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Medical Forum / Diseases and Disorders / Epilepsy / January 2008

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Water and Epilepsy - I have a question - If anyone can help!

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Michelle - 06 Jan 2008 02:08 GMT
Hello, I have had Epilsepsy for 7 years now, I am 38 years old.  For a
long time I would get the absent seizures but didn't really know what
it was.  Eventually one day I had a full seizure and was hospitalized
and that was when I realized I had been having absent seizures for a
while.  I have had only one other full seizure since, which was a few
months ago.  It has been very hard for me to find a good Doctor that I
can talk to, that will listen to me and that can help me understand
what I should do.

Now here is my question.  I drink very little water,  if any.  I have
a little bit of an addication going on with diet coke.  I know, that
is bad for me.  I get the absent seizures often, I use to get more
than one a day.  But I take 700mg's of Dilantin and that has
controlled them somewhat.  I get about 3 a month now.  But when I get
the absent seizure's it usually happens while I am eating and there
are people around me.  While the seizure is occuring and the people
around me are freaking out, because they say I look really weird, they
ask if I need anything.  I always ask for water.  Can anyone tell me
why?  The easy answer is that subconsiously my body is asking for it
because I do not drink much, but does water have that affect on our
Brain?  I have tried asking Doctors this before and really have not
been successful in getting an answer.

We all know that this is a frustrating disease because, at least in my
case, we do not know what causes it.  I do eat right, I do not drink
alcohol and I get plenty of sleep.  I have been a little stressed at
work lately but I have always enjoyed working under pressure;
therefore, I do not think that can be the cause.

If anyone has any answers please let me know.  I would love to hear
any suggestions.  I live in Miami, if anyone knows of any Support
Groups or a good Doctor here please let me know.

Thank you and good luck to all!
Marco - 06 Jan 2008 09:17 GMT
> Hello, I have had Epilsepsy for 7 years now, I am 38 years old.  For a
> long time I would get the absent seizures but didn't really know what
[quoted text clipped - 30 lines]
>
> Thank you and good luck to all!

Hi,

Welcome to this support group.

Many have questioned the affect of aspartame on the brain and many have
questioned the interaction of aspartame on medication. Like science, there
is always room for questioning the statement. There have been studies
showing proof aspartame can cause problems but there have been other studies
that do not show any problems with aspartame. To get the right answer to
your question in regards to your own specific body, I would suggest you
leave the diet coke or any other soda or hot drink with aspartame out of
your diet. It is probably a good idea anyway to get rid of the diet coke
because it is not very healthy for your body in general.

Now back to your story, it is for a fact that stress, alcohol and lack of
sleep are known triggers.Are you able to reduce the stress a bit? Stress can
cause seizures. It happens that during the stressy period, the brain is at
high pressure and it will not suffer from the stress trigger, but during
lunch time when the whole body is in rest including the brain, then you can
suffer again from epileptic seizure.

After having a seizure, it might be that you do not really like diet coke as
you feel tired, weak, etc. Your stomach might not feel like absorbing diet
code as it is too heavy for this. There might be other drinks like healthy
juices that you do not like as well at that time. When a person is suffering
from a fever, then he usually only drinks water or weak thea as his body
cannot really deal with heavy drinks like soda's in general or juice, etc.

Best practice however is to get back to your MD, ask him to look at your
blood levels during lunch time. It can be that your dilantin level is too
low causing the seizure at that specific time?

Wishing you all the best of course.

Regards,
Marco
Coach Barry - 06 Jan 2008 14:11 GMT
> > Hello, I have had Epilsepsy for 7 years now, I am 38 years old.  For a
> > long time I would get the absent seizures but didn't really know what
[quoted text clipped - 67 lines]
> Regards,
> Marco

Marco, excellent suggestions.  Here are a few others:
Stress reductions:  Bio feedback, Neurotherapy or Emotional Freedom
Technique (EFT).
Addiction:  Try EFT to rid yourself of the diet coke addiction
Seizures:  Keep a food/drink log.  Is there any correlation between
the foods you eat and seizures withing about 48 hours?  My daughter's
big trigger was Red Dye #40, MSG, and Nitrates.

Presently, she is going on a year without us seeing a seizure since
starting neurotherapy.  Regards, Barry

There are books that talk about our bodies need for water.  Most
people are dehydrated and this definitely affects how you feel and
could contribute to a seizure trigger.
Michelle - 07 Jan 2008 14:48 GMT
> > "Michelle" <michelle_s...@aon.com> wrote in message
>
[quoted text clipped - 88 lines]
>
> - Show quoted text -

Yes thank you Marco and Barry.  You have been very helpful.  Please
excuse my ignorance, but can you tell me what EFT and Nuerotherapy
are?

Thanks!
Rich Murray - 07 Jan 2008 17:25 GMT
recent aspartame (methanol, formaldehyde, formic acid) toxicity
research: Rich Murray 2008.01.07

Methyl alcohol ingestion as a model etiologic agent in multiple
sclerosis, WC Monte, D Glanzman, C Johnston; Methanol induced
neuropathology in the mammalian central nervous system, Woodrow C.
Monte, Renee Ann Zeising, both reports 1989.12.04: Murray 2007.12.28
http://rmforall.blogspot.com/2007_12_01_archive.htm
Friday, December 28 2007
http://groups.yahoo.com/group/aspartameNM/message/1499

[ These seminal 1989 studies by Prof. Woodrow C. Monte are also given
in this previous post, along his two recent comprehensive reviews:

role of formaldehyde, made by body from methanol from foods and
aspartame, in steep increases in fetal alcohol syndrome, autism,
multiple sclerosis, lupus, teen suicide, breast cancer, Nutrition
Prof. Woodrow C. Monte, retired, Arizona State U., two reviews, 190
references supplied, Fitness Life, New Zealand 2007 Nov, Dec: Murray
2007.12.26
http://rmforall.blogspot.com/2007_12_01_archive.htm
Wednesday, December 26 2007
http://groups.yahoo.com/group/aspartameNM/message/1498 ]

Methyl alcohol ingestion as a model etiologic agent in multiple
sclerosis, WC Monte, D Glanzman, C Johnston; Methanol induced
neuropathology in the mammalian central nervous system, Woodrow C.
Monte, Renee Ann Zeising, both reports 1989.12.04: Murray 2007.12.28
http://rmforall.blogspot.com/2007_12_01_archive.htm
Friday, December 28 2007
http://groups.yahoo.com/group/aspartameNM/message/1499

[ These seminal 1989 studies by Prof. Woodrow C. Monte are also given
in this previous post, along his two recent comprehensive reviews:

role of formaldehyde, made by body from methanol from foods and
aspartame, in steep increases in fetal alcohol syndrome, autism,
multiple sclerosis, lupus, teen suicide, breast cancer, Nutrition
Prof. Woodrow C. Monte, retired, Arizona State U., two reviews, 190
references supplied, Fitness Life, New Zealand 2007 Nov, Dec: Murray
2007.12.26
http://rmforall.blogspot.com/2007_12_01_archive.htm
Wednesday, December 26 2007
http://groups.yahoo.com/group/aspartameNM/message/1498 ]

folic acid prevents neurotoxicity from formic acid, made by body from
methanol impurity in alcohol drinks [ also 11 % of aspartame ], BM
Kapur, PL Carlen, DC Lehotay, AC Vandenbroucke, Y Adamchik, U. of
Toronto, 2007 Dec., Alcoholism Cl. Exp. Res.: Murray 2007.11.27
http://rmforall.blogspot.com/2007_11_01_archive.htm
Wednesday, November 27, 2007
http://groups.yahoo.com/group/aspartameNM/message/1495

"Of course, everyone chooses, as a natural priority, to enjoy peace,
joy, and love by helping to find, quickly share, and positively act
upon evidence about healthy and safe food, drink, and environment."

Rich Murray, MA Room For All rmforall@comcast.net
505-501-2298 1943 Otowi Road, Santa Fe, New Mexico 87505

http://RMForAll.blogspot.com  new primary archive

http://groups.yahoo.com/group/aspartameNM/messages
group with 115 members, 1,501 posts in a public archive

details on 6 epidemiological studies since 2004 on diet soda (mainly
aspartame) correlations, as well as 14 other mainstream studies on
aspartame toxicity since summer 2005: Murray 2007.11.27
http://rmforall.blogspot.com/2007_11_01_archive.htm
Wednesday, November 14, 2007
http://groups.yahoo.com/group/aspartameNM/message/1490
Màck©® - 07 Jan 2008 23:39 GMT
>recent aspartame (methanol, formaldehyde, formic acid) toxicity
>research: Rich Murray 2008.01.07

nothing but nuttery and lies.

Rich Murray is a known scammer and liar and mad betty martini the
aspartame troll shill.
BillyG - 08 Jan 2008 05:08 GMT
Hi Michelle,  700 mg of Dilantin daily is a huge dose.  I'm a 160
pound male and have been taking 450-500 mg Dilantin for the past 5
years that is considered large for someone of my size.  I also take
1000 mg Keppra daily.  Do you have blood tests regularly and are your
blood serum levels for Dilantin staying within 10-20 (don't know what
units) that is recognized as theraputic?  I find when my levels get
above 25 I start having problems remembering names and concentrating
but some people's tolerance is higher than others.  I find Diet Coke
aggrevates my condition making seizures more likely than otherwise but
unlike yours my seizures are caused by a brain tumor.

> Hello, I have had Epilsepsy for 7 years now, I am 38 years old.  For a
> long time I would get the absent seizures but didn't really know what
[quoted text clipped - 30 lines]
>
> Thank you and good luck to all!
Michelle - 08 Jan 2008 16:03 GMT
> Hi Michelle,  700 mg of Dilantin daily is a huge dose.  I'm a 160
> pound male and have been taking 450-500 mg Dilantin for the past 5
[quoted text clipped - 43 lines]
>
> - Show quoted text -

Hello Billy, well I have been on 700mg's of Dilatin for a long time
now.  I started with a lower dose and kept increasing.  The problem is
that I have not been able to tolerate any other medicine's.  I just
tried Keppra, I loss 6 pounds in one month with that pill, everytime I
ate I felt like throwing up so I didn't eat much.  I don't want to
loose weight. I am 5'5" and weigh 130. So I really don't know what to
do.  I feel like maybe if I changed my lifestyle I would feel much
better.  Such as drinking water, exercising, eating healthier.  But I
never find a Dr I can sit and talk to about these things.  They all
just rush you out of their Office and they have no answers.  There is
no real reason for my Epilepsy, they haven't found anything.  Will you
be ok with your tumor?  Can it be removed?
BillyG - 10 Jan 2008 03:50 GMT
Hi Michelle, my tumor is a slow growing glioma that at present is
considered incurable so expectations are my seizures will continue to
worsen until death that is expected to be anywhere from 6 months to 10
years.  When I was first diagnosed I did a lot of research and
discovered some people with otherwise normal appearing brains suffered
from upwards to 100 seizures a day originating from the temporal
lobe.  Little did I know at that time that I would be come one of them
strike the normal brain appearance.  Fortunately I've been able to
control the seizures to the point where I'm able to live independently
and drive but for how much longer I don't know.  If interested you can
check out my Care Page at www.carepage.com with patient ID
"BillsCarePage2008" to see my health history, images of my MRI, along
with photos of myself during a triathlon I raced this past summer.
Regarding 700mg I've read that chronic use of some drugs such as
alcohol can greatly increase the metabolism of phenytoin making higher
doses necessary.  Basically anything that trains the liver to produce
greater than normal enzymes for the removal of phenytoin could be
responsible.

> > Hi Michelle,  700 mg of Dilantin daily is a huge dose.  I'm a 160
> > pound male and have been taking 450-500 mg Dilantin for the past 5
[quoted text clipped - 58 lines]
>
> - Show quoted text -
K I - 09 Jan 2008 02:20 GMT
Hi Michelle,
 I just want to say Yes, that in our daily diets what we eat, drink and
breathe can cause ones' szs as it does in my case.   You can go to your
library and get this book called "Brain Allergies" by Dr. William
Philpot. I started by getting tested for allergies and have many, Water
is very important in our daily lives. And also aspartme has scientific
proof for causing szs and more. If you want many websites on other
possible causes. just email me and will be glad to send them all to you.
Most ppl are happy taking the meds, I was on them for my 1st 27yrs of
life, before I took control and found my answers.
 
Sincerely
Kathy
BillyG - 10 Jan 2008 04:00 GMT
> Hi Michelle,
>   I just want to say Yes, that in our daily diets what we eat, drink and
[quoted text clipped - 9 lines]
> Sincerely
> Kathy

Hi Kathy, I'd agree that adequate hydration and avoidance of aspartame
foods may reduce seizures however I doubt their removal alone will
result in the total elimination of seizures for most patients that
suffer from them.  During my life I embibed heavily in
nitrites,cyclamates, and aspartame foods that were all accussed of
promoting brain tumors and later developed one but can't jump to the
conclusion that's what caused it.  I also had several blunt force
traumas to the area of the brain where my tumor originated from so
think it's more likely that if not genetics.  There's enough variance
in seizure types that food abstanance may work for some fails for the
larger population.  For you the important thing is if something works
then stick with it.
Michelle - 12 Jan 2008 04:08 GMT
> Hi Michelle,
>   I just want to say Yes, that in our daily diets what we eat, drink and
[quoted text clipped - 9 lines]
> Sincerely
> Kathy

Hi Kathy, thank you for responding.  You are right I do need to change
my diet and checking to see if I have allergies is a good idea.  I
live on diet coke.  It is all I drink all day, with the exception of a
glass of chocolate milk in the morning.  My diet needs to be worked
on, and I definitely need to exercise and reduce my stress.

Thanks for responding.
Altan Loker (real name) - 12 Jan 2008 15:59 GMT
> Hello, I have had Epilsepsy for 7 years now, I am 38 years old.  For a
> long time I would get the absent seizures but didn't really know what
[quoted text clipped - 30 lines]
>
> Thank you and good luck to all!

Epilepsy is caused by the imagined or real lack of sufficient love,
respect, and care that occurred usually in childhood. Petit mal
seizures serve to keep such events outside consciousness, and grand
mal seizures totally prevent their recording in the memory.

I believe that the following three facts expose your problem: (a) you
abstain from drinking water, (b) your mild seizures occur while you
are eating and there are people around you, and (c) you always ask for
water when they ask if you need anything. The integration of these
facts with the above mentioned cause of epilepsy suggests the
following etiology of your seizures:

In your childhood you believed that you have not received enough love,
care and respect, and moreover, once or more times you were not given
water when you asked for it, and you evaluated this again as not being
loved and respected. Or, alternatively, you usually received too much
love, care and respect, and consequently, when you were not given
water when you needed it this made a traumatic effect on you. You are
abstaining from drinking water (the above symptom "a") to mean that
you were not insulted when you were not given water because you don't
like water anyhow. Your seizures occur while you are eating and there
are people around you (symptom "b"), because this is the time when the
current events are likely to make you remember the old traumatic
event, or events. You ask for water automatically (symptom "c"),
because your unconscious is telling you through this symptom that your
illness is caused by the fact that you were not given water in the
past when you needed it and you felt much hurt.

Your illness started 7 years ago because, most probably, you found
yourself at that time in a situation that was likely to make you
relive the old traumatic experience, or experiences. The seizure
served to keep such events outside your consciousness. The seizures
continued after that incident because the repetition of the old
traumatic events looked possible after that incident. This happens
often after traumatic experiences. Such experiences can remain
repressed for a long time, but they cause self-protective symptoms
when their repetition looks possible.

If you can remember the repressed events that are causing your
symptoms, you can evaluate them more rationally that you did earlier.
This will make your symptoms unneeded, and they will vanish. One
method of becoming conscious of the repressed events of your past is
to question yourself as follows in bed before falling asleep: "What
mistake am I making? How am I hurting myself? What am I doing wrong?"
Your unconscious will answer these questions through dreams. I will
interpret your dreams if you report them to me giving sufficient
concrete details and indicating how you felt in each part of the
dream. It is imported to report how you felt, because negative
feelings identify problems, while positive feelings identify their
solutions.

Good luck!
 
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