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Medical Forum / Diseases and Disorders / Epilepsy / December 2003

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VNS to be activated december,5th

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Lance Arnold - 26 Nov 2003 03:57 GMT
hello group. it's been awhile since i wrote.
i was implanted on november,20th with a
VNS device which will be activated on the
5th of december. late today i had another
grand mal. i for some reaon am calling up
others instead of 911 for help first. have a-
nother here did the same thing ever? my sis-
ter is terribly concerned as she lves in kansas,
500 miles from me. she'd like me to move to
the area there,but i am unsure what to do but
pray about the situation and ask God for His
gukdance in my decision. it is an awfully big
step. do you have any feedback on this?
thank you. lance arnold.

http://community.webtv.net/biblical1/ladymychihuahuaandi
Ann - 06 Dec 2003 16:06 GMT
I hope that all has gone well with your VNS.  My husband and I are having to consider having the surgery for our 16 year old son who is mentally about 2 years old. Any information on how your surgery went etc. would be greatly appreciated.  We are considered about the pain involved, whether you feel that it was worth it and so on. You are right to pray for his guidance in your decision to move, even if you don't get your answer you will feel better.
Dave ???? - 07 Dec 2003 03:05 GMT
Howdy Ann!

The only real PAIN involved is a sore throat for about a half-a-week or so
after the surgery. (That's because they stick a breathing tube down your
throat and then bend your neck so that your head is resting on the right
shoulder.)

See my VNS info site:
http://www.howdydave.com/vns.html

Abt. 2 years, eh?  Well then... he may have a problem when they make the
initial adjustments to the VNS programming.

There will be some VERY uncomfortable, maybe even painful (depending on how
you define "pain") sensations that he has never felt before. These are all
in the throat. The body becomes acclamated to it and eventually he won't
even feel it.

BUT

If we're talking true mental capacity of a 2 year old I see some real
possibilities that he will be absolutely terrified, maybe even TRAUMATIZED
by the incidents.

Although I am not a doctor, I personally wouldn't advise putting the VNS
implant into anybody unless you could be absoultely sure that they
understood what was going on.

Another risk... once the device is implanted he may start picking at the
device and/or the wire lead going through the chest from the implant to the
throat.

If there is some way that you can make SURE that he understands exactly what
is going to happen and how it is going to hurt (probably the only word in
his vocabulary that will address the sensation) when he goes to see the
doctor, then I'd say go for it!

I know of a girl with the mental capacity of a 3 year old (26 years old) who
absolutely refuses to go into a doctors office (not even the waiting room)
because a dentist "hurt her" once.

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> I hope that all has gone well with your VNS.  My husband and I are having to consider having the surgery for our 16 year old son who is mentally about
2 years old. Any information on how your surgery went etc. would be greatly
appreciated.  We are considered about the pain involved, whether you feel
that it was worth it and so on. You are right to pray for his guidance in
your decision to move, even if you don't get your answer you will feel
better.
Helena - 08 Dec 2003 21:40 GMT
"Dave ©¿©¬" <dave@_nospam_howdydave.com> wrote in message news:<GNwAb.1812$1v5.1108@news02.roc.ny>...
> Howdy Ann!
>
[quoted text clipped - 44 lines]
> your decision to move, even if you don't get your answer you will feel
> better.

hey all:

would appreciate hearing more about the surgery-is it a one time thing
or do you have to get it replaced every few years? How much does it
cost? And lastly I've heard that it doesn't work with some people and
they still have seizures, I've also heard that it greatly reduces
recovery time after attacks.
Dave ???? - 10 Dec 2003 02:23 GMT
Howdy!

There is an online forum for people (and family members of people) who have
had/are thinking about having the VNS implant.

http://www.vnstherapy.com/messagsfs.html

If you go there you can get your questions answered. The Forum is sponsored
by Cyberonics, the company that manufactures the VNS impland device. They
have a nurse who regularly posts answers and has (more than once) sent me a
private e-mail to clarify some information.

Signature

Dave ????
"Noli illigitemi carborundum decendus"

http://www.howdydave.com

> hey all:
>
[quoted text clipped - 3 lines]
> they still have seizures, I've also heard that it greatly reduces
> recovery time after attacks.
sassy_q - 16 Dec 2003 17:16 GMT
This is a great site to look at too:

http://my.webmd.com/content/article/75/89894.htm?lastselectedguid={5FE84E90-BC77
-4056-A91C-9531713CA348
}

It's on Webmd, and you can speak with nurses, patients, and even
doctors.

"Dave ©¿©¬" <dave@_nospam_howdydave.com> wrote in message news:<IsvBb.5946$sC6.5527@news02.roc.ny>...
> Howdy!
>
[quoted text clipped - 15 lines]
> > they still have seizures, I've also heard that it greatly reduces
> > recovery time after attacks.
 
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