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Medical Forum / Diseases and Disorders / Epilepsy / February 2008What would this be?
As long as I can remember, I have had seizures. I'm not sure but they seem to be simple partial seizures because I do not lose consciousness. Atleast 30 times a day, I get this strange feeling that usually occurs randomly but is also caused by hot water, and certain noises. If I don't have that, my head jerks in some direction and sometimes my shoulders. That averages about 4 times a day. Then, some seizures are caused by what I think to be computer screens. When I first get on a computer, I'll have one or two seizures. If I have been on a computer for more than a total of 5 hours in a day, I suddenly get really cold, get that weird feeling, and then my muscles keep contracting in episodes but slowly disappear if get off the computer. This happened last night again so I went on the floor in case it got worse. My muscles kept pulling my body inwards so my back hurt really badly after that. When it got somewhat better, I got up to get ready for bed and I couldn't entirely straighten my legs and my feet kept turning inwards so I was walking on the outsides of them, but I managed to walk. My left leg would barely move at all because the muscles were so tight. Even so, I felt like I was going to fall over any minute. When I went to bed, I had never fallen asleep faster in my life. And right now, I'm just physically exhausted and confused. What could that have been? I have not had the chance to question a doctor if I even have epilepsy, nor will I be able to for some time. Does anybody know?! Thanks! MG > As long as I can remember, I have had seizures. I'm not sure but they > seem to be simple partial seizures because I do not lose [quoted text clipped - 20 lines] > anybody know?! Thanks! > MG Julie just posted links to her new improved Idaho Epilepsy Foundation site. Check there or http://efa.org which has information on Simple Partial seizures (sometimes referred to as an Aura on some sites). I think a SImple Partial is the only one of about 6 seizure types where you are aware of what's happening during the szr. Most recent (10 years?) computer screens now have a refresh rate high enough to not usually cause seizures. Some places sell a screen cover that supposedly reduces glare or flicker effects, but I haven't seen anyone post here about using one or success rate since 1997 (here). Several people in late 1990s had changed to Liquid Crystal screen. I rarely had light sensitive effects unless I was in stores that had defective (flickering) neon lamps, but like the colour and thinness of the LCD screen I got with my Dell computer about 5 years ago. *If you're having these events 30x a day (your post above), you should get it checked by an Epileptologist or via referral from a Doctor. If for some reason it got stronger or more intense, driving or operating machinery or things that require alertness could be compromised. Also part of the tests they would be able to confirm or deny that what you are experiencing is a seizure. There could be other biological events occuring, not related to epilepsy, that might need attention. For optimum alertness and to prevent whatever it is becoming more intense, the tests they conduct would be a small price to pay for your peace of mind. My (non-medical) opinion anyway. G./ > > As long as I can remember, I have had seizures. I'm not sure but they > > seem to be simple partial seizures because I do not lose [quoted text clipped - 52 lines] > > - Show quoted text - Thanks for your reply! Regarding computer screens, I ONLY use LCD screens, whether they be Dell, Sony, Gateway, Apple, etc. That was only because of the fact that I was having bad effects from the radiation given off by CRT monitors. My Dell monitor has been set at the highest refresh rate possible and I still have seizures. What's interesting is that I also have seizures if I watch certain parts of music videos on my iPod, particularly scenes where something is kind of flickering. What helps is to turn the brightness of the screen down on the iPod or laptop, and I have less or absolutely no seizures. But it's not like I can do that on a monitor hooked up to a desktop computer! I wish I could see a doctor, but my parents wouldn't believe anything because it seems too far out and extreme even though it's not, and I'd be made fun of by my whole family! I get enough ridicule over a personality disorder, but seizures? They don't believe anything I say unfortunately. WHEN I do go to a doctor, atleast I'll have some videos to show them. Because as you said, there is always the chance of losing alertness in the future. You never know if you're going to have a grand mal seizure, and a person would generally like to prevent that. I agree with your opinion entirely! Valentine's Day is coming up! :-) MG Thanks again! |
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