Son has Progressive Myoclonic Epilepsy /Drs.want us to try VNS

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Ann - 06 Dec 2003 14:31 GMT

My husband & I are having to decide whether or not to have our 16 year old son have Vagus Nerve Stimulator implanted.
He has Progressive Myoclonic Epilepsy and has the mental capacity of about a 2 year old (in most areas.) He has seizures off and on throughout the day some lasting several minutes followed by long periods of sleep. We are wanting to talk to someone who has had this done and parents whose children have had it. Any information would be greatly appreciated.

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sassy_q - 16 Dec 2003 16:32 GMT

You should check out the Cyberonics website at www.cyberonics.com or
and also WebMD has a VNS site up on their website at www.webmd.com.
VNS has exremely helped me out. My seizures have decreased
tremendously--and I feel like I have more control over what is
happening. I definitely recommend it for anyone with epilepsy who has
bad seizures. Check those websites out and if you have any questions,
I'd be happy to help you out!

> My husband & I are having to decide whether or not to have our 16 year old son have Vagus Nerve Stimulator implanted.
> He has Progressive Myoclonic Epilepsy and has the mental capacity of about a 2 year old (in most areas.) He has seizures off and on throughout the day some lasting several minutes followed by long periods of sleep. We are wanting to talk to someone who has had this done and parents whose children have had it. Any information would be greatly appreciated.

Reply to this Message