Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Epilepsy / November 2003

Tip: Looking for answers? Try searching our database.

need help

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
bernie dwyer - 01 Nov 2003 12:07 GMT
hi

i'm on tegretol (1200mg) and it really playing with my mind. since i have
been on it, i have become very aggressive over time, depressed and suffer
from panic attack. my neuro says thats its from the tegretol and has put me
on keppre (1500mg) but won't take me off the tegretol until he knows that
the keppra is fine.

prolem is that i have a flat mate who is scared of me, my mum says that i am
not welcomed at their house because of the whole disease, and i am too
scared to tell my friends whats really going on because they know that i am
sick enough as it is, and i don't think that they can take anymore of it. i
am averaging back to being in hospital at least once per month because of
the seizures. i am very close to my friends, i have a few that i talk to a
couple of times a day on the phone and i have my best friends,

they each no a little bit on what is going on, but there isn't once person
that knows everything, i just broke up with my partner because i was
spending to much time at uni and not enough time with my partner, my partner
wanted to break up and get back when the semester was finished, i am doing
two degrees this semester, bachelor of architecure and bachelor of arts
(architecture & regional and town planning) at two different universities.
my partner can't see that i am trying to finish my assignments and i have
exams, but now i have had to defer my exams because i can't concintrate at
all.

i went back to my gp and he has put me own zoloft (100mg). i am so drugged
up at the moment i don't know what day it is and where i am some of the
time... i have gone back to wondering around and not realising where i am,
then suddenly just waking up and being lost. all the things i use to do to
destress i can't do. i am at the point now where i can't see any light at
the end of the tunnel and i am slipping away. i can't wait to see my neuro
to get me off the meds, i am 24yo, smart, have a good base of friends, and
all i want to do is die...

is there anyone else there that is on tegretol that has had the same
problems? i am sick of screaming and yelling and crying and loosing my mind.
they won't take me of the tegretol just yet in case there is serious
problems with the keppra, but when is enough enough?

please help

bernie d
CyberCafe - 01 Nov 2003 19:05 GMT
> hi
>
[quoted text clipped - 21 lines]
> exams, but now i have had to defer my exams because i can't concintrate at
> all.

> i went back to my gp and he has put me own zoloft (100mg). i am so drugged
> up at the moment i don't know what day it is and where i am some of the
[quoted text clipped - 11 lines]
>
> please help

I don't know where to begin.  First, your family, friends, school need to know
the facts because this is a medical problem and not a behavior problem.  Let
them know you and your doctor are trying to find a way to solve this problem and
that it might take some time.   I can't really tell if your mom just doesn't
understand epilepsy (and depression) or is worried about the agressiveness.  I'm
getting the feeling that the agressiveness is pretty serious if people are
afraid of you or don't want you around.  Your hospital, doctor, or local
epilepsy association may have educational materials for family, friends,
co-workers.  I think significant others are more likely to believe a written
pamphlet from a healthcare provider than from us.

It sounds like the Tegretol isn't controlling your seizures very well if you are
in the hospital every month.  In fact, I don't understand how the doctor can say
the symptoms are solely from that medicine.  I mean, every symptom you mentioned
could be from epilepsy and/or depression.

Depression is also a medical problem and may or may not be directly related to
the seizures.  It could be that the drugged up feeling is actually due to
seizure activity and/or the depression and not from the drugs.

I don't know what kind of seizures you have, how long you've had it, how long
you've been on meds, how much you know about epilepsy and depression, etc.  A
person has to have an extraordinary amount of patience trying to find a way to
control both epilepsy and depression.  Because some of the meds for epilepsy and
depression are not sustained released, we have to be religous in taking them.
We can't skip or be late with a dose with some of these medications.

You are going to have to learn how to recognize what is happening to you and how
to comfort yourself.  When I feel one of these symptoms coming I talk to myself
mentally and say things like, "this is the epilepsy doing this and not me," this
is not really me," and "this will be over with in a few minutes."  You have to
be aware of any factor that could contribute to the problem such as lack of
sleep, photosensitivity, and so on.

You will probably need to get information or attend a class on anger management
because they can teach you how to deal with this, the agressiveness.  Even
though the agressiveness, yelling, outbursts, etc. might be related to a health
condition, we still have to try to control it by any means possible.  You will
have to share what you've learned in anger management class with significant
others because they may not understand the methods you will use to combat this
problem.

Find any means of support you can.  You need other people who have or have had
similiar problems.  They can help you and you can help them.

Think of this as a medical condition and a temporary one.  A huge number of
people do respond well to medication (or other treament), but it might take a
long time to find which medication and which dose is the best.  Right now, your
health comes first.  Don't feel guilty about taking steps necessary to feel
better right now.  For example, if you have to cut down your school classes,
social life or other activities, think of it as a temporary situation.  Never
feel guilty about asking for help either.

Barb

> bernie d
Julie - 02 Nov 2003 00:14 GMT
Hi Bernie, Barb has some good advise.  Several years ago I went through a monster of
a year.  The neuro tried me on a new med (sorry I can't remember which one).  I was
miserable, wondering why in the world would I want to live life like this.  I told
him all my symptoms and he slowly took me off that med and slowly put me on a
differerent new AED. It was immediately a wrong med for me.  I ended up in the
emergency room for a shot to control extreme nausea.  Eventually he put me back on
my old medication, but got it to a theraputic level for me.  There was a light at
the end of the tunnel afterall.

Hope you can see the light at the end of your tunnel soon.
Julie

> > hi
> >
[quoted text clipped - 94 lines]
>
> > bernie d
Clean your room - 02 Nov 2003 02:31 GMT
Bernie,

Lack of sleep is perhaps the most typical trigger. With your class load, you
can't be getting enough. My minimum is 8 hours/night.

I've been on tegretol for 5 years but have never heard of the anger/tegretol
thing, however, my wife was warned when I first started having seizures that
one of the common side symptoms of epilepsy was a shorter temper.

There's a lot in what you say that I don't understand. Why don't you tell
people what's going on? They know how sick you are and couldn't take any
more? But you say they're your friends, so why should they not know? And
what is the sickness that they do know about if it isn't that you have
epilepsy?

Something isn't making sense.

Jack

> hi
>
[quoted text clipped - 39 lines]
>
> bernie d
bernie dwyer - 09 Nov 2003 06:09 GMT
Hi everyone

i am not sure what is going on at the moment, i've been to my gp 3 times in
seven days trying to work things out. aparently there is a very rare side
effect from tegretol that is anger and depression, but its very very rare.
he said that also its been a tough year, was doing two degrees this semester
at uni, a couple of months ago some friends and i were coming home from a
weekend at the coast when we hit an 82yo lady, she went through the
windscreen, had a leison scare on the brain and broke up from a long term
relationship. so as you can see there are other contributing factors there,
but as i have known my gp all my life, he delivered me, there was more to it
than what appeared on the surface.

of all places i am staying with my ex's parents at the moment, they are
helping me out until i get on my feet again.i am off to my neuro on the 20th
nov so hopefully then i can start coming off the tegretol. at the moment i
so want to come off it now, when i take the medication, i can feel the
effects that it has on me straight away. but at the moment my life is
looking a whole lot better. the 5kg i lost from not eating, i am starting to
put it back on.sleeping better and looking for a job for the summer holidays
(i'm in australia).

i think that its the unknown of the whole situation that got to me, now that
i am better aware on whats happening, i can react better when situations
aren't all good, sch as my family. my flatmate and i are talking again,
things aren't going to be the same, but i understand more from where he is
coming from now. he wasn't scared of me as such, but of having to go down
that path of seeing someone suffer again, someone else suffered a couple of
years ago and he couldn't take it again.

i think that i have to realise that if things aren't going the way i want it
at the moment, that i need to take a step back and detach myself from it, so
i don't repeat whats been happening over the last 6 months. i'm up to my 5th
medicate, fourth for the year. have had epilepsy for the last 5 years, i
think that i should realise whats happening to me and take control on whats
going on with my life.

thanks

bernie

> Bernie,
>
[quoted text clipped - 64 lines]
> >
> > bernie d
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.