Medical Forum / Diseases and Disorders / Epilepsy / January 2008
Water and Epilepsy - I have a question - If anyone can help!
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Michelle - 06 Jan 2008 02:08 GMT Hello, I have had Epilsepsy for 7 years now, I am 38 years old. For a long time I would get the absent seizures but didn't really know what it was. Eventually one day I had a full seizure and was hospitalized and that was when I realized I had been having absent seizures for a while. I have had only one other full seizure since, which was a few months ago. It has been very hard for me to find a good Doctor that I can talk to, that will listen to me and that can help me understand what I should do.
Now here is my question. I drink very little water, if any. I have a little bit of an addication going on with diet coke. I know, that is bad for me. I get the absent seizures often, I use to get more than one a day. But I take 700mg's of Dilantin and that has controlled them somewhat. I get about 3 a month now. But when I get the absent seizure's it usually happens while I am eating and there are people around me. While the seizure is occuring and the people around me are freaking out, because they say I look really weird, they ask if I need anything. I always ask for water. Can anyone tell me why? The easy answer is that subconsiously my body is asking for it because I do not drink much, but does water have that affect on our Brain? I have tried asking Doctors this before and really have not been successful in getting an answer.
We all know that this is a frustrating disease because, at least in my case, we do not know what causes it. I do eat right, I do not drink alcohol and I get plenty of sleep. I have been a little stressed at work lately but I have always enjoyed working under pressure; therefore, I do not think that can be the cause.
If anyone has any answers please let me know. I would love to hear any suggestions. I live in Miami, if anyone knows of any Support Groups or a good Doctor here please let me know.
Thank you and good luck to all!
Marco - 06 Jan 2008 09:17 GMT > Hello, I have had Epilsepsy for 7 years now, I am 38 years old. For a > long time I would get the absent seizures but didn't really know what [quoted text clipped - 30 lines] > > Thank you and good luck to all! Hi,
Welcome to this support group.
Many have questioned the affect of aspartame on the brain and many have questioned the interaction of aspartame on medication. Like science, there is always room for questioning the statement. There have been studies showing proof aspartame can cause problems but there have been other studies that do not show any problems with aspartame. To get the right answer to your question in regards to your own specific body, I would suggest you leave the diet coke or any other soda or hot drink with aspartame out of your diet. It is probably a good idea anyway to get rid of the diet coke because it is not very healthy for your body in general.
Now back to your story, it is for a fact that stress, alcohol and lack of sleep are known triggers.Are you able to reduce the stress a bit? Stress can cause seizures. It happens that during the stressy period, the brain is at high pressure and it will not suffer from the stress trigger, but during lunch time when the whole body is in rest including the brain, then you can suffer again from epileptic seizure.
After having a seizure, it might be that you do not really like diet coke as you feel tired, weak, etc. Your stomach might not feel like absorbing diet code as it is too heavy for this. There might be other drinks like healthy juices that you do not like as well at that time. When a person is suffering from a fever, then he usually only drinks water or weak thea as his body cannot really deal with heavy drinks like soda's in general or juice, etc.
Best practice however is to get back to your MD, ask him to look at your blood levels during lunch time. It can be that your dilantin level is too low causing the seizure at that specific time?
Wishing you all the best of course.
Regards, Marco
Coach Barry - 06 Jan 2008 14:11 GMT > > Hello, I have had Epilsepsy for 7 years now, I am 38 years old. For a > > long time I would get the absent seizures but didn't really know what [quoted text clipped - 67 lines] > Regards, > Marco Marco, excellent suggestions. Here are a few others: Stress reductions: Bio feedback, Neurotherapy or Emotional Freedom Technique (EFT). Addiction: Try EFT to rid yourself of the diet coke addiction Seizures: Keep a food/drink log. Is there any correlation between the foods you eat and seizures withing about 48 hours? My daughter's big trigger was Red Dye #40, MSG, and Nitrates.
Presently, she is going on a year without us seeing a seizure since starting neurotherapy. Regards, Barry
There are books that talk about our bodies need for water. Most people are dehydrated and this definitely affects how you feel and could contribute to a seizure trigger.
Michelle - 07 Jan 2008 14:48 GMT > > "Michelle" <michelle_s...@aon.com> wrote in message > [quoted text clipped - 88 lines] > > - Show quoted text - Yes thank you Marco and Barry. You have been very helpful. Please excuse my ignorance, but can you tell me what EFT and Nuerotherapy are?
Thanks!
Rich Murray - 07 Jan 2008 17:25 GMT recent aspartame (methanol, formaldehyde, formic acid) toxicity research: Rich Murray 2008.01.07
Methyl alcohol ingestion as a model etiologic agent in multiple sclerosis, WC Monte, D Glanzman, C Johnston; Methanol induced neuropathology in the mammalian central nervous system, Woodrow C. Monte, Renee Ann Zeising, both reports 1989.12.04: Murray 2007.12.28 http://rmforall.blogspot.com/2007_12_01_archive.htm Friday, December 28 2007 http://groups.yahoo.com/group/aspartameNM/message/1499
[ These seminal 1989 studies by Prof. Woodrow C. Monte are also given in this previous post, along his two recent comprehensive reviews:
role of formaldehyde, made by body from methanol from foods and aspartame, in steep increases in fetal alcohol syndrome, autism, multiple sclerosis, lupus, teen suicide, breast cancer, Nutrition Prof. Woodrow C. Monte, retired, Arizona State U., two reviews, 190 references supplied, Fitness Life, New Zealand 2007 Nov, Dec: Murray 2007.12.26 http://rmforall.blogspot.com/2007_12_01_archive.htm Wednesday, December 26 2007 http://groups.yahoo.com/group/aspartameNM/message/1498 ]
Methyl alcohol ingestion as a model etiologic agent in multiple sclerosis, WC Monte, D Glanzman, C Johnston; Methanol induced neuropathology in the mammalian central nervous system, Woodrow C. Monte, Renee Ann Zeising, both reports 1989.12.04: Murray 2007.12.28 http://rmforall.blogspot.com/2007_12_01_archive.htm Friday, December 28 2007 http://groups.yahoo.com/group/aspartameNM/message/1499
[ These seminal 1989 studies by Prof. Woodrow C. Monte are also given in this previous post, along his two recent comprehensive reviews:
role of formaldehyde, made by body from methanol from foods and aspartame, in steep increases in fetal alcohol syndrome, autism, multiple sclerosis, lupus, teen suicide, breast cancer, Nutrition Prof. Woodrow C. Monte, retired, Arizona State U., two reviews, 190 references supplied, Fitness Life, New Zealand 2007 Nov, Dec: Murray 2007.12.26 http://rmforall.blogspot.com/2007_12_01_archive.htm Wednesday, December 26 2007 http://groups.yahoo.com/group/aspartameNM/message/1498 ]
folic acid prevents neurotoxicity from formic acid, made by body from methanol impurity in alcohol drinks [ also 11 % of aspartame ], BM Kapur, PL Carlen, DC Lehotay, AC Vandenbroucke, Y Adamchik, U. of Toronto, 2007 Dec., Alcoholism Cl. Exp. Res.: Murray 2007.11.27 http://rmforall.blogspot.com/2007_11_01_archive.htm Wednesday, November 27, 2007 http://groups.yahoo.com/group/aspartameNM/message/1495
"Of course, everyone chooses, as a natural priority, to enjoy peace, joy, and love by helping to find, quickly share, and positively act upon evidence about healthy and safe food, drink, and environment."
Rich Murray, MA Room For All rmforall@comcast.net 505-501-2298 1943 Otowi Road, Santa Fe, New Mexico 87505
http://RMForAll.blogspot.com new primary archive
http://groups.yahoo.com/group/aspartameNM/messages group with 115 members, 1,501 posts in a public archive
details on 6 epidemiological studies since 2004 on diet soda (mainly aspartame) correlations, as well as 14 other mainstream studies on aspartame toxicity since summer 2005: Murray 2007.11.27 http://rmforall.blogspot.com/2007_11_01_archive.htm Wednesday, November 14, 2007 http://groups.yahoo.com/group/aspartameNM/message/1490
Màck©® - 07 Jan 2008 23:39 GMT >recent aspartame (methanol, formaldehyde, formic acid) toxicity >research: Rich Murray 2008.01.07 nothing but nuttery and lies.
Rich Murray is a known scammer and liar and mad betty martini the aspartame troll shill.
BillyG - 08 Jan 2008 05:08 GMT Hi Michelle, 700 mg of Dilantin daily is a huge dose. I'm a 160 pound male and have been taking 450-500 mg Dilantin for the past 5 years that is considered large for someone of my size. I also take 1000 mg Keppra daily. Do you have blood tests regularly and are your blood serum levels for Dilantin staying within 10-20 (don't know what units) that is recognized as theraputic? I find when my levels get above 25 I start having problems remembering names and concentrating but some people's tolerance is higher than others. I find Diet Coke aggrevates my condition making seizures more likely than otherwise but unlike yours my seizures are caused by a brain tumor.
> Hello, I have had Epilsepsy for 7 years now, I am 38 years old. For a > long time I would get the absent seizures but didn't really know what [quoted text clipped - 30 lines] > > Thank you and good luck to all! Michelle - 08 Jan 2008 16:03 GMT > Hi Michelle, 700 mg of Dilantin daily is a huge dose. I'm a 160 > pound male and have been taking 450-500 mg Dilantin for the past 5 [quoted text clipped - 43 lines] > > - Show quoted text - Hello Billy, well I have been on 700mg's of Dilatin for a long time now. I started with a lower dose and kept increasing. The problem is that I have not been able to tolerate any other medicine's. I just tried Keppra, I loss 6 pounds in one month with that pill, everytime I ate I felt like throwing up so I didn't eat much. I don't want to loose weight. I am 5'5" and weigh 130. So I really don't know what to do. I feel like maybe if I changed my lifestyle I would feel much better. Such as drinking water, exercising, eating healthier. But I never find a Dr I can sit and talk to about these things. They all just rush you out of their Office and they have no answers. There is no real reason for my Epilepsy, they haven't found anything. Will you be ok with your tumor? Can it be removed?
BillyG - 10 Jan 2008 03:50 GMT Hi Michelle, my tumor is a slow growing glioma that at present is considered incurable so expectations are my seizures will continue to worsen until death that is expected to be anywhere from 6 months to 10 years. When I was first diagnosed I did a lot of research and discovered some people with otherwise normal appearing brains suffered from upwards to 100 seizures a day originating from the temporal lobe. Little did I know at that time that I would be come one of them strike the normal brain appearance. Fortunately I've been able to control the seizures to the point where I'm able to live independently and drive but for how much longer I don't know. If interested you can check out my Care Page at www.carepage.com with patient ID "BillsCarePage2008" to see my health history, images of my MRI, along with photos of myself during a triathlon I raced this past summer. Regarding 700mg I've read that chronic use of some drugs such as alcohol can greatly increase the metabolism of phenytoin making higher doses necessary. Basically anything that trains the liver to produce greater than normal enzymes for the removal of phenytoin could be responsible.
> > Hi Michelle, 700 mg of Dilantin daily is a huge dose. I'm a 160 > > pound male and have been taking 450-500 mg Dilantin for the past 5 [quoted text clipped - 58 lines] > > - Show quoted text - K I - 09 Jan 2008 02:20 GMT Hi Michelle, I just want to say Yes, that in our daily diets what we eat, drink and breathe can cause ones' szs as it does in my case. You can go to your library and get this book called "Brain Allergies" by Dr. William Philpot. I started by getting tested for allergies and have many, Water is very important in our daily lives. And also aspartme has scientific proof for causing szs and more. If you want many websites on other possible causes. just email me and will be glad to send them all to you. Most ppl are happy taking the meds, I was on them for my 1st 27yrs of life, before I took control and found my answers. Sincerely Kathy
BillyG - 10 Jan 2008 04:00 GMT > Hi Michelle, > I just want to say Yes, that in our daily diets what we eat, drink and [quoted text clipped - 9 lines] > Sincerely > Kathy Hi Kathy, I'd agree that adequate hydration and avoidance of aspartame foods may reduce seizures however I doubt their removal alone will result in the total elimination of seizures for most patients that suffer from them. During my life I embibed heavily in nitrites,cyclamates, and aspartame foods that were all accussed of promoting brain tumors and later developed one but can't jump to the conclusion that's what caused it. I also had several blunt force traumas to the area of the brain where my tumor originated from so think it's more likely that if not genetics. There's enough variance in seizure types that food abstanance may work for some fails for the larger population. For you the important thing is if something works then stick with it.
Michelle - 12 Jan 2008 04:08 GMT > Hi Michelle, > I just want to say Yes, that in our daily diets what we eat, drink and [quoted text clipped - 9 lines] > Sincerely > Kathy Hi Kathy, thank you for responding. You are right I do need to change my diet and checking to see if I have allergies is a good idea. I live on diet coke. It is all I drink all day, with the exception of a glass of chocolate milk in the morning. My diet needs to be worked on, and I definitely need to exercise and reduce my stress.
Thanks for responding.
Altan Loker (real name) - 12 Jan 2008 15:59 GMT > Hello, I have had Epilsepsy for 7 years now, I am 38 years old. For a > long time I would get the absent seizures but didn't really know what [quoted text clipped - 30 lines] > > Thank you and good luck to all! Epilepsy is caused by the imagined or real lack of sufficient love, respect, and care that occurred usually in childhood. Petit mal seizures serve to keep such events outside consciousness, and grand mal seizures totally prevent their recording in the memory.
I believe that the following three facts expose your problem: (a) you abstain from drinking water, (b) your mild seizures occur while you are eating and there are people around you, and (c) you always ask for water when they ask if you need anything. The integration of these facts with the above mentioned cause of epilepsy suggests the following etiology of your seizures:
In your childhood you believed that you have not received enough love, care and respect, and moreover, once or more times you were not given water when you asked for it, and you evaluated this again as not being loved and respected. Or, alternatively, you usually received too much love, care and respect, and consequently, when you were not given water when you needed it this made a traumatic effect on you. You are abstaining from drinking water (the above symptom "a") to mean that you were not insulted when you were not given water because you don't like water anyhow. Your seizures occur while you are eating and there are people around you (symptom "b"), because this is the time when the current events are likely to make you remember the old traumatic event, or events. You ask for water automatically (symptom "c"), because your unconscious is telling you through this symptom that your illness is caused by the fact that you were not given water in the past when you needed it and you felt much hurt.
Your illness started 7 years ago because, most probably, you found yourself at that time in a situation that was likely to make you relive the old traumatic experience, or experiences. The seizure served to keep such events outside your consciousness. The seizures continued after that incident because the repetition of the old traumatic events looked possible after that incident. This happens often after traumatic experiences. Such experiences can remain repressed for a long time, but they cause self-protective symptoms when their repetition looks possible.
If you can remember the repressed events that are causing your symptoms, you can evaluate them more rationally that you did earlier. This will make your symptoms unneeded, and they will vanish. One method of becoming conscious of the repressed events of your past is to question yourself as follows in bed before falling asleep: "What mistake am I making? How am I hurting myself? What am I doing wrong?" Your unconscious will answer these questions through dreams. I will interpret your dreams if you report them to me giving sufficient concrete details and indicating how you felt in each part of the dream. It is imported to report how you felt, because negative feelings identify problems, while positive feelings identify their solutions.
Good luck!
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