed to comlain a little.

Also I've been noticing other things that could be seizures.  Like yesterday
my internet was finally up and running well so I wanted to browse the web,
but I kept getting up and running or maybe bounding and jumping (I wasn't
comepletey concious of what I was doing) out of the room and then I would
find myself in another room and wonder why I had gone there since I wanted
to sit still and browse the web.  Doesn't that sound like some kind of
seizure activity?  I was having the weird feeling like something wasn't
right before that too.  And I remember that when I was younger I used to
thrash my head around swinging my hair back and forth like a head banger
only sideways and I could never figure out why I did that.  It was
comepletely uncontrollable.

Sasha

> Bob
>
[quoted text clipped - 28 lines]
> > > http://www.ncsl.org/programs/health/pcepilepsy.htm
> > > gives some information on the various state requirements. Also look at:

http://www.epilepsyfoundation.org/answerplace/Social/driving/statedrivinglaws.cfm

> > > > And my internet has been
> > > > down a lot lately so don't mind if I don't respond to your responses
[quoted text clipped - 6 lines]
> > >
> > > Bob
Peter Beach - 12 Jan 2004 09:28 GMT
Hi Sasha,

My wife doesn't drive.  Nothing to do with epilepsy (it's our daughter who
is epileptic) - she just doesn't drive.  It's not a big deal - well only
when we go out to a party and we can't take turns to be the "responsible
driver" :-(

I think your husband will probably cope with the odd inconvenience.  *You*
may get pissed off with the inconvenience of having to have to ask for help.
Would you rather though go to someone's funeral, or know that people are
going to yours?

Just my $0.02.

Regards,

Peter Beach

> Thanks for the info.  I am afraid to ride the bus.  I do all the errands
> because I don't work so I don't know how getting groceries or things like
[quoted text clipped - 33 lines]
> > http://www.ncsl.org/programs/health/pcepilepsy.htm
> > gives some information on the various state requirements. Also look at:

http://www.epilepsyfoundation.org/answerplace/Social/driving/statedrivinglaws.cfm

> > > And my internet has been
> > > down a lot lately so don't mind if I don't respond to your responses
[quoted text clipped - 6 lines]
> >
> > Bob
Sasha - 12 Jan 2004 18:08 GMT
> Hi Sasha,
>
> My wife doesn't drive.  Nothing to do with epilepsy (it's our daughter who
> is epileptic) - she just doesn't drive.  It's not a big deal - well only
> when we go out to a party and we can't take turns to be the "responsible
> driver" :-(

You know I really hate driving, and I've always wished I didn't have to, but
riding the bus seems just as stressful.

> I think your husband will probably cope with the odd inconvenience.  *You*
> may get pissed off with the inconvenience of having to have to ask for help.
> Would you rather though go to someone's funeral, or know that people are
> going to yours?
>
> Just my $0.02.

Ok. Thanks,
Sasha

> Regards,
>
[quoted text clipped - 43 lines]
> > > http://www.ncsl.org/programs/health/pcepilepsy.htm
> > > gives some information on the various state requirements. Also look at:

http://www.epilepsyfoundation.org/answerplace/Social/driving/statedrivinglaws.cfm

> > > > And my internet has been
> > > > down a lot lately so don't mind if I don't respond to your responses
[quoted text clipped - 6 lines]
> > >
> > > Bob
CyberCafe - 13 Jan 2004 07:46 GMT
> I saw the neurologist on Thursday and he said from what I told him and what
> my psychiatrists told him that it sounded like complex partial seizures.  He
[quoted text clipped - 3 lines]
> that it sounded like complex partial seizures but he could not tell me
> anything about the test because it would be unethical.

If they don't find anything on the EEG, don't worry about it as they probably
will repeat it in the future.  Generally, the EEG only shows abnormal brain
waves when seizure activity is occuring.  The most exciting thing for you though
is that they are at least looking at the possibility of seizures.

> So I get an MRI on
> Wednesday and I have a return appointment with the neurologist on the 27th.
> I really don't want to wait until then to know the results though.  He had
> mentioned trying the med trileptal on me.

> Also, do they take away the
> driver's liscense for complex partial seizures?

In my state, Wisconsin, they do take away your license, but you can get it back
after a certain period of being free of seizures. It's a pain in the butt, but
there's not a lot we can do about it.  Most likely, you will get your license
back.

Barb

>  And my internet has been
> down a lot lately so don't mind if I don't respond to your responses right
> away.
>
> Sasha
 
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