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Medical Forum / Diseases and Disorders / Epilepsy / July 2003Dying in their Sleep?
Hello, Has anyone every heard of someone dying of an epileptic fit in the night, whilst asleep. Best regards, Maxine & Martin maxine39@NOSPAMtesco.net Yry this: http://www.erf.org.uk/newsudep.htm Michael > Hello, > [quoted text clipped - 6 lines] > > maxine39@NOSPAMtesco.net >Yry this: >http://www.erf.org.uk/newsudep.htm > >Michael "Epilepsy is the most common serious neurological condition affecting more than 450,000 people in the UK. Every year official figures report about 1,000 people die in the UK as a result of epilepsy. This is more than the combined figures for cot deaths and AIDS." So why can't we get this over to the media? Is it just because it's taboo here?  SignatureMalcolm > Hello, > > Has anyone every heard of someone dying of an epileptic fit in the night, > whilst asleep. Yes, a child, but she had other medical problems that were severe and probably played a role in her death. Most beautiful little girl God ever created, and she only lived a few short years. Barb > Best regards, > > Maxine & Martin > > maxine39@NOSPAMtesco.net >Hello, > [quoted text clipped - 4 lines] > >Maxine & Martin Hi, My daughter died in her sleep in 1999 at the age of 14 due to a massive grand mal. She ashyxiated. She was in perfect health otherwise. We have our beliefs as to what happened, but do not have proof. We have talked to a few people and believe it had to do with her medication. Topamax. If you would like to talk about this you may email me. Kelly There might be a topic under efa.org website-- it's sometimes called SUDEP (Sudden Unexplained Death from Epilepsy). A talk I went to about 3 years ago suggested that some people might go into a 'mental fibrillation' and lose control of their heartrate or breathing control without realizing it, or waking up. At that time, they hadn't found any Markers or types of szrs. that were more or less prone than others for followup study. One of the speakers suggested the people involved might have had Other pre-existing conditions that hadn't been detected or documented (heart effects, etc.) that had contributed to the few they had tried to follow-up on. The percentage of people involved (they suggested) were small, so it was 'rare'. One is too many, but that's what they had at the time. G.R. > >Hello, > > [quoted text clipped - 11 lines] > to talk about this you may email me. > Kelly
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