 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Epilepsy / July 2003Off to New Doctor
Hello everyone, I had my follow up today and my neurologist told me that she needs to refer me to a new clinic because this is "over her head'. She says I specifically need an epileptologist and not a neurologist. She is referring me to an epilepsy group and August 11th, 2003 I will be admitted for a 7-10 day stay. They will have all these leads hooked up to me, administer tests, and take me off all my medicines. They will be conducting tests to pinpoint where my seizures are coming from and then go from there. I wonder no one ever thought of this until now? I've had this condition since 1990 and have never gone inpatient to have these tests done. I'm actually excited hoping maybe something will finally be done. I have an appointment on Friday witht he Ear Head and Neck doctor to schedule surgery to have the VNS removed. Cyberonics and my doctor did concur. Anyone ever gone in for extensive inpatient stay to figure out their seizures? If so any luck? I also asked about the ketogenic diet today and once again told not an option that it wouldn't help. Jennifer Hi Jennifer, I had the video EEG done at UC Davis last year. Unfortunately, the five days I was inpatient, I didn't have one seizure - so it was useless for me. I wish you the best and hope they find what is causing your seizures! Trish > Hello everyone, > I had my follow up today and my neurologist told me that she needs to [quoted text clipped - 16 lines] > > Jennifer That had to be depressing. They told me on my last EEG that I am constantly having seizures without realizing it. I do know that if they take me off my meds it won't be long before a seizure happens. Jennifer > Hi Jennifer, > [quoted text clipped - 28 lines] > > > > Jennifer Hi Jennifer, My son was in twice for this last year. The first time he did not have a seizure. The second visit he did......and he went for his SPECT scan. That was in April we had to wait till the August for the results. Simon is not operable. I hope it works out for you. Don't worry about the procedure, as there is nothing to worry about, just take plenty of reading material and puzzle books, if you like them. Fiona > Hello everyone, > I had my follow up today and my neurologist told me that she needs to [quoted text clipped - 16 lines] > > Jennifer I had to go to the hospital and get all my MRI's and CT scans as well as medical records. I got reports from my doctor and the films showing I still have AVM's (artrovenous malformations). In case anyone doesn't know, you have arteries and then a thin tube to thin out the blood that turns into a vein. I have some without the thin tube so it's pumping blood straight from an artery to a vein. I also got my EEG results showing I continously have seizures at a 6 hrtz level, whatever that means, during consciousness, drowsiness and even during sleep. I know about bringing a lot of stuff, they only have a community lounge for TV and phone. That will suck. I plan on going to the craft store and getting some cross-stitch. I also got some books, crossword puzzles and my CD player so I can listen to decent music. Jennifer > Hi Jennifer, > My son was in twice for this last year. The first time he did not have a [quoted text clipped - 30 lines] > > > > Jennifer
|
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.