I have been having a lot of problems recently, and we can't seem to
find any answers.  I, personally, think I am having seizures, but my
Neurologist is not willing to diagnose b/c my EEGs were normal.
Usually, the feeling starts in my stomach and rises to my chest...  I
don't know how to describe it except that I feel as if I might "pass
out".  I also feel a dizziness in my head (like it is swimming in
circles).  Usually, if I lay down, I will stay conscious, but if I
cannot rest, I will pass out.  Sometimes I have to rest for only 1/2
hour, but other times it will be hours.  I will feel groggy,
disoriented, loss of cognition, confusion...sometimes for days after
this happens.  When it is really bad, I will have this happen daily.
Recently, I had a tilt table test to check if it is Vaso Vagal
related, and I passed out with tonic clonic movements for approx 2
min.  My cardiologist told me he didn't know what happened...my blood
pressure did not bottom out, and he saw no reason for this episode.
As with my other episodes, I knew when it was coming and gave a
warning.  The thing that bothers me is that I feel so dis-associated
from everything.  Frequently, I will have shaking and jerking in my
arm during these episodes.

Something else...sometimes when I wake up, I feel a HUGE dis-
associated feeling from my body.  My whole body feels light, I can't
tell if I'm breathing or not, dizzy.  I have to let it run it's
course, or I will have problems all day.  If anyone has any ideas
about what this could be, please let me know.  I have been having
these problems for almost 20 years, and this is the first time doctors
have even taken me seriously.  I am encouraged that they finally
believe me, but I'm distressed b/c no one can tell me what is wrong
with me!

One more thing.  Can you remember seizures when you are just waking
up?  I thought I had one the other day when waking up.  My whole body
stiffened, and shook...although there were no jerking movements.  I
tried to call out, but I couldn't.  Because I had been asleep, I am
questioning whether it was a dream or really happened.  I remember it
perfectly, and I just don't know...can you remember something like
that?  I feel like such a crazy mess....I hope someone can help me.