Medical Forum / Diseases and Disorders / Epilepsy / November 2003
need help
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bernie dwyer - 01 Nov 2003 12:07 GMT hi
i'm on tegretol (1200mg) and it really playing with my mind. since i have been on it, i have become very aggressive over time, depressed and suffer from panic attack. my neuro says thats its from the tegretol and has put me on keppre (1500mg) but won't take me off the tegretol until he knows that the keppra is fine.
prolem is that i have a flat mate who is scared of me, my mum says that i am not welcomed at their house because of the whole disease, and i am too scared to tell my friends whats really going on because they know that i am sick enough as it is, and i don't think that they can take anymore of it. i am averaging back to being in hospital at least once per month because of the seizures. i am very close to my friends, i have a few that i talk to a couple of times a day on the phone and i have my best friends,
they each no a little bit on what is going on, but there isn't once person that knows everything, i just broke up with my partner because i was spending to much time at uni and not enough time with my partner, my partner wanted to break up and get back when the semester was finished, i am doing two degrees this semester, bachelor of architecure and bachelor of arts (architecture & regional and town planning) at two different universities. my partner can't see that i am trying to finish my assignments and i have exams, but now i have had to defer my exams because i can't concintrate at all.
i went back to my gp and he has put me own zoloft (100mg). i am so drugged up at the moment i don't know what day it is and where i am some of the time... i have gone back to wondering around and not realising where i am, then suddenly just waking up and being lost. all the things i use to do to destress i can't do. i am at the point now where i can't see any light at the end of the tunnel and i am slipping away. i can't wait to see my neuro to get me off the meds, i am 24yo, smart, have a good base of friends, and all i want to do is die...
is there anyone else there that is on tegretol that has had the same problems? i am sick of screaming and yelling and crying and loosing my mind. they won't take me of the tegretol just yet in case there is serious problems with the keppra, but when is enough enough?
please help
bernie d
CyberCafe - 01 Nov 2003 19:05 GMT > hi > [quoted text clipped - 21 lines] > exams, but now i have had to defer my exams because i can't concintrate at > all.
> i went back to my gp and he has put me own zoloft (100mg). i am so drugged > up at the moment i don't know what day it is and where i am some of the [quoted text clipped - 11 lines] > > please help I don't know where to begin. First, your family, friends, school need to know the facts because this is a medical problem and not a behavior problem. Let them know you and your doctor are trying to find a way to solve this problem and that it might take some time. I can't really tell if your mom just doesn't understand epilepsy (and depression) or is worried about the agressiveness. I'm getting the feeling that the agressiveness is pretty serious if people are afraid of you or don't want you around. Your hospital, doctor, or local epilepsy association may have educational materials for family, friends, co-workers. I think significant others are more likely to believe a written pamphlet from a healthcare provider than from us.
It sounds like the Tegretol isn't controlling your seizures very well if you are in the hospital every month. In fact, I don't understand how the doctor can say the symptoms are solely from that medicine. I mean, every symptom you mentioned could be from epilepsy and/or depression.
Depression is also a medical problem and may or may not be directly related to the seizures. It could be that the drugged up feeling is actually due to seizure activity and/or the depression and not from the drugs.
I don't know what kind of seizures you have, how long you've had it, how long you've been on meds, how much you know about epilepsy and depression, etc. A person has to have an extraordinary amount of patience trying to find a way to control both epilepsy and depression. Because some of the meds for epilepsy and depression are not sustained released, we have to be religous in taking them. We can't skip or be late with a dose with some of these medications.
You are going to have to learn how to recognize what is happening to you and how to comfort yourself. When I feel one of these symptoms coming I talk to myself mentally and say things like, "this is the epilepsy doing this and not me," this is not really me," and "this will be over with in a few minutes." You have to be aware of any factor that could contribute to the problem such as lack of sleep, photosensitivity, and so on.
You will probably need to get information or attend a class on anger management because they can teach you how to deal with this, the agressiveness. Even though the agressiveness, yelling, outbursts, etc. might be related to a health condition, we still have to try to control it by any means possible. You will have to share what you've learned in anger management class with significant others because they may not understand the methods you will use to combat this problem.
Find any means of support you can. You need other people who have or have had similiar problems. They can help you and you can help them.
Think of this as a medical condition and a temporary one. A huge number of people do respond well to medication (or other treament), but it might take a long time to find which medication and which dose is the best. Right now, your health comes first. Don't feel guilty about taking steps necessary to feel better right now. For example, if you have to cut down your school classes, social life or other activities, think of it as a temporary situation. Never feel guilty about asking for help either.
Barb
> bernie d Julie - 02 Nov 2003 00:14 GMT Hi Bernie, Barb has some good advise. Several years ago I went through a monster of a year. The neuro tried me on a new med (sorry I can't remember which one). I was miserable, wondering why in the world would I want to live life like this. I told him all my symptoms and he slowly took me off that med and slowly put me on a differerent new AED. It was immediately a wrong med for me. I ended up in the emergency room for a shot to control extreme nausea. Eventually he put me back on my old medication, but got it to a theraputic level for me. There was a light at the end of the tunnel afterall.
Hope you can see the light at the end of your tunnel soon. Julie
> > hi > > [quoted text clipped - 94 lines] > > > bernie d Clean your room - 02 Nov 2003 02:31 GMT Bernie,
Lack of sleep is perhaps the most typical trigger. With your class load, you can't be getting enough. My minimum is 8 hours/night.
I've been on tegretol for 5 years but have never heard of the anger/tegretol thing, however, my wife was warned when I first started having seizures that one of the common side symptoms of epilepsy was a shorter temper.
There's a lot in what you say that I don't understand. Why don't you tell people what's going on? They know how sick you are and couldn't take any more? But you say they're your friends, so why should they not know? And what is the sickness that they do know about if it isn't that you have epilepsy?
Something isn't making sense.
Jack
> hi > [quoted text clipped - 39 lines] > > bernie d bernie dwyer - 09 Nov 2003 06:09 GMT Hi everyone
i am not sure what is going on at the moment, i've been to my gp 3 times in seven days trying to work things out. aparently there is a very rare side effect from tegretol that is anger and depression, but its very very rare. he said that also its been a tough year, was doing two degrees this semester at uni, a couple of months ago some friends and i were coming home from a weekend at the coast when we hit an 82yo lady, she went through the windscreen, had a leison scare on the brain and broke up from a long term relationship. so as you can see there are other contributing factors there, but as i have known my gp all my life, he delivered me, there was more to it than what appeared on the surface.
of all places i am staying with my ex's parents at the moment, they are helping me out until i get on my feet again.i am off to my neuro on the 20th nov so hopefully then i can start coming off the tegretol. at the moment i so want to come off it now, when i take the medication, i can feel the effects that it has on me straight away. but at the moment my life is looking a whole lot better. the 5kg i lost from not eating, i am starting to put it back on.sleeping better and looking for a job for the summer holidays (i'm in australia).
i think that its the unknown of the whole situation that got to me, now that i am better aware on whats happening, i can react better when situations aren't all good, sch as my family. my flatmate and i are talking again, things aren't going to be the same, but i understand more from where he is coming from now. he wasn't scared of me as such, but of having to go down that path of seeing someone suffer again, someone else suffered a couple of years ago and he couldn't take it again.
i think that i have to realise that if things aren't going the way i want it at the moment, that i need to take a step back and detach myself from it, so i don't repeat whats been happening over the last 6 months. i'm up to my 5th medicate, fourth for the year. have had epilepsy for the last 5 years, i think that i should realise whats happening to me and take control on whats going on with my life.
thanks
bernie
> Bernie, > [quoted text clipped - 64 lines] > > > > bernie d
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