Medical Forum / Diseases and Disorders / Epilepsy / December 2003
Complex Partial Seizure?
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Sasha - 13 Dec 2003 18:51 GMT Hi. I am 31 and have had mental health problems since childhood. I think I have depression and ocd, but there are also some very weird things that do not fit into a psychiatric diagnosis. I have been going to different doctors trying to find help, but the meds aren't helping with this one problem. I went in last week for some intensive psychological testing, and the dr. suggested that from what I described, I might be having complex partial seizures. Also my friend who has a brother with epilepsy also said that it sounded like seizres, so I had looked it up and read that it was not uncommon for these types of seizures to be misdiagnosed as psychiatric problems, and some of what was described did make sense.
I will describe the phenomenon. It is usually triggered by some intense emotion, anxiety, sadness or anger. Then these waves of horrible feelings come over me and my body is filled with extra energy. It feels as if something is moving very fast, back and forth, inside my head. My concious self separates from my body and it is as if my body is taken over by something, although I know it is just my brain gone haywire. I feel a great need to express this energy in a destructive way. I want to destroy things, but this has gotten me in trouble in the past so I have enough control to hit myself instead. I mostly give myself lots of bruises or sometimes hit myself in the head. The feelings are so intense and so is the urge to move fastly and destoy. I have also taken to screaming as a way of dealing with the intense emotions and scream and cry. It is like something from outside myself takes me over and is making me feel horrible. I cannot describe the feeling, but it is so horrible I have sometimes wanted to kill myself so I do not have to endure another episode. Can anyone here relate to this as a partial complex seizure?
Also I have had neurological testing for sleeping problems and they didn't find any seizures so I told the psych doctor this, but later remembered that maybe I had the tests done before these problems. I had an eeg and an mri. Can these tests tell for sure if a person has seizures, or does the person have to be having one during the test before it will show on the tests? I'm sorry this is so long with so many questions, but I really want this to stop so I need answers.
Sasha
Bob - 14 Dec 2003 02:12 GMT > Hi. I am 31 and have had mental health problems since childhood. I think I > have depression and ocd, Hi Sasha and welcome to the group!
Those symptoms can both come with epilepsy/seizures.
> but there are also some very weird things that do > not fit into a psychiatric diagnosis. I have been going to different > doctors trying to find help, but the meds aren't helping with this one > problem. Which meds are you taking?
> I went in last week for some intensive psychological testing, and > the dr. suggested that from what I described, I might be having complex > partial seizures. Also my friend who has a brother with epilepsy also said > that it sounded like seizres, so I had looked it up and read that it was not > uncommon for these types of seizures to be misdiagnosed as psychiatric > problems, and some of what was described did make sense. In my case, I went to psychiatrists because they are MD's and doctors of the head, as opposed to the rest of the body. They never diagnosed me for seizures! I was seeing the wrong type of doctor. You need to see a neurologist!
> I will describe the phenomenon. It is usually triggered by some intense > emotion, anxiety, sadness or anger. Then these waves of horrible feelings [quoted text clipped - 12 lines] > do not have to endure another episode. Can anyone here relate to this as a > partial complex seizure? If it was a Complex Partial Seizure, you would not remember the period while you were having them, by definition. There would be a time-gap in your memory. It sounds like seizures, but perhaps a variation on type of Simple Partial Seizures.
> Also I have had neurological testing for sleeping problems and they didn't > find any seizures so I told the psych doctor this, but later remembered that [quoted text clipped - 3 lines] > sorry this is so long with so many questions, but I really want this to stop > so I need answers. There are EEG tests that can be run overnight in the hospital or with a portable monitor. There are a number of ways that an EEG can be done so as to detect epileptic-spike waves. See a neurologist!
Bob
Sasha - 14 Dec 2003 19:12 GMT > > Hi. I am 31 and have had mental health problems since childhood. I think I > > have depression and ocd, [quoted text clipped - 9 lines] > > Which meds are you taking? Right now I am taking Abilify and Surmontil, but I have tried many in my lifetime.
> > I went in last week for some intensive psychological testing, and > > the dr. suggested that from what I described, I might be having complex [quoted text clipped - 6 lines] > head, as opposed to the rest of the body. They never diagnosed me for seizures! > I was seeing the wrong type of doctor. You need to see a neurologist! I suppose I should see both types of doctor. I wonder if my psych doctor could refer me to a neurologist.
> > I will describe the phenomenon. It is usually triggered by some intense > > emotion, anxiety, sadness or anger. Then these waves of horrible feelings [quoted text clipped - 17 lines] > sounds like seizures, but perhaps a variation on type of Simple Partial > Seizures. I read some more about it and you are right. I guess that doctor didn't really know what he was talking about. But maybe he did get it right about being some type of seizre. I guess if the psych doctor's can't figure it out as being something psychiatric then they have to try something else. I think it was the suddeness and intensity of the emotions along with the feeling of violent movement in my head that made him think of seizures.
> > Also I have had neurological testing for sleeping problems and they didn't > > find any seizures so I told the psych doctor this, but later remembered that [quoted text clipped - 7 lines] > monitor. There are a number of ways that an EEG can be done so as to detect > epileptic-spike waves. See a neurologist! I suppose I should. The eeg I had before only took 20 minutes. I hope I can find a goood neurologist.
Thanks, Sasha
> Bob Bob - 14 Dec 2003 21:30 GMT > > > Hi. I am 31 and have had mental health problems since childhood. I > > > think I > > > have depression and ocd, It's probably obvious, but let me explicitly state that I am not a doctor and am not qualified to give a professional medical opinion. I'm just a fellow sufferer who has been improperly treated by the wrong type of doctors like you. Having said that, I wonder if you really have had any "mental health problems" at all, or if that has been a wrong diagnosis all along.
> > Hi Sasha and welcome to the group! > > [quoted text clipped - 9 lines] > Right now I am taking Abilify and Surmontil, but I have tried many in my > lifetime. One is a tranquilizer, which is what they used to treat me with too, and used to treat schizophrenia & the other is an anti-depressant. They don't appear to be used at all to treat seizures. You can look them up at: http://www.rxlist.com/
> > > I went in last week for some intensive psychological testing, and > > > the dr. suggested that from what I described, I might be having complex [quoted text clipped - 12 lines] > > I suppose I should see both types of doctor. If you go to a psychiatrist, they look for psychiatric problems. That was my experience.
> I wonder if my psych doctor > could refer me to a neurologist. I wonder why he hasn't done that already without being asked? Professional vanity? Perhaps you could request a "second opinion" or have your general practitioner refer you to a neurologist.
> > > I will describe the phenomenon. It is usually triggered by some intense > > > emotion, anxiety, sadness or anger. Then these waves of horrible [quoted text clipped - 61 lines] > I suppose I should. The eeg I had before only took 20 minutes. I hope I > can find a goood neurologist. A neurologist is a doctor who has graduated from medical school and then has undergone further training to specialize in neurology. A neurologist can undergo further training and specialize in epilepsy. That's the type I now see, an epileptologist.
See a neurologist and he should refer you to an epileptologist if that is indicated.
Best of luck to you!
Bob
Sasha - 15 Dec 2003 18:27 GMT > > > > Hi. I am 31 and have had mental health problems since childhood. I > > > > think I [quoted text clipped - 5 lines] > said that, I wonder if you really have had any "mental health problems" at all, > or if that has been a wrong diagnosis all along. Interesting. The thing is different meds work for these disorders than anticonvulsants. The Abilify I take seems to help the ocd, but I have read that ocd can show up on brain scans and is actually a neurological disorder, so it could be related somehow. The depression seems to be something that never completely goes away, although it improves with meds. I wonder how these problems can relate to seizures if I'm having them.
Do you mind if I ask you to describe some of your seizures and the symptoms you have? I'm curious of others' experiences.
> > > Hi Sasha and welcome to the group! > > > [quoted text clipped - 14 lines] > be used at all to treat seizures. You can look them up at: > http://www.rxlist.com/ But they do help with *some* of my symptoms. I didn't mention, but I have had visual hallucinations, but I recognise them as hallucinations and don't have any problems with knowing reality. I wonder if these could be seizures too? I haven't had any lately since being on the antipsychotics except for seeing a small white light now and then. I'm confused about this.
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> If you go to a psychiatrist, they look for psychiatric problems. That was my > experience. [quoted text clipped - 5 lines] > vanity? Perhaps you could request a "second opinion" or have your general > practitioner refer you to a neurologist. Ok. I didn't explain this very well, but I just got a new psych doc because the last one didn't know what else was wrong with me and the one before gave me like 10 diagnosises. So the new one sent me in for psychological testing to a psychologist who is good at making diagnosises, and he is the one who said it sounded like seizures. So I am waitng for him to get the results of the psych test and give them to the psych doc and then see what is going on. So I've got to wait at least until Friday. Maybe the psych doc will know a good neurologist.
snip
> > I suppose I should. The eeg I had before only took 20 minutes. I hope I > > can find a goood neurologist. [quoted text clipped - 8 lines] > > Best of luck to you! Ok thanks! I don't like this waiting though. Maybe I shouldn't wait on them, but I don't want to have to pick a doctor at random.
Sasha
> Bob Bob - 15 Dec 2003 21:23 GMT > > I wonder if you really have had any "mental health problems" at > > all or if that has been a wrong diagnosis all along. [quoted text clipped - 5 lines] > never completely goes away, although it improves with meds. I wonder how > these problems can relate to seizures if I'm having them. I was given tranquilizers for this many years ago myself and sometimes they seemed to help. I only remember a few, but reserpine & valium were 2 and I was even given phenobarbital as a tranquilizer then although I take it today for epilepsy. My depression is constantly with me.
> Do you mind if I ask you to describe some of your seizures and the symptoms > you have? I'm curious of others' experiences. Keep in mind that everybody is different and people have posted here with symptoms that are closer to yours than mine are, but never exactly the same. It's something like a large restaurant menu or catalog with many items to select from and various people have various different combinations. Hopefully, some others will share some symptoms that are closer to yours.
I have Auras and the descriptions that some other people have given seem to agree with mine. There will be unique indescribable "feelings" in the head at a mental or emotional level, but they are not mental/emotional in and of themselves. They are very unpleasant, but I think that only people who have them also would know what I was trying to describe. They often come & go after a few moments.
At other times, the Aura would start & then increase & buildup in intensity. I would then feel a tingling in my back between my shoulder blades that would suddenly build up to a climax by shooting up the back of my neck and wrap itself in a tight band around my forehead & temples with a feeling of sweat on my forehead. Then it was all over - and there would be a feeling of relief. I called these my Simple Partial Seizures (because of the physical "seizing" effect, but my doctor says that it is all "seizure" activity and there are people in this newsgroup who keep calling an Aura a Simple Partial Seizure, so we are left without some useful terms to describe what is going on.
I only knew about my Complex Partials because my wife told me about them. There is a gap in the memory and one doesn't remember that period in time. There is no loss of consciousness, but it's sometimes called a state of "altered" consciousness. In one case, my wife, uncle, & myself were seated at an outdoor restaurant when I had one. I apparently started grapping wildly at my shirt pockets and repeating "where are my cigarettes? where are my cigarettes?" and did & said some other silly things. I suppose they were sitting on the table. I had no memory of that at all!
> > You can look them up at: > > http://www.rxlist.com/ [quoted text clipped - 4 lines] > too? I haven't had any lately since being on the antipsychotics except for > seeing a small white light now and then. I'm confused about this. Those drugs I used to take had some beneficial effects also.
> > Perhaps you could request a "second opinion" or have your general > > practitioner refer you to a neurologist. [quoted text clipped - 7 lines] > So I've got to wait at least until Friday. Maybe the psych doc will know a > good neurologist. Sounds like you will get to see one then.
> > Best of luck to you! > > Ok thanks! I don't like this waiting though. Maybe I shouldn't wait on > them, but I don't want to have to pick a doctor at random. A specialist normally wouldn't see you without another doctor's referral, so you probably don't have a choice.
Bob
Sasha - 17 Dec 2003 18:08 GMT > > > I wonder if you really have had any "mental health problems" at > > > all or if that has been a wrong diagnosis all along. [quoted text clipped - 10 lines] > even given phenobarbital as a tranquilizer then although I take it today for > epilepsy. My depression is constantly with me. Sorry about your depression. At my best I can still score moderate depression on a depression test. I think it is ingrained in my personality.
> > Do you mind if I ask you to describe some of your seizures and the symptoms > > you have? I'm curious of others' experiences. [quoted text clipped - 30 lines] > did & said some other silly things. I suppose they were sitting on the table. I > had no memory of that at all! Thank you. It must be really disturbing to have no memory of what you have done. Sometimes I get this weird feeling of having moved about very fast but I can't quite remember it exactly. I don't know if that means anything, but it is a weird feeling.
Sasha
> > > You can look them up at: > > > http://www.rxlist.com/ [quoted text clipped - 30 lines] > > Bob CyberCafe - 15 Dec 2003 01:09 GMT > Hi. I am 31 and have had mental health problems since childhood. I think I > have depression and ocd, but there are also some very weird things that do [quoted text clipped - 6 lines] > uncommon for these types of seizures to be misdiagnosed as psychiatric > problems, and some of what was described did make sense. Yeah, I've heard and read that too; the thing about trouble diagnosing correctly or getting misdiagnosed as a psych problem. I had problems getting diagnosed or referred initially. Eight years later, the seizures were very bad and I went to another doctor, but it took three months of testing before they came up with an answer, which was epilepsy. By the way, one of the first tests neurology will run is a psych test (at least with this kind of suspected seizure disorder; i.e., simple partial and complex partial seizures).
Depression is very common with the type of seizures we're talking about. There are several studies that cite statistics on this, and I've seen percentages anywhere from a third to 60 percent having depression with epilepsy (it probably depends on what part of the brain is involved with the seizure activity).
> I will describe the phenomenon. It is usually triggered by some intense > emotion, anxiety, sadness or anger. Then these waves of horrible feelings [quoted text clipped - 12 lines] > do not have to endure another episode. Can anyone here relate to this as a > partial complex seizure? I have complex partial seizures (started with simple partial seizures), and everyone is different as far as symptoms go. I haven't noticed any correlation between emotions causing seizures although the negative emotions are more intense during a seizure. The inside the head symptoms sound familiar to me and I don't know how to describe them really. I've never had heightened physical energy although my brain can race. I'm usually bone tired after a seizure, played out, spent; it's not the same kind of tired like when you are ready to retire for the night. Yeah, seizures make me feel horrible although there is no physical pain involved. I really hate having them.
You know, it's funny you mentioning the fact that the whole body is involved although you know it's coming from the brain. That is my sense too.
> Also I have had neurological testing for sleeping problems and they didn't > find any seizures so I told the psych doctor this, but later remembered that > maybe I had the tests done before these problems. I had an eeg and an mri. > Can these tests tell for sure if a person has seizures, or does the person > have to be having one during the test before it will show on the tests? The MRI is looking for structural changes/abnormalities and most of us are okay that way. The EEG is the most important test for us although a person has to be exhibiting some kind of abnormal brain wave activity at the time of the test for the EEG to record the abnormal brain waves. I can specifically recall having three EEGs; two were normal, one was abnormal. The first EEG, which turned out normal, was taken when I was having a lot of problems with pretty much constant seizure symptoms, but that EEG showed nothing, and it was a deprived sleep EEG too. In my opinion, that first EEG should have showed something, but it didn't.
> I'm > sorry this is so long with so many questions, but I really want this to stop > so I need answers. I was really happy to get the diagnosis of epilepsy because it had been going on so long and I'd gotten negativism from most doctors. I really had thought I was bonkers, totally bonkers. It was finally over and now we could get on to resolving this problem. I'm telling ya, life is so much better now because I've had excellent control of my seizures with medications.
Barb
> Sasha Sasha - 15 Dec 2003 18:47 GMT > > Hi. I am 31 and have had mental health problems since childhood. I think I > > have depression and ocd, but there are also some very weird things that do [quoted text clipped - 14 lines] > run is a psych test (at least with this kind of suspected seizure disorder; > i.e., simple partial and complex partial seizures). Well I just took a psych test, the MMPI, so I can just get the results transferred or something. I am hoping the psych docs will help me find a neurologist, or do they not work together? I just can't see all my problems being seizure related but I don't know that much about it. All I know is that the psych meds only seem to treat half my problems and no psych doc can figure out how to treat the other problems, which could be seizures.
> Depression is very common with the type of seizures we're talking about. There > are several studies that cite statistics on this, and I've seen percentages > anywhere from a third to 60 percent having depression with epilepsy (it probably > depends on what part of the brain is involved with the seizure activity). That makes sense. Especially if it is in the temporal(?) lobe which controls emotion. Sometimes I have these crying spells fo no reason. I wonder if that could be seizure activity too?
> > I will describe the phenomenon. It is usually triggered by some intense > > emotion, anxiety, sadness or anger. Then these waves of horrible feelings [quoted text clipped - 17 lines] > between emotions causing seizures although the negative emotions are more > intense during a seizure. I have heard of seizures being triggered by stress, is this true? Intense emotion can be caused by stress, or am I just grasping at straws here?
The inside the head symptoms sound familiar to me
> and I don't know how to describe them really. I've never had heightened > physical energy although my brain can race. I'm usually bone tired after a
> seizure, played out, spent; it's not the same kind of tired like when you are > ready to retire for the night. The way I feel after one of these episodes is like I have been broken. Like something inside of me has been broken. I don't know how else to describe it. I feel kind of depressed tired, but not "bone tired". Is that the way most people feel after a seizure?
Yeah, seizures make me feel horrible although
> there is no physical pain involved. I really hate having them. > [quoted text clipped - 15 lines] > seizure symptoms, but that EEG showed nothing, and it was a deprived sleep EEG > too. In my opinion, that first EEG should have showed something, but it didn't. This sounds like a difficulty in the diagnostic process. It is not very encouraging in finding out what is wrong if the tests don't always work. Right now I am going through a good spell. I have periods of time when I have these episodes often and then periods when I don't. Is that something common to epilepsy? Anyway, I'm thinking maybe I should wait for a bad spell to get tested, but I don't want to have to endure another bad spell.
> > I'm > > sorry this is so long with so many questions, but I really want this to stop [quoted text clipped - 7 lines] > > Barb Well, I am not sure yet how to feel about possibly having epilepsy. I also worry if maybe I have developed a brain tumor to cause the seizures, but I guess an mri will be able to tell. It is good to know that there is hope of this stopping though.
Thanks, Sasha
> > Sasha gaross - 15 Dec 2003 21:13 GMT > > <cut from on earlier post>
> > > Also I have had neurological testing for sleeping problems and they didn't
> > > find any seizures so I told the psych doctor this, but later remembered that
> > > maybe I had the tests done before these problems. I had an eeg and an mri.
> > > Can these tests tell for sure if a person has seizures, or does the person
> > > have to be having one during the test before it will show on the tests? > > > > The MRI is looking for structural changes/abnormalities and most of us are okay
> > that way. The EEG is the most important test for us although a person has to be
> > exhibiting some kind of abnormal brain wave activity at the time of the test for
> > the EEG to record the abnormal brain waves. I can specifically recall having
> > three EEGs; two were normal, one was abnormal. The first EEG, which turned out
> > normal, was taken when I was having a lot of problems with pretty much constant
> > seizure symptoms, but that EEG showed nothing, and it was a deprived sleep EEG
> > too. In my opinion, that first EEG should have showed something, but it didn't.
> This sounds like a difficulty in the diagnostic process. It is not very > encouraging in finding out what is wrong if the tests don't always work. > Right now I am going through a good spell. I have periods of time when I > have these episodes often and then periods when I don't. Is that something > common to epilepsy? Anyway, I'm thinking maybe I should wait for a bad > spell to get tested, but I don't want to have to endure another bad spell. ****** An MRI is looking at Detail inside our heads down to fractions of a mm. If there is a blood clot or other problem it would show up usually. An EEG is measuring Electric spikes as they happen. If you didn't have Epileptic spikes (even if you Had Epilepsy) **while the test was running, the EEG won't show any waves related to seizures.
It's a 'difficulty in the diagnostic process' only like pointing a camera outdoors, and snapping a picture, then developing it to see if you have a Photo of a Robin flying by... No? Guess there are no Robins in my yard.. As far as I know, you have to be having some **measureable szr. activity while the test is going on, for it to trap that. That's why they sometimes use Flashing lights, sounds and other things which might trigger some types of szrs.
> > > I'm sorry this is so long with so many questions, but I really want this to stop
> > > so I need answers. > > > > I was really happy to get the diagnosis of epilepsy because it had been going on
> > so long and I'd gotten negativism from most doctors. I really had thought I was
> > bonkers, totally bonkers. It was finally over and now we could get on to > > resolving this problem. I'm telling ya, life is so much better now because I've
> > had excellent control of my seizures with medications. > > [quoted text clipped - 6 lines] > Thanks, > Sasha Sasha - 17 Dec 2003 18:04 GMT > > > <cut from on earlier post> > [quoted text clipped - 46 lines] > use Flashing lights, sounds and other things which might trigger some types > of szrs. See, I want definite proof. Maybe the anxiety of going for the test will trigger the episode, especially if they make me wait a long time. I don't know. I haven't had any in a while now, maybe I am due for one soon. I don't want to endure another one, but if it will help with the diagnosis...
Sasha
> > > > I'm sorry this is so long with so many questions, but I really want > this to stop [quoted text clipped - 20 lines] > > Thanks, > > Sasha M - 17 Dec 2003 16:52 GMT >I was really happy to get the diagnosis of epilepsy So was I. I was thrilled to lose my driving licence, get banned from caving and parachuting, and to set off on the road which has limited my social and professional life for the following 25 years.
 Signature Malcolm, Epilepsy Appreciation Society.
Sasha - 17 Dec 2003 17:59 GMT > >I was really happy to get the diagnosis of epilepsy > > So was I. I was thrilled to lose my driving licence, get banned from > caving and parachuting, and to set off on the road which has limited my > social and professional life for the following 25 years. I am relieved that there seems to be some understanding of what is wrong with me and a possible rememdy, but I am scared of losing my drivers liscense too.
Sasha
CyberCafe - 18 Dec 2003 05:25 GMT > >I was really happy to get the diagnosis of epilepsy > > So was I. I was thrilled to lose my driving licence, get banned from > caving and parachuting, and to set off on the road which has limited my > social and professional life for the following 25 years. Yeah, I know what you mean. I lost my license too, twice, but got it back. Boy, it was awful without a driver's liscense. My activities didn't change much because I really wasn't doing anything all that risky.
Barb
> -- > Malcolm, Epilepsy Appreciation Society. Chris Lesurf - 15 Dec 2003 06:38 GMT I've had epilepsy for the last 32yrs. Admittedly, I had caused brain damage by attempting suicide 4yrs before the first fit so I've obviously had a tendency to neurosis all my life. However, my epilepsy has never been completely controlled and this has meant that after 11yrs with employers were quite ahppy to accept that I had fits now and again, I have not been able to get a paid job for the last 20yrs.
I always had PMT but when clobazam was prescribed for my epilepsy it was continual rather than periodic as it is prescribed for girls with PMT. When I reached my menopause about 3yrs ago the associated effects on my memory began to limit a lot of my other activities and I became more and more depressed. I was sent to a psychiatrist but he just saw me once every six months and left me with supposed counselling from a Community Psychiatric Nurse. He was little use because when I said I couldn't even remember routines I'd had for everyday functions he said 'change your routines'. He couldn't understand that if I couldn't remember things that I'd been doing for years, I'd hardly be able to learn anything new !
This often led me to being in a downward spiral or worrying, forgetting, worying about forgetting and worrying even more. About a year ago, I came across an article in the UK Epilepsy Action megazine with lote of details about the effect of epilepsy on memory. Roundabout the same time I downloaded a web page about epilepsy sometimes having similar signs to schizophrenia. It suggested that over-prescibing anti-convulsant drugs can lead to these symptoms.
I thought educating professional advisers about these 2 factors would help them help me but they tokk no notice. It wasn't until I'd attempted suicide more than once and my husband and I did some research on bi-polar disorder (manic depression) and realised that I might have the rapid cycling type and actually suggested prescribing an anti-depressant that my psychiatrist summoned up the courage to ask my neurologist if she thpught it was safe to prescribe one that he agreed.
All of this took a year and my husband nearly broke down several times (without telling me). Now at last, I'm on an anti-depressant as well as 3 anti-convulsants. Before benzodiazepines were recognised as addictive, I was allowed to keep a supply of 2mg diazepam tablets for use before a day when it was particularly important for me not to have a fit. Their effect may have been placebo like and the anti-depressant may also be but if it works, so what.
The reason the psychaitrist was unwilling to prescribe anti-depressants was because they are known to reduce the effects of anticonvulsants but I kept telling him that I suffered far more from my depression than my epilepsy and didn't mind having a few more fits.
I've only gone into all these details to show you that there is sometimes light the end of the tunnel even if the tunnel is too bent to see it at present ! It's only over the last month or so that I've been able to think positively and tackle tasks I'd been frightened to try for years.
All the best,
Chris L.
> Hi. I am 31 and have had mental health problems since childhood. I think I > have depression and ocd, but there are also some very weird things that do > not fit into a psychiatric diagnosis. Sasha - 17 Dec 2003 18:42 GMT > I've had epilepsy for the last 32yrs. Admittedly, I had caused brain > damage by attempting suicide 4yrs before the first fit so I've obviously [quoted text clipped - 52 lines] > > Chris L. Thank you for your story. At one point one of my many psych diagnosises was Bipolar, but unfortunately they put me on lithium which didn't help I don't think I am bipolar. Anticonvulsants are popular to use for Bipolar too, but unfortunately I wasn't given any to see if it helped me. Oh yeah, I was on topomax briefly but it gave me glove and stocking peripheral neuropathy so I had to quit taking it. I was also on depakote briefly too 10 years ago, but I only remember it causing weight gain and giving me bruises. I hope they have some anticonvulsants with less side effects nowadays. And I take a tricyclic antidepressant because it has less side effects than the newer meds, so do you know if these interfere with anticonvulsants too? I need my antidepressants too.
Sasha
> > Hi. I am 31 and have had mental health problems since childhood. I think I > > have depression and ocd, but there are also some very weird things that do > > not fit into a psychiatric diagnosis. Chris Lesurf - 19 Dec 2003 19:01 GMT > Thank you for your story. At one point one of my many psych diagnosises was > Bipolar, but unfortunately they put me on lithium which didn't help I don't [quoted text clipped - 7 lines] > meds, so do you know if these interfere with anticonvulsants too? I need my > antidepressants too.
> Sasha I suggested lithium to my psychiatrist, but changed my request to carbamazepine (Tegretol) when I read about the need for keeping the lithium level very closely controlled. That didn't make me feel any better and I'm now on 20mgm/day of the anti-depressant citolopram. The main anti-convulsant I take is lamotrigine which is also used for bipolar disorder. I started on 400mgm/day but reuced it to 300mgm/day when I realised that the higher dose not only made me bruise easily but meant that patterns of red blood vessels were left after the bruise had gone. Phenytoin made my gums swell and be very sensitive and my teeth loosen (some people's gums grow so much they have to be cut away before they cover their teeth).
Keppra caused fluid retention which meant I went up a clothes' size and also developed carpal tunnel syndrome (which makes the nerve in the wrist very sensitive because it is under constant pressure and fingers tingle, get painful and then lose their feeling altogether, grip becomes very weak so one gets clumsy and pain spreads up arms and beyond.
My current daily dose of lamotrigine is 275mgms and I also take 10mgm clobazam. As the MRI I had early this year showed that I'd had a minor stroke sometime, I also take a blood thinning drug along with aspirin. I take 20mgm/day of the anti-depressant citolopram, which certainly hasn't made my fits worse or more frequent. If anything I have fewer because I'm so much more relaxed.
Since I've begun to relax, my memory and concentration have improved which helps my courage to try new things too.
I hope you find a positive mixture of medicines for yourself too.
Cheers,
Chris L.
Sasha - 20 Dec 2003 19:36 GMT > > Thank you for your story. At one point one of my many psych diagnosises was > > Bipolar, but unfortunately they put me on lithium which didn't help I don't [quoted text clipped - 43 lines] > > Chris L. Yes, the search for the right meds can be a difficult one, what with all the side effects. Right now I have found meds with pretty much no side effects, but they only work for some of my problems. I am not looking forward to finding a new med for the seizures if that is what they are. I haven't had a major episode in two weeks, and that is when I start to think maybe it has gone away. But that is the most dangerous time because that is when they come back. I am scared of having another one, but I am also starting to question whether or not it was a seizure or something else that my meds are now controlling. I am confused about the whole thing.
Thanks, Sasha
Ian - 16 Dec 2003 14:39 GMT Para 2 is as close as identical to my bad days as anyone will ever get. Did you lose your job, or someother life changing experience because of epilepsy? That can cause psychiatric disorders sometimes leaving a confusing mess between what is psych & what is epilepsy. The question is do you know the difference enough to describe it to the appropriate doctor. If you don't, saying that you'll just tell the doctors everything & let them work it out doesn't work. Unless you've got a 100% memory recall or keep a notebook in your pocket recording everything that goes on in your day, that approach doesn't work. Take someone with you to your medical appointments who cares enough about you to tell the doctors everything, even if it pisses you off.
> Hi. I am 31 and have had mental health problems since childhood. I think I > have depression and ocd, but there are also some very weird things that do [quoted text clipped - 33 lines] > > Sasha Sasha - 16 Dec 2003 18:11 GMT > Para 2 is as close as identical to my bad days as anyone > will ever get. No one has ever said they could relate so closely to this experience. I'd been looking in mental health ngs.
> Did you lose your job, or someother life changing experience > because of epilepsy? Well, I can't say for sure if I have epilepsy, but I have tried three times to go back to college and have lost countless jobs because of stress induced emotional episodes similar to the one described (they seem to have gotten worse over the years) after which I flee and never return because of embarrassment.
That can cause psychiatric disorders
> sometimes leaving a confusing mess between what is psych & > what is epilepsy. That makes sense, and I also had a rough childhood and inherited anxiety and depression, so I'm pretty sure it is not all epilepsy related. I also have some problems with alcohol (use it to medicate when nothing seems to work), but have been trying to stay sober but it is difficult when I keep having these episodes even after being sober for a few months. I'm all messed up. I was told the psych meds would work better when I am sober but it seemed to be a lie, but now if I find something to control these seizures (if that is what they are) then I am positive I can stay sober. I know it is dangerous to mix meds with alcohol, but sometimes I lose hope and don't care. I'm afraid of this hope I am having, that there won't be help.
The question is do you know the difference
> enough to describe it to the appropriate doctor. I suppose the difference is that psych stuff is what the psych docs nod in understanding with and the possible epileptic stuff is when they look confused when I try and describe it. Also most of the psych stuff has gotten better with treatment, but what is left could be the epilepsy. It is still confusing though.
> If you don't, saying that you'll just tell the doctors > everything & let them work it out doesn't work. Unless > you've got a 100% memory recall or keep a notebook in your > pocket recording everything that goes on in your day, that > approach doesn't work. One question on something I'm confused about which is which. I seem to be fine and I'm just going about my day, like excercising or showering and this bad feeling comes over me from out of no where and I cry for no reason. It seems at the beginning to be like a full blown episode, but it is lesser, less intense and weird without the weird feeling in my head. Could this be a little seizure? My husband has caught me having these and keeps asking me what is wrong but I have no answer to explain.
> Take someone with you to your medical appointments who cares > enough about you to tell the doctors everything, even if it > pisses you off. It wouldn't piss me off if my husband came with me, but he might have trouble telling what is psychiatric and what could be epileptic.
Thankyou so much for your response.
Sasha
> > Hi. I am 31 and have had mental health problems since > childhood. I think I [quoted text clipped - 63 lines] > > > > Sasha Ian - 17 Dec 2003 02:28 GMT If you've got a problem with alcohol, some australian company is trialling a new drug that makes alcohol taste like crap. I'm not sure what it's called. I'll ask next time i see my g.p.
> > Para 2 is as close as identical to my bad days as anyone > > will ever get. [quoted text clipped - 127 lines] > > > > > > Sasha Sasha - 17 Dec 2003 17:51 GMT I think alcohol tastes like crap anyway. It's the feeling that I drink for. They have a drug that gets rid of the feeling too, but when I took it I was having major crying spells and episodes. Perhaps if I have seizures it made them worse somehow. I'm going to have to do it the old fashioned way. The thing is in AA they were trying to tell me I was having normal problems and there is no mental illness and the possible seizures I was having were normal (which I can tell they are very far from normal) and it made them seem like a bunch of idiots. My alcohol problem isn't that bad, I just shouldn't be drinking with the meds and wanted some support. I guess I'll have to do it on my own. Thanks for your suggestion anyway.
Sasha
> If you've got a problem with alcohol, some australian > company is trialling a new drug that makes alcohol taste [quoted text clipped - 191 lines] > > > > > > > > Sasha Phil Jones - 16 Dec 2003 23:29 GMT you described me to a tee. anxiety triggers, terror. destructive anger. screaming... mostly for help. i have a brain tumour though... so it is a physical abnormality that causes this sh.t, but i really think that my stress levels lower my seizure threshold, and then boom, complex partial. i used to have grand mal seizures but those are controlled by meds, but nothing seems to controld these smaller ones... that's why they are pumping me full of anti-depressants to get rid of the anxiety and ocd, etc.
fun.
-phil
> Hi. I am 31 and have had mental health problems since childhood. I think I > have depression and ocd, but there are also some very weird things that do [quoted text clipped - 33 lines] > > Sasha Sasha - 17 Dec 2003 17:58 GMT > you described me to a tee. anxiety triggers, terror. destructive anger. > screaming... mostly for help. i have a brain tumour though... so it is a [quoted text clipped - 7 lines] > > -phil It is good to hear of another who is going through something similar after such a long time of me feeling like a freak with a problem no one understands. Sorry to hear about the brain tumor though. I am worried I might have one. So it is true that anxiety and stress can lower the seizure threshold. I'm taking an atypical antipsychotic(Abilify) for the ocd and anxiety, and at a higher dose it is working. It seems to have no side effects unlike the SSRI antidepressants.
Thanks, Sasha
> > Hi. I am 31 and have had mental health problems since childhood. I think > I [quoted text clipped - 49 lines] > > > > Sasha
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