Everyone, I'm in the middle of this thing right now (and quite upset).
And, I'm waiting for my doctor's office to call me back.
Yesterday, when I went home, I read my schedule (or at least I thought I
did) and I was to go in at 12:30 today.
It's about 8:45 am now and one of my managers just called me to ask me
why I was not at work.
I forgot to go to work. I just forgot to go.
I thought I was scheduled at 12:30. I was going to call the doctor in
the am about feeling sick yesterday and possibly call in sick today and
then this. . .
I'm scared.
I will write back after their office calls back. The message I left was
asking them to please see if they could move up my appointment with the
new neurologist. God, if this is n't reaason, I dont' know what is.
Well, the doctor said "we have a pattern here and are on the right
track." And, that I should call if I pee on myself or fall down. Nice.
I'm not sure if that makes me feel better or not?
She wrote my excuse for work and it says to excuse me from work Sunday
and Monday "due to [my] medical condition". I don't about you, but why
call "it" a "medical condition" if I haven't been diagnosed yet?
Thanks for listening. I'm so glad I found this group. I hope that all of
my rambling is okay with you.
Karen
gaross - 29 Jul 2003 02:45 GMT
While I think of it, if your Doctor decides you DO have a 'Seizure
Disorder', you could ask her if she has your Blood Type on file (hopefully),
and whether you should get a Medic Alert Necklace or Bracelet. (Medic Alert
need the blood type for the computer file and bracelet engraving.) My
seizures are listed by them as 'Seizure Disorder', although others here have
had 'Epilepsy' engraved on ones they got made themselves (non-Medic Alert
ones).
I prefer the Official one, since it has a Collect Phone Number that's
good anywhere in the world, if you travel. And there's no additional cost
unless you want to make a charitable donation (Tax Deductible in some
countries). They send a reminder once per year to make sure you didn't
move and forget to tell them, or change Doctors or (up to 3) Emergency
Contacts. I forgot to look up through the threads to see which type of szr.
you have, but if you're 'losing bladder control' or falling down, they're
likely Complex Partials or Grand Mals. Normally with a Simple Partial, you
just get an Aura -- dizzy, whirling feeling which is a marker of the simple
partial. The Dr. could advise if your type should have a Bracelet or not.
For ~$35. Canadian, it's the Cheapest Insurance I ever bought-- especially
before I was controlled, and woke up in Hospital 5-6x over the first 6-9
months until I started to get nearer to full control.
Although I haven't had a seizure now since June /98 it's important if you
were wheeled into 'emerg.' that they don't give you something that might
conflict with your meds. And they'd only know your meds. if they have
somewhere to find them -- Medic Alert has them listed on file ... end
commercial :-< G.R.
> Well, the doctor said "we have a pattern here and are on the right
> track." And, that I should call if I pee on myself or fall down. Nice.
[quoted text clipped - 7 lines]
> my rambling is okay with you.
> Karen
k s e - 29 Jul 2003 04:55 GMT
Gaross, I will ask about the Medic Alert bracelet. . . thank you :)
> Everyone, I'm in the middle of this thing right now (and quite upset).
> And, I'm waiting for my doctor's office to call me back.
[quoted text clipped - 16 lines]
> asking them to please see if they could move up my appointment with the
> new neurologist. God, if this is n't reaason, I dont' know what is.
When my memory/recall was really, really, really bad, I'd tell people that
it was like the forgotten event never happened. Many times I had no idea
what I had forgotten unless somebody told me. Sometimes even if they told
me, I just couldn't recall it. When my daughter graduated from high school,
about a week later the memory was totally gone from my head. I mean, I sat
there through the entire long commencement ceremony and could not recall ANY
part of the event. For several months I tried to figure out if the event
was inside or outdoors, and I just didn't know. That fall, a friend showed
me a few pictures taken during the ceremony, and then I could recall SOME of
the event.
It wouldn't be so bad if you knew in advance what you were going to forget
so you could take notes, set an alarm clock, or do what you can to help
recall stuff, but you don't know in advance what you will and will not
recall, so you are totally unprepared to help yourself.
I can recall tons of times where I would let food rot in the bottom drawers
of my refrig because I didn't know I had put food in there. Same thing for
the microwave; have made a lot of multiple meals because I just didn't know
I'd already started cooking food. The same thing would happen when
shopping. I'd buy a pair of slacks in one store, drive to the next store,
and buy another pair of slacks because I didn't recall buying the first
pair.
Most of the above happened before I was diagnosed and things got a little
better, at lease I didn't have the 'amnesia' type thing that lasted weeks on
end, but there were still significant problems with memory/recall. It has
taken years and years to get some of that ability back. It's not normal,
but much, much, much better than it used to be.
Boy, not being able to remember stuff can get you into a lot of hot water.
I've never had a doctor who really seemed to understand how serious and
possibly dangerous this was.
Barb