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Medical Forum / Diseases and Disorders / Epilepsy / December 2003

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'bout changin'meds

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Cheryl DeVoll - 07 Dec 2003 10:03 GMT
I'd like to hear some experiences you all may have had during a med change.
My AED's are really expensive and now a divorce is being thrown at me. I may
have to use the public assistance insurance and they don't cover my meds.
Fear just seems to keep crowding my thoughts.

Cheryl
gaross - 07 Dec 2003 17:58 GMT
Hi.   You didn't tell us From which e.g. Med. to which, below..  Some of the
changeovers might be done in under 2-3 weeks if they're related or to a
Generic med. (although some Drs. don't like Generics either).  When I
switched 'up'  from Dilantin to Tegretol CR it was done in under ~3 weeks,
although I went to a small dose at first.
   When we Reduced the night dose and replaced it with a *newer ( >$ ),
pill that had been approved, the Tegretol was only reduced by Half a tablet
each 2 weeks (100mg) from 400 down to 0.
  So depending what it is, will determine what they can change to.

   Sorry to hear about your  situation.  It's probably not in your
thoughts, but did you contact a Local Chapter of an Epilepsy Association for
Advice??   Tell them I said you didn't need to be a Member if they ask (I
pay extra in Toronto so lots of people don't need to join just to access
their Support Staff and consultants).  Many of the Chapters have Drs. who
contribute time for information on e.g. pill question you had, which things
might be usable for your type of szrs., whether one pill has more documented
side effects or considerations than other types, which pills (even older
ones) are more reliable than others, etc.
  If you have a Local Chapter they might have information like that. Do you
(or your 'ex') have Medications Insurance?   If you were getting those
before through his insurance, you might still be eligible for a period of
time 6- 18 months? for coverage under the 'joint' insurance accounts.
That's something that might be specific to the laws where you live, but that
the Local Chapter might be able to tell you about.  (Heck, even the Druggist
who fills the prescriptions might know what most companies do...  They deal
with them electronically every day.)      G./

> I'd like to hear some experiences you all may have had during a med change.
> My AED's are really expensive and now a divorce is being thrown at me. I may
> have to use the public assistance insurance and they don't cover my meds.
> Fear just seems to keep crowding my thoughts.
>
> Cheryl
CyberCafe - 09 Dec 2003 06:13 GMT
> I'd like to hear some experiences you all may have had during a med change.
> My AED's are really expensive and now a divorce is being thrown at me. I may
> have to use the public assistance insurance and they don't cover my meds.
> Fear just seems to keep crowding my thoughts.

Some clinics and hospitals have patient assistance programs where they help you
find reduced cost or free medications (our clinic does all the footwork, so the
patient doesn't have to worry about doing research, contacting drug companies,
etc.).  Sometimes there are other community programs (I think United Way in our
community) that will pick up medication costs if the patient is eligible.  Your
county's Department of Health and Social Services also might have information on
where/how to get the meds you need, and they might have other services useful to
you in this trying time.

I was switched from Tegretol to Dilantin many years ago, and the seizures did
come back (not as bad though), but of course, they started me on a low dose of
Dilantin.  They also had to bypass weaning the Tegretol because I had an
allergic reaction and had to stop taking it abruptly.  The only other change was
a switch from brand name Dilantin to generic.  I think there was a little better
control with the brand name.

Barb
complex partials

> Cheryl
 
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